----short update on my health (from Kacey)

[Guest guest]

Hi ,

Thanks so much for your encouragement! Now I have a world of

questions floating around in my head, but I see my doc on Tuesday so

he can help out as well (he's an osteopathic doc). I'm so happy you

reassured me that I will get better...I really needed to hear that.

Okay, I do have FM. A doctor suggested antidepressants, but I told

him that I am happy. Unusually happy for someone this sick. Now

you have me thinking. Does FM get worse if you have any type of

strong emotion, or is it just when things go bad? I am completely

in love and have so loved being " distracted " from all of the pain.

Any thoughts on dealing with the FM would be greatly appreciated.

Currently I'm on oxygen for an hour a day because it's suppose to

help with muscle pain.

I will also be sure to get my throid checked out. They just did my

liver and checked my Tylenol level the other day. I'm just trying

to make it through this time of extreme pain, but I know I'll be

better. It's so hard because I've been on a high dose of Prednisone

for the past few days...and feeling better than I have in a long

time (but that was only on 60 mg)...and I know my time is limited.

I crammed in a complete weekend of normal " 20-something year old "

activities when I know I should be resting. But it's just so hard

not to be normal. I just want to shop and hang out with friends and

work...and and and. I've also been trying to use my hands as much

as possible because I know that I'm not going to be able to use them

once these meds work out. I know, I know, I'll learn to take it

easy eventually. I'm so Type A I drive myself crazy.

Thanks so much ,

Kacey

kaceyalong@...

> > Kacey,

> > How long have you been on the prednisone?

> >

> > I don't know if you've seen the information on prednisone that

> discusses it's toxicity, but please, look it up! I would highly

> encourage you to get off the prednisone as soon as you are able.

It

> is a very nasty drug. I know it helps with inflammation, but I've

> heard it suggested by naturopathic oriented doctors that it should

> only be used in life threatening situations, because it is so

> toxic. It will leave you unable to lose weight, and it basically

> damages your immune system--knocks it out so that you won't have

an

> inflammatory response. It helps with symptoms, but in the end,

> prevents healing.

> >

> > Here is what natural health guru Dr. Weil has to say:

> > http://www.drweil.com/app/cda/drw_cda.html-command=TodayQA-

> questionId=74996

> >

> > Conventional doctors use immunosuppressive drugs such as

> prednisone (a corticosteroid), to control severe symptoms. While

> these may be necessary for short periods, long-term use is not

wise,

> because they can reduce the chance that the disease will go into

> remission naturally.

> > In another post about migraines, he says:

> > Don't take prednisone or steroids to prevent attacks; the

> potential dangers outweigh the benefits.

> >

> > I know you are going a natural route, and that is very, very

> important. I know I may have been the exception in that I got

> better without ever having to take a single pain pill or any

> immunosuppressive drugs, but then again, could it be that I have

> healed as well as I did because I let my body heal naturally? I

> don't know. I understand that the pain is unbearable at times for

> so many of you, and I do sympathize with all of you in that

> position. Just please, please, try to get off any toxic drugs as

> soon as you are able. I think it is so important for long term

> healing. You are so young yet....you have a better chance than

> older women to help your immune system bounce back....

> >

> > By the way, congratulations on your new boyfriend! Love, in

> itself, can be so very healing.

> > Hugs,

> > Patty

> > ----- Original Message -----

> > From: kaceybu02

> >

> > Sent: Tuesday, February 03, 2004 10:51 PM

> > Subject: Re: heart pain & short update on my

> health (from Kacey)

> >

> >

> > Hi Fiona,

> >

> > Yeah, 21...not a great time to become disabled...but then

again,

> > what age would it be convenient. As far as how I'm doing now,

I

> was

> > explanted in Sept. 2003, and immidiately afterwards I saw

> > improvement in my pain. However, I've been trying to detox my

> body,

> > blood, intestines, organs...everything, and have since

seemingly

> > dealt with more pain. Currently I can't physically write, and

> > typing is often too difficult as well. I know I'm suppose to

> get

> > worse as toxins and everything are " dying off " , but it's still

> hard

> > to deal with all of the pain. I am working with my Osteopathic

> > specialist (Dr. Gonino of Rowlett, TX) to try to detox

and

> also

> > to come up with pain meds that actually alleviate pain.

Tylenol

> > doesn't cut it, and I've found that 3 Darvocets (like

> Vicadin)/day

> > along with a Celebrex and 2mg of Prednisone don't quite do it

> for me

> > either. Hopefully tomorrow when I go in for my Hydrogen

> Peroxide

> > IV, the doctor will prescribe some stronger pain meds.

> >

> > But despite all of my pain, I am extremely hopeful. I know

that

> I

> > am in good hands. Oh, when I refer to pain, it's located in

my

> all

> > joints/bones/muscles. The burning in my breasts and ribs have

> > subsided a lot after explant...and heart problems/shortness of

> > breath seem to be more under control as well (I'm also on

oxygen

> for

> > an hour a day).

> >

> > I know I sound like a complete mess, but I truly am a happy

> person

> > most of the time. I know I will be better eventually, and I'm

> > trying to enjoy my time back at home with my parents and 7

> siblings

> > as much as possible (nope, can't take care of myself yet

> either).

> > And I'm also happier than I've ever been, as I have just

> recently

> > started dating the most wondeful man I've ever met. I

couldn't

> ask

> > for anyone more supportive, caring, or who could love me

> better

> > So I know that this " distraction " really helps me bear all of

my

> > pain.

> >

> > Thanks for asking about me and best wishes in your search for

> the

> > right care and doctors,

> > Kacey

>

>

>

>