Re: Re: hi, I need some support please... I ve had it,........

[Guest guest]

Iggy

I am in the same boat as you - who cares what they think. As I have told my

husband numerous times - you don't have to wake up in my shoes everyday - you

don't have the morning stiffness so bad it hurts to walk, the horrific

headaches, the neck that is so stiff that it hurts to move it to one side - the

constant aching with no reason whatsoever for it. He trys to understand but I

know that the amount of medication I take bothers him - If I had a choice I'd

rather not be dependant on it but it is a fact of life. Either I quit my job

and lay in bed feeling sorry for myself all day or I take my meds and have a

life. We can't help what these devices from hell have done to us - we also

can't help that unless people are in our shoes, you can't blame them as they

just don't know how we feel. hopefully they will never know how we feel but for

now just do what you have to and don't worry about them. I am sure that they

are hopefully looking out for you in their concerns about the meds and

unfortunately there are a ton of bad people that have misused them and ruined

pain meds reputation for those who really need them. I don't have a choice as I

am sure that you don't and the only people that can really understand that are

going to be us - not your family or even doctors for that matter because they

just haven't " been there " . Our diseases are hard to understand as there is no

real test that can prove the chronic pain short of people just trusting us -

screw them if they don't. That may be a little harsh but until someone switches

places w/ me for just one day - morning to night - I don't want their opinion.

Try to wake up as me for a week with no muscle relaxers or pain meds - see how

much of a life you can have - try to work full time and keep a home and take

care of your toddler. They couldn't do it. One day all this will come to light

and the truth of our illnesses will be known - then we are going to be owed a

lot of apologies - until then take care of yourself and do what you need to do.

love

shari

[Guest guest]

Iggy, hang in there dear, and do what you need to do right now. I never had to go on pain meds, and cant even begin to feel what you are going through, but you need to do what you think is right. Don’t listen to them, family or otherwise-as they cant understand the pain you are in. Nobody but us can. Just know you are not alone, and that there may come a day that you are free of meds! Until then, you gotta do what you need to , to function. And there is nothing wrong with that. That is one part of this "disease" that is so sad, feeling so all alone, and misunderstood. It is a shadowy , dark corner in this illness. But the Lord has let in light, by giving us this group, and others to share alot of support in comforting us. Hang in there, and keep up the faith, no matter how hard! Love ----- Original Message -----

From: Pam

Sent: Monday, January 26, 2004 10:30 AM

Subject: Re: hi, I need some support please... I ve had it,........

Iggy girl, I know how you feel. Believe me!!! Even though my family is just now "coming around" since I got the implants out, I know they still question why I need pain meds. They look at me and see a normal looking, healthy appearing person. The only way they know I'm hurting is for me to tell them. I try to fix my hair and put makeup on even if I don't feel like it. I can only imagine what they say behind my back. It's true that the enemy does things to pull us apart. My family was so close up until 3 years ago. My brother in law was a preacher and we all went to his church. We were all together 3 times a week. Each of us had a roll in the church. I was the last one to become a Christian and for several years we just grew together and got stronger and stronger. Then a terrible thing happened. I can't tell anyone what it was, but it involved my brother in law. He lost the church, his minister's license, almost lost his wife (my sister) and the family hasn't been the same since. It still blows my mind that something actually happened that tore us apart. But, it did. Most of us in the family have forgiven him but there's still some that haven't. Family get togethers used to be so fun and we would have them almost monthly but now we only get together on Christmas Eve because "we have to". It was the enemy that did it, and the members of my family that choose to not forgive and forget are the only ones being punished, not the wrongdoer (sp?). Don't stress over them not believing that you need pain meds. I'm not. I know I need them and I know that I'm not abusing them, I don't take them more often than needed, I don't chew or crush them or snort or shoot them up, I take them as prescribed. Iggy, just keep taking them however your doctor prescribed and ignore what your family says or thinks. One day you will be well and you will be able to tell them how much they hurt you when they questioned your illness and your need for the meds. Hang in there girl, it's almost over! Pam > I just found out thru my favorite nephew, that he overhears the rest > of the family talk about me, and they think Im addicted to my pain > meds... this just happened and it broke my heart... I am dependant > but I have never allowed these pills to ruin my life, but they only > helped me to function.. I know my family does not have a blue what Im > going thru, I know this... This just breaks my heart, cuz we put up > w/docs doing the same thing, and mistreating us.... I just have lost > my faith in family...... Im thru w/them......... my sis was gonna > come out to Ohio tohelp me, but forget it, they are so evil in > talking behind my back... and they do, cuz they use to discount this > illness for the longest time... now years later they finally believe > me.... but the first thing to come out of their mouths are "are you > on drugs?" you should not go on those, etc.... Yes I do know > that,,,, Ive tried everything prior to the opoids... My heart is > breaking, Im being scuffed by my own family, who I trusted........ > Ive had it....> I really do not care what anyone thinks of me, I have had to take > care of myself thru out all of this, so how can they think to > intervene and help when they feel like their helping?????? what > BS... I tell you, whenever Things go great, the enemy pulls people > apart..... Iggy