Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 I felt worse on medication for the first 6 months to be honest, now I feel great some 2.5 years later so hang in there it will get better. Luv nne Thing is I feel worse on the tablet than I did before, and wonder why...is it psychological? Thanks for listening, Mazzmate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Hello, just joined last night. I am newly diagnosed with under active thyroid, 4 weeks in to taking 25mcu of Levothyroxine. Had been attending gym for 10 months not lost a pound in weight even though walking extra 10 miles a week in addition to exercise. GP most unsympathetic, said I was probably depressed because I told her I was tearful all the time, it was my insistence that I have thyroid test because I have two sisters and two nieces on thyroxine, a sister and niece who are borderline...the GP said, " So you want to join the club then do you? " Won't tell you what I wanted to do to her but she let me have test and sure enough it came back that I have UA Thyroid. Thing is I feel worse on the tablet than I did before, and wonder why...is it psychological? Thanks for listening, Mazzmate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 Hi Mazzmate You did well to get a diagnosis, but sorry to hear it was only given because of your sheer determination. Four weeks is not enough time to tell whether thyroxine will work for you, and I should imagine you were only started on a very low dose. This has to be increased every 6 weeks or so until you get to the dose that finally starts to make you feel better. Thyroxine (T4) is not an active hormone and it has to convert to the active hormone triiodothyronine (T3). It is T3 that needs to get into every cell to make it function. Your GP should give you another blood test after you have been on T4 for 6 weeks (she might leave it longer). You should ask at that time to have a test fore TSH, Free T4 and Free T3. That way, you should be able to see whether you have a conversion problem or not. Some people notice a difference immediately, others have to wait for some time. I guess such GP's have no regard for their patients making statements such as yours did. Wouldn't it be nice to think that one day, if ever she developed hypothyroidism, you could turn round and say "Welcome to the club!" Luv - Sheila Hello, just joined last night. I am newly diagnosed with under active thyroid, 4 weeks in to taking 25mcu of Levothyroxine. Had been attending gym for 10 months not lost a pound in weight even though walking extra 10 miles a week in addition to exercise. GP most unsympathetic, said I was probably depressed because I told her I was tearful all the time, it was my insistence that I have thyroid test because I have two sisters and two nieces on thyroxine, a sister and niece who are borderline...the GP said, "So you want to join the club then do you?" Won't tell you what I wanted to do to her but she let me have test and sure enough it came back that I have UA Thyroid. Thing is I feel worse on the tablet than I did before, and wonder why...is it psychological? Thanks for listening, Mazzmate No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.10/1241 - Release Date: 24/01/2008 09:58 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Hi Mazzmate, Do you know actual test results or just 'underactive'. It is a good idea to keep a record of you test results in case you want to go private in the future. This disease has no quick fix, so you will have to b patient to get your health back. Thyroxine ( T4) has a half life of around 5 days so it takes around 25 days for any dose to stabilise and often longer for your body to make full use of it. You should be retested every 6 weeks to start with. As you start to heal your body will be moving all sorts of wastes, so this may explain why you feeling worse. Can you explain exactly how you are feeling? Depression is a typical symptoms of hypo. It is usual for hypo to run in families, I'm third generation. Has doc given you form to get free prescriptions? you are now entitled to free prescriptions for life. Hello, just joined last night. I am newly diagnosed with under active thyroid, 4 weeks in to taking 25mcu of Levothyroxine. I have two sisters and two nieces on thyroxine, a sister and niece who are borderline...the GP said, " So you want to join the club then do you? " Won't tell you what I wanted to do to her but she let me have test and sure enough it came back that I have UA Thyroid. Thing is I feel worse on the tablet than I did before, and wonder why...is it psychological? Thanks for listening, Mazzmate Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Hello , thanks for your reply. I didn't get given my results just under active, but when I go for my next blood test in a few weeks I will ask for them then. Feeling worse for me is a matter of having symptoms that weren't there before I started on the Thyroxine, sometimes I get a dreadful anxious feeling like massive butterflies in my stomach and intestines, creepy feeling just under the skin like a very slight shiver, not all the time but now and again. I seem to have a permanent frog in my throat which won't clear, well, nothing obvious to clear actually, and my voice is squeaky and croaky intermittently. I am very irritable at times and can go from 0 to 60 in the blink of an eye. I have a painful heel as well but that isn't new it has been with me for a while, only difference is I now know why whereas I didn't before. Low grade back pain in lumbar region. About it really. I am aware of the free prescriptions, but being 61 they are now free anyway. Thanks for the support, at least I don't feel so alone with my aches and pains. It hurts because I have been so very fit prior to this and all of a sudden I feel ancient!! -- In thyroid treatment , " jenny stenning " <jennystenning@...> wrote: > > Hi Mazzmate, > Do you know actual test results or just 'underactive'. It is a > good idea to keep a record of you test results in case you want to go > private in the future. > This disease has no quick fix, so you will have to b patient to get your > health back. Thyroxine ( T4) has a half life of around 5 days so it takes > around 25 days for any dose to stabilise and often longer for your body to > make full use of it. > You should be retested every 6 weeks to start with. > As you start to heal your body will be moving all sorts of wastes, so this > may explain why you feeling worse. Can you explain exactly how you are > feeling? > Depression is a typical symptoms of hypo. > It is usual for hypo to run in families, I'm third generation. > Has doc given you form to get free prescriptions? you are now entitled to > free prescriptions for life. > > > > Hello, just joined last night. I am newly diagnosed with under active > thyroid, 4 weeks in to taking 25mcu of Levothyroxine. I have two sisters and > two nieces on thyroxine, a sister and > niece who are borderline...the GP said, " So you want to join the club > then do you? " Won't tell you what I wanted to do to her but she let > me have test and sure enough it came back that I have UA Thyroid. Thing > is I feel worse on the tablet than I did before, and wonder why...is it > psychological? Thanks for listening, Mazzmate > > > > Messages are not a substitute for professional medical advice. Always > consult with a suitably qualified practitioner before changing medication. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 Welcome!  Other than keeping him dry and sand free we didn't limit anything.  He still played with other kids the exact same way.  The only thing I will say is that your little one will have an advantage as he now has a suit of armor  Jenn Mommy to Colr & Max Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 He'll do great! :)JennOn Tue, Jan 24, 2012 at 1:38 PM, heatherhewitt22 <heatherh1@...> wrote: Â Thanks Jenn! He needs the suit of armor to play with his older brother (the 2 year-old) :-) > > Welcome! Other than keeping him dry and sand free we didn't limit > anything. He still played with other kids the exact same way. The only > thing I will say is that your little one will have an advantage as he now > has a suit of armor > > Jenn > Mommy to Colr & Max > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 Hi heather,I can't help you as far as age, our son is 4(almost 5) but what I can do is welcome you to our families :)Live, laugh, and loveJoyOn Jan 24, 2012, at 1:30 PM, "heatherhewitt22" <heatherh1@...> wrote: Good afternoon everyone. I am glad we have found this group, we need the advice from other parents who are going through the same thing. Our son, Tom, was diagnosed with progressive infantile scoliosis at 8 months. We saw Dr. Sturm at Cincinnati Children's yesterday and elected to do the casting treatment. Tom's first cast will go on a week from today. My husband and I could use any tips or advice on how to manage things the first week. What are the first 48 hours like? How should we handle Tom around his older siblings (ages 6 & 2). Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 Thanks ! I'll remember to check his leg before we leave. > > > From: heatherhewitt22 <heatherh1@...> > Subject: Introducing myself. > infantile scoliosis treatment > Date: Tuesday, January 24, 2012, 1:30 PM > > > >  > > > > Good afternoon everyone. I am glad we have found this group, we need the advice from other parents who are going through the same thing. > > Our son, Tom, was diagnosed with progressive infantile scoliosis at 8 months. We saw Dr. Sturm at Cincinnati Children's yesterday and elected to do the casting treatment. Tom's first cast will go on a week from today. > > My husband and I could use any tips or advice on how to manage things the first week. What are the first 48 hours like? How should we handle Tom around his older siblings (ages 6 & 2). > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 Thanks Joy :-) > > > Good afternoon everyone. I am glad we have found this group, we need the advice from other parents who are going through the same thing. > > > > Our son, Tom, was diagnosed with progressive infantile scoliosis at 8 months. We saw Dr. Sturm at Cincinnati Children's yesterday and elected to do the casting treatment. Tom's first cast will go on a week from today. > > > > My husband and I could use any tips or advice on how to manage things the first week. What are the first 48 hours like? How should we handle Tom around his older siblings (ages 6 & 2). > > > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2012 Report Share Posted January 24, 2012 , Is Dr S a neurosurgeon by chance? mom to isaiah cast free and growing straighter since 2010! heatherhewitt22 <heatherh1@...> wrote: >Good afternoon everyone. I am glad we have found this group, we need the advice from other parents who are going through the same thing. > >Our son, Tom, was diagnosed with progressive infantile scoliosis at 8 months. We saw Dr. Sturm at Cincinnati Children's yesterday and elected to do the casting treatment. Tom's first cast will go on a week from today. > >My husband and I could use any tips or advice on how to manage things the first week. What are the first 48 hours like? How should we handle Tom around his older siblings (ages 6 & 2). > >Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2012 Report Share Posted January 25, 2012 We see Dr. S too and Brayden gets his 1st cast tomorrow by him. I don't believe he is a neurosurgeon...he's an orthopedic/spine specialist. He's helped write articles, do studies, etc on infantile scoliosis and can be found on youtube even advocating doing the Mehta casting. Cincinatti Children's does have the proper tables and equipment to do the Mehta casting for the person that asked at their main campus. The nurses and Dr. S have been awesome so far. We'll post back after we have a casting adventure under our belts. LOL! > > >Good afternoon everyone. I am glad we have found this group, we need the advice from other parents who are going through the same thing. > > > >Our son, Tom, was diagnosed with progressive infantile scoliosis at 8 months. We saw Dr. Sturm at Cincinnati Children's yesterday and elected to do the casting treatment. Tom's first cast will go on a week from today. > > > >My husband and I could use any tips or advice on how to manage things the first week. What are the first 48 hours like? How should we handle Tom around his older siblings (ages 6 & 2). > > > >Thanks, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2012 Report Share Posted January 25, 2012 I guess that must be why his name is so familiar. I think its great you found such a great place to go. I know you are probably scared as hell but I promise after a week or two you will be like...what was I so worried life would be like w/a cast?? Its so doable and promising! Please ask any and all questions hun! mom to isaiah curtdennis2003 <curtdennis2003@...> wrote: >We see Dr. S too and Brayden gets his 1st cast tomorrow by him. I don't believe he is a neurosurgeon...he's an orthopedic/spine specialist. He's helped write articles, do studies, etc on infantile scoliosis and can be found on youtube even advocating doing the Mehta casting. > >Cincinatti Children's does have the proper tables and equipment to do the Mehta casting for the person that asked at their main campus. The nurses and Dr. S have been awesome so far. We'll post back after we have a casting adventure under our belts. LOL! > > > > >> >> >Good afternoon everyone. I am glad we have found this group, we need the advice from other parents who are going through the same thing. >> > >> >Our son, Tom, was diagnosed with progressive infantile scoliosis at 8 months. We saw Dr. Sturm at Cincinnati Children's yesterday and elected to do the casting treatment. Tom's first cast will go on a week from today. >> > >> >My husband and I could use any tips or advice on how to manage things the first week. What are the first 48 hours like? How should we handle Tom around his older siblings (ages 6 & 2). >> > >> >Thanks, >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2012 Report Share Posted January 27, 2012 Great idea! (making babylegs out of tube socks).HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of heatherhewitt22Sent: Thursday, January 26, 2012 12:31 PMinfantile scoliosis treatment Subject: Re: Introducing myself. Thanks :-) We just went up a size, but we'll adjust as needed. I was concerned about how his pants would fit, we may have to make a small shopping trip next weekend. This weekend we're moving him into the convertible car seat and hitting up ikea for cheap bibs/textiles to make feeding and bathing easier.One of my friends suggested making babylegs out of old tube socks, so I may work on those this weekend.> > > > > Good afternoon everyone. I am glad we have found this group, we need the advice from other parents who are going through the same thing.> > > > > > Our son, Tom, was diagnosed with progressive infantile scoliosis at 8 months. We saw Dr. Sturm at Cincinnati Children's yesterday and elected to do the casting treatment. Tom's first cast will go on a week from today.> > > > > > My husband and I could use any tips or advice on how to manage things the first week. What are the first 48 hours like? How should we handle Tom around his older siblings (ages 6 & 2).> > > > > > Thanks,> > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
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