Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Tammy, my name is iel. My son Noah turns 3 in March and was born with profound hearing loss in both ears. He was activated last January and is doing well with therapy. My wife and I have researched and discussed at length the option of having a second implant. Our initial thought was to wait until he was older for several reasons including advances in technology and simplicity. Most of the research we have found indicates the earlier the activation the better the response. This has to do with the development of the brain and mental elasticity of children. We have decided to have Noah implanted in his other ear as soon as possible. Noah has no residual hearing so this was an easy decision. If your daughter has some hearing you may consider a hearing aid in that ear. There are some hybrid devices being developed, and there is research into the efficacy of using both an implant and hearing aid simultaneously. The key is to make a decision while her brain is still malleable and developing. Happy New Year! Nat > > Hello everyone, I just found this site today and am very excited to > talk with other CI users. I have a 6 year old daughter who has had her > implant for 2.5 years now and is doing very well on her journey. She > has been in AVT therapy for about 3 years, she started before she was > implanted. Anyway, we are struggling with the decision to have her > other ear implanted. The reason we are struggling with this decision > is because she has some (very little) hearing in her ear that is not > implanted and we are wondering do we take that away and implant that > ear or not. I have often said I will wait until she can make that > decision for herself but will that be waiting to long. Any advice > would be greatly appreciated. > Thank You All So Much! > Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 From my adult standpoint........ I have very little hearing left in my un-implanted ear. BUT I can still hear loud noises and know when something is going on around me when I have my implant off. For that reason only, I have not pursued bi-lateral implants. tanlexmhcs <smith6078@...> wrote: Hello everyone, I just found this site today and am very excited to talk with other CI users. I have a 6 year old daughter who has had her implant for 2.5 years now and is doing very well on her journey. She has been in AVT therapy for about 3 years, she started before she was implanted. Anyway, we are struggling with the decision to have her other ear implanted. The reason we are struggling with this decision is because she has some (very little) hearing in her ear that is not implanted and we are wondering do we take that away and implant that ear or not. I have often said I will wait until she can make that decision for herself but will that be waiting to long. Any advice would be greatly appreciated. Thank You All So Much! Tammy --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Judy, Nice to meet someone who sounds just like me. That is the very reason I do not seek bi-lateral either. Nina Re: bi-lateral struggle > From my adult standpoint........ I have very little hearing left in my > un-implanted ear. BUT I can still hear loud noises and know when something > is going on around me when I have my implant off. For that reason only, I > have not pursued bi-lateral implants. > > tanlexmhcs <smith6078@...> wrote: Hello everyone, I > just found this site today and am very excited to > talk with other CI users. I have a 6 year old daughter who has had her > implant for 2.5 years now and is doing very well on her journey. She > has been in AVT therapy for about 3 years, she started before she was > implanted. Anyway, we are struggling with the decision to have her > other ear implanted. The reason we are struggling with this decision > is because she has some (very little) hearing in her ear that is not > implanted and we are wondering do we take that away and implant that > ear or not. I have often said I will wait until she can make that > decision for herself but will that be waiting to long. Any advice > would be greatly appreciated. > Thank You All So Much! > Tammy > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 That little bit of hearing helped a lot when I had a dead rechargable battery and the replacement was dead also & I was at work! It gave me a new appreciation working & driving home how well my CI works and also how at least I had a little hearing left to hear crashes! Nina <cipalm@...> wrote: Judy, Nice to meet someone who sounds just like me. That is the very reason I do not seek bi-lateral either. Nina Re: bi-lateral struggle > From my adult standpoint........ I have very little hearing left in my > un-implanted ear. BUT I can still hear loud noises and know when something > is going on around me when I have my implant off. For that reason only, I > have not pursued bi-lateral implants. > > tanlexmhcs <smith6078@...> wrote: Hello everyone, I > just found this site today and am very excited to > talk with other CI users. I have a 6 year old daughter who has had her > implant for 2.5 years now and is doing very well on her journey. She > has been in AVT therapy for about 3 years, she started before she was > implanted. Anyway, we are struggling with the decision to have her > other ear implanted. The reason we are struggling with this decision > is because she has some (very little) hearing in her ear that is not > implanted and we are wondering do we take that away and implant that > ear or not. I have often said I will wait until she can make that > decision for herself but will that be waiting to long. Any advice > would be greatly appreciated. > Thank You All So Much! > Tammy > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 I agree with you Judy. I also like the fact that I can hear the running hitting me when I shower. As much as I'd love to be bi-lateral, I can't give up what little I have. Even when I'm swimming, it's nice to hear the noise, though you might now know what it is, and definitely can't tell what people are saying, it's just still nice. Nina Re: bi-lateral struggle > >> From my adult standpoint........ I have very little hearing left in my >> un-implanted ear. BUT I can still hear loud noises and know when >> something >> is going on around me when I have my implant off. For that reason only, I >> have not pursued bi-lateral implants. >> >> tanlexmhcs <smith6078@...> wrote: Hello everyone, I >> just found this site today and am very excited to >> talk with other CI users. I have a 6 year old daughter who has had her >> implant for 2.5 years now and is doing very well on her journey. She >> has been in AVT therapy for about 3 years, she started before she was >> implanted. Anyway, we are struggling with the decision to have her >> other ear implanted. The reason we are struggling with this decision >> is because she has some (very little) hearing in her ear that is not >> implanted and we are wondering do we take that away and implant that >> ear or not. I have often said I will wait until she can make that >> decision for herself but will that be waiting to long. Any advice >> would be greatly appreciated. >> Thank You All So Much! >> Tammy >> >> >> >> >> >> >> --------------------------------- >> Never miss a thing. Make your homepage. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 --Thank you all for your imput that is exactly the reason we are so hesitant about implanting Kaylie's left ear, I just hate that I have to make that kind of decision for her. We go swimming a lot and when she doesn't have her implant on she can here loud noises or my husband call her name and how do I take that away from her. Still struggling! Tammy In , " Nina " <cipalm@...> wrote: > > I agree with you Judy. I also like the fact that I can hear the running > hitting me when I shower. As much as I'd love to be bi-lateral, I can't > give up what little I have. Even when I'm swimming, it's nice to hear the > noise, though you might now know what it is, and definitely can't tell what > people are saying, it's just still nice. > > Nina > Re: bi-lateral struggle > > > >> From my adult standpoint........ I have very little hearing left in my > >> un-implanted ear. BUT I can still hear loud noises and know when > >> something > >> is going on around me when I have my implant off. For that reason only, I > >> have not pursued bi-lateral implants. > >> > >> tanlexmhcs <smith6078@...> wrote: Hello everyone, I > >> just found this site today and am very excited to > >> talk with other CI users. I have a 6 year old daughter who has had her > >> implant for 2.5 years now and is doing very well on her journey. She > >> has been in AVT therapy for about 3 years, she started before she was > >> implanted. Anyway, we are struggling with the decision to have her > >> other ear implanted. The reason we are struggling with this decision > >> is because she has some (very little) hearing in her ear that is not > >> implanted and we are wondering do we take that away and implant that > >> ear or not. I have often said I will wait until she can make that > >> decision for herself but will that be waiting to long. Any advice > >> would be greatly appreciated. > >> Thank You All So Much! > >> Tammy > >> > >> > >> > >> > >> > >> > >> --------------------------------- > >> Never miss a thing. Make your homepage. > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Tammy, That would be a very difficult decision to make for your child. How old did you say she was, I'm sorry I've forgotten. Nina Re: bi-lateral struggle >> > >> >> From my adult standpoint........ I have very little hearing left > in my >> >> un-implanted ear. BUT I can still hear loud noises and know when >> >> something >> >> is going on around me when I have my implant off. For that > reason only, I >> >> have not pursued bi-lateral implants. >> >> >> >> tanlexmhcs <smith6078@...> wrote: Hello everyone, I >> >> just found this site today and am very excited to >> >> talk with other CI users. I have a 6 year old daughter who has > had her >> >> implant for 2.5 years now and is doing very well on her journey. > She >> >> has been in AVT therapy for about 3 years, she started before > she was >> >> implanted. Anyway, we are struggling with the decision to have > her >> >> other ear implanted. The reason we are struggling with this > decision >> >> is because she has some (very little) hearing in her ear that is > not >> >> implanted and we are wondering do we take that away and implant > that >> >> ear or not. I have often said I will wait until she can make that >> >> decision for herself but will that be waiting to long. Any advice >> >> would be greatly appreciated. >> >> Thank You All So Much! >> >> Tammy >> >> >> >> >> >> >> >> >> >> >> >> >> >> --------------------------------- >> >> Never miss a thing. Make your homepage. >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Hi Nina, She turned 6 in September. Thanks! Tammy --------- Re: bi-lateral struggle >> > >> >> From my adult standpoint........ I have very little hearing left > in my >> >> un-implanted ear. BUT I can still hear loud noises and know when >> >> something >> >> is going on around me when I have my implant off. For that > reason only, I >> >> have not pursued bi-lateral implants. >> >> >> >> tanlexmhcs <smith6078@...> wrote: Hello everyone, I >> >> just found this site today and am very excited to >> >> talk with other CI users. I have a 6 year old daughter who has > had her >> >> implant for 2.5 years now and is doing very well on her journey. > She >> >> has been in AVT therapy for about 3 years, she started before > she was >> >> implanted. Anyway, we are struggling with the decision to have > her >> >> other ear implanted. The reason we are struggling with this > decision >> >> is because she has some (very little) hearing in her ear that is > not >> >> implanted and we are wondering do we take that away and implant > that >> >> ear or not. I have often said I will wait until she can make that >> >> decision for herself but will that be waiting to long. Any advice >> >> would be greatly appreciated. >> >> Thank You All So Much! >> >> Tammy >> >> >> >> >> >> >> >> >> >> >> >> >> >> --------------------------------- >> >> Never miss a thing. Make your homepage. >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Tammy, Gosh she is young. I'll have you and your family in my prayers. I know that you'll make the right decision for her, she's so lucky. Nina Re: bi-lateral struggle >>> > >>> >> From my adult standpoint........ I have very little hearing left >> in my >>> >> un-implanted ear. BUT I can still hear loud noises and know when >>> >> something >>> >> is going on around me when I have my implant off. For that >> reason only, I >>> >> have not pursued bi-lateral implants. >>> >> >>> >> tanlexmhcs <smith6078@...> wrote: Hello everyone, I >>> >> just found this site today and am very excited to >>> >> talk with other CI users. I have a 6 year old daughter who has >> had her >>> >> implant for 2.5 years now and is doing very well on her journey. >> She >>> >> has been in AVT therapy for about 3 years, she started before >> she was >>> >> implanted. Anyway, we are struggling with the decision to have >> her >>> >> other ear implanted. The reason we are struggling with this >> decision >>> >> is because she has some (very little) hearing in her ear that is >> not >>> >> implanted and we are wondering do we take that away and implant >> that >>> >> ear or not. I have often said I will wait until she can make that >>> >> decision for herself but will that be waiting to long. Any advice >>> >> would be greatly appreciated. >>> >> Thank You All So Much! >>> >> Tammy >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> >>> >> --------------------------------- >>> >> Never miss a thing. Make your homepage. >>> >> >>> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 I know that I am unusual, but I had a great surgeon who managed to preserve all the remaining hearing in my implanted ear (wasn't a lot). I can hear mostly bass range noises. I have gained so much from the implant. I am even considering going bilateral even though I have only been activated 2 weeks. I had said I would wait for technology to improve, new breakthroughs, etc. I haven't even looked into whether insurance would pay for a second implant, and I probably haven't received all the bills for my first one yet. LOL However, it is nice to dream about how good hearing could be if I had 2 implants like the one I have now. Making the decision for a child would be a tough one. I wish you the best. Benavides Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Thank You and best of luck to you! Tammy -------------- Original message from " Benavides " <nbenavides@...>: -------------- I know that I am unusual, but I had a great surgeon who managed to preserve all the remaining hearing in my implanted ear (wasn't a lot). I can hear mostly bass range noises. I have gained so much from the implant. I am even considering going bilateral even though I have only been activated 2 weeks. I had said I would wait for technology to improve, new breakthroughs, etc. I haven't even looked into whether insurance would pay for a second implant, and I probably haven't received all the bills for my first one yet. LOL However, it is nice to dream about how good hearing could be if I had 2 implants like the one I have now. Making the decision for a child would be a tough one. I wish you the best. Benavides Quote Link to comment Share on other sites More sharing options...
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