to patty and the group-saturating myself withinfo.!

[Guest guest]

i have not posted for several days as i have been pouring over

everthing i have been able to findin regards to my illness and the

boobs. i have, however, still been reading my e-mails and am ever

amazed at your wealth of knowledge. i looked up patty''s photo on

the site and could not believe how young you were to have so much

wisdom and compassion. i am the one with the skin disorder. i have

been on methotrexate for almost a mo. at first, i saw dramatic

improvement, but now i am back to having irritated skin and new

developements on my face, even though the derm. said it wasn't

related?! i have a caal into her as i am so tired of them

experimenting on me. i was mostly trying to gain some relief as i

gained knowledge about the possibility of being caused from the

implants.

i have looked up every possible condition that has been e-mailed to

me or i've read somewhere and a couple of days ago my aunt who lives

in seattle told my mom that it sounded like lupus! it really seems

to fit more than anything else. it's called dicoid lupus

erythematosus when it only affects the skin, but can go into sle.

i have compiled a huge list of lab tests from e-mails and web sites

and tomorrow i will take them over to a friend of mine who is a f.p.

in a womens health center. she is not so knowledgeable, but is

willing to order anything that i think may help.

i also have e-mailed dr. mercola and am waiting to hear from them

for an appt. i have heard many of you talk about him and it just

felt right. i am also from chicago originally(ky. now), but i have

relatives that i could stay with. do you think this is a good place

to go before being expalnted, or is it a waste of time if i do it

before i eliminate the poss. problem?

maybe, i should just make an appt. w/ dr. kolb or dr.feng? first. i

didn't know if they would be helpful in diagnosing the relation

between my illness and implants or if they were pretty much there

just to take them out? they are both about 5 hours away from me, so

that seems very doable and fortunate on my part.

as the methotrexate is failing me, i am now plagued with skin

lesions again, feel extremely fatigued, fluey, and am having alot of

pn? or weakness in my hands and lower legs and feet, but i feel

hopeful! i know that god is with me, guiding me, somestimes down a

twisty path, but that i won't be lost if i listen. i know that he is

leading me to the right answer for me and i certainly think he

brought me to you! thanks for listening! lisa

[Guest guest]

Hi ,

Keep reading and learning...that's what it is all about. I'm hoping your condition is not pointing to lupus, but that certainly sounds like a possibilty. The sooner you can get those implants out, the better. You can certainly see Dr. Mercola before removing the implants, and as he has been successfully treating , he will be able to help you through this very much, I am quite certain. He knows implants are bad news. However, of course, he can't do anything significant until those implants are removed. I would just go ahead and make the appointment with either of the doctors you mentioned, who will both be able to do an excellent job at explant, and Dr. Kolb may be able to help you with a specific detox program as well.

Let us know...by the way, I'm from west of Chicago originally, a fellow former Illinoisan! I am 44 years old, and I hope that means old enough to have gained some wisdom! I made alot of stupid mistakes in my lifetime, and getting implants was the big doozie. But then again, God used it for good, as only He can, (praise His name!) What I've learned has only blessed my family for a lifetime. I think we can all say this whole thing is a major life lesson.

Hugs,

Patty

----- Original Message -----

From: jzamom2001

Sent: Tuesday, March 02, 2004 2:31 PM

Subject: to patty and the group-saturating myself withinfo.!

i have not posted for several days as i have been pouring over everthing i have been able to findin regards to my illness and the boobs. i have, however, still been reading my e-mails and am ever amazed at your wealth of knowledge. i looked up patty''s photo on the site and could not believe how young you were to have so much wisdom and compassion. i am the one with the skin disorder. i have been on methotrexate for almost a mo. at first, i saw dramatic improvement, but now i am back to having irritated skin and new developements on my face, even though the derm. said it wasn't related?! i have a caal into her as i am so tired of them experimenting on me. i was mostly trying to gain some relief as i gained knowledge about the possibility of being caused from the implants.i have looked up every possible condition that has been e-mailed to me or i've read somewhere and a couple of days ago my aunt who lives in seattle told my mom that it sounded like lupus! it really seems to fit more than anything else. it's called dicoid lupus erythematosus when it only affects the skin, but can go into sle.i have compiled a huge list of lab tests from e-mails and web sites and tomorrow i will take them over to a friend of mine who is a f.p. in a womens health center. she is not so knowledgeable, but is willing to order anything that i think may help.i also have e-mailed dr. mercola and am waiting to hear from them for an appt. i have heard many of you talk about him and it just felt right. i am also from chicago originally(ky. now), but i have relatives that i could stay with. do you think this is a good place to go before being expalnted, or is it a waste of time if i do it before i eliminate the poss. problem?maybe, i should just make an appt. w/ dr. kolb or dr.feng? first. i didn't know if they would be helpful in diagnosing the relation between my illness and implants or if they were pretty much there just to take them out? they are both about 5 hours away from me, so that seems very doable and fortunate on my part.as the methotrexate is failing me, i am now plagued with skin lesions again, feel extremely fatigued, fluey, and am having alot of pn? or weakness in my hands and lower legs and feet, but i feel hopeful! i know that god is with me, guiding me, somestimes down a twisty path, but that i won't be lost if i listen. i know that he is leading me to the right answer for me and i certainly think he brought me to you! thanks for listening! lisa

[Guest guest]

--

lisa

I am sorry to hear about all your troubles and your experience with

methotrexate. If I were you, i would get off of it. It is a very

powerful immune suspressant and since you don't even have a

diagnosis I think it is irresponsible of your doctor to prescribe

it. I would try alot of the suggestions here for getting better and

get those implants out!! Alot of people are never formally

diagnosed with certain autoimmune diseases because alot of the

diseases are not easy to diagnose. even when diagnosed, many

p0eople are later told that they have a different disease than

originally thought. With antibiotic therapy, the kind of autoimmune

disease matters little. they use the same protocol whether you have

RA or scleroderma or lupus or fms or whatever. That is because

though the symptoms of different diseases may be somewhat different,

the causes are usually not. I think someday they will discover all

of these diseases have very common denominators. The suggestions on

this site will help most of these conditions. Also check out these

2 websites: www.rheumatic.org and www.roadback.org. These two

sites have alot of info about lupus and autoimmune conditions in

general and different therapies. The main therapy they talk about

is Antibiotic Therapy but they also discuss alot of detoxing and

things we discuss here. Take care and God bless

kathy

- In , " jzamom2001 " <jzamom2001@y...>

wrote:

> i have not posted for several days as i have been pouring over

> everthing i have been able to findin regards to my illness and the

> boobs. i have, however, still been reading my e-mails and am ever

> amazed at your wealth of knowledge. i looked up patty''s photo on

> the site and could not believe how young you were to have so much

> wisdom and compassion. i am the one with the skin disorder. i

have

> been on methotrexate for almost a mo. at first, i saw dramatic

> improvement, but now i am back to having irritated skin and new

> developements on my face, even though the derm. said it wasn't

> related?! i have a caal into her as i am so tired of them

> experimenting on me. i was mostly trying to gain some relief as i

> gained knowledge about the possibility of being caused from the

> implants.

> i have looked up every possible condition that has been e-mailed

to

> me or i've read somewhere and a couple of days ago my aunt who

lives

> in seattle told my mom that it sounded like lupus! it really

seems

> to fit more than anything else. it's called dicoid lupus

> erythematosus when it only affects the skin, but can go into sle.

> i have compiled a huge list of lab tests from e-mails and web

sites

> and tomorrow i will take them over to a friend of mine who is a

f.p.

> in a womens health center. she is not so knowledgeable, but is

> willing to order anything that i think may help.

> i also have e-mailed dr. mercola and am waiting to hear from them

> for an appt. i have heard many of you talk about him and it just

> felt right. i am also from chicago originally(ky. now), but i

have

> relatives that i could stay with. do you think this is a good

place

> to go before being expalnted, or is it a waste of time if i do it

> before i eliminate the poss. problem?

> maybe, i should just make an appt. w/ dr. kolb or dr.feng? first.

i

> didn't know if they would be helpful in diagnosing the relation

> between my illness and implants or if they were pretty much there

> just to take them out? they are both about 5 hours away from me,

so

> that seems very doable and fortunate on my part.

> as the methotrexate is failing me, i am now plagued with skin

> lesions again, feel extremely fatigued, fluey, and am having alot

of

> pn? or weakness in my hands and lower legs and feet, but i feel

> hopeful! i know that god is with me, guiding me, somestimes down

a

> twisty path, but that i won't be lost if i listen. i know that he

is

> leading me to the right answer for me and i certainly think he

> brought me to you! thanks for listening! lisa

[Guest guest]

Thanks for sharing those websites on the autoimmune diseases again Kathy...I was going to ask you for the addresses, because I think I would like to read some more about it. I guess when you said that most of the people you read about, who got better, never really truly got all the way better, but rotated in and out of remission. That really bums me out...not that I don't believe God can't heal us, because I truly believe God's Word that says He can do anything, absolutely nothing is impossible for Him! But it is sad to me to think that we may not ever be able to truly put this all behind us 100%, forever and ever, and that many of us will struggle with autoimmune symptoms even after experiencing a great degree of healing. I know I am feeling better than ever right now. I would hate to think that anything I've overcome could come back to haunt me again. But I trust that God is doing what needs to be done in my life. And I am content with that.

Thanks for sharing Kathy. Your posts are always so full of good info.

Hugs,

Patty

----- Original Message -----

From: mikat828

Sent: Thursday, March 04, 2004 12:10 PM

Subject: Re: to patty and the group-saturating myself withinfo.!

--lisaI am sorry to hear about all your troubles and your experience with methotrexate. If I were you, i would get off of it. It is a very powerful immune suspressant and since you don't even have a diagnosis I think it is irresponsible of your doctor to prescribe it. I would try alot of the suggestions here for getting better and get those implants out!! Alot of people are never formally diagnosed with certain autoimmune diseases because alot of the diseases are not easy to diagnose. even when diagnosed, many p0eople are later told that they have a different disease than originally thought. With antibiotic therapy, the kind of autoimmune disease matters little. they use the same protocol whether you have RA or scleroderma or lupus or fms or whatever. That is because though the symptoms of different diseases may be somewhat different, the causes are usually not. I think someday they will discover all of these diseases have very common denominators. The suggestions on this site will help most of these conditions. Also check out these 2 websites: www.rheumatic.org and www.roadback.org. These two sites have alot of info about lupus and autoimmune conditions in general and different therapies. The main therapy they talk about is Antibiotic Therapy but they also discuss alot of detoxing and things we discuss here. Take care and God blesskathy