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Re: fibro in my jaw??

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I get the jaw thing all the time on and off sometimes it feels as though its going to lock or sort of goes out of line, its difficult to explain.I used to get a lot of pain in the side of my jaw I could not rest my hand on the side of the face it hurt so much but over time it just wore off.I really hope that it wears off for you too I am sure it will.Sorry I am not much help but at least you are not alone and I feel better knowing that I am not the only one with this weird problem.

Sue.xx

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Colleen,

I have had jaw pain with all of the other pain since the whole thing started... so yes I have to say that it is part of the illness.

Hugs, Billie-Jo

----- Original Message -----

From: Colleen

Sent: Sunday, February 15, 2004 10:49 AM

Subject: fibro in my jaw??

The past couple of days the right side of my jaw has been killing me! So badthat I can't even put my teeth together on that side. It goes all the way upto my ear. Could this just be my fibromyalgia? I hurt in my normal placesjust about every day (elbows, wrists, hips, knees, hands, etc.) but this isthe first time for the jaw thing. Any ideas? Thanks ladies! Colleen

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I do too, goes off and on. Wonder how it could be related , but didn’t start until after the implants. Hurts for days, and I cant bite all the way down, cracks even, then bam- gone. Happens about twice a year. Darnest thing... julie

----- Original Message -----

From: gibbense@...

Sent: Sunday, February 15, 2004 2:20 PM

Subject: Re: fibro in my jaw??

I get the jaw thing all the time on and off sometimes it feels as though its going to lock or sort of goes out of line, its difficult to explain.I used to get a lot of pain in the side of my jaw I could not rest my hand on the side of the face it hurt so much but over time it just wore off.I really hope that it wears off for you too I am sure it will.Sorry I am not much help but at least you are not alone and I feel better knowing that I am not the only one with this weird problem.Sue.xx

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-Colleen

Just a couple of ideas. Sinus infection can cause that kind of

pain. Or just sinus congestion. So can problems with your teeth or

gums. Also a condition called TMJ. TMJ is very common with fms and

other conditions affecting muscles. I have also gotten this kind of

pain when I have been herxing badly to something. My best guess

would be something to do with the sinus area. Even killing candida

off could produce this kind of pain as a herx. Have you been doing

any detoxing or taking any supplements or garlic or coconut oil that

could have caused a herx? HOpe it goes away soon.

Hugs, kathy

-- In , Colleen <cfortner@e...> wrote:

> The past couple of days the right side of my jaw has been killing

me! So bad

> that I can't even put my teeth together on that side. It goes all

the way up

> to my ear. Could this just be my fibromyalgia? I hurt in my normal

places

> just about every day (elbows, wrists, hips, knees, hands, etc.)

but this is

> the first time for the jaw thing. Any ideas? Thanks ladies! Colleen

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I had TMJ when I was a kid and wore mouthpieces for years and had physical therapy for it. I was under the impression that it was gone. I guess that kind of thing never really gets cured. My illness now must have triggered it again.....great.......

From: halvey70@...

Reply-

Date: Sun, 15 Feb 2004 20:00:17 EST

Subject: Re: fibro in my jaw??

sounds lije classic TMJ - another common issue w/ us here. I have had it for years - they fitted me w/ this weird mouthpeice that didn't work.

shari

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Colleen,

I had TMJ issues when I was first married. For some reason it flared when I was in my late 20's, and at that time I had insurance so I had it checked out. I had alot of popping and clicking, and I couldn't open my mouth very wide. I wore braces as a teen, and I am almost certain it had something to do with that. I have heard of others with braces experiencing TMJ issues.

All I can say is that God protected me then because it could have been another medical nightmare. The TMJ doctor who I saw wanted to do surgery on me....he talked about putting a teflon piece in my jaw, but first I had to have an MRI of my head. However, he forgot to ask me something...when I got to the MRI imaging center, one of the questions was "Are you pregnant?" I had just found out I was! So, they could not do the MRI, he could not do the surgery, and instead he made me buy this mouthpiece that was totally impractical. I was a manager at that time in a retail store and I had to talk to people at work! I just couldn't wear it. All I could do was wait it out.

Thank God I was made to wait! By the end of my pregnancy, my TMJ issues healed on their own. It slowly got better and I never went back, and have never had another issue with popping and clicking in my jaw. That was in 1990 and 1991, over a decade ago.

I shudder to think of what would have happened if I had gone through with that surgery. Those poor victims of teflon jaw implants suffered horribly, and I think there was a lawsuit involving them. They have continued to suffer as their jawbones disintegrated, can you imagine the agony?

I don't know if our illness triggers it again or not....I have not experienced it, but I can see how it would. I pray that you find healing and relief, and I sure wish I had something more to offer than just the hope that it will go away on its own like mine did.

Hugs,

Patty

----- Original Message -----

From: Colleen

Sent: Monday, February 16, 2004 7:50 AM

Subject: Re: fibro in my jaw??

I had TMJ when I was a kid and wore mouthpieces for years and had physical therapy for it. I was under the impression that it was gone. I guess that kind of thing never really gets cured. My illness now must have triggered it again.....great.......

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Patty,

Thanks for your reply. You are always so sweet. That is a great story. God is really at work in our lives. I am hoping it will go away on it's own. I got a good night sleep last night (on sleeping pills) and it doesn't seem to be as bad this morning...so we'll see.

Thanks again!

Colleen

From: " ~*Patty*~ " <redeemed7@...>

Reply-

Date: Mon, 16 Feb 2004 09:29:03 -0800

< >

Subject: Re: fibro in my jaw??

Colleen,

I had TMJ issues when I was first married. For some reason it flared when I was in my late 20's, and at that time I had insurance so I had it checked out. I had alot of popping and clicking, and I couldn't open my mouth very wide. I wore braces as a teen, and I am almost certain it had something to do with that. I have heard of others with braces experiencing TMJ issues.

All I can say is that God protected me then because it could have been another medical nightmare. The TMJ doctor who I saw wanted to do surgery on me....he talked about putting a teflon piece in my jaw, but first I had to have an MRI of my head. However, he forgot to ask me something...when I got to the MRI imaging center, one of the questions was " Are you pregnant? " I had just found out I was! So, they could not do the MRI, he could not do the surgery, and instead he made me buy this mouthpiece that was totally impractical. I was a manager at that time in a retail store and I had to talk to people at work! I just couldn't wear it. All I could do was wait it out.

Thank God I was made to wait! By the end of my pregnancy, my TMJ issues healed on their own. It slowly got better and I never went back, and have never had another issue with popping and clicking in my jaw. That was in 1990 and 1991, over a decade ago.

I shudder to think of what would have happened if I had gone through with that surgery. Those poor victims of teflon jaw implants suffered horribly, and I think there was a lawsuit involving them. They have continued to suffer as their jawbones disintegrated, can you imagine the agony?

I don't know if our illness triggers it again or not....I have not experienced it, but I can see how it would. I pray that you find healing and relief, and I sure wish I had something more to offer than just the hope that it will go away on its own like mine did.

Hugs,

Patty

----- Original Message -----

From: Colleen <mailto:cfortner@...>

Sent: Monday, February 16, 2004 7:50 AM

Subject: Re: fibro in my jaw??

I had TMJ when I was a kid and wore mouthpieces for years and had physical therapy for it. I was under the impression that it was gone. I guess that kind of thing never really gets cured. My illness now must have triggered it again.....great.......

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