Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Hi everyone, We have finally got round to arranging to have some blood taken for my wife to send off to NPTech. Briefly, she was found to be hypothyroid about 5 years ago and was also diagnosed as having fibromyalgia. She is on thyroxine the dosage determined by T4 and TSH levels. It was also discovered that auto immune antibodies were present. She is in constant pain and feeling generally very poorly at present. My question is which tests should we have carried out ? Complete thyroid profile or just Free T3 as T4 / TSH checked periodically by GP ? Is it worth checking antibodies again or are they there for life ? TPO ? Apologies if the answers are already somewhere on this site but at the moment we are desperate to the point of not being able to see the wood for the trees. Many thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 ooo Forgot to mention, if they are offering RT3 that can be useful to calculate how well she is converting the T4. lotsa luv Dawnx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 Hi I am so sorry to hear that your wife is feeling so awful at the moment and obviously, the medication she is taking right now is probably not the medication she needs or the dose. If she has fibromyalgia, then she needs Liothyronine (T3). If you read Dr Lowe's site, he will assure you that T3 is the treatment of choice here and he will not have anything to do with synthetic thyroxine - which he thinks is the worst drug every invented. Fibromyalgia is caused because the T4 is not converting to T3 and her body isn't getting enough T3 and this is the cause of her pain. Tell your wife first to ask her GP for the FULL thyroid function test. This consists of the TSH, Free T4, Free T3 (no need to have antibodies done, as she knows she has them and their count at any stage really doesn't matter. Also get her Reverse T3 checked. She should get her ferritin level checked (stored iron). If this is low, it stops her thyroid hormone replacement from being absorbed by her body, as does low vitamin D. Also, it will be the same if she has low adrenal reserve (look in our FILES from the forum website and ask her to do the Adrenal questionnaire. At the same time, ask her also to do the Candida Questionnaire and the home Candida spit test. If her GP refuses for some reason refuses to test, then you will have to get them tested at NPTech Services. You can see a copy of the tests they do and the prices they charge in our files on the forum. She should take a glass of water to bed tonight. Tomorrow morning, before having anything to drink or cleaning her teeth, she should spit into the top of the glass. After a while, if there are stringy tendrils going towards the bottom of the glass or the water goes cloudy, this could be an indication that she has Candida Albicans. If the water goes clear, it isn't candida. We can take that further if any of the above are positive. If she could have low adrenal reserve, ask her to get the 24 hour salivary adrenal profile done through NPTech also. This is expensive, but worth every penny. They will send out a test kit which is four straws and four test tubes. She places a straw in her mouth and the other end in the test tubes and spits down this until she more or less fills the little tube. They will then measure her cortisol and DHEA at four specific times during the day (8.00a.m. - midday, 4.00p.m. and again at midnight. If her levels are out of range, these can be treated and then her thyroid hormone will be able to be absorbed properly. However, I do believe she will find she needs some form of T3. Levothyroxine is an inactive hormone, it has to convert to T3 (the active hormone) through the liver and then the T3 can get into every cell in the body to make it function. Her fibromyalgia pains will go away, she will get her brain back and hopefully, her complete health. She could take it in combination with T4, or she could start taking Armour (which I would recommend). Perhaps she should talk to her endocrinologist and ask if there is a possibility of her having a trial of Armour, but if he is not ion favour, then you can buy this without prescription from the Internet Pharmacy www.internationalpharmacy.com I am fighting big time with the BTA and endocrinologists at the moment who have misleading and incorrect information regarding both combination synthetic therapy and Armour thyroid therapy. The reason why tens of thousands of sufferer's ion the UK are suffering is because of the BTA protocol. If you go to our FILES in the forum website, scroll down until you see TPA-UK response to the BTA on Armour and T4/T3 combination therapy. Read those and you will realise WHY T4 (Levothyroxine) does NOT work for a large minority of people. If the NHS refuses your wife, you have no option but to self treat. She will not regain her normal health on synthetic thyroxine if she has fibromyalgia. Luv - Sheila>> Hi everyone,> > We have finally got round to arranging to have some blood taken for my> wife to send off to NPTech.> > Briefly, she was found to be hypothyroid about 5 years ago and was> also diagnosed as having fibromyalgia. She is on thyroxine the dosage> determined by T4 and TSH levels. It was also discovered that auto> immune antibodies were present. She is in constant pain and feeling> generally very poorly at present.> > My question is which tests should we have carried out ?> > Complete thyroid profile or just Free T3 as T4 / TSH checked> periodically by GP ?> > Is it worth checking antibodies again or are they there for life ?> > TPO ?> > Apologies if the answers are already somewhere on this site but at the> moment we are desperate to the point of not being able to see the wood> for the trees.> > Many thanks,> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2008 Report Share Posted June 8, 2008 dawn, you sent this to me and I think you meant it to go to the forum. I have forwarded it here. Luv - Sheila Re: Which blood tests? Hi Dan Write a letter to the doctor explaining how ill she feels, go to the files and folders and take notes of the signs and symptoms for hypothyroid and include in the letter the ones that your wife has. That way she will be on record as having contacted the doc with all those. Also, if you request the doc do a TSH, Free T3 and Free T4 on a letter I feel he may be more likely to do one as it is on her records. Explain why you are requesting it, because she is presenting with hypothyroid symptoms despite her treatment and the other blood tests coming back as though she were within normal ranges. Explain to the doc that the T4 is a total T4 of which some is bound to proteins and not available for the body, you want to see what is bioavailable, also that T4 is only used by the body when converted to T3. If he refuses, and I bow to the more experienced here, I should think TPOs are always going to be there to a greater or lesser degree, and that the TSH should always be taken at the same time as the FT3 and the FT4 levels so personally, if I were paying out for it, I would have those 3 done. lotsa luv Hope she feels better soon Dawnx -- No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 270.0.0/1489 - Release Date: 07/06/2008 11:17 Quote Link to comment Share on other sites More sharing options...
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