Re: advice needed on what to do before appointment with endo

[Guest guest]

Many years ago I went to the doctor with a pain very similar. He examined me said he thought it was my gall bladder. Sent me to University College Hospital in London for tests.

The consultant examined me, I told him where the pain was, he kept telling me if it was gallbladder the pain would be the other side (left) my pain was on the right. He kept telling me the pain would be on the left as if he wanted me to tell him that it was. As the pain was always in the same place, never radiated up shoulder he did more examinations.

They did ultra sound (it was very new then), radio active iodine, other dyes etc. The next thing I know they were arranging for me to go into hospital for a biopsy - on my liver. When did it change to my liver I wondered.

Whilst in hospital I had to work very hard to try and get out of them what they thought the problem was. Mind you it was not hard to work out because I was in a ward with women who were all being operated on for one cancer or another, plus I was in for a biopsy. However they finally told me that they suspected a tumour on my liver and that rather than do a biopsy whilst I am 'open' they would do what was necessary. So I was getting a laparoscopy.

After operation they were all quite excited and told me that they had found nothing wrong with me. Every scan I had indicated tumours but I was fine.

So off I went home (after another week in hospital recovering from the laparoscopy).

About 20 years later I happened to be talking to my GP who mentioned something about a haemangioma. My ears pricked up and I asked what was this. It seems he had forgotten to tell me that the result of the laparoscopy was that I had a haemangioma of my liver. I told him I still got the pain and he just said "well it cannot be anything serious because you are still alive".

30 years later I still get it, now and again, but not so much (fingers crossed).

Lilian

>>>No the pain is only under my ribs, it seems to build up then go away, very strange. <<<

[Guest guest]

Hi LillianI have had scans before of my liver they never see anything! I shall tell this endo whom i am seeing privately about this maye being private will change the attitude as I have been told more than once before that well your still here, just like you it does not help the pain and I was not vomitting then either. Carol X Re: Re: advice needed on what to do before appointment with endo

Many years ago I went to the doctor with a pain very similar. He examined me said he thought it was my gall bladder. Sent me to University College Hospital in London for tests.

The consultant examined me, I told him where the pain was, he kept telling me if it was gallbladder the pain would be the other side (left) my pain was on the right. He kept telling me the pain would be on the left as if he wanted me to tell him that it was. As the pain was always in the same place, never radiated up shoulder he did more examinations.

They did ultra sound (it was very new then), radio active iodine, other dyes etc. The next thing I know they were arranging for me to go into hospital for a biopsy - on my liver. When did it change to my liver I wondered.

Whilst in hospital I had to work very hard to try and get out of them what they thought the problem was. Mind you it was not hard to work out because I was in a ward with women who were all being operated on for one cancer or another, plus I was in for a biopsy. However they finally told me that they suspected a tumour on my liver and that rather than do a biopsy whilst I am 'open' they would do what was necessary. So I was getting a laparoscopy.

After operation they were all quite excited and told me that they had found nothing wrong with me. Every scan I had indicated tumours but I was fine.

So off I went home (after another week in hospital recovering from the laparoscopy) .

About 20 years later I happened to be talking to my GP who mentioned something about a haemangioma. My ears pricked up and I asked what was this. It seems he had forgotten to tell me that the result of the laparoscopy was that I had a haemangioma of my liver. I told him I still got the pain and he just said "well it cannot be anything serious because you are still alive".

30 years later I still get it, now and again, but not so much (fingers crossed).

Lilian

>>>No the pain is only under my ribs, it seems to build up then go away, very strange. <<<

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[Guest guest]

Carol,

Are you seeing the right consultant? If you are seeing an endo and it has nothing to do with his expertise he may not be the right person to see, although they are all doctors.

You will see from the article that if it is what you suspect 'oddi' thing, it needs an experienced surgeon to deal with it. If you are paying you can insist on the best person possible. It is on NHS where you have to take pot luck.

Lilian

I have had scans before of my liver they never see anything! I shall tell this endo whom i am seeing privately about this maye being private will change the attitude as I have been told more than once before that well your still here, just like you it does not help the pain and I was not vomitting then either.

[Guest guest]

Hi there Lillian I am seeing endo for thyroid meds etc. hope he will see that there is something else going on here as well and get me referred to another gastro consultant. Just got through and may have an appointment for tomorrow, I hope. Carol X Re: Re: advice needed on what to do before appointment with endo Carol, Are you seeing the right consultant? If you are seeing an endo and it has nothing to do with his expertise he may not be the right person to see, although they are all doctors. You will see from

the article that if it is what you suspect 'oddi' thing, it needs an experienced surgeon to deal with it. If you are paying you can insist on the best person possible. It is on NHS where you have to take pot luck. Lilian I have had scans before of my liver they never see anything! I shall tell this endo whom i am seeing privately about this maye being private will change the attitude as I have been told more than once before that well your still here, just like you it does not help the pain and I was not vomitting then either.

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[Guest guest]

Hi Sheila,

Thanks for that. I've read Dr Lowes website, and I am saving up to get

some blood tests done, and take a trip to see Dr Peatfield. I had TSH

and T4 done at the doctors last week and am hoping to get the results

today, if they will tell me!! Do you know if there are any known risks

of taking T3? I was debating trying it anyway, but was worried that it

my do me damage if this is not the problem.

Angie x

>

> Being diagnosed with fibromyalgia could mean you are suffering with

thyroid hormone deficiency. Usually T3. You need to include some form

of T3 (either synthetic or natural) - and then the pains just might go

away. Have you read Dr Lowes' website.

>

> luv - Sheila

>

>

>

>

[Guest guest]

Hi Thank you for your reply, I am seeing the endo tomorrow morning, surprising what happens when you pay, I hope its adrenal rathere than liver/gall problems don't want any more surgery if i can help it. I have been feeling a little nauseous this afternoon, not as bad as yesterday tho. Will let everyone know what he says he is on our list. Carol X Re: [thyroidpatientadvo cacy] advice needed on what to do before appointment with endo Dear Carol If I can jump in at this late stage into the conversations you have been having with other ladies, all of whom have been very kind in trying to help you and say that firstly, I would not wish to alarm you because, hopefully, what I was going

to suggest will not apply to you. When you mentioned adrenal fatigue and sickness, I thought that primarily maybe you ought to see the doctor who could then bring forward your appointment with your endocrinologist. When I was in hospital being treated for hypo symptoms, I became friends with a lady who had been treated for s disease and some of her symptoms were sickness on and off, tummy pain, low blood pressure and lose of weight. Hopefully it is just a thought and as you are reading this you will be feeling much better, but did you take up on Sheila's suggestion to google "vomitting low adrenal reserve" which I thought was a good idea. With this wretched

life-long disease (hypothyroidism) we all have to be aware that, unfortunately, our health cannot always be stable, so sometimes we have to explore all avenues. Hope you are well again soon. Luv .

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[Guest guest]

Hope all goes satisfactorily for you tomorrow Carol.

Lilian