Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Hi - absolutely impossible to tell. As we are aware, all those sufferers who are not being given a proper diagnosis of hypothyroidism and therefore not being given the thyroid hormone replacement they need are dying of heart disease,seizures,colon and breast cancer, tumours and other problems caused through the NHS lack of care. Nobody ever died of being hypothyroid. They die of a lack of diagnosis - but because they are not diagnosed, there are no records....if you know what I mean. What makes me so sick is that Professor lyn is one of the Trustees of BTF and now she is President of the British Thyroid Association (so got a leg in both camps) and also, one of the doctors who is a Trustee of BTF is a doctor who DOES PRESCRIBE ARMOUR WITHIN THE NHS - because he knows that Thyroxine doesn't work for everybody. He recommends armour for several of his patients. I know, because I was there with one of our members when she remained so ill on T4 only and she asked me if I would accompany her on her appointment with him. I sat there when this doctor decided to recommend Armour for her - and she has been prescribed within the NHS ever since - and is blooming, and he knows damned well. This is smacks of such hypocrisy! Luv - Sheila GETTING HEARD Hi SheilaApropos my previous email. Do you know if it is possible to find out how many deaths were related to Hypothyroidism in say a five year period?I'm thinking shock tactics. AbrahamsNo virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.10/1586 - Release Date: 01/08/2008 18:59 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 The 'conspiracy' if there is one, I think lies in the fact that the drug companies produce thyroxine, and the drug companies are hand in glove with the doctors. Until this cosy little cartel is broken, they will always close ranks against a natural remedy like Armour; there is nothing in it for them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Hi Sheila Thanks for your reply. What I have just found, thanks to my husband,are mortality statistics for 2003 and 2005. They show that in 2003 there were 8,016 deaths and in 2005 7,433 deaths from Endocrine, nutritional and metabolic diseases. These are then broken down to Hypothyroid disorders, other Hypothyroidism, Hypothyroidism unspecified plus Hyperthyroid diseases. However the Hypothyroidism outways the Hyper hugely. Why I am so pleased to have found these figures and although they are not huge for our population, it is still a lot of people dying per year due to a thyroid condition. That of course is the tip of the iceberg but add your list of conditions due to Hypothyroid that can cause death then the figures I suspect would be huge. I am wondering, therefore, when MPs return from their holidays, whether to write to as many as possible pointing out those figures and also the other conditions Hypothyroid can cause which can kill. Actually showing numbers might make some of them consider helping. I really understand your anger about doctors. It makes me wonder if it is a conspiracy to save money! I also wonder how we would stand where our human rights are concerned? Shouldn't it be a human right to get a correct diagnosis and treatment? Best Regards Abrahams > > Hi - absolutely impossible to tell. As we are aware, all those sufferers who are not being given a proper diagnosis of hypothyroidism and therefore not being given the thyroid hormone replacement they need are dying of heart disease,seizures,colon and breast cancer, tumours and other problems caused through the NHS lack of care. > > Nobody ever died of being hypothyroid. They die of a lack of diagnosis - but because they are not diagnosed, there are no records....if you know what I mean. > > What makes me so sick is that Professor lyn is one of the Trustees of BTF and now she is President of the British Thyroid Association (so got a leg in both camps) and also, one of the doctors who is a Trustee of BTF is a doctor who DOES PRESCRIBE ARMOUR WITHIN THE NHS - because he knows that Thyroxine doesn't work for everybody. He recommends armour for several of his patients. I know, because I was there with one of our members when she remained so ill on T4 only and she asked me if I would accompany her on her appointment with him. I sat there when this doctor decided to recommend Armour for her - and she has been prescribed within the NHS ever since - and is blooming, and he knows damned well. This is smacks of such hypocrisy! > > Luv - Sheila > > > GETTING HEARD > > > Hi Sheila > > Apropos my previous email. Do you know if it is possible to find out > how many deaths were related to Hypothyroidism in say a five year > period? > > I'm thinking shock tactics. > > Abrahams > > > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.138 / Virus Database: 270.5.10/1586 - Release Date: 01/08/2008 18:59 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 If it's any consolation we aren't the only ones who are not being treated with dignity and who are not receiving adequate treatment. My grandmother had a stroke last year and the patients were left for over 5 hours at a time without anyone coming to check on them. I sat with her for hours and was shocked at this. One lady started to choke and I had to get someone. These poor ladies could not shout for anyone as they had lost their ability to talk; they also couldn't move enough to be able to reach a buzzer to get attention. They didn't mobilise my gran enough and so she ended up getting a blood clot in her leg. They didn't bother to tell us that she was dying, although we aren't stupid and figured it out. They also left her waiting for pain relief for 5 hours when she was in agony. I read in our local paper that something similar happened to a poor man at the same hospital a few months ago. sheilaturner <sheilaturner@...> wrote: Hi - absolutely impossible to tell. As we are aware, all those sufferers who are not being given a proper diagnosis of hypothyroidism and therefore not being given the thyroid hormone replacement they need are dying of heart disease,seizures,colon and breast cancer, tumours and other problems caused through the NHS lack of care. Nobody ever died of being hypothyroid. They die of a lack of diagnosis - but because they are not diagnosed, there are no records....if you know what I mean. What makes me so sick is that Professor lyn is one of the Trustees of BTF and now she is President of the British Thyroid Association (so got a leg in both camps) and also, one of the doctors who is a Trustee of BTF is a doctor who DOES PRESCRIBE ARMOUR WITHIN THE NHS - because he knows that Thyroxine doesn't work for everybody. He recommends armour for several of his patients. I know, because I was there with one of our members when she remained so ill on T4 only and she asked me if I would accompany her on her appointment with him. I sat there when this doctor decided to recommend Armour for her - and she has been prescribed within the NHS ever since - and is blooming, and he knows damned well. This is smacks of such hypocrisy! Luv - Sheila GETTING HEARD Hi SheilaApropos my previous email. Do you know if it is possible to find out how many deaths were related to Hypothyroidism in say a five year period?I'm thinking shock tactics. AbrahamsNo virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.10/1586 - Release Date: 01/08/2008 18:59 Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 I did some campaigning a few years ago on another health issue and followed the trail back to the DoH where decisions were made that this disease was NOT to be funded. And it filtered its way down from there. And yes the reasons were economic. So I would not be in the least surprised is that is what is going on with thyroid disease. Follow the chain of command upwards and you will find where the culprits reside. Mo > > I really understand your anger about doctors. It makes me wonder if > it is a conspiracy to save money! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Hi Don't forget the deaths from asthma (breathing problems, air hunger), pneumonia and allergies a lot of them thyroid related. Luv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Lindsey thats hearbreaking so sorry to hear it, I have seen the state of the hospital wards and care and the communication which just is not there any more. Also ''Don't forget the deaths from asthma (breathing problems, air hunger), pneumonia and allergies a lot of them thyroid related.'' I hear ya on that one, one of the worse aspects of this disease for me. its a wonderful idea you have, good thinking lotsa luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 That is very sad, but unfortunately, we hear such stories all too often these days. Luv - sheila They didn't bother to tell us that she was dying, although we aren't stupid and figured it out. They also left her waiting for pain relief for 5 hours when she was in agony. I read in our local paper that something similar happened to a poor man at the same hospital a few months ago. .. No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.10/1586 - Release Date: 01/08/2008 18:59 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 There are many papers connecting untreated hypothyridism and consequently untreated post-thyroid deficiencies with a variety of causes of deaths. I think that my recent paper has some citiations. Undoubtedly there are more. But, I believe that there are many deaths in which the untreated hypothyroidism is an unacknowledged precursor. Cheers, > > > > Hi - absolutely impossible to tell. As we are aware, all > those sufferers who are not being given a proper diagnosis of > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Dear Lindsey, Would you mind telling me which hospital this was? Sounds a little too familiar, to close to home... Best, Wannette Hi - absolutely impossible to tell. As we are aware, all those sufferers who are not being given a proper diagnosis of hypothyroidism and therefore not being given the thyroid hormone replacement they need are dying of heart disease,seizures,colon and breast cancer, tumours and other problems caused through the NHS lack of care. Nobody ever died of being hypothyroid. They die of a lack of diagnosis - but because they are not diagnosed, there are no records....if you know what I mean. What makes me so sick is that Professor lyn is one of the Trustees of BTF and now she is President of the British Thyroid Association (so got a leg in both camps) and also, one of the doctors who is a Trustee of BTF is a doctor who DOES PRESCRIBE ARMOUR WITHIN THE NHS - because he knows that Thyroxine doesn't work for everybody. He recommends armour for several of his patients. I know, because I was there with one of our members when she remained so ill on T4 only and she asked me if I would accompany her on her appointment with him. I sat there when this doctor decided to recommend Armour for her - and she has been prescribed within the NHS ever since - and is blooming, and he knows damned well. This is smacks of such hypocrisy! Luv - Sheila [thyroidpatientadvo cacy] GETTING HEARD Hi SheilaApropos my previous email. Do you know if it is possible to find out how many deaths were related to Hypothyroidism in say a five year period?I'm thinking shock tactics. AbrahamsNo virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.10/1586 - Release Date: 01/08/2008 18:59 Not happy with your email address? Get the one you really want - millions of new email addresses available now at Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 St 's, Newport, Isle of Wight"W. Tuinstra" <wannette7@...> wrote: Dear Lindsey, Would you mind telling me which hospital this was? Sounds a little too familiar, to close to home... Best, Wannette Hi - absolutely impossible to tell. As we are aware, all those sufferers who are not being given a proper diagnosis of hypothyroidism and therefore not being given the thyroid hormone replacement they need are dying of heart disease,seizures,colon and breast cancer, tumours and other problems caused through the NHS lack of care. Nobody ever died of being hypothyroid. They die of a lack of diagnosis - but because they are not diagnosed, there are no records....if you know what I mean. What makes me so sick is that Professor lyn is one of the Trustees of BTF and now she is President of the British Thyroid Association (so got a leg in both camps) and also, one of the doctors who is a Trustee of BTF is a doctor who DOES PRESCRIBE ARMOUR WITHIN THE NHS - because he knows that Thyroxine doesn't work for everybody. He recommends armour for several of his patients. I know, because I was there with one of our members when she remained so ill on T4 only and she asked me if I would accompany her on her appointment with him. I sat there when this doctor decided to recommend Armour for her - and she has been prescribed within the NHS ever since - and is blooming, and he knows damned well. This is smacks of such hypocrisy! Luv - Sheila [thyroidpatientadvo cacy] GETTING HEARD Hi SheilaApropos my previous email. Do you know if it is possible to find out how many deaths were related to Hypothyroidism in say a five year period?I'm thinking shock tactics. AbrahamsNo virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.10/1586 - Release Date: 01/08/2008 18:59 Not happy with your email address? Get the one you really want - millions of new email addresses available now at Not happy with your email address? Get the one you really want - millions of new email addresses available now at Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Hi Bob Thanks for that. Best Regards Abrahams > > > > Hi - absolutely impossible to tell. As we are aware, all > those sufferers who are not being given a proper diagnosis of > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Hi Mo I'm not surprised. But how do you follow the trail. I suspect nobody wants to talk about it. Best regards Abrahams > > I did some campaigning a few years ago on another health issue > and followed the trail back to the DoH where decisions were made that > this disease was NOT to be funded. And it filtered its way down from > there. And yes the reasons were economic. > So I would not be in the least surprised is that is what is going on > with thyroid disease. > Follow the chain of command upwards and you will find where the > culprits reside. > > Mo > > > > I really understand your anger about doctors. It makes me wonder if > > it is a conspiracy to save money! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Hi Lindsey, what I don't understand is that probably most patients will be probably be claiming benefits because they are too ill to work so costing the government money anyway. Surely it would make sense to get the treatment of hypothyroidism right and get them well enough to work again, not to mention all the meds that they will be receiving to combat all the vaious symptoms when they could treat the cause. It's a crazy world we live in! :-) Ruth x > > Hello all, > > I think you may have a point about about the government trying to save money. After all you get free prescriptions for everything for life when you have been diagnosed with hypothyroidism so it stands to reason that they will avoid such a diagnosis as all costs. > > Lindsey X > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 I think they must do. I reckon health visitors do. For example, mine was trying to stop me breastfeeding and saying that SMA gold infant milk was superior! After all this about 'breast is best', the NHS campaign. They aren't allowed to advertise the small baby milk (0-6 months) on have it on 'special offer' by law so as not to encourage the use of powdered milk and then the health visitor goes and waves it in your face and tries to convince you it's superior! I think GP's have drug reps come to visit them to tell them about the latest 'great' drugs on offer and you can bet they blindly go along with it and believe them because either they haven't got enough time to check the facts or they can't be bothered/don't care! I really hope they don't get commission, that would be sick! Ruth x > > > > Hello all, > > > > I think you may have a point about about the government trying to > save money. After all you get free prescriptions for everything for > life when you have been diagnosed with hypothyroidism so it stands to > reason that they will avoid such a diagnosis as all costs. > > > > Lindsey X > > > > > > > > > --------------------------------- > Not happy with your email address? > Get the one you really want - millions of new email addresses available now at > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Hi Mo Thanks for that, very interesting and helpful. Abrahams > > Well I started at GP level, then the Complaints Dept at the local > hospital, then PALS at the PCT, then Chief Executive at the PCT, then > Quote Link to comment Share on other sites More sharing options...
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