Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Honey, Just scanned my files and found a couple of e-mails on hearing loss. I'm encouraged for you as Dr. Garth Nicolson (www.immed.org) has written the first piece below. I suggest you go to the site and there is a place where you can actually contact him and ask him questions. He just may be able to help you or direct you to someone who can. (I didn't list a 3rd thing, but you might go to www.marshallprotocol.com and post a note to Dr. Marshall about your condition. It is possible that you have a type of inflammation that MP treatment may be helpful. Best of luck to you, bg 1) ANIMAL STUDIES USING LIPID REPLACEMENT THERAPY AND ANTIOXIDANTS Another method used to reverse damage to tissue membranes is to replace damaged cellular and mitochondrial membrane phospholipids and other lipids using dietary supplements containing polyunsaturated phosphatidylcholines and other phospholipids, glycophospholipids and fatty acids that are essential structural and functional components of all biological membranes.44,45 One such LRT dietary supplement is called NT Factor,™ and it has been used successfully in animal and clinical lipid replacement studies. Its encapsulated lipids are protected from oxidation in the gut by the inclusion of antioxidants and can be absorbed and transported into tissues without undue damage.44,45 NT Factor contains a variety of components (Table 1), including glycophospholipids and other lipids, antioxidants, nutrients, probiotics, vitamins, minerals and plant extracts.44 NT Factor has been used to produce an anti-aging effect in aged laboratory animals. In 18- to 20-month-old rats, Seidman et al65 found that NT Factor prevented hearing loss associated with aging and shifted the threshold hearing from 35-40 dB in control aged animals to 13-17 dB in the NT Factor group. These results were highly signifi- cant (p<0.005). They also found that NT Factor preserved cochlear mitochondrial function as measured in a Rhodamine- 123 transport assay, increasing mitochondrial function by 34%. In these experiments, Rhodamine-123 is transported into mitochondria where it is chemically reduced to its fluorescent form only under conditions where mitochondria are fully functional.66 NT Factor also prevented a common aging-related mitochondrial DNA deletion (mtDNA4834) found in the cochlear of aging rats.65 Thus LRT plus antioxidants was successful in preventing age- associated hearing loss and mitochondrial damage in an animal model for aging. ........... 2) Hearing Loss -- What to do. Sent: Sunday, July 18, 2004 6:27 PM Subject: Hearing Loss -- What to do Q. What usually goes wrong with our hearing? A. THINGS THAT CAN GO WRONG WITH YOUR HEARING 1. There can be an obstruction of the airway to the ear drum. 2. The eardrum can be damaged 3. Transmission of vibrations from the eardrum to the cochlea can be impaired by faulty mechanisms in the middle ear. 4. The transformation of vibrations into nerve signals can be impaired though damage to the hair cells which make this transformation. 5. The brain can misinterpret the signals it receives. If any of these conditions have happened to you or to someone you know, a medical doctor should be contacted for a comprehensive assessment. Audiologists can measure the type and degree of hearing loss. It is much better to know the facts than to guess on your hearing. Most often physicians discover that transmission of the vibrations into nerve signals is the major cause of loss of hearing for most people. So proper maintenance of the hearing cells in the cochlea is vital to good hearing. New, exciting scientific research shows that natural nutritional ingredients and formulas help support the hearing cells for optimal acuity. Other personal difficulties can cause partial or complete deafness. Surgical procedures can result in damage to the inner ear, especially when excessive bleeding occurs there. A spasm of the artery going to the cochlea can leave the inner ear without circulating blood and thus cause deafness in the ear where the spasm occurs. Meniere's disease, thought to be caused by an over-secretion of fluids in the inner ear, can result not only in deafness but in sudden attacks of vertigo, tinnitus, and vomiting. All of these require medical attention which should not be delayed. BACK TO TOP OF PAGE http://www.intohealth.com/hearall_faq.html#Q.%20What%20usually% 20goes%20wrong%20with%20our%20hearing > > I'm quite new here - I hope you'll forgive me and have a quiet word if > this mail isn't appropriate. > > Four months ago I had repeated bouts of diarrhoea - quite extreme, and > separated by some 3 weeks and recurring. Coincident (I think to the > day) with this starting, my left ear went dull, and I was repeatedly > assured by my family doctors that this was a middle ear thing, > probably glue ear, and I should stop worrying about it. > > I'm in the medical wasteland called the UK, and after waiting 4 months > for an National Health Service appointment and discovering the waiting > list was 80 months (yes), I paid up (have no insurance) and visited an > ENT surgeon privately, who immediately diagnosed " severe and > permanent " loss of hearing about 1KHz in the inner ear. I'm currently > going through a session of standard blood tests (all clear) and MRI > scan (pending), but I don't believe the onset of damaged cochlear and > onset of severe gastric symptoms to the day is a coincidence. But all > I'm getting from medics is shrugs. > > There's a lot of talk on this list of ME/CFS (which I've had 10+ > years) and damaged immune systems allowing viruses to persist for > years. I clearly have a lot of reading to do, but I don't feel I have > much time - I feel deafer by the day, which may be fear-based, but I'm > terrified my other ear is about to be knocked out, and I can't get > anyone medical to look into this as a possibility. Once it's gone, > I'm deaf. > > This all sounds a little desperate, but has anyone had a similar > experience of unilateral permanent deafness following infection? > > Secondly, I'm in awe of a lot of the knowledge possessed by people on > the list, and would value enormously any advice anyone could give on > how to pursue this, quickly, with the possibility of fighting off or > protecting the rest of my hearing from further viral attack, if that's > what's happening. > > Thanks for any advice (at all). Honey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2004 Report Share Posted December 11, 2004 hi everytime i take a suppliment that doesnt agree with me i get ringing or roaring in my ears which my ent in the states has told me is tinnitis ...its a wasteland here also ....my ears are the most sensitive part of my body and i have major hearing loss in one ear while the other one is slightly affected which isnt normal the major loss for my age ... they have no idea what caused it nor why it happened but i have gone for hearing tests a few months apart and since no change they arent making me take an mri.. its frustrating as i cannot hear on the phone on one ear and my tv set is loud .... i wish i knew if it conincided with reactivation of virus etc...i didnt have diarrhea episode like u but everytime my allergies kick up ( immune system kicks up ) my hearing dose get worse along with my gastrointestinonal symtoms ( this has been my worst year for allegies in all the years i have been sick !!)... i have increased my allergy medication but my hearing loss seems to be permanent sigh...its at the lower registers which isnt a typical hearing loss, people usually get it at the hhigher registers. of voice /sound loss.. i had an mri years ago with my first hearing loss after taking over the coutner medication and they think i am allergic to asprin that was in it but this loss this year is much worse as my allergies are much worse...more promblems more mysteries and sorry no answers but u arent alonel...tealk al > [Original Message] > From: honey_me_cfs <honey@...> > < > > Date: 12/9/2004 11:16:52 AM > Subject: Deafness > > > > I'm quite new here - I hope you'll forgive me and have a quiet word if > this mail isn't appropriate. > > Four months ago I had repeated bouts of diarrhoea - quite extreme, and > separated by some 3 weeks and recurring. Coincident (I think to the > day) with this starting, my left ear went dull, and I was repeatedly > assured by my family doctors that this was a middle ear thing, > probably glue ear, and I should stop worrying about it. > > I'm in the medical wasteland called the UK, and after waiting 4 months > for an National Health Service appointment and discovering the waiting > list was 80 months (yes), I paid up (have no insurance) and visited an > ENT surgeon privately, who immediately diagnosed " severe and > permanent " loss of hearing about 1KHz in the inner ear. I'm currently > going through a session of standard blood tests (all clear) and MRI > scan (pending), but I don't believe the onset of damaged cochlear and > onset of severe gastric symptoms to the day is a coincidence. But all > I'm getting from medics is shrugs. > > There's a lot of talk on this list of ME/CFS (which I've had 10+ > years) and damaged immune systems allowing viruses to persist for > years. I clearly have a lot of reading to do, but I don't feel I have > much time - I feel deafer by the day, which may be fear-based, but I'm > terrified my other ear is about to be knocked out, and I can't get > anyone medical to look into this as a possibility. Once it's gone, > I'm deaf. > > This all sounds a little desperate, but has anyone had a similar > experience of unilateral permanent deafness following infection? > > Secondly, I'm in awe of a lot of the knowledge possessed by people on > the list, and would value enormously any advice anyone could give on > how to pursue this, quickly, with the possibility of fighting off or > protecting the rest of my hearing from further viral attack, if that's > what's happening. > > Thanks for any advice (at all). Honey > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 I'm not a doctor, just a patient like you, but it could be a fungal or candida infection. I'm also getting deaf in one ear, and that ear is often very itchy. (My ears have been ringing for 15 years or so too.) Two things: CFDIS sufferer Jenner (you can find his site w / a google search) has found that his ringing has diminished considerably by taking vitamin D and magnesium). And I know a woman who's hearing improved after taking " Three-Lac " -- an anti-candida product. Expensive, but it seemed to work for her (and I think it helped me too, but can't afford it any longer.) I'd look into both Jenner's website, and learn more about candida or other fungal infections... d. > > hi everytime i take a suppliment that doesnt agree with me i get ringing > or roaring in my ears which my ent in the states has told me is tinnitis > ..its a wasteland here also ....my ears are the most sensitive part of my > body and i have major hearing loss in one ear while the other one is > slightly affected which isnt normal the major loss for my age ... they have > no idea what caused it nor why it happened but i have gone for hearing > tests a few months apart and since no change they arent making me take an > mri.. > its frustrating as i cannot hear on the phone on one ear and my tv set is > loud .... > i wish i knew if it conincided with reactivation of virus etc...i didnt > have diarrhea episode like u but everytime my allergies kick up ( immune > system kicks up ) my hearing dose get worse along with my > gastrointestinonal symtoms ( this has been my worst year for allegies in > all the years i have been sick !!)... i have increased my allergy > medication but my hearing loss seems to be permanent sigh...its at the > lower registers which isnt a typical hearing loss, people usually get it at > the hhigher registers. of voice /sound loss.. > i had an mri years ago with my first hearing loss after taking over the > coutner medication and they think i am allergic to asprin that was in it > but this loss this year is much worse as my allergies are much worse...more > promblems more mysteries and sorry no answers but u arent alonel...tealk al > > > > [Original Message] > > From: honey_me_cfs <honey@m...> > > < > > > Date: 12/9/2004 11:16:52 AM > > Subject: Deafness > > > > > > > > I'm quite new here - I hope you'll forgive me and have a quiet word if > > this mail isn't appropriate. > > > > Four months ago I had repeated bouts of diarrhoea - quite extreme, and > > separated by some 3 weeks and recurring. Coincident (I think to the > > day) with this starting, my left ear went dull, and I was repeatedly > > assured by my family doctors that this was a middle ear thing, > > probably glue ear, and I should stop worrying about it. > > > > I'm in the medical wasteland called the UK, and after waiting 4 months > > for an National Health Service appointment and discovering the waiting > > list was 80 months (yes), I paid up (have no insurance) and visited an > > ENT surgeon privately, who immediately diagnosed " severe and > > permanent " loss of hearing about 1KHz in the inner ear. I'm currently > > going through a session of standard blood tests (all clear) and MRI > > scan (pending), but I don't believe the onset of damaged cochlear and > > onset of severe gastric symptoms to the day is a coincidence. But all > > I'm getting from medics is shrugs. > > > > There's a lot of talk on this list of ME/CFS (which I've had 10+ > > years) and damaged immune systems allowing viruses to persist for > > years. I clearly have a lot of reading to do, but I don't feel I have > > much time - I feel deafer by the day, which may be fear-based, but I'm > > terrified my other ear is about to be knocked out, and I can't get > > anyone medical to look into this as a possibility. Once it's gone, > > I'm deaf. > > > > This all sounds a little desperate, but has anyone had a similar > > experience of unilateral permanent deafness following infection? > > > > Secondly, I'm in awe of a lot of the knowledge possessed by people on > > the list, and would value enormously any advice anyone could give on > > how to pursue this, quickly, with the possibility of fighting off or > > protecting the rest of my hearing from further viral attack, if that's > > what's happening. > > > > Thanks for any advice (at all). Honey > > > > > > > > > > > > > > This list is intended for patients to share personal experiences with > each other, not to give medical advice. If you are interested in any > treatment discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 Check out the story on the BBC website dealing with cause of deafness.? Maybe that's what really happened to all of us. Hal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 do you have the link? From: halfencer@... <halfencer@...> Subject: Deafness Received: Friday, 12 December, 2008, 12:14 PM Check out the story on the BBC website dealing with cause of deafness.? Maybe that's what really happened to all of us. Hal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2008 Report Share Posted December 12, 2008 I agree. I'm also wondering what's the story? It could be something interesting? Dan > > From: halfencer@... <halfencer@...> > Subject: Deafness > > Received: Friday, 12 December, 2008, 12:14 PM > > > > > > > Check out the story on the BBC website dealing with cause of deafness.? Maybe that's what really happened to all of us. > > Hal > > Quote Link to comment Share on other sites More sharing options...
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