Re: High antibodies, high TSH - hypo?

July 11, 2008

Hi there

I would tell them that they have a duty of care. He has symptoms of

hypothyroidism and they need treating, he doesn't need to be hanging

around for another 6 months feeling like that. They are supposed to

have a protocol to treat to both blood tests AND symptoms.

I feel the TSH range will probably be lower in this country soon in

light of the HUNT report (in the Netherlands) which correllated the

Cardiovascular disease risk with the height of TSH. Also if he as

antibodies (TPO's) he has Hashimotos which is an autoimmune disease,

and needs treating. IMHO

The only way I know of to control antibodies is to get the TSH below 1.0

I would go back and put my foot down with a firm hand, I am sure

Shiela and the others will come and give some advise soon:)

lotsa luv

Dawnx

---

July 12, 2008

HI

Ask your son to write down all his symptoms and you can check his signs. Check these against our list of symptoms and signs in our website www.tpa-uk.or.guk under Hypothyroidism, and then click on the 'Symptoms and Signs' List. He should write these down in a letter to his GP and also he should write down his temperature, taken for 4 to 5 days every morning before getting out of bed. He should mention everybody in his family who has a thyroid problem or who has an autoimmune disorder. He should ask, because of these, that he be given a referral to an endocrinologist, one who specialises in thyroid disease rather than diabetes.

With a TSH of 5.6 , plus high level of antibodies - he is definitely hypothyroid and he must not wait for 6 months before being seen again. The fact that they have told him they are not sure how antibodies work and have difficulty in knowing how to interpret the test results, this is definitely a case of an urgent referral being needed asap. I am sending you a list of doctors who know a little more about thyroid disease than the normal NHS doctor.

Luv - Sheila

I am already being treated successfully on armour despite TFT ranges showing as mid range, thanks to Dr Skinner. My son who is 27 yrs old is extremely lethargic, etc and has just had a TFT done after me nagging him. His readings are T4 - 16 and TSH 5.6. He said the upper limit for TSH was 6! I find this amazing. Of course they have decided not to treat him because he falls within the range and told him he is normal even though he has a high reading of antibodies which concerned them (he didn't know exact reading). The have told him to come back in 6 months and for him to see how it goes! They also told him they weren't sure how to interpret the results as they didn't understand antibodies. I think this must have been the receptionist. Do you think he should be treated. I am not sure how antibodies work and is this enough to diagnose him as hypo even though his TFT readings fall within the range? We have BUPA so wonder if it would be advisable for him to see a sympathetic endo. Do you know of one within easy reach of Ambleside, Lake District (LA22 9BS).If not we will arrange for him to see Dr P. Thanks, (anxious Mom 250 miles away). No virus found in this incoming message.

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July 12, 2008

Hi Dawn,

How can you get a TSH reading of 1 or less? When the T4 reading is top of the range but the TSH is still high you cant just keep incresing the T4 surely you will end up towards the hyper end of the scale?

I am wondering if this is whats happening to me, my last test showed a T4 of 16.2 (ref 9-19.1) and TSH of 3.6, after that test I increased to 150mcg which I am pretty sure will bring my T4 very near the top end of the range but im sure my TSH wont be low enough, what happens then?

From: blondiethefirstuk <whitbywitchuk@...>Subject: Re: High antibodies, high TSH - hypo?thyroid treatment Date: Friday, 11 July, 2008, 9:41 PM

Hi thereI would tell them that they have a duty of care. He has symptoms ofhypothyroidism and they need treating, he doesn't need to be hangingaround for another 6 months feeling like that. They are supposed tohave a protocol to treat to both blood tests AND symptoms.I feel the TSH range will probably be lower in this country soon inlight of the HUNT report (in the Netherlands) which correllated theCardiovascular disease risk with the height of TSH. Also if he asantibodies (TPO's) he has Hashimotos which is an autoimmune disease,and needs treating. IMHO The only way I know of to control antibodies is to get the TSH below 1.0I would go back and put my foot down with a firm hand, I am sureShiela and the others will come and give some advise soon:)lotsa luvDawnx---

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July 12, 2008

How can you get a TSH reading of 1 or less? When the T4 reading is top

of the range but the TSH is still high you cant just keep incresing

the T4 surely you will end up towards the hyper end of the scale?

I believe the T4 needs to be in the upper end of the range, if this is

not bringing the TSH into decent levels, you need to see what the FT3

is dong to see why the TSH is not coming down low enough to handle the

antibodies. I agree, you cannot keep pushing up T4 only meds if you

are already top heavy in T4.

lotsa luv

Dawnx

July 12, 2008

Thanks dawn, I am almost certain I will not need anymore T4. I have had a T3 test and it was low in range at 4.16 so will probabaly wait and see what the next test says in 2 weeks.

My adrenals are a major problem at the min which I think have stopped me getting well, but am seeing DR P in a week so am hoping he will get me on the right track.

I just keep reading ' you wont feel well until you have a TSH of 1 or under' and mine is no where near that after nearly 2 yrs of treatment!

From: blondiethefirstuk <whitbywitchuk@...>Subject: Re: High antibodies, high TSH - hypo?thyroid treatment Date: Saturday, 12 July, 2008, 8:12 PM

How can you get a TSH reading of 1 or less? When the T4 reading is topof the range but the TSH is still high you cant just keep incresingthe T4 surely you will end up towards the hyper end of the scale?I believe the T4 needs to be in the upper end of the range, if this isnot bringing the TSH into decent levels, you need to see what the FT3is dong to see why the TSH is not coming down low enough to handle theantibodies. I agree, you cannot keep pushing up T4 only meds if youare already top heavy in T4.lotsa luvDawnx

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July 13, 2008

Hi again

Seeing Dr P, you lucky gal

I should think the only reason people need to be below 1. with Hashis

is the antibody suppression of that TSH. People with ordinary hypo

generally seem ok between 1. and just below 2 according to DrRind's

website. So I think it is totally dependant on the cause of the illness.

lotsa luv

Dawnx

July 13, 2008

But How do you get a TSH of 1 or below when you have a top of the range T4 and no more increases in thyroxine? I cant see how that works, sorry, trying hard to figure it out!

From: blondiethefirstuk <whitbywitchuk@...>Subject: Re: High antibodies, high TSH - hypo?thyroid treatment Date: Sunday, 13 July, 2008, 9:22 PM

Hi again Seeing Dr P, you lucky gal :)I should think the only reason people need to be below 1. with Hashisis the antibody suppression of that TSH. People with ordinary hypogenerally seem ok between 1. and just below 2 according to DrRind'swebsite. So I think it is totally dependant on the cause of the illness.lotsa luvDawnx

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July 13, 2008

evening sarah & dawn, i believe you can also get a suppressed tsh if there is a compromised pituitary gland. my tsh is 0.06 (0.34-5.50), t4 15.1 (7.5-21.0), t3 5.5 (3.8-6.0), these results were when i was on 100 mcgs of levo (since stopped by nasty endo) and i was starting to feel quite well. i think if you get your thyroxine from an outside source there is a good chance that the pituitary will not send out the tsh "message" to the thyroid gland to produce more t4. regards jane

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July 13, 2008

Thanks hon

I think if you are doing well, feel well, have energy, I wouldn't

change a thing. I would keep it as is no matter what people say lol.#

lotsa luv

Dawnx

July 15, 2008

hi dawn; as you say, if i was feeling better on the thyroxine then no nasty endo telling me to stop would have any effect on me. i decided that if i had to self medicate then i would go straight to armour. i am now on 1 3/4 grain and am starting to feel quite well. fingers crossed ! jane X

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July 15, 2008

Yes, fingers crossed, and legs, eyes, heck crossing everything for you

luv Dawnx

July 16, 2008

thanks dawn, must be very uncomfortable for you :~} jx

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July 16, 2008

raoflmao Jane

July 22, 2008

Hi sarah,

Just proves that TSH is a