Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 --- katieandfamily <katieandfamily@...> wrote: > I recently attendended a discussion on Iodoral and > decided to give it > a try. I have fibromyalgia and have been doing > really well on > another protocol as well. I also have had mild > hypothyroidism and it > is the autoimmune form, hashimoto's. I am not > currently on thyroid > medication. My TSH levels were above normal, but > only mildly high > right before starting the Iodoral. Two months after > the Iodoral my > endocrinologist ran some more thyroid tests and now > my TSH levels > have gone even higher, almost double what they were > before. I don't > think my TSH scores have ever been this high. As > many of you know a > high TSH (thyroid stimulting hormone) test means > that my thyroid is > functioning less than before. I was taking 4 pills > of Iodoral a day, > about 50 mg. I am concerned since I have the > Hashimoto's that my > hypothyroidism may have gotten worse. Even if the > Iodoral itself > didn't cause it to get worse, it seems that it > didn't help it to > improve. My endocrinologist was not in favor of me > taking the > Iodoral, but was willing to monitor me if I chose to > go on it. She > thought it could possibly cause my hypothyroidism to > get worse, or > possibly even cause me to go into the hyperthyroid > range. How long > does it usually take for one to see improvement? Is > it normal for > the thyroid to get worse before it gets better? I > have discontinued > it as of today until I can figure this out. Any > sugestions? > > Thank you, > > D. (AZ) ============================== From what I have read, TSH elevates for a while on the iodorol. To check thyroid function, have a free t4 and free t3. 2008 walking miles Goal 600 miles for 2008 January miles - 25 miles Year - 25 miles ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 My TSH levels were above normal, but only mildly high > right before starting the Iodoral. Two months after the Iodoral my > endocrinologist ran some more thyroid tests and now my TSH levels > have gone even higher, almost double what they were before. I don't > think my TSH scores have ever been this high. This is normal. It does occur with iodine supplementation and can continue for up to 6 mos. My Dr has seen it go as high as 75 with no clinical symptoms of hypoT. As many of you know a > high TSH (thyroid stimulting hormone) test means that my thyroid is > functioning less than before. This is untrue. TSH is a pituitary hormone and not a thyroid one. A better indicator is Free T4 and Free T3. Some Dr's like Total T4 and T3. Those are thyroid levels. I was taking 4 pills of Iodoral a day, > about 50 mg. I am concerned since I have the Hashimoto's that my > hypothyroidism may have gotten worse. What are your antibody levels? Did they increase or decrease? Even if the Iodoral itself > didn't cause it to get worse, it seems that it didn't help it to > improve. Do you feel worse or better since taking iodoral? My endocrinologist was not in favor of me taking the > Iodoral, but was willing to monitor me if I chose to go on it. She > thought it could possibly cause my hypothyroidism to get worse, or > possibly even cause me to go into the hyperthyroid range. How long > does it usually take for one to see improvement? Is it normal for > the thyroid to get worse before it gets better? I have discontinued > it as of today until I can figure this out. Any sugestions? As I said TSH is not a good indicator and the iodine docs don't watch it when it rises after starting supplementation. They use free T3 & Free T4 plus clinical symptoms. > > Thank you,> > D. (AZ)> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 don't treat (or not treat) to the tests!!! treat your body instead. Gracia My TSH levels were above normal, but only mildly high > right before starting the Iodoral. Two months after the Iodoral my > endocrinologist ran some more thyroid tests and now my TSH levels > have gone even higher, almost double what they were before. I don't > think my TSH scores have ever been this high. This is normal. It does occur with iodine supplementation and can continue for up to 6 mos. My Dr has seen it go as high as 75 with no clinical symptoms of hypoT. As many of you know a > high TSH (thyroid stimulting hormone) test means that my thyroid is > functioning less than before. This is untrue. TSH is a pituitary hormone and not a thyroid one. A better indicator is Free T4 and Free T3. Some Dr's like Total T4 and T3. Those are thyroid levels. I was taking 4 pills of Iodoral a day, > about 50 mg. I am concerned since I have the Hashimoto's that my > hypothyroidism may have gotten worse. What are your antibody levels? Did they increase or decrease? Even if the Iodoral itself > didn't cause it to get worse, it seems that it didn't help it to > improve. Do you feel worse or better since taking iodoral? My endocrinologist was not in favor of me taking the > Iodoral, but was willing to monitor me if I chose to go on it. She > thought it could possibly cause my hypothyroidism to get worse, or > possibly even cause me to go into the hyperthyroid range. How long > does it usually take for one to see improvement? Is it normal for > the thyroid to get worse before it gets better? I have discontinued > it as of today until I can figure this out. Any sugestions? As I said TSH is not a good indicator and the iodine docs don't watch it when it rises after starting supplementation. They use free T3 & Free T4 plus clinical symptoms. > > Thank you,> > D. (AZ)> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 That's great that your Dr was willing to increase. I would wait until you see your frees before freaking out. Have you checked Ferritin/Iron and B-12 levels. That can effect your ability to increase Armour. It is all a delicate balance. Re: Iodoral and Thyroid > Similar situation here. I feel great taking 4-6 Iodoral and 1 grain > Armour per day which produced a tsh of 39 and now again 46. The endo > wanted me to increase Armour but every time I do, I have adverse > effects including uncontrolled emotions and migraines, too much > hormone. > My endo has ordered a ft3, ft4, and tsh but I'm worried about my > follow up visit and if she will flip out. > > On a positive note, I found my endo listed on the Armour website as a > prescribing physician. So, perhaps she is more up on this than most. > For those of you looking for an endo who will prescribe ARmour, check > out their site. I believe it is www.armourthyroid.com. > Pam in Florida > > >> >> My TSH levels were above normal, but only mildly high >> > right before starting the Iodoral. Two months after the Iodoral > my >> > endocrinologist ran some more thyroid tests and now my TSH levels >> > have gone even higher, almost double what they were before. I > don't >> > think my TSH scores have ever been this high. >> >> This is normal. It does occur with iodine supplementation and can > continue for up to 6 mos. My Dr has seen it go as high as 75 with > no clinical symptoms of hypoT. >> >> As many of you know a >> > high TSH (thyroid stimulting hormone) test means that my thyroid > is >> > functioning less than before. >> >> This is untrue. TSH is a pituitary hormone and not a thyroid > one. A better indicator is Free T4 and Free T3. Some Dr's like > Total T4 and T3. Those are thyroid levels. >> >> >> I was taking 4 pills of Iodoral a day, >> > about 50 mg. I am concerned since I have the Hashimoto's that my >> > hypothyroidism may have gotten worse. >> >> What are your antibody levels? Did they increase or decrease? >> >> Even if the Iodoral itself >> > didn't cause it to get worse, it seems that it didn't help it to >> > improve. >> >> Do you feel worse or better since taking iodoral? >> >> My endocrinologist was not in favor of me taking the >> > Iodoral, but was willing to monitor me if I chose to go on it. > She >> > thought it could possibly cause my hypothyroidism to get worse, > or >> > possibly even cause me to go into the hyperthyroid range. How > long >> > does it usually take for one to see improvement? Is it normal > for >> > the thyroid to get worse before it gets better? I have > discontinued >> > it as of today until I can figure this out. Any sugestions? >> >> As I said TSH is not a good indicator and the iodine docs don't > watch it when it rises after starting supplementation. They use > free T3 & Free T4 plus clinical symptoms. >> >> >> >> > >> > Thank you, >> > >> > D. (AZ) >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Thank you for the replies. The problem is that I did not feel much better on the Iodoral. Maybe a little bit better in some ways, but worse in other ways. Maybe that is normal after only being on the iodoral for 2 and a half months??? Although the endo did not check to see if my thyroid antibody titers have gone up, she did do a T4, which is at the same level as it was before. However, I think some of my hypothyroid symtoms have gotten worse. My intollerance to cold feels worse, my hands and feet are really cold a lot, like iceberg cold (I realize it's winter, but I live in Arizona where it really isn't that cold). I have gained weight and I have been much more constipated. I also have felt my energy decrease I think. So overall I think my thyroid may be struggling more now. Since I have the hashimoto's I am concerned about my thyroid being attacked even more. I think I will ask my endo to do some more tests, including checking my antibody titers and doing a free t4 and t3. I think our family also may have some hormone resistance issues, and so sometimes even having normal t4 or t3 levels on a blood test will not show what of the thyroid hormones our bodyies are even utilizing through the receptors. If I felt a lot better on the iodoral and my hypothyroid symptoms were not increasing, it would be more motivating to stay on it, despite my TSH levels elevating. Thanks again, any more suggestions are welcome. in AZ > > > > My TSH levels were above normal, but only mildly high > > > right before starting the Iodoral. Two months after the Iodoral > my > > > endocrinologist ran some more thyroid tests and now my TSH levels > > > have gone even higher, almost double what they were before. I > don't > > > think my TSH scores have ever been this high. > > > > This is normal. It does occur with iodine supplementation and can > continue for up to 6 mos. My Dr has seen it go as high as 75 with > no clinical symptoms of hypoT. > > > > As many of you know a > > > high TSH (thyroid stimulting hormone) test means that my thyroid > is > > > functioning less than before. > > > > This is untrue. TSH is a pituitary hormone and not a thyroid > one. A better indicator is Free T4 and Free T3. Some Dr's like > Total T4 and T3. Those are thyroid levels. > > > > > > I was taking 4 pills of Iodoral a day, > > > about 50 mg. I am concerned since I have the Hashimoto's that my > > > hypothyroidism may have gotten worse. > > > > What are your antibody levels? Did they increase or decrease? > > > > Even if the Iodoral itself > > > didn't cause it to get worse, it seems that it didn't help it to > > > improve. > > > > Do you feel worse or better since taking iodoral? > > > > My endocrinologist was not in favor of me taking the > > > Iodoral, but was willing to monitor me if I chose to go on it. > She > > > thought it could possibly cause my hypothyroidism to get worse, > or > > > possibly even cause me to go into the hyperthyroid range. How > long > > > does it usually take for one to see improvement? Is it normal > for > > > the thyroid to get worse before it gets better? I have > discontinued > > > it as of today until I can figure this out. Any sugestions? > > > > As I said TSH is not a good indicator and the iodine docs don't > watch it when it rises after starting supplementation. They use > free T3 & Free T4 plus clinical symptoms. > > > > > > > > > > > > Thank you, > > > > > > D. (AZ) > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2008 Report Share Posted February 6, 2008 My TSH levels were above normal, but only mildly high > right before starting the Iodoral. Two months after the Iodoral my > endocrinologist ran some more thyroid tests and now my TSH levels > have gone even higher, almost double what they were before. I don't > think my TSH scores have ever been this high. This is normal. It does occur with iodine supplementation and can continue for up to 6 mos. My Dr has seen it go as high as 75 with no clinical symptoms of hypoT. As many of you know a > high TSH (thyroid stimulting hormone) test means that my thyroid is > functioning less than before. This is untrue. TSH is a pituitary hormone and not a thyroid one. A better indicator is Free T4 and Free T3. Some Dr's like Total T4 and T3. Those are thyroid levels. I was taking 4 pills of Iodoral a day, > about 50 mg. I am concerned since I have the Hashimoto's that my > hypothyroidism may have gotten worse. What are your antibody levels? Did they increase or decrease? Even if the Iodoral itself > didn't cause it to get worse, it seems that it didn't help it to > improve. Do you feel worse or better since taking iodoral? My endocrinologist was not in favor of me taking the > Iodoral, but was willing to monitor me if I chose to go on it. She > thought it could possibly cause my hypothyroidism to get worse, or > possibly even cause me to go into the hyperthyroid range. How long > does it usually take for one to see improvement? Is it normal for > the thyroid to get worse before it gets better? I have discontinued > it as of today until I can figure this out. Any sugestions? As I said TSH is not a good indicator and the iodine docs don't watch it when it rises after starting supplementation. They use free T3 & Free T4 plus clinical symptoms. > > Thank you,> > D. (AZ)> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 and Iodine group: Thank you for your reply. You asked if I felt worse since taking the Iodoral. The answer is yes, I do feel worse. My hypothyroid symptoms are quite a bit worse. I have had weight gain, REALLY Cold feeling, especially in my hands and feet. My throat has felt irritated for weeks (not a sore throat virus feeling), almost hoarse. I have less energy, dry skin, body pain, etc... I have not had my thyroid antibody levels checked in a while to see if they have gone up more, but the hyptothyroid symptoms absolutely feel worse. Since I have hashimoto's, I am concerned and really don't know if I should continue the Iodoral. I stopped it for now and I'm back to using a low dose kelp suppelement (thinking about discontinuing that too) until I figure this all out. I am wondering if the Iodoral (about 50mg a day) caused my body to attack my thyroid even more and am now trying to get things to settle down and can't seem to do it. I am going to ask my endo to check antibody titers and check my free t3 and t4 levels. I have fibrocystic breasts and was wanting to be on the Iodoral for preventative purposes as well as helping my hashi's. I think it may have made it worse instead. I have NOT been on thyroid medication for years now, and am now considering it again. Any suggestions would be appreciated. Thank you for your help. Thanks, D. in AZ, age 43, fibromyalgia, Hashi's, fibrocystic breasts > My TSH levels were above normal, but only mildly high > > right before starting the Iodoral. Two months after the Iodoral my > > endocrinologist ran some more thyroid tests and now my TSH levels > > have gone even higher, almost double what they were before. I don't > > think my TSH scores have ever been this high. > > This is normal. It does occur with iodine supplementation and can continue for up to 6 mos. My Dr has seen it go as high as 75 with no clinical symptoms of hypoT. > > As many of you know a > > high TSH (thyroid stimulting hormone) test means that my thyroid is > > functioning less than before. > > This is untrue. TSH is a pituitary hormone and not a thyroid one. A better indicator is Free T4 and Free T3. Some Dr's like Total T4 and T3. Those are thyroid levels. > > > I was taking 4 pills of Iodoral a day, > > about 50 mg. I am concerned since I have the Hashimoto's that my > > hypothyroidism may have gotten worse. > > What are your antibody levels? Did they increase or decrease? > > Even if the Iodoral itself > > didn't cause it to get worse, it seems that it didn't help it to > > improve. > > Do you feel worse or better since taking iodoral? > > My endocrinologist was not in favor of me taking the > > Iodoral, but was willing to monitor me if I chose to go on it. She > > thought it could possibly cause my hypothyroidism to get worse, or > > possibly even cause me to go into the hyperthyroid range. How long > > does it usually take for one to see improvement? Is it normal for > > the thyroid to get worse before it gets better? I have discontinued > > it as of today until I can figure this out. Any sugestions? > > As I said TSH is not a good indicator and the iodine docs don't watch it when it rises after starting supplementation. They use free T3 & Free T4 plus clinical symptoms. > > > > > > > Thank you, > > > > D. (AZ) > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 it sounds like you need to add thyroid meds like Armour. Don't give up on iodine, just add thyroid meds. Gracia and Iodine group:Thank you for your reply. You asked if I felt worse since taking the Iodoral. The answer is yes, I do feel worse. My hypothyroid symptoms are quite a bit worse. I have had weight gain, REALLY Cold feeling, especially in my hands and feet. My throat has felt irritated for weeks (not a sore throat virus feeling), almost hoarse. I have less energy, dry skin, body pain, etc... I have not had my thyroid antibody levels checked in a while to see if they have gone up more, but the hyptothyroid symptoms absolutely feel worse. Since I have hashimoto's, I am concerned and really don't know if I should continue the Iodoral. I stopped it for now and I'm back to using a low dose kelp suppelement (thinking about discontinuing that too) until I figure this all out. I am wondering if the Iodoral (about 50mg a day) caused my body to attack my thyroid even more and am now trying to get things to settle down and can't seem to do it. I am going to ask my endo to check antibody titers and check my free t3 and t4 levels. I have fibrocystic breasts and was wanting to be on the Iodoral for preventative purposes as well as helping my hashi's. I think it may have made it worse instead. I have NOT been on thyroid medication for years now, and am now considering it again. Any suggestions would be appreciated. Thank you for your help.Thanks, D. in AZ, age 43, fibromyalgia, Hashi's, fibrocystic breasts> My TSH levels were above normal, but only mildly high > > right before starting the Iodoral. Two months after the Iodoral my > > endocrinologist ran some more thyroid tests and now my TSH levels > > have gone even higher, almost double what they were before. I don't > > think my TSH scores have ever been this high. > > This is normal. It does occur with iodine supplementation and can continue for up to 6 mos. My Dr has seen it go as high as 75 with no clinical symptoms of hypoT.> > As many of you know a > > high TSH (thyroid stimulting hormone) test means that my thyroid is > > functioning less than before. > > This is untrue. TSH is a pituitary hormone and not a thyroid one. A better indicator is Free T4 and Free T3. Some Dr's like Total T4 and T3. Those are thyroid levels.> > > I was taking 4 pills of Iodoral a day, > > about 50 mg. I am concerned since I have the Hashimoto's that my > > hypothyroidism may have gotten worse.> > What are your antibody levels? Did they increase or decrease?> > Even if the Iodoral itself > > didn't cause it to get worse, it seems that it didn't help it to > > improve. > > Do you feel worse or better since taking iodoral?> > My endocrinologist was not in favor of me taking the > > Iodoral, but was willing to monitor me if I chose to go on it. She > > thought it could possibly cause my hypothyroidism to get worse, or > > possibly even cause me to go into the hyperthyroid range. How long > > does it usually take for one to see improvement? Is it normal for > > the thyroid to get worse before it gets better? I have discontinued > > it as of today until I can figure this out. Any sugestions?> > As I said TSH is not a good indicator and the iodine docs don't watch it when it rises after starting supplementation. They use free T3 & Free T4 plus clinical symptoms.> > > > > > > Thank you,> > > > D. (AZ)> > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 I would investigate going on some Armour. Sometimes suppression therapy by thyroid meds is a good thing for AIT thyroid patients. Re: Iodoral and Thyroid > and Iodine group: > > Thank you for your reply. You asked if I felt worse since taking the > Iodoral. The answer is yes, I do feel worse. My hypothyroid > symptoms are quite a bit worse. I have had weight gain, REALLY Cold > feeling, especially in my hands and feet. My throat has felt > irritated for weeks (not a sore throat virus feeling), almost > hoarse. I have less energy, dry skin, body pain, etc... > > I have not had my thyroid antibody levels checked in a while to see > if they have gone up more, but the hyptothyroid symptoms absolutely > feel worse. Since I have hashimoto's, I am concerned and really > don't know if I should continue the Iodoral. I stopped it for now > and I'm back to using a low dose kelp suppelement (thinking about > discontinuing that too) until I figure this all out. I am wondering > if the Iodoral (about 50mg a day) caused my body to attack my thyroid > even more and am now trying to get things to settle down and can't > seem to do it. I am going to ask my endo to check antibody titers > and check my free t3 and t4 levels. I have fibrocystic breasts and > was wanting to be on the Iodoral for preventative purposes as well as > helping my hashi's. I think it may have made it worse instead. I have > NOT been on thyroid medication for years now, and am now considering > it again. Any suggestions would be appreciated. Thank you for your > help. > > Thanks, > > D. in AZ, age 43, fibromyalgia, Hashi's, fibrocystic breasts > > >> My TSH levels were above normal, but only mildly high >> > right before starting the Iodoral. Two months after the Iodoral > my >> > endocrinologist ran some more thyroid tests and now my TSH levels >> > have gone even higher, almost double what they were before. I > don't >> > think my TSH scores have ever been this high. >> >> This is normal. It does occur with iodine supplementation and can > continue for up to 6 mos. My Dr has seen it go as high as 75 with > no clinical symptoms of hypoT. >> >> As many of you know a >> > high TSH (thyroid stimulting hormone) test means that my thyroid > is >> > functioning less than before. >> >> This is untrue. TSH is a pituitary hormone and not a thyroid > one. A better indicator is Free T4 and Free T3. Some Dr's like > Total T4 and T3. Those are thyroid levels. >> >> >> I was taking 4 pills of Iodoral a day, >> > about 50 mg. I am concerned since I have the Hashimoto's that my >> > hypothyroidism may have gotten worse. >> >> What are your antibody levels? Did they increase or decrease? >> >> Even if the Iodoral itself >> > didn't cause it to get worse, it seems that it didn't help it to >> > improve. >> >> Do you feel worse or better since taking iodoral? >> >> My endocrinologist was not in favor of me taking the >> > Iodoral, but was willing to monitor me if I chose to go on it. > She >> > thought it could possibly cause my hypothyroidism to get worse, > or >> > possibly even cause me to go into the hyperthyroid range. How > long >> > does it usually take for one to see improvement? Is it normal > for >> > the thyroid to get worse before it gets better? I have > discontinued >> > it as of today until I can figure this out. Any sugestions? >> >> As I said TSH is not a good indicator and the iodine docs don't > watch it when it rises after starting supplementation. They use > free T3 & Free T4 plus clinical symptoms. >> >> >> >> > >> > Thank you, >> > >> > D. (AZ) >> > >> > >> > >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
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