Sharon's Appt.

[Guest guest]

Hi Patty, Pam, , Rogene, Kathy etc.

Thank you all again for keeping in touch, your messages are healing

& helpful, and of course nothing teaches like experience. Now I,

too, can testify that Rhuematologists are not very sympathetic!!

I had typed up a brief medical history which just mentioned the

implants as reference that I had them after brief description of my

cancer experience, then went on to describe symptoms, etc. of the

past 2 years. He appreciated that, and examined me thoroughly. I

did ask if he thought I'd have those symptoms if my implant was

leaking, and he started in with the " our bodies are made of saline "

(yeah, sure, but it is also filtered by our kidneys, liver, etc.) He

also went on about how the implant controversy was a ploy by women

to make some money. Excuse me???????

He said very emphatically that the link was " Never proven " . I also

mentioned the cracking of joints, and he smiled and started talking

about how we all get old, etc. (I am 45, and all of a sudden all my

joints crack within a week! Of course, he is right, I did get old,

I feel about 85!) I had to concentrate very hard to talk to him so

the words would come out right, and I could not walk a straight line.

As expected, he ordered an MRI for next week. A few more blood

tests, but interestingly, nothing that would implicate an auto

immune disease...perhaps he smelled trouble. But he did order B12

and Lymes. I went away discouraged, as you all predicted...I

definitely felt he was not interested in pursuing my concerns.

Well, today (Tues) was like that book I used to read my kids when

they were small (By the way, I have 2, a boy-15 and a girl-13):

" & the terrible, horrible, no good very bad day " . When I

woke up this morning, I was so scared. I was so off balance, the

room was spinning. The numbness in my hands and especially my head

was extreme. Then my hands began to shake, and when I tried to talk

I could not...drew blanks, and stuttered and sometimes could not get

the words out at all. I got on the computer to type instructions

for my husband. My tongue was numb. Of course, I immediately

think " Stroke " , but I have low BP, no severe headaches or

nothing " one side " related. Of course I called my Dr. who asked me

to come in right away. She did a much more thorough neurological

exam than the Rhuem.dr. and I was very dizzy, and stuttering some as

I talked to her. I told her again how I was concerned, re:implant

link and she understood and has taken a more aggressive approach.

So, now my MRI appt. is tomorrow. We need to rule out MS and

mestatized brain cancer. She thinks its neither, as do I. I got

better as the day went on, but then developed (in one day's time?!

This is perplexing!)severe dry mouth, now my tooth hurts. I

definitely have that " Sjorgen's SYndrome " the dry eyes have gotten

worse as well. I am also experiencing tightness in my throat

(scleroderma symptom as you all know...). So, I think things are

going to have to happen FAST. I am wondering if I am fit to even

operate on, but I know that is my only chance. Once this MRI is

done, I will meet again with my Doctor & get her advice, but more

than likely will just make my own plan as quickly as possible. I

plan on sharing with her some more info from this site, e's

Story is very appropriate I think with her being involved in the

medical profession. So, keep me in your prayers. I hope to contact

Huang(Denver) and Feng (Cleveland). The closest large city to us is

Minneapolis. Sure wish there was someone there, know of any one?

To top things off, I am seeing a PT also tomorrow about the

possibility of lymphedema. My arm has not swelled, but is

heavy,etc. and, obviously, my lymph nodes are swollen, and that arm

had many removed due to the cancer. Will it ever end?????

Thankfully, as Pam said, God led me to this site. Your faith has

encouraged me also to keep my focus on Him. I read a message where

you mentioned the " 40 Days of Purpose " ...just got the book for

Christmas & look forward to focusing on that once I can take my

focus off this health thing. Praying it is in His will for me to

get through this...God bless,

Sharon

[Guest guest]

-

Dear sharon,

I am really sorry that your rheumatologist was such a jerk. They

really are such a waste of time usually. You definitely have alot

of symptoms and I think your doctor did the right thing by

scheduling your mri so quickly. Once you rule out mestatized cancer

and ms you will be able to focus more directly on the liklihood of

autoimmune disease due to implants. I would point out if you are

diagnosed with ms, they are doing some encouraging studies using the

antibiotic protocol with ms. Keep that in mind. Also, I wanted to

tell you that the tightening in the throat is also present in other

conditions--like fms for one. So don't panic about scleroderma. I

really really think you need to get those things out as soon as

possible. In the meantime, I would look in that RM-10 by Garden of

Life. What do you have to lose if it doesn't help? It is supposed

to be an immune modulator as well as a possible preventor of

cancer. There have been some double blind studies on it. Please

consider it. I will pray that God give us His peace and guidance as

to what to do next to start on your healing path.

God bless,

kathy

P.S. Our church did 40 days of purpose a year ago. Awesome!

-- In , " northwoods7380 "

<northwoods7380@y...> wrote:

> Hi Patty, Pam, , Rogene, Kathy etc.

> Thank you all again for keeping in touch, your messages are

healing

> & helpful, and of course nothing teaches like experience. Now I,

> too, can testify that Rhuematologists are not very sympathetic!!

> I had typed up a brief medical history which just mentioned the

> implants as reference that I had them after brief description of

my

> cancer experience, then went on to describe symptoms, etc. of the

> past 2 years. He appreciated that, and examined me thoroughly. I

> did ask if he thought I'd have those symptoms if my implant was

> leaking, and he started in with the " our bodies are made of

saline "

> (yeah, sure, but it is also filtered by our kidneys, liver, etc.)

He

> also went on about how the implant controversy was a ploy by women

> to make some money. Excuse me???????

> He said very emphatically that the link was " Never proven " . I

also

> mentioned the cracking of joints, and he smiled and started

talking

> about how we all get old, etc. (I am 45, and all of a sudden all

my

> joints crack within a week! Of course, he is right, I did get

old,

> I feel about 85!) I had to concentrate very hard to talk to him so

> the words would come out right, and I could not walk a straight

line.

> As expected, he ordered an MRI for next week. A few more blood

> tests, but interestingly, nothing that would implicate an auto

> immune disease...perhaps he smelled trouble. But he did order B12

> and Lymes. I went away discouraged, as you all predicted...I

> definitely felt he was not interested in pursuing my concerns.

> Well, today (Tues) was like that book I used to read my kids when

> they were small (By the way, I have 2, a boy-15 and a girl-13):

> " & the terrible, horrible, no good very bad day " . When

I

> woke up this morning, I was so scared. I was so off balance, the

> room was spinning. The numbness in my hands and especially my

head

> was extreme. Then my hands began to shake, and when I tried to

talk

> I could not...drew blanks, and stuttered and sometimes could not

get

> the words out at all. I got on the computer to type instructions

> for my husband. My tongue was numb. Of course, I immediately

> think " Stroke " , but I have low BP, no severe headaches or

> nothing " one side " related. Of course I called my Dr. who asked

me

> to come in right away. She did a much more thorough neurological

> exam than the Rhuem.dr. and I was very dizzy, and stuttering some

as

> I talked to her. I told her again how I was concerned, re:implant

> link and she understood and has taken a more aggressive approach.

> So, now my MRI appt. is tomorrow. We need to rule out MS and

> mestatized brain cancer. She thinks its neither, as do I. I got

> better as the day went on, but then developed (in one day's time?!

> This is perplexing!)severe dry mouth, now my tooth hurts. I

> definitely have that " Sjorgen's SYndrome " the dry eyes have

gotten

> worse as well. I am also experiencing tightness in my throat

> (scleroderma symptom as you all know...). So, I think things are

> going to have to happen FAST. I am wondering if I am fit to even

> operate on, but I know that is my only chance. Once this MRI is

> done, I will meet again with my Doctor & get her advice, but more

> than likely will just make my own plan as quickly as possible. I

> plan on sharing with her some more info from this site, e's

> Story is very appropriate I think with her being involved in the

> medical profession. So, keep me in your prayers. I hope to

contact

> Huang(Denver) and Feng (Cleveland). The closest large city to us

is

> Minneapolis. Sure wish there was someone there, know of any one?

> To top things off, I am seeing a PT also tomorrow about the

> possibility of lymphedema. My arm has not swelled, but is

> heavy,etc. and, obviously, my lymph nodes are swollen, and that

arm

> had many removed due to the cancer. Will it ever end?????

> Thankfully, as Pam said, God led me to this site. Your faith has

> encouraged me also to keep my focus on Him. I read a message

where

> you mentioned the " 40 Days of Purpose " ...just got the book for

> Christmas & look forward to focusing on that once I can take my

> focus off this health thing. Praying it is in His will for me to

> get through this...God bless,

> Sharon

[Guest guest]

Sharon,

I know this is all so scary, but you will get through this with God's help. I did a Bible study today on the lovingkindness of God, and we can have complete faith that He sees all that we are going though, and He has promised to be there for us. Let me delight in sharing this with you from the study:

"The Lord your God is with you, He is mighty to save. He will take great delight in you, He will quiet you with His love, He will rejoice over you with singing."

Zephaniah 3:17

The study goes on to say "These verses beautifully illustrate that blessed moment in which God's throne becomes a rocking chair and He pulls His fretting, fearful child into His arms and says, "It's OK, I'm right here." (Beth , Living Beyond Yourself; Exploring the Fruit of the Spirit")

You'll love the 40 Days of Purpose book....I encourage you to dig into it. It's only about 15 minutes a day, and they will be your most precious 15 minutes, I am almost certain!

Hugs,

Patty

----- Original Message -----

From: northwoods7380

Sent: Tuesday, January 13, 2004 6:54 PM

Subject: Sharon's Appt.

Hi Patty, Pam, , Rogene, Kathy etc.Thank you all again for keeping in touch, your messages are healing & helpful, and of course nothing teaches like experience. Now I, too, can testify that Rhuematologists are not very sympathetic!!I had typed up a brief medical history which just mentioned the implants as reference that I had them after brief description of my cancer experience, then went on to describe symptoms, etc. of the past 2 years. He appreciated that, and examined me thoroughly. I did ask if he thought I'd have those symptoms if my implant was leaking, and he started in with the "our bodies are made of saline" (yeah, sure, but it is also filtered by our kidneys, liver, etc.) He also went on about how the implant controversy was a ploy by women to make some money. Excuse me???????He said very emphatically that the link was "Never proven". I also mentioned the cracking of joints, and he smiled and started talking about how we all get old, etc. (I am 45, and all of a sudden all my joints crack within a week! Of course, he is right, I did get old, I feel about 85!) I had to concentrate very hard to talk to him so the words would come out right, and I could not walk a straight line.As expected, he ordered an MRI for next week. A few more blood tests, but interestingly, nothing that would implicate an auto immune disease...perhaps he smelled trouble. But he did order B12 and Lymes. I went away discouraged, as you all predicted...I definitely felt he was not interested in pursuing my concerns.Well, today (Tues) was like that book I used to read my kids when they were small (By the way, I have 2, a boy-15 and a girl-13):" & the terrible, horrible, no good very bad day". When I woke up this morning, I was so scared. I was so off balance, the room was spinning. The numbness in my hands and especially my head was extreme. Then my hands began to shake, and when I tried to talk I could not...drew blanks, and stuttered and sometimes could not get the words out at all. I got on the computer to type instructions for my husband. My tongue was numb. Of course, I immediately think "Stroke", but I have low BP, no severe headaches or nothing "one side" related. Of course I called my Dr. who asked me to come in right away. She did a much more thorough neurological exam than the Rhuem.dr. and I was very dizzy, and stuttering some as I talked to her. I told her again how I was concerned, re:implant link and she understood and has taken a more aggressive approach.So, now my MRI appt. is tomorrow. We need to rule out MS and mestatized brain cancer. She thinks its neither, as do I. I got better as the day went on, but then developed (in one day's time?! This is perplexing!)severe dry mouth, now my tooth hurts. I definitely have that "Sjorgen's SYndrome" the dry eyes have gotten worse as well. I am also experiencing tightness in my throat (scleroderma symptom as you all know...). So, I think things are going to have to happen FAST. I am wondering if I am fit to even operate on, but I know that is my only chance. Once this MRI is done, I will meet again with my Doctor & get her advice, but more than likely will just make my own plan as quickly as possible. I plan on sharing with her some more info from this site, e's Story is very appropriate I think with her being involved in the medical profession. So, keep me in your prayers. I hope to contact Huang(Denver) and Feng (Cleveland). The closest large city to us is Minneapolis. Sure wish there was someone there, know of any one?To top things off, I am seeing a PT also tomorrow about the possibility of lymphedema. My arm has not swelled, but is heavy,etc. and, obviously, my lymph nodes are swollen, and that arm had many removed due to the cancer. Will it ever end?????Thankfully, as Pam said, God led me to this site. Your faith has encouraged me also to keep my focus on Him. I read a message where you mentioned the "40 Days of Purpose"...just got the book for Christmas & look forward to focusing on that once I can take my focus off this health thing. Praying it is in His will for me to get through this...God bless,Sharon