Re: Feeling rubbish

[Guest guest]

Angie, you have taken the first step towards getting yourself well again. You have only postponed the PhD it is not lost forever.

Lilian

[Guest guest]

Aww thank you Lilian. I think I'm worried that it might be the end of

it. I've been struggling on for so long now, it almost seems impossible

to carry on. But like you say, at least I still have a chance to carry

on rather than just giving up completely.

You are all so wonderful on this forum, it has made me feel better

already just writing about it.

Angie xx

>

> Angie, you have taken the first step towards getting yourself well

again. You have only postponed the PhD it is not lost forever.

>

> Lilian

>

[Guest guest]

Hi Angie

I know how hard it must be for you - I was a 'mature' student when I

was 45. I was feeling relatively well at the time but it was still

hard work being at college all day and still have to do the shopping,

housework etc., At the time I had bad migraines, sinus attacks, heavy

periods and a traumatic relationship.

This thyroid stuff creeps up on one. I cannot remember a time when I

felt really well. I too cried when I went to see my doctor. He told

me that my tests were all normal and I cried when I asked him if it is

not my thyroid then what is making me feel so ill? He said it was my

age and the menopause.

The tpa has given me so much hope. It has given me the strength to

address my own health problems. I visited Dr.P and the tests showed

that I had adrenal stress and a conversion deficit. I am now taking NA

and NT. I demanded and got a referral to an endo. When I saw the endo

the first thing he said to me was 'how are you' - started to cry and

could not speak - luckily I had written out everything I wanted to say

to him.

Crying is a good way of relieving stress. Stop having a 'stiff upper

lip'. Have a year out and resume when you have your thyroid under

control. You need to be kind to yourself, treat yourself as you would

someone you love.

B

[Guest guest]

Oh Angie - I am so, so sorry that you have to give in - this damned disease is the pits and why are doctors letting down so many thousands of sufferers in the way they are.. Do they really think we choose to live this way and as Prof W says, we are all suffering from a somatoform disorder? Is it possible you could see Dr Peatfield or Dr Skinner and get yourself on the road to recovery as soon as possible?

Luv - Sheila

Well it looks like I'm finally going to have to give in and suspend my PhD. I'm gutted. I'm 41 years old and this has been my dream. I can just barely do anything at the moment. I can't concentrate, I can't think and I have the energy levels of a tortoise. Just driving in wears me out for the day.I did something positive though. I got some blood tests done today from NPtech. I was sitting in the chair ready for the needle and the nurse was asking me why I was getting these tests done privately and not with my NHS GP. As I was telling her, I just burst into tears....it was so embarrassing. I just get so upset when I talk about how rubbish I've been feeling and for how long.Anyway sorry for the doom and gloom people. I'll post the results on here when I get them.....here's hoping.Angie xx

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[Guest guest]

Hi ,

Thank you so much for your reply. I think I am really upset because I

think that maybe I will never be able to come back to it again. I

just seem to be getting worse all the time. I'm desperate for the old

me back. I used to have so much drive and determination and it has

all gone.

You are right though. A good cry helps, and thanks to this forum,

maybe there is a light at the end of the tunnel. I truly hope so, and

that I find it before the changes in my life become permanent.

You are all so lovely.

Angie xx

>

> Crying is a good way of relieving stress. Stop having a 'stiff

upper

> lip'. Have a year out and resume when you have your thyroid under

> control. You need to be kind to yourself, treat yourself as you

would

> someone you love.

>

> B

>

[Guest guest]

Hi Bella,

Thanks for that. I've stopped crying about it (for today anyway!). It

is really hard studying (along with everything else we have to do!!).

I'm really dissappointed as I had passed all the major hurdles like my

9 month and transfer viva's, so the finishing line was in sight, and

now I'm not sure I'll ever get there. I really wish you all the luck in

the world with your studies and hope you go from strength to strength.

It gives you such a huge sense of achievement when you get that

certificate in your hand. I did my first degree when I was thirty and I

thank god I did it then otherwise it would never have happened. I keep

thinking that it's not the end of the world if I don't finish my PhD,

but I've been longing to do it for so long.

Thanks for being there

hugs

Angie xx

> Dear (((((((((Angie))))))))),

> My heart goes out to you and you've also touched a nerve as I've

> just begun a degree course. The work is punishing isn't it and

> there's just no let up. Like so many have said, you've postponed it

> and you could well find that by September even, you may be feeling

> able to start back up. This is the start of your recovery and you

> are taking huge steps in order to get well and get back on that

> course and you'll cope so much better for it.

> Luv Bella xx

[Guest guest]

>

> Well it looks like I'm finally going to have to give in and suspend

> my PhD. I'm gutted. I'm 41 years old and this has been my dream. I

> can just barely do anything at the moment. I can't concentrate, I

> can't think and I have the energy levels of a tortoise. Just

> driving in wears me out for the day.

If it's any consolation, I think you are doing the right thing.

My PhD went tits up too, for the same reason. I thoroughly burnt my

adrenals out aged 20 and got ME, from which I have never recovered,

and then - the irony does not excape me - went to do a PhD in organic

chemistry, dealing with nasty phosphorus (III) chemistry daily, the

very organophosphates known to cause ME. I struggled on, and on,

feeling like death and achieving nothing, until eventually I was

forced to give up and move on.

Technically mine is only suspended but in practice it is toast. My

PhD supervisor has retired so there's no going back to it, although I

wish so much that I could.

I wish that I had chosen a different project in the first place, like

a theoretical chemistry one, sitting at a computer doing programming,

never going near a toxin. But the past is gone. Can't change that.

I wish that one day I'll get my brain back & I'll be able to start a

shiny new PhD, in a less toxic field. I'm 39, so actually I find it

encouraging that you are doing one, at 41. See? Bet you didn't

think your post would be cause for hope :-)

Brainwork is tough. I so hear you when you say that driving in

exhausts you. How can you think and have ideas and be productive

when you are this ill? I think you are doing the right thing to

suspend it because firstly you need to rest and recover and secondly

you might still be able to go back to it if the clock stops ticking

(does the four-year deadline still apply?)

Regardless, {{hugs}}, I know how disappointing this must be for you.

Rosie

[Guest guest]

I managed to just get through my degree in 2006 immediately prior to

being unable to leave the house. So I was lucky to get through what

with the brain fog and all. I think we who have this trouble but still

strive for knowledge and to get our health back at the same time

should be helped as much as possible. You are not giving up your PhD,

I was 46 when I finished my degree and I had never done any full time

education since 1974 at GSE level so it was a huge thing for me, and I

struggled all the way with my health and brain fog. I think you will

be able to get back to it, don't give up.

If you give up I will have to give up on ever doing my masters or PhD

don't do that to me lol . I really miss studying even though it is

so tiring in this state. I am bored outta my skull.

What is your PhD in anyway?

lotsa love

Dawn

[Guest guest]

Hi Angie

Disability discrimination should apply...ask about it?

but guessing the education system ?is ?opted out, though there's no

reason it should be ...

Bob

> >

> > Well it looks like I'm finally going to have to give in and

suspend

> > my PhD. I'm gutted. I'm 41 years old and this has been my dream.

I

> > can just barely do anything at the moment. I can't concentrate, I

> > can't think and I have the energy levels of a tortoise. Just

> > driving in wears me out for the day.

>

>

> If it's any consolation, I think you are doing the right thing.

>

> My PhD went tits up too, for the same reason. I thoroughly burnt

my

> adrenals out aged 20 and got ME, from which I have never recovered,

> and then - the irony does not excape me - went to do a PhD in

organic

> chemistry, dealing with nasty phosphorus (III) chemistry daily, the

> very organophosphates known to cause ME. I struggled on, and on,

> feeling like death and achieving nothing, until eventually I was

> forced to give up and move on.

>

> Technically mine is only suspended but in practice it is toast. My

> PhD supervisor has retired so there's no going back to it, although

I

> wish so much that I could.

>

> I wish that I had chosen a different project in the first place,

like

> a theoretical chemistry one, sitting at a computer doing

programming,

> never going near a toxin. But the past is gone. Can't change that.

>

> I wish that one day I'll get my brain back & I'll be able to start

a

> shiny new PhD, in a less toxic field. I'm 39, so actually I find

it

> encouraging that you are doing one, at 41. See? Bet you didn't

> think your post would be cause for hope :-)

>

> Brainwork is tough. I so hear you when you say that driving in

> exhausts you. How can you think and have ideas and be productive

> when you are this ill? I think you are doing the right thing to

> suspend it because firstly you need to rest and recover and

secondly

> you might still be able to go back to it if the clock stops ticking

> (does the four-year deadline still apply?)

>

> Regardless, {{hugs}}, I know how disappointing this must be for you.

>

> Rosie

>

[Guest guest]

Hi Rosie,

Had you thought of boosting your CoQ10 and folic acid levels?

best wishes

Bob

> >

> > Well it looks like I'm finally going to have to give in and

suspend

> > my PhD. I'm gutted. I'm 41 years old and this has been my dream.

I

> > can just barely do anything at the moment. I can't concentrate, I

> > can't think and I have the energy levels of a tortoise. Just

> > driving in wears me out for the day.

>

>

> If it's any consolation, I think you are doing the right thing.

>

> My PhD went tits up too, for the same reason. I thoroughly burnt

my

> adrenals out aged 20 and got ME, from which I have never recovered,

> and then - the irony does not excape me - went to do a PhD in

organic

> chemistry, dealing with nasty phosphorus (III) chemistry daily, the

> very organophosphates known to cause ME. I struggled on, and on,

> feeling like death and achieving nothing, until eventually I was

> forced to give up and move on.

>

> Technically mine is only suspended but in practice it is toast. My

> PhD supervisor has retired so there's no going back to it, although

I

> wish so much that I could.

>

> I wish that I had chosen a different project in the first place,

like

> a theoretical chemistry one, sitting at a computer doing

programming,

> never going near a toxin. But the past is gone. Can't change that.

>

> I wish that one day I'll get my brain back & I'll be able to start

a

> shiny new PhD, in a less toxic field. I'm 39, so actually I find

it

> encouraging that you are doing one, at 41. See? Bet you didn't

> think your post would be cause for hope :-)

>

> Brainwork is tough. I so hear you when you say that driving in

> exhausts you. How can you think and have ideas and be productive

> when you are this ill? I think you are doing the right thing to

> suspend it because firstly you need to rest and recover and

secondly

> you might still be able to go back to it if the clock stops ticking

> (does the four-year deadline still apply?)

>

> Regardless, {{hugs}}, I know how disappointing this must be for you.

>

> Rosie

>

[Guest guest]

>

> Hi Rosie,

>

> Had you thought of boosting your CoQ10 and folic acid levels?

Well, yes. I spent years necking a battery of supplements, including

CoQ10 & B-vits. Can't say it helped any.

Rosie

[Guest guest]

Rosie

What dosage of CoEnzymeQ10 were you taking. You need to take a high dose such as 300 mgs. The same with Vitamin B3 (Niacin) you need a high dose of that too. Maintenance doses are no good for people suffering hypothyroidism.

Luv - Sheila

>> Hi Rosie,> > Had you thought of boosting your CoQ10 and folic acid levels?Well, yes. I spent years necking a battery of supplements, including CoQ10 & B-vits. Can't say it helped any.Rosie

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[Guest guest]

Hi Rosie,

Thanks for that. I really hope it's only temporary, but I have this

horrible feeling that once I stop, I won't be able to start again.

I've been hanging on by a thread for so long. It's a real bummer

because I'm in my final year so the end was in sight.

It's true what they say though, you're never to old to do these

things, so if you ever feel well enough I would go for it again.

I think the four year deadline still applies, but I think if you

suspend it all get's shifted so it's probably the best thing to do in

this situation to give me a chance of finishing.

Angie xx

If it's any consolation, I think you are doing the right thing.

>

> My PhD went tits up too, for the same reason. I thoroughly burnt

my

> adrenals out aged 20 and got ME, from which I have never recovered,

> and then - the irony does not excape me - went to do a PhD in

organic

> chemistry, dealing with nasty phosphorus (III) chemistry daily, the

> very organophosphates known to cause ME. I struggled on, and on,

> feeling like death and achieving nothing, until eventually I was

> forced to give up and move on.

>

> Technically mine is only suspended but in practice it is toast. My

> PhD supervisor has retired so there's no going back to it, although

I

> wish so much that I could.

>

> I wish that I had chosen a different project in the first place,

like

> a theoretical chemistry one, sitting at a computer doing

programming,

> never going near a toxin. But the past is gone. Can't change that.

>

> I wish that one day I'll get my brain back & I'll be able to start

a

> shiny new PhD, in a less toxic field. I'm 39, so actually I find

it

> encouraging that you are doing one, at 41. See? Bet you didn't

> think your post would be cause for hope :-)

>

> Brainwork is tough. I so hear you when you say that driving in

> exhausts you. How can you think and have ideas and be productive

> when you are this ill? I think you are doing the right thing to

> suspend it because firstly you need to rest and recover and

secondly

> you might still be able to go back to it if the clock stops ticking

> (does the four-year deadline still apply?)

>

> Regardless, {{hugs}}, I know how disappointing this must be for you.

>

> Rosie

>

[Guest guest]

Hi Dawn,

My PhD is in Optoelectronics/photonics (playing with lasers and light

basically). My project is very experimental and hands on and I wish

I'd done a more theoretical one now. What was you're degree in?

Well done on getting through your degree, it's such an achievement

when the odds are stacked against you. It's very difficult to get any

useful help. I've had a lot of sick time off over the past few

months, which is piling the pressure on as I haven't done as much as

I should have, but taking the break might at least give me a chance

of finishing it.

I know what you mean about being bored outta your skull. I've had

about 2 months of sick toward the end of last year where all I could

manage to do was crawl up and down the stairs to the toilet while

spending the rest of the time either in bed or on the sofa. I was

going nuts but didn't have any energy to do anything about it. I

think it's especially hard when you're the sort of person who has

always been on the go and driven (as are probably most of the people

here). It just makes you feel like such a failure.

Angie xx

> I managed to just get through my degree in 2006 immediately prior to

> being unable to leave the house. So I was lucky to get through what

> with the brain fog and all. I think we who have this trouble but

still

> strive for knowledge and to get our health back at the same time

> should be helped as much as possible. You are not giving up your

PhD,

> I was 46 when I finished my degree and I had never done any full

time

> education since 1974 at GSE level so it was a huge thing for me,

and I

> struggled all the way with my health and brain fog. I think you will

> be able to get back to it, don't give up.

> If you give up I will have to give up on ever doing my masters or

PhD

> don't do that to me lol . I really miss studying even though it is

> so tiring in this state. I am bored outta my skull.

> What is your PhD in anyway?

>

> lotsa love

> Dawn

>

[Guest guest]

Hi Bob,

Thanks for that, I'm going to enquire about it, as that's the other

side of things - a massive drop in income which we can't afford. We're

going to have to extend our mortgage to pay for it which is a total

bummer.

Angie xx

Hi Angie

>

> Disability discrimination should apply...ask about it?

> but guessing the education system ?is ?opted out, though there's no

> reason it should be ...

>

> Bob

>

>

[Guest guest]

>

> Rosie

>

> What dosage of CoEnzymeQ10 were you taking. You need to take a high

> dose such as 300 mgs. The same with Vitamin B3 (Niacin) you need a

> high dose of that too. Maintenance doses are no good for people

> suffering hypothyroidism.

Well I'm on 120mg CoQ10 now, but what I was on years back wasn't that

much. More like 30mg. That was all worked out for me by an Institute

of Optimum Nutrition person and, as I said, didn't help.

All I'm taking now is the CoQ10, 2-3g Vit C, 9 NAE, and 14mg iron.

Do you think you could knock together a list of recommended supplements

please, for the files?

Rosie

[Guest guest]

Hi Angie,

Nationwide may be more sympathetic to a mature student...

best wishes

Bob

>

> Hi Bob,

>

> Thanks for that, I'm going to enquire about it, as that's the other

> side of things - a massive drop in income which we can't afford.

We're

> going to have to extend our mortgage to pay for it which is a total

> bummer.

>

> Angie xx

>

>

> Hi Angie

> >

> > Disability discrimination should apply...ask about it?

> > but guessing the education system ?is ?opted out, though there's

no

> > reason it should be ...

> >

> > Bob

> >

> >

>

[Guest guest]

I would love to knock out a list, but I haven't the time right now - too busy with writing papers, colmpletiong a painting commission and repsonding to messages on the board. However, the information is all there in our website www.tpa-uk.org.uk if you look under Hypothyroidism, and then under the sub-headings Nutrition and supplements. These come from Dr Peatfield. If somebody would like to do a list from these, and then post it on to the forum so we can all see if there needs to be any additions or subtractions, I would be very grateful.

You are taking an awful lot of NAE it seems.

Luv - Sheila

Re: Feeling rubbish

>> Rosie> > What dosage of CoEnzymeQ10 were you taking. You need to take a high > dose such as 300 mgs. The same with Vitamin B3 (Niacin) you need a > high dose of that too. Maintenance doses are no good for people > suffering hypothyroidism.Well I'm on 120mg CoQ10 now, but what I was on years back wasn't that much. More like 30mg. That was all worked out for me by an Institute of Optimum Nutrition person and, as I said, didn't help.All I'm taking now is the CoQ10, 2-3g Vit C, 9 NAE, and 14mg iron.Do you think you could knock together a list of recommended supplements please, for the files?Rosie

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[Guest guest]

> You are taking an awful lot of NAE it seems.

Yes, it was prescribed for me by a reflexologist. Seems no harm taking

that much - I need the B-vits for sure - and Dr P was all in favour.

Rosie

[Guest guest]

> Yes, it was prescribed for me by a reflexologist. Seems no harm

taking

> that much - I need the B-vits for sure - and Dr P was all in favour.

Rosie

How helpful did you find the reflexology? I know Dr P favours it.

Thanks

x

[Guest guest]

Hi

.......... How helpful did you find the reflexology?....

I had severe sinus problems since 1973. I had all sorts of antibiotics, nasal

sprays,

decongestants and and an x-ray. My doctor finally suggested an operation -

which for me

would be the final, final solution. I stumbled on reflexology in 1996. Within

three sessions

my sinuses began to clear. I have had reflexology two to three times a year

since then and I

have not had a sinus attack since. When I told my doctor in 1996 that my

sinuses were so

much better she said " Whatever works for you, dear " in a very sarcastic voice.

She did not

believe me when I told her that my frozen shoulder had been cured by taking Cats

Claw

supplements. She had offered me injections into my shoulder!!

You may have to try a few reflexologists to find one that suits you.

B

[Guest guest]

>

> Hi

>

> ......... How helpful did you find the reflexology?....

>

>I stumbled on reflexology in 1996. Within three sessions

> my sinuses began to clear. I have had reflexology two to three

times a year since then and I have not had a sinus attack since.

Thank you. I've never heard of sinuses being helped by reflexology!

Wow!In fact I don't know too much about it at all. It was only

reading about it briefly in Dr P's book that made me wonder about it.

And then just last week I found out the there is a reflexologist in

our village. Took down her number and wondered again. And then

Rosie's reference to it brought it to mind once more.

I can't do anything just yet because funds won't allow and other

tests must come first, but I'm wondering how it fits into

thyroid/adrenal issues. From what you say it's not only diagnostic,

as I thought, but offers real help as you proved yourself.

Pardon my ignorance but was it something the therapist did to you,

ie massage or manipulation, or was it something she gave you to take

or a combination of the two that made the difference.

And would reflexology work alongside adrenal/thyroid meds to enhance

their effect or would it just improve general health?

It's something I may consider in the future and I appreciate your

comments.

Thank you

x

[Guest guest]

, you will do yourself untold favours if you go the alternative route, I much prefer it because they treat you holistically, the whole body not just the bit that has gone wrong and without those dreadful drugs - I too have been to a kinesiologist who was very good. I like to get word of mouth referrals if at all possible, they are the ones that you can rely on.

Good luck with the training Barbara, I hope everything goes well for you.

Luv nne

I've had numerous kinesiology sessions and have even started training to become a practitioner myself, and find it to be a wonderful enlightening therapy.Barbara

[Guest guest]

Good for you , yes that is the only downfall, it is expensive but sometimes we can get these things on the NHS, rarely of course but you should check with your GP, maybe you can get a lovely reflexology treatment courtesy of the NHS, I do hope so.

Luv nne I'm so encouraged by what Rosie, Barbara and yourself have said that I'm going to see what I can find out this afternoon. I wonder if it's expensive?

[Guest guest]

Not every area has this so don't get tooooo excited LOL - some have come into the 21st century and some are still in the 19th, unfortunately mine is still in the 19th!!!

Luv nne

Are you joking! LOL. A reflexology treatment on the NHS?