Re: Pam Re; pain meds...Iggy

[Guest guest]

Iggy, girl, you are just like me. We sit there quietly while the

doctor talks down to us and treats us like we're either really stupid

or we're faking it. WHY DO WE DO THAT? I get real bold on here when

I'm typing and I say " I would walk in there and demand blah blah

blah... " but most of the time when it comes down to it I don't. I

try to passively ask nicely like I'm ashamed or something. I wish we

could somehow go with each other to these appts, ya know? Then if we

didn't have the nerve to say what we think, the person with us

would. I tend to be more bold when I'm defending someone else - much

more than for myself. It's weird, but that's how I am. I just made

an appt with a new rheummy in Richmond, VA an hour south of where I

live. There are only 3 in the area where I live. The one that

dumped me, her husband, and a doctor down the hall from them! None

of them participate with BC/BS (believe it or not). I found one that

participates but other than that I know nothing about him. It stinks

that we can't know ahead of time what kind of doctor they are. We

are spending our money - we are paying them, right? I need to get

fired up right before my appt so that I will say what I need to and

not back down if he ends up being a jerk. I'm praying for you

now...it's 5:00 eastern - I don't remember what time zone you're in.

By the way, what dose of oxycontin are you on? Is it helping? Do

you have to take any immediate release pain meds during the day?

Pam

--- In , " iggyangel7 " <Iggys_girl@m...>

wrote:

> HI Pam, Im sorry to hear you still have pain. It will take awhile,

> Lord knows we didnt get sick overnight, it takes time for the body

to

> heal. As far as the Doctor thing I am going thru the SAME thing,

my

> Doc said, " As soon as the explants are out, we are taking you off

of

> everything " So she will wean off the oxy.... She treats me like a

> piece of dirt! It is such a common story. I have to go to her

> today, and shell look down at me, and not even talk about anything

> except, " getting off the pills " that is fine w/me, but she does

not

> know when my pain is under control. So I will probably tell her

Ive

> had enough and tell her I want 30 days to find another doc, I will

> not be treated like this. I know I should be quiet and get my

meds,

> but Im tired of this.... so today at 5pm shes gonna get an

> earful!!!! wish me luck! Pam, I pray for you and your pain, you

> will be so much better soon!!! I know it, from these other stories

> almost all women improve some, and reverse this crazy sickness....

> My prayers and thoughts are w/you, and I pray that you find a doc

> that will respect your pain... Blessings always, Iggy

[Guest guest]

I agree about the fungal thing - I asked the ENT and he stated that he did not

find any mold but I am sure he didn't do a culture to see for sure. I have been

on antibiotics for 7 months straight now and am getting immune to them all i

think.

Oh well - as our stories go... thanks for the support

love shari

[Guest guest]

-pam

I feel badly that you are feeling so much worse. I hope that will

turn around soon. Can you identify where the pain is coming from?

Is it widespread? Is it muscular? Different types of pain may have

different management techniques. Can you feel me in a little on the

pain issues and perhaps I can think of something non prescription

that may be of some help too. Do you have fms? Other diagnosed

conditions?

Again, lately I am really impressed with the studies that Garden of

Life has done on their products. FYI seems to help with pain, as

well as RM-10. Also immune modulators like sterols. Someone on

another group recommended New Roots sterol supplement. She felt it

worked much better than moducare. Also I have heard that massive

doses of vitamin C help and it works for me. Also trigger point

therapy. but again, I don't know what type of pain you have. Can

you be more specific. Thanks and I will keep you in my prayers

kathy

-- In , " Pam " <nannapam37@y...> wrote:

> Iggy, I went to my family doctor today because the pain has gotten

so

> much worse and so has my sleep. He looked at me and said " what do

> you want me to do? " I told him I needed something stronger for

the

> pain and something to help me sleep. He said " well I'm sorry, but

I

> can't give you anything - you'll have to go back to the

> Rheumatologist " (the one that dumped me). He said it was like

asking

> him to take out my appendix! He's not qualified to prescribe pain

> meds for chronic pain. I told him I wasn't going back to the

rheummy

> witch and that I couldn't get in to the new one until February

20th

> and I just needed something to get me through until then. He was

> such an arrogant $##$#!!! Now I don't know what to do. One thing

> for sure, I will not go back there! I hope your appt goes

better.

>

> Pam

>

>

> > > > HI Pam, Im sorry to hear you still have pain. It will take

> > awhile,

> > > > Lord knows we didnt get sick overnight, it takes time for

the

> > body

> > > to

> > > > heal. As far as the Doctor thing I am going thru the SAME

> thing,

> > > my

> > > > Doc said, " As soon as the explants are out, we are taking

you

> off

> > > of

> > > > everything " So she will wean off the oxy.... She treats me

> like

> > a

> > > > piece of dirt! It is such a common story. I have to go to

her

> > > > today, and shell look down at me, and not even talk about

> > anything

> > > > except, " getting off the pills " that is fine w/me, but she

> does

> > > not

> > > > know when my pain is under control. So I will probably tell

> her

> > > Ive

> > > > had enough and tell her I want 30 days to find another doc,

I

> > will

> > > > not be treated like this. I know I should be quiet and get

my

> > > meds,

> > > > but Im tired of this.... so today at 5pm shes gonna get an

> > > > earful!!!! wish me luck! Pam, I pray for you and your

pain,

> you

> > > > will be so much better soon!!! I know it, from these other

> > stories

> > > > almost all women improve some, and reverse this crazy

> > sickness....

> > > > My prayers and thoughts are w/you, and I pray that you find

a

> doc

> > > > that will respect your pain... Blessings always, Iggy

[Guest guest]

-Dear Shari

Are you doing any detoxing or taking any supplements. It sounds

like your immune system is really weak right now. I would recommend

taking some immune support such as colostrum. Also D'lenolate would

be good for getting sinus problems under control. People with

systemic candida have huge sinus problems. Oil of oregano might be

good too. It sounds like you need this type of support plus extra

nutrients in your diet. Garden of Life ( I am starting to sound

like I own stock in them) has a great new product called Living

Multi. It tries to cover all the bases for nutrition plus immune

support. It is all organic and based on whole foods. It sounds

like a superior product. Better yet, Jordin Rubin, the owner is

undergoing controlled studies on this product. He is willing to

take the risk and put his money where his mouth is. I have ordered

the living multi and will let this group know how I like it. I also

use their Perfect Food and it is fantastic. I am probably going to

get their FYI and RM 10 too, but I herx so much I want to start out

slow. Good luck with your problems. You are in my prayers

kathy

-- In , halvey70@a... wrote:

> Hi thre - shari here. It has been a while since I have been on

line as I have had a ton of health issues lately - 2 sinus surgeries

since 11/18 and another infection going to boot. I just can't shake

this crap and of course the docs are pretty useless - as an example -

I was at the ER 3 times in two weeks in Nov w/ a massive sinus

infection that had me in bed - they tried 3 consecutive IV

antibiotic treatments that didn't kill it. I went to an ENT who

freaked when he looked at me and immediately scheduled surgery

within 3 days. i was so infected he had to go back three weeks

later and finish the surgery as well as fix my septum (aka-he had to

break my nose). I was in soooo much pain throughout all this mess

and he gave me percocets for three weeks to keep it under control.

I had my last follow up last thurs w/ him to remove my nose splints

and he said that my insurance had written him a letter along w/ a

copy of all of the rx's I had filled in the last month w/ his

highlighted wanting to know why he was giving them to me and making

him send an explanation in letter form. I understand if they were

just verifying that they were legit but making him explain himself

after they have already received the bills for two operations (one

11/18 and the other 12/10). It REALLY pissed me off. They are

under such pressure from the insurance people, we are all suffering

because they are scared of getting in trouble for giving out meds.

managed care really bites - sorry but I am so tired of suffering and

being in constant pain. I have another raging sinus infection which

has prompted a major fibromyalgia flare up and there is nothing I

can do but bear it.and I am sure he will not give me any more meds

because of the insurance even though it would be legit. it just

isn't fair.

> anyways - now that I am done venting - I have an appt w/ a pain

mgt doc coming up in a few weeks and I was wondering what you guys

think works best for you. In the past I have been on Vicodin ES's

but they are not very helpful and I was wondering if anyone could

recommend what was best for the fibro and constant pain. thanks for

letting me vent!

>

> love shari

[Guest guest]

I haven't tried anything yet but I know I need to. What would you suggest for

starters? I don't want to get too crazy as I still have to work and I have a 2

1/2 year old at home to take care of but I want to get better. I couldn't take

anything that would put me down for several days as I have already missed so

much work with my three operations in 2003 (explant, sinus, sinus)that I am

afraid I will lose my job soon. Any suggestions would be appreciated. Thanks

for your prayers - I will need them along with all of us others...

love shari