Tinnitus

[Guest guest]

Definitely sounds like tinnitus to me!? It is very nerve wracking.? You might

want to try what the doctor suggests because the tinnitus itself depresses me

when I have a bad case?of it.???I am sorry you are having to deal with this on

top of your other problems.? I know when?you finally get your meds regulated?you

don't want to do anything to mess it up.? I hope you get better!

Vickie

Warrior, AL

Implanted 3/10/08

Activated 4/16/08

?

Tinnitus

Hi everyone,

For the past several weeks I have been hearing what sounds to me like many

people talking, but I can't understand the words. I don't know if this is

tinnitus or another one of my voices. I only hear this at night when my CIs are

off.

Lately I've also been hearing a very high pitched tone (only at night when my

CIs are off) that will not stop. It's painful to hear and gives me a headache.

My CI surgeon was going to put me on Prednisone to help my tinnitus, but I

refused due to the possible side effects of depression and mood swings.

However, I'm strongly thinking about changing my mind because I haven't been

able to get a decent night's sleep for several weeks now and I don't know how

much more of this I can take.

Bilateral Cochlear CIs

December 2004 and February 2006

Deafblind/Postlingual

[Guest guest]

Vickie,

Thanks! It's nice to know someone else understands how frustrating this is.

My bipolar meds are working great. According to my psychiatrist, my moods are

stabilizing nicely. That's another reason why I don't want to take Prednisone.

I'm going to give my CI surgeon's suggestion a try to see if it helps. I'm also

going to keep talk radio or smooth jazz on at a soft volume when I fall asleep

to find out if that makes a difference as well.

Bilateral Cochlear CIs

December 2004 and February 2006

Deafblind/Postlingual

[Guest guest]

,

I could do one better than using a white noise machine. I could simply tune a

radio in between stations to create the same effect. Best of all, it's free.

LOL!

Mona

[Guest guest]

I sure hope it will help you, .

Re: Tinnitus

> Vickie,

>

> Thanks! It's nice to know someone else understands how frustrating this

> is.

>

> My bipolar meds are working great. According to my psychiatrist, my moods

> are stabilizing nicely. That's another reason why I don't want to take

> Prednisone.

>

> I'm going to give my CI surgeon's suggestion a try to see if it helps. I'm

> also going to keep talk radio or smooth jazz on at a soft volume when I

> fall asleep to find out if that makes a difference as well.

>

>

> Bilateral Cochlear CIs

> December 2004 and February 2006

> Deafblind/Postlingual

>

>

[Guest guest]

Mona,

Well that is a white noise generator at its best. LOL You are one

smart lady!

*---* *---* *---* *---* *---*

" I'll be more enthusiastic about encouraging thinking outside the box when

there's evidence of any thinking going on inside it. "

--Terry Pratchett

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

[Guest guest]

Thanks . I'll let you know if it works tomorrow. <crossing fingers>

[Guest guest]

,

Do I get a mocha for that? LOL!

Mona

---- <rclark0276@...> wrote:

> Mona,

> Well that is a white noise generator at its best. LOL You are one

> smart lady!

[Guest guest]

You bet, Mona. I am trying to cut down the number of mochas I drink

but, its useless when you are around. LOL

*---* *---* *---* *---* *---*

How come Superman could stop bullets with his chest, but always

ducked when someone threw a gun at him?

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

[Guest guest]

,

Maybe we should switch to decaffeinated coffee? Nah! LOL!

Mona

[Guest guest]

Hi, , I'm sorry you are dealing with this on top of everything else.

I have this all the time. I also hear what sounds like someone pounding a

hammer in my attic. All of this is with the CI off. It's maddening, I know.

One thing you can try - silly as it seems, is to hum or sing. Some use a

meditation word. This, at least, is a little distracting, and is better

than the uncalled sounds. Hope this helps. Jackie

**************Access 350+ FREE radio stations anytime from anywhere on the

web. Get the Radio Toolbar!

(http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown00000003)

[Guest guest]

All my life my tinnitus was always just soft bells ringing, and even then it

only happened occasionally.  After I was implanted I had an episode of tinnitus

that sounded like jack hammers going off in my ear.  The first time that

happened I actually looked around to see if someone was doing some street work

somewhere.  LOL  Anyway, that did go away once I was activated, but NOW, lately,

I've been having someone send messages in morse code in my ear using the old

fashion...oh shoot, I can't remember what it is called...you know, where they

click out the messages on this little machine.  Oh dear....my age is showing. 

  Of course, I only hear it when it is quiet like when I want to go to sleep. 

But it isn't loud enough to bother me.....yet.

 

________________________________

From: " Flashwun@... " <Flashwun@...>

Sent: Thursday, April 16, 2009 12:31:37 PM

Subject: Re: Tinnitus

Hi, , I'm sorry you are dealing with this on top of everything else.

I have this all the time. I also hear what sounds like someone pounding a

hammer in my attic. All of this is with the CI off. It's maddening, I know.

One thing you can try - silly as it seems, is to hum or sing. Some use a

meditation word. This, at least, is a little distracting, and is better

than the uncalled sounds. Hope this helps. Jackie

************ **Access 350+ FREE radio stations anytime from anywhere on the

web. Get the Radio Toolbar!

(http://toolbar. aol.com/aolradio /download. html?ncid= emlcntusdown0000 0003)

[Guest guest]

Jackie,

That's a good idea! I'll have to give that a try to see how well it works.

By the way, another sound I hear is that of a car horn honking repeatedly.

However, I can't tell if this is tinnitus or not since I always hear it whenever

I'm manic (due to my bipolar) whether my CIs are on or off.

> Hi, , I'm sorry you are dealing with this on top of everything else.

> I have this all the time. I also hear what sounds like someone pounding a

> hammer in my attic. All of this is with the CI off. It's maddening, I know.

> One thing you can try - silly as it seems, is to hum or sing. Some use a

> meditation word. This, at least, is a little distracting, and is better

> than the uncalled sounds. Hope this helps. Jackie

[Guest guest]

I wanted to add that my psychiatrist and therapist both think that the car horn

I hear is another auditory hallucination of mine. I don't know if it is or not

since I hear it whenever my CIs are on or off. Hmmm.

Bilateral Cochlear CIs

December 2004 and February 2006

Deafblind/Postlingual

[Guest guest]

Is it the telegraph, dear ? I am surprised you have one. Sowwy,

just being punny.

What I have is pretty much the same, but I get variations that come and

go, nothing major.

*---* *---* *---* *---* *---*

I work hard because millions on welfare depend on me!

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

[Guest guest]

Oh, punny you!!  Yes, I thought of it after I hit send.  I was going " tele

something, telephone, no, telegram, no, etc. "   Folks, the telegraph was before

my time so I never used it, but my ear(brain?) sure thinks it sounds like it -

or maybe you could say it sounds like a typewriter.  Oh, there we go, I'm typing

emails in my brain when I'm trying to go to sleep..  That must be it!!  LOL

At least the variations keeps us from getting bored, right?  So what's next????

 

________________________________

From: <rclark0276@...>

Sent: Thursday, April 16, 2009 2:58:17 PM

Subject: Re: Re: Tinnitus

Is it the telegraph, dear ? I am surprised you have one. Sowwy,

just being punny.

What I have is pretty much the same, but I get variations that come and

go, nothing major.

*---* *---* *---* *---* *---*

I work hard because millions on welfare depend on me!

& Dreamer Doll ke7nwn

E-mail-

rclark0276charter (DOT) net

Home Page-

http://webpages. charter.net/ dog_guide/

[Guest guest]

No , morse code is still alive and well these days. Turn on a ham

radio! But then again, yeah, its a typewriter.

Whats next.... Whats that rumbling sound? Uhhhhhhh, a volcano? Which

one is it now?!

*---* *---* *---* *---* *---*

Failure Is Not An Option.

It's bundled with your software.

--Anonymous

& Dreamer Doll ke7nwn

E-mail-

rclark0276@...

Home Page-

http://webpages.charter.net/dog_guide/

[Guest guest]

- I guess some of your sounds could be a result of your bipolar, but I

have to tell you..I hear so many different sounds all the time and I

haven't been diagnosed with auditory hallucination. (Although my husband would

disagree, as I often tell him I absolutely heard him say ok to my getting a 5

carat diamond! LOL) I do have depression, but it's been controlled for @

15 years and I'm (questionably!) stable. I get a band playing, hammers

pounding, high frequency beeps as though I'm having a hearing test, and other

miscellaneous sounds. I've always had it. So it's hard to say WHAT your

tinnitus is a result of. Whatever the cause - it's so darned annoying! Hang in

there! Jackie <smiles>

**************Join ChristianMingle.com® FREE! Meet Christian Singles in

your area. Start now!

(http://pr.atwola.com/promoclk/100126575x1221246370x1201421635/aol?redir=http://\

www.christianmingle.com/campaign.html?cat=adbuy & src=pl

atforma & adid=aolfooter & newurl=reg_path.html)

[Guest guest]

I had to laugh Jackie, reading your email.  Then I remembered what happened to

me last night.  I had put my dinner in the microwave to reheat, and when the

timer went off I got my meal out of the microwave and sat in the family room to

eat.  After a few minutes I heard this beep, but by the time I tried to tune

into the sound to see what it was, it stopped.  The next time it happened a few

minutes later, I thought, " oh, a new tinnitus sound, lovely " .  Then a few

minutes later it started again, and it happened to be between sounds on the

t.v., and I realized, oops, its the timer on the stove!!  About that time my

husband says to me, , you forgot to turn off the timer.  He was looking at

me kind of funny, like,  " do you have your ears in or what? "

What makes me sad is that my husband is now experiencing tinnitus.  He tells me

that it started when he and our son went shooting and they forgot their ear

plugs.  The ringing started after they shot this one gun, and so he knows that

is what caused it.  He tells me that it is getting worse, happening more often

now.  I think he should have his hearing tested to see if he should be

considering a hearing aid.  I know it won't stop the tinnitus, but at least if

he has a hearing loss (which I am starting to think he does because he is asking

" what? " a lot more often), then the HA will help mask the sound during the day. 

Oy vey, another hearing aid expense. 

 

________________________________

From: " Flashwun@... " <Flashwun@...>

Sent: Friday, April 17, 2009 10:59:58 AM

Subject: Re: Tinnitus

- I guess some of your sounds could be a result of your bipolar, but I

have to tell you..I hear so many different sounds all the time and I

haven't been diagnosed with auditory hallucination. (Although my husband would

disagree, as I often tell him I absolutely heard him say ok to my getting a 5

carat diamond! LOL) I do have depression, but it's been controlled for @

15 years and I'm (questionably! ) stable. I get a band playing, hammers

pounding, high frequency beeps as though I'm having a hearing test, and other

miscellaneous sounds. I've always had it. So it's hard to say WHAT your

tinnitus is a result of. Whatever the cause - it's so darned annoying! Hang in

there! Jackie <smiles>

************ **Join ChristianMingle. com® FREE! Meet Christian Singles in

your area. Start now!

(http://pr.atwola.. com/promoclk/ 100126575x122124 6370x1201421635/ aol?redir=

http://www. christianmingle. com/campaign. html?cat= adbuy & src= pl

atforma & adid= aolfooter & newurl=reg_ path.html)

[Guest guest]

Jackie,

You're exactly right about how annoying it is. The only consolation I have is

that my tinnitus decreased from hearing 8 sounds to 4. However, each of them do

a number on my patience. At least when I hear my " regular " voices, they are

understandable.

[Guest guest]

When I started hearing the sound of many people talking and not understanding

the words, I panicked because I thought I was having another manic/psychotic

episode which is a symptom of my bipolar. Needless to say, I was relieved to

find out that this was not the case. I take an antipsychotic for my voices, so

what didn't make sense to me was how it helped all of my other voices except for

this one.

[Guest guest]

Hey, - hopefully your hubby's tinnitis is temporary. Sometimes it

lingers awhile, then goes away. Good luck in getting him to get a hearing

test - men being men, ya' know? I mean - if he heard the timer and you weren't

moving, why didn't HE turn it off???LOL I thought you were going to write

that the beeping was your smoke alarm - that happens to me once in awhile,

too. The timer on the stove is constant, but the microwave is intermittant -

so I always check those things first. Believe me, the hearing aid expense

is worth you not having to repeat yourself nine hundred times a day. It was

bad enough with us - with men - they aren't listening the first 3 times to

begin with! LOL (ducking from the men here!). Oy Vey is right! Jackie

)

**************Join ChristianMingle.com® FREE! Meet Christian Singles in

your area. Start now!

(http://pr.atwola.com/promoclk/100126575x1221246370x1201421635/aol?redir=http://\

www.christianmingle.com/campaign.html?cat=adbuy & src=pl

atforma & adid=aolfooter & newurl=reg_path.html)

[Guest guest]

Jackie,

A hearing aid won't make a man listen to a woman any better than if he didn't

have one in the first place. LOL!

[Guest guest]

Hi

I was activated July 15th, and after several mappings, have a jet engine roaring

tinnitus when processor is off, but also hear the same sound or whirring with

processor on. This is constant and bothersome.

Many say it goes away. Is this a common experience for many of you? I am

pre-lingual and my hearing loss was high frequencies, so it very overwhelming

now.

Thanks for feedbacks

Carolyn

In a message dated 09/24/09 16:13:35 Eastern Daylight Time, jvtomlin@...

writes:

I've had some different tinnitus in my implanted ear that I didn't have

before but it comes and goes. Mostly goes. However, your description

reminded me that on occasion, when lying down to sleep I get a really loud

bang, repeated a few times at intervals, sometimes lessening with the

repeats. I noticed that when I turn over after awhile it sometimes starts

anew. It isn't a problem, though, because it's short lived.

Virg

> I did have very loud jet-engine-roaring tinnitus in the implanted ear but

> that has already subsided to a more tolerable level.

[Guest guest]

Carolyn - there could be two things going on here.  Tinnitus, and hearing the

fan noise from a air conditioner.  I experienced tinnitus after my surgery that

was different than any other I had.  It sounded like someone was using a

jackhammer close by, and it was very loud.  But after awhile it went away.  This

would explain the sound when the processor is off.

The fan noise was the one thing I heard when I was activated, and the

audiologist explained that I would be hearing the noise.  I'm sitting in my

office right now, and I'm hearing the noise as well, now that I'm thinking of

it.  But, after awhile, the noise just sort of moves to the background and you

don't really notice it...and it doesn't drown out voices or other things you do

want to listen to.  I equate it to what normal hearing people do...they are able

to ignore the sounds they don't want to hear, and listen to the sounds they do

want to hear.  With the CI, we are able to do more of that.

I too had high frequency hearing loss since early childhood in my CI ear.  You

are still pretty young in your CI journey.  It should go away after awhile.  In

particular, additional mappings, and learning more about the sensitivity and

volume on your CI will help you experiement with what works for you.

Best of luck!!

 

________________________________

From: Carolyn1002 <carolyn1002@...>

Sent: Thursday, September 24, 2009 3:31:38 PM

Subject: Re: tinnitus

 

Hi

I was activated July 15th, and after several mappings, have a jet engine roaring

tinnitus when processor is off, but also hear the same sound or whirring with

processor on. This is constant and bothersome.

Many say it goes away. Is this a common experience for many of you? I am

pre-lingual and my hearing loss was high frequencies, so it very overwhelming

now.

Thanks for feedbacks

Carolyn

In a message dated 09/24/09 16:13:35 Eastern Daylight Time, jvtomlinwbcable (DOT)

net writes:

I've had some different tinnitus in my implanted ear that I didn't have

before but it comes and goes. Mostly goes. However, your description

reminded me that on occasion, when lying down to sleep I get a really loud

bang, repeated a few times at intervals, sometimes lessening with the

repeats. I noticed that when I turn over after awhile it sometimes starts

anew. It isn't a problem, though, because it's short lived.

Virg

> I did have very loud jet-engine-roaring tinnitus in the implanted ear but

> that has already subsided to a more tolerable level.

[Guest guest]

Maybe someone is trying to get into your head. Knocking you upside the

head and all that, Virg.

I've had some different tinnitus in my implanted ear that I didn't have

before but it comes and goes. Mostly goes. However, your description

reminded me that on occasion, when lying down to sleep I get a really

loud

bang, repeated a few times at intervals, sometimes lessening with the

repeats. I noticed that when I turn over after awhile it sometimes starts

anew. It isn't a problem, though, because it's short lived.

Virg

____________________________________________________________

Cancer Treatment

Click now for great information on the latest in cancer treatment!

http://thirdpartyoffers.juno.com/TGL2141/c?cp=C5azEoV6_CKAJB6f6ypiZAAAJ1CAYQG2fn\

ZWBLacCwlpBoaTAAYAAAAAAAAAAAAAAAAAAAD6AAAAAAAAAAAAAAAAAAAYSQAAAAA=