Re: Holmes's treament?

[Guest guest]

I am wondering whether some people might have thought she was perhaps a bit hyper and on too much medication.

Her adrenals must have been working hard too, as it must be scary being on TV for the first time.

However, I think if I could feel so well after being so ill for years I too would be euphoric and evangelistic, two conditions which show an abundance of enthusiasm.

Lilian

[Guest guest]

>

> Hiya

>

> Just wondered if was really so fit after all those years on

> thyroxine alone or if she has hc or something too? I wondered if

> anyone knew because I am terrible and I had been getting thyroxine,

> inadequate but at least I had been getting something and it was a

> slower decline. I was so happy she was so chipper and running up

> steps, but I wondered how?

>

> If anyone knows could they let me know?

>

> lotsa luv

> Dawnx

>

Hi Dawn

Just thyroxine would do absolutely nothing for me cos my adrenals

were so bad, even now with Pred my body cannot use anything above 25

mcg thyroxine it makes me really toxic. I still don't fully

understand why my body cannot convert the T4 properly but I guess it

is an enzyme problem and might be to do with the fact I had mercury

poisoning for years.

I am sure Armour or Nature thyroid is the way to go, 2 grains of

Armour is fine for me as long as I take the Pred and I also find that

25 mcg thyroxine is needed.

Its a shame its just so complicated for so many of us and our doctors

are pretty ignorant too, at least the NHS ones seem to be with a few

exceptions maybe.

Pam

[Guest guest]

She definitely saw Dr P because we talked about her when I went to see him about 2 years ago. sheilaturner <sheilaturner@...> wrote: 'a I don't believe was on thyroxine alone. I would need to read her book again, and right now, I haven't the time. i am sure she was on combination therapy and was treated by both Dr Skinner and Dr Peatfield. Luv - Sheila >> . No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.10/1586 - Release Date: 01/08/2008 18:59

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[Guest guest]

Hi

I think everyone is an individual where treatment goes. Last year I was

on mobility and could hardly walk the day of the wheelchair I knew was

just around the corner and I was thinking of early retirement. Today I

was at the gym and have lost well over 4 stone since my treatment. I was

giving the exercise bike some welly and went out sweating like mad with

hair stuck to my head and smiling like mad! I too had long standing

under active thyroid it all started when I was about 28/9 and now I am

well about 50 won't admit to more. The doctor even said three years ago

if you don't stop smoking (which I admit to) you will be dead in 5 years

and put all my breathing problems, chest infections, down to COPD. Funny

since I started on thyroxine I have had no further breathing problems

and am now getting my lungs working again. I am only on thyroxine a dose

of 150 but the difference it has made to my life is unbelievable. And if

it was not for this site I would not be on that! Why do we always

believe our doctors and think they are God!

Luv

>

> I am wondering whether some people might have thought she was perhaps

a bit hyper and on too much medication.

>

> Her adrenals must have been working hard too, as it must be scary

being on TV for the first time.

>

> However, I think if I could feel so well after being so ill for years

I too would be euphoric and evangelistic, two conditions which show an

abundance of enthusiasm.

>

> Lilian

>

[Guest guest]

Hiya

I was just so happy for her that she was so perky, but I was doubting

she was on thyroxine alone with nothing for adrenals and no T3 after

all those years of her body struggling. It was just that no mention of

the kind of treatment (away from the NHS norm because she went

private) managed to get on air because she couldn't really explain

because of the nature of the interview. I can fully understand why she

was so perky Lillian and I certainly aren't knocking her for it, I

hate being in the limelight, my adrenals would have caved in under

those circumstances, they cave in if I get excited about a day out lol.

I was just thinking I would like to adopt the very same protocol even

though I know we are all different. She has a few years on me and is

10 times fitter lol.

I know Pam the problem you mention getting the thyroid hormones in

with adrenal states, especially after a long period of illness, that

is why I was so curious about how achieved it.

Thanks Shiela, I would have susptected she had some T3 going on there.

If it is in her book I would love to know if the treatment in it is up

to date, I am going to try and get to the library for it.

I made a big mistake today, thought I could go out to the local shop,

40 yds down the road I was bent over trying to get a breath and and in

a lot of pain,a lady I have seen around town came up to help and was

very concerned about me bless er. I had to call my hubby to come and

get me, how frustrating. Ah well I tried, I am wiped out now, such is

life. I am sure I will improve and get to the library, or send my hubby

lotsa luv

Dawnx

[Guest guest]

Hi

I am delighted that we do have members who are only on L-thyroxione medication and doing so well. This is wonderful news, and long may you continue. I wish we could all tolerate T4 only - but sadly, a large minority of us are unable to convert it to T3. Kepp up the good work, this is so encouraging for newbies.

luv - Sheila

HiI think everyone is an individual where treatment goes. Last year I wason mobility and could hardly walk the day of the wheelchair I knew wasjust around the corner and I was thinking of early retirement. Today Iwas at the gym and have lost well over 4 stone since my treatment. I wasgiving the exercise bike some welly and went out sweating like mad withhair stuck to my head and smiling like mad! I too had long standingunder active thyroid it all started when I was about 28/9 and now I amwell about 50 won't admit to more. The doctor even said three years agoif you don't stop smoking (which I admit to) you will be dead in 5 yearsand put all my breathing problems, chest infections, down to COPD. Funnysince I started on thyroxine I have had no further breathing problemsand am now getting my lungs working again. I am only on thyroxine a doseof 150 but the difference it has made to my life is unbelievable. And ifit was not for this site I would not be on that! Why do we alwaysbelieve our doctors and think they are God!Luv>> I am wondering whether some people might have thought she was perhapsa bit hyper and on too much medication.>> Her adrenals must have been working hard too, as it must be scarybeing on TV for the first time.>> However, I think if I could feel so well after being so ill for yearsI too would be euphoric and evangelistic, two conditions which show anabundance of enthusiasm.>> Lilian>No virus found in this incoming message.

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[Guest guest]

Hi

I am trying as hard as I can to maximize my figure as I want the after

photo to look convincing.

This would be very convincing evidence that untreated hypothyroidism

because you are in the reference range is just not right! I cannot wait

until I can walk into my doctors in my blue pin striped suit that I have

not worn for years and is hanging in my wardrobe and make an appointment

with the doctor who had wrote me off more or less as having copd and

show him what a good diagnosis has done!!! It is what I am working

towards - seeing the evidence just might then do some good for more of

his patients! He won't have a leg to stand on then!

Luv

> >

> > I am wondering whether some people might have thought she was

perhaps

> a bit hyper and on too much medication.

> >

> > Her adrenals must have been working hard too, as it must be scary

> being on TV for the first time.

> >

> > However, I think if I could feel so well after being so ill for

years

> I too would be euphoric and evangelistic, two conditions which show

an

> abundance of enthusiasm.

> >

> > Lilian

> >

>

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.138 / Virus Database: 270.5.10/1586 - Release Date:

01/08/2008 18:59

>

[Guest guest]

Hi

I hope it helps you I really do. I am just so very very very lucky

that I can tolerate the synthetic T4. However, I would rather be on

Armour but could not afford it at present but I am working on that! My

TSH is very low though 0.03 but my doctor has not called me in for

another appointment so I presume she does not mind leaving me at that.

I have no hyper symptoms and I take my heart rate at the gym all the

time and they say it is normal after exercise (for someone as unfit as

me ha ha it never goes above 130 it is usually about 120 when I am

working hard). If I was hyper with a workout it would be sky high I

think? Resting it is under 80 anyway and my temperature the other day

was 35. something. So no hyper evidence so it just goes to show that

something is drastically wrong with these blood tests.

Luv

>

> And

>

> I am so glad that the Thyroxine has improved your life so much, and as

> you say, definately an individual thing, however I don't mind

> copycatting if I think it might help me lol

>

> lotsa luv

> Dawnx

>

[Guest guest]

Hello ,

Glad to hear that you too are doing very well on just thyroxine - so

am I. We may be in the minority but it just goes to show that

everyone is indeed an individual.

Keep up the great work in the gym - I go twice a week as well as yoga

and since having changed my diet these past four months have been the

best I have felt in decades.

Long may it last for both of us.........

regards, M.

>

> Hi

>

> I think everyone is an individual where treatment goes. Last year

I was

> on mobility and could hardly walk the day of the wheelchair I knew

was

> just around the corner and I was thinking of early retirement.

Today I

> was at the gym and have lost well over 4 stone since my treatment.

I was

> giving the exercise bike some welly and went out sweating like mad

with

> hair stuck to my head and smiling like mad! I too had long standing

> under active thyroid it all started when I was about 28/9 and now I

am

> well about 50 won't admit to more. The doctor even said three years

ago

> if you don't stop smoking (which I admit to) you will be dead in 5

years

> and put all my breathing problems, chest infections, down to COPD.

Funny

> since I started on thyroxine I have had no further breathing

problems

> and am now getting my lungs working again. I am only on thyroxine a

dose

> of 150 but the difference it has made to my life is unbelievable.

And if

> it was not for this site I would not be on that! Why do we always

> believe our doctors and think they are God!

>

> Luv

>

>

>

>

[Guest guest]

Well - as soon as that photo is available , add it to our Photo's section of this forum. Anybody can see a photo of me before - during - and after there.

Luv - Sheil

I am trying as hard as I can to maximize my figure as I want the afterphoto to look convincing.This would be very convincing evidence that untreated hypothyroidismbecause you are in the reference range is just not right! I cannot waituntil I can walk into my doctors in my blue pin striped suit that I havenot worn for years and is hanging in my wardrobe and make an appointmentwith the doctor who had wrote me off more or less as having copd andshow him what a good diagnosis has done!!! It is what I am workingtowards - seeing the evidence just might then do some good for more ofhis patients! He won't have a leg to stand on then!Luv

.. No virus found in this incoming message.

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[Guest guest]

Hi

Yes I will have to get back to the dieting now although I have been

exercising but have not lost any further weight for a while - but have

not put any on either well I might have put on a pound or two but

nothing much. Minst you they say muscle weighs more than fat so it

maybee isn't fat gain. But the doctor trying to put down my dose has

not helped I stuck it for about one to two weeks and then upped it

again and I am staying on 150!! As soon as I tried to put it down I

felt terrible again. Well it took a couple of days before it started

to tell, my daughter noticed the difference in me too she said 'Mum

are you taking your tablets?'.

So now I am starting my diet again. I need to get another 2 stone off

will let you know weekly how I am doing. I am getting weighed on a

Monday. It keeps me good over the weekend. Psychological thing. But I

must admit I have been a bit naughty over the past couple of weeks as

I have been on holiday from work, haven't been anywhere just indulged

myself ha ha As soon as my photo is ready, I think it will take six

months to get the rest off, I will put it on. Its a slow business this

weight loss thing.

Luv

>

> Well - as soon as that photo is available , add it to our

Photo's section of this forum. Anybody can see a photo of me before -

during - and after there.

>

> Luv - Sheil

>

>

>

>

> I am trying as hard as I can to maximize my figure as I want the after

> photo to look convincing.

>

> This would be very convincing evidence that untreated hypothyroidism

> because you are in the reference range is just not right! I cannot

wait

> until I can walk into my doctors in my blue pin striped suit that

I have

> not worn for years and is hanging in my wardrobe and make an

appointment

> with the doctor who had wrote me off more or less as having copd and

> show him what a good diagnosis has done!!! It is what I am working

> towards - seeing the evidence just might then do some good for more of

> his patients! He won't have a leg to stand on then!

>

> Luv

>

>

>

>

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[Guest guest]

Hi

Just a word of caution about the dieting. Bob posted a link to why we

stop losing weight after a while whilst dieting.

''I have been

exercising but have not lost any further weight for a while''

It was because of the body adapting to the lower intake of food and

becoming a RT3 issue. Also if you over stress your adrenals doing too

much regardless of whether you have had adrenal issues before you

could slow down the T3 going into the cells. Just a little worried for

you hon, thought I would post a little precautionary note

lotsa luv

Dawnx

[Guest guest]

Hi

Thanks for that. I already have a T4-T3 conversion problem! What can I

do as I must loose the rest of this weight! Its my asthma you see. And

also the same as lots of us I was never fat before and cannot adjust

well I won't accept it!

Thanks

Luv

>

> Hi

>

> Just a word of caution about the dieting. Bob posted a link to why we

> stop losing weight after a while whilst dieting.

>

> ''I have been

> exercising but have not lost any further weight for a while''

>

> It was because of the body adapting to the lower intake of food and

> becoming a RT3 issue. Also if you over stress your adrenals doing too

> much regardless of whether you have had adrenal issues before you

> could slow down the T3 going into the cells. Just a little worried for

> you hon, thought I would post a little precautionary note

>

> lotsa luv

> Dawnx

>

[Guest guest]

Hi

Until you get your metabolism stabilised and functioning as it should, it is very difficult to burn off calories. However, go to our website www.tpa-uk.or.guk and click on 'Hypothyroidism' and then click on 'Nutrition and supplements' on the drop down Menu there.

If you are not converting the inactive T4 to the active T3, then you will need a combination of either synthetic T4/T3 therapy or natural thyroid extract (Armour Thyroid). Do let us have a copy of your last blood test results together with the reference range for each test. Have you see an endocrinologist, if not, ask your GP to refer you to a thyroid specialist.

Luv - Sheila

HiThanks for that. I already have a T4-T3 conversion problem! What can Ido as I must loose the rest of this weight! Its my asthma you see. Andalso the same as lots of us I was never fat before and cannot adjustwell I won't accept it!ThanksLuv

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[Guest guest]

Hi

The results are am on 150 synthetic thyroxine -

TSH 0.03 (previous 0.7, worst 3.6)

T3 5.0 (3.5-6.5)

T4 15.1(8 - 21)

I think these reference ranges are right but am unsure. I rang the

doctors up and they did not have them only the results. The

receptionist got a bit snotty and said what do you want them for if

there was anything wrong the doctor would let you know YER RIGHT!!!

Its just what I remember when I saw them on the screen. I had them

done with the Huddersfield Royal Lab, who calls out on a Friday to our

practice. Wonder if anyone on the site has tests done at Huddersfield

Royal and knows the reference ranges.

Luv

>

> Hi

>

> Until you get your metabolism stabilised and functioning as it

should, it is very difficult to burn off calories. However, go to our

website www.tpa-uk.or.guk and click on 'Hypothyroidism' and then click

on 'Nutrition and supplements' on the drop down Menu there.

>

> If you are not converting the inactive T4 to the active T3, then you

will need a combination of either synthetic T4/T3 therapy or natural

thyroid extract (Armour Thyroid). Do let us have a copy of your last

blood test results together with the reference range for each test.

Have you see an endocrinologist, if not, ask your GP to refer you to a

thyroid specialist.

>

> Luv - Sheila

>

>

>

> Hi

>

> Thanks for that. I already have a T4-T3 conversion problem! What can I

> do as I must loose the rest of this weight! Its my asthma you see. And

> also the same as lots of us I was never fat before and cannot adjust

> well I won't accept it!

>

> Thanks

>

> Luv

>

>

>

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[Guest guest]

Hi

Your T3 looked lovely as long as it is not Rt3 in there, you can

prolly tell by how you feel anyway.

If you are going to diet I recommend not allowin yourself to feel

hungry and having weekend holidays where you don't diet, but don't

gorge yourself. I realise now that years of yoyo dieting because of

tryin to get the weight off with the thyroid problem was the reason I

put a little more on every time I came off the diets. Just take care

hon

lotsa luv

Dawnx

[Guest guest]

Hi again

I didn't accept it either because I wasn't fat before it, and it is

possible to lose it on thyroxine, trouble is with me with Hashis is I

had gone through 'normal' metabolic periods with energy and managed to

diet and exercise (very aggressively), then everything would slow down

and I was worse off than before I lost it. Every time it slowed down I

ended up heavier than I was before the previous losses. So frustating

and quite devastating to the body and mind.

lotsa luv

Dawnx

[Guest guest]

>

> Hi Dawn I have found the Holford low GL diet fantastic. Both

me and my husband went on it in Jan. He lost 2 stone and I lost a

stone. It hasn't gone back on either which I found happened with the

Atkins diet. I also get to eat porridge with half milk and half water

every morning and I love it. He has produced at least 1 recipe book and

the meals are very good, very tasty.I haven't managed to get under 10

stone even on the Atkins for a decade.

>

[Guest guest]

Hi Dawn

....your mitochondria were probably changing shape at the same time....

It was illustrated early on that the mitochondria in the thyroid cells

change shape even on exposure to cold ~ keeping a scarf on in winter

helps to stabilise this aspect of thyroid function.

best wishes

Bob

>

> Hi again

[Guest guest]

Hi Bob

this is soooo wierd, what a strange condition it is, thanks for the

info Something I would never have imagined

lotsa luv

Dawnx

>

> ...your mitochondria were probably changing shape at the same time....

>

> It was illustrated early on that the mitochondria in the thyroid cells

> change shape even on exposure to cold ~ keeping a scarf on in winter

> helps to stabilise this aspect of thyroid function.

>

> best wishes

> Bob

>