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BOR Syndrome

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Our 6 year old son, born profoundly deaf was implanted nearly 4 years

ago. We have recently confirmed his deafness has been caused by a rare

genetic condition called BOR. This syndrome has also been responsible

for other problems he has encountered since birth. We are interested

in learning more and wondered if anyone else in this group has been

identified as having BOR? Any feedback would be helpful!

Aimee

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