Re: Re: Sharon's Appt. & ?'s

[Guest guest]

Sharon,

You may want to communicate via email with Eileen Swanson...she has a website at http://www.homestead.com/sosalines/index.html

Eileen is also a breast cancer survivor and implant victim. She is a wealth of information. I believe there is a saline support group called "saline info" on that she heads up, so you could connect with her there, too. It is not a very active place like ours, but there are women you could talk to, I am sure.

SalineInfo/

We have had a few women who are breast cancer survivors with implants, but they don't seem to have been too vocal. Of course, most implants are put in women for purely cosmetic reasons, so maybe that is why the majority of us have not shared your experience. I think it is a horrible tragedy that implants are foisted upon women who have already suffered enough...cancer is by itself too frightening, but then to put into these women a toxic product that affects the immune system in terrible ways, and calling it a healing thing? That is so twisted!! I am just so sorry you have been through it.

The silicone antibody test can only help to identify the fact that there has been high exposure to silicones. However, most doctors do not get riled up over this, because, as they so often like to tell us, silicones are everywhere. There is silicone in many food items, like beer to help make it foam, in bottle nipples, in health care products, hygeine products, vitamins, so much more....they will claim that everyone has silicone in their body, so this test means nothing. (you can find the products by looking for things that end in "--icone" on the lable, like dimethicone). They take the same stance with candida infections. Everyone has candida in their body, so a test for candida proves nothing. Try talking to an MD about it, and most likely it will be poo-pooed.

The bottom line is that while some people would like to claim that the silicone antibody test proves that there is a problem going on, it remains controversial to the majority of medical people, and where there is controversy, guess who loses? That's right, the patient!

Good luck with your other tests...I hope they come out negative for any autoimmune diseases.

Patty

----- Original Message -----

From: northwoods7380

Sent: Sunday, January 11, 2004 11:24 PM

Subject: Re: Sharon's Appt. & ?'s

Hi, It is late, and as usual I am thinking too much and suffering fromthe buzzing in my head to sleep. Tomorrow (Mon) is my Rhuematologist appointment. Say a prayer for me. I'm going armed with lots of info. about autoimmune diseases in general, and also about the saline implant link. I'll see how the conversation goes before I bring that one up. My hope is for him to agree to lots of diagnostic blood tests & an MRI to see what's going on from a medical standpoint. Read in a book that there is such a thing as a silicone antibody test...know anything about that?Knowing all these symptoms were NOT in my head prompted me to see my family Doctor back in December, but now I find that they are getting worse and fast. Now I have this "joint cracking" everywhere that drives me crazy...ankles, knees, elbows, hips, even in my neck...any of you experience this? And did any of you experience an escalation of your symptoms within a short time?Thank you to Patty, & Pam for your advice & notes of encoutagement. This site has been a blessing to me! Thank you also for sharing your experience...when I see the number of members on this site, I know there must be many who do not post, but benefit from this information! I am curious as to why there are no other members in this group (who share stories or post) with a breast cancer history? I have met many who have been through it (as you would expect...) and got many recommendations for implants. Most of you sought out your implants originally, but I know you would all be saddened to see how highly recommended, with few risks, implants are to cancer patients. Lots of advertising about healing & feeling whole again to vulnerable women who just want it to be "all behind them". I feel so deceived in a way, because to me, my implant surgery represented something positive and a giant step towards healing emotionally from my experience. Little did I know! I try not to dwell on the "if only's...", I had enough of that with the cancer, but from that experience also know God's grace is sufficient for any trial that He puts me through. So, I'm hanging in there!Again, thanks for caring. I will keep in touch as I can...(something is wrong with our computer moniter...wondering if it will be easy to fix? Now is no time for the computer to break down!!) - thanks for advice, re: Feng & Huang. I think Dr. Feng would be my first choice but Dr. Hueng is in Denver where I grew up & still have family to "nurse me back to health". Is there a long wait to see these doctors? Reading about your experience helped soooo much - thanks! God's blessings,Sharon

[Guest guest]

Yes, I will post them PAtty. Let me get them all together. I have a scanner,so if I can figure it out,Ill send them that way Love

>From: "Dave & Patty" >Reply- >>Subject: Re: Re: Sharon's Appt. & ?'s >Date: Thu, 15 Jan 2004 23:01:30 -0800 > >, >I think what you did to show your doctors how wrong they were is so awesome. At one time we had talked of putting your blood work up on our site as proof of improvement after implants were removed....do you still want to try to do that somehow? I have yet to figure out what would be the best way to get it up there for the best exposure, but I would love to see your test results! I think it is one of our best testimonies of the fact that implants caused all these things to happen. >Patty > ----- Original Message ----- > From: JOSEPH PALANCA > > Sent: Wednesday, January 14, 2004 10:38 AM > Subject: RE: Re: Sharon's Appt. & ?'s > > > Sharron, Do not be discouraged dif he thinks and treats you like you are not thinking right. That implants do not cause disease. Because if he does, as mine did, it is because he does not know anything about implant disease, therefore does not know how to treat it, and feels baffled when hearing this info. he does not have the time or knowledge to look into this topic. So his smartest move will be to throw that thought out, ignore your "little studies" and focus on what he does know what to do. That is to find out waht disease you have, and treat it with an array of medications that will do nothing to benefit your health. > My worst experiences with this whole mess was when I needed two docs to write letters of medical neccesity for explant to be covered by ins. I went to over 15 doctors, rhuemy's. endo's, neurologists, internists, my own GP, and was told over an dover agin about what little they did know. The famous (yet we know flawed )mayo study, and that they arent silicone gel. And that to pretty much face the facts, I was ill, very ill at the age of 26 and to accept it. It was the most despairing time in my life. To hear over and over that no one believed me, and that I would not get better. And sometimes to be scolded or even laughed at. > > I even had these professional folders made up to give them to them to look over with pics, studies, and the simulairites of my findings according to other lab results and studies, and to no avail, no one wanted to see it, or hear it. But I kept going, and got my letter from a neurologists (and the other one from my PS Dr Kolb) after she literally saw the twitches under my skin, and did testing, of which she could not prove the only disease that causes this- ALS. So if I didnt have ALS, there was nothing else but the implants. Based on those findings, as well as many other tests, to rule out MS, she told me to run, to get them out. She had never seen these problems or symptoms in any other girl my age. And they were serious symptoms at that. I will never forget her openness, and interest in this topic. She now asks all her patients if they have implants when they meet. She believes it is a major part of my illness. And to the nervous system, just like co-factors like lyme. Just on my nervous system alone: had bells plasy attack, viral promblems, vision issues, nerve sensations, numbness and tingling in my feet, headaches, and twitches all over my body. All of which have went away since explant. > > I did not listen to all the others, I kept going on and on. Ignoring the docs. The bad days. Even my husband started to think that perhaps they were all right. I didnt listen./ I went on. I got it covered. I got them out. And guess what? I am getting well. Even my blood work shows it. And guess who all got copies? Of definitve proof that I am getting well? All the docs.Let them never turn down a women with these heart aching questions again. Each and every one of them, I actually got a few phone calls back,to discuss implants. I guess for them, the blood work was "seeing is believing" > > Hang in there Sharron. And do not be discouraged if all does not go well. If it does you are lucky. But if it doesnt, walk away from it. With earplugs in tack. Love > > > > There are now three new levels of MSN Hotmail Extra Storage! Learn more.

[Guest guest]

Thanks KAthy! You made my day (Its been tough so far)

>From: "mikat828" >Reply- > >Subject: Re: Sharon's Appt. & ?'s >Date: Thu, 15 Jan 2004 17:58:37 -0000 > > >Awesome letter! That is how to be your own advocate! Never give up >(and believe that God will make a way where there is no way!) You >are such a testimony to others of the varied and severe symptoms >that implants can cause, and even more so, a testimony to how you >can get better after explant! God bless > >kathy > > > >- In , "JOSEPH PALANCA" > wrote: > > > > >