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That form of healing has been shown to be very effective and is similar to

what I am talking about with internal healing. Though it too but to a much

lessor degree is external.

Re: (no subject)

>From: Merril <allennco@...>

>

>Have you tried Reiki??

>

>Merril

>

>

>---------------------------

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  • 1 year later...
Guest guest

Hello, I am getting better from my surgery but just before the surgery I had

my first mammogram and a ultra sound and a lump was found for that,so in May

go for a biopsy. Will try to make sure they check out all my allergies as I

don't want the problems I had with my back surgery.

I had 3 epidural shots and with the first one I felt so good I realized I

never knew how bad I had felt for so long. The second one worked three days

and the third one not at all so I never got any more. I think you have to

have a good Dr give them. Lexi

From: makeyellow@...

I saw the pain management doctor last week. He wants to do epidural steroid

injections. I was wondering if anyone else had had these and if so if there

was much if any success/relief from the pain. I don't know that much about

them and don't know anyone personally that has had them done.

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  • 1 year later...
Guest guest

> hello. Can pre-banded come to the picnic? Jan B.

>

> You Bet Ya!!! That will give you a chance to get alot of info from

lots of people. I can add you to my reminder list, where do you

live? More picnic details to come later.

Elma

>

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  • 2 months later...

Hi Donna, Edajane here. I am taking milk thistle. My liver Dr. told me that he couldn't recommend it because it isn't FDA approved but he has had a lot of patients that have taken it and they don't seem to be as sick?????

donnamichell2@... wrote:

Hello everyone, Donna here.I just recently came on to this site and I want to thank everyone for responding to me.Any info anyone can give on side effects of hepc and especially of the medication will be much appreciated.I'm reading everything I can get my hands on but hearing what its like from ya'll is much appeciated. My drug company says my meds should be ready soon but wo'nt commit to a date.So i'm assumig it may be soon.Anyone out there on the meds and working too?I'll have to continue working and do the best I can.Fortunately I only work two days a week but they are 12 hour days. Let me introduce myself properly.I'm 43,A mother of two boys,aged 8 and 11.I'm also a nurse and work in a large teaching hospital.I work on a vascular unit.I'm divorced and not seeing anyone special.I was devastated to recieve this diagnosis this year although all last year I had been exhausted and sick and wondering what was going on.I had been diagnosed with fibromyalgia after my last son was born but thought surely it couldnt make you that sick.Anyway,I'm trying to keep a positive attitude fromm day to day. I just started taking milk thistle.Anyone tried that?Its actually prescribed in Europe for hepc. Take care.look forward to getting to know ya'll. Donna

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Hi, I did shot # 32 tonight I have not missed a day of work in a couple of years infact I run 7-10 miles a day 7 days a week. Between exercise work and commute its a 18 hour day we all react different to the meds, stay positive. Bill

From: donnamichell2@... Reply-Hepatitis C Hepatitis C Subject: (no subject) Date: Sun, 18 Aug 2002 22:14:42 EDT

Hello everyone,

Donna here.I just recently came on to this site and I want to thank everyone for responding to me.Any info anyone can give on side effects of hepc and especially of the medication will be much appreciated.I'm reading everything I can get my hands on but hearing what its like from ya'll is much appeciated.

My drug company says my meds should be ready soon but wo'nt commit to a date.So i'm assumig it may be soon.Anyone out there on the meds and working too?I'll have to continue working and do the best I can.Fortunately I only work two days a week but they are 12 hour days.

Let me introduce myself properly.I'm 43,A mother of two boys,aged 8 and 11.I'm also a nurse and work in a large teaching hospital.I work on a vascular unit.I'm divorced and not seeing anyone special.I was devastated to recieve this diagnosis this year although all last year I had been exhausted and sick and wondering what was going on.I had been diagnosed with fibromyalgia after my last son was born but thought surely it couldnt make you that sick.Anyway,I'm trying to keep a positive attitude fromm day to day.

I just started taking milk thistle.Anyone tried that?Its actually prescribed in Europe for hepc.

Take care.look forward to getting to know ya'll. Donna Join the world’s largest e-mail service with MSN Hotmail. Click Here

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  • 5 months later...

I think we should try everything to stop the dragon. If one treatment works for you than do it. I have been drinking a herbal tea that has helped me. I have decided to do the peg treatment which I am waiting for approval from the insurance company. Maybe just taken better care of ourselves is one of the keys to good health. I encourage you to continue to use what works for you. Take care LaDonna

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You said you have no fibrosis or cirrhosis. Did you have a liver biopsy?

My viral load is 1.8 million and my liver enzymes were normal for a good

while, until about 4 months ago. Now they are slightly elevated. I had my

biopsy earlier this month and they found cirrhosis. I was shocked, to say

the least. I'm beginning the Peg Intron and Rebetol tonight.

I don't know much about Chinese medicine, I was just wondering how you knew

you didn't have cirrhosis or fibrosis.

Marie

At 04:46 PM 01/21/2003 EST, you wrote:

>hey gang.

>I posted here about seven months ago when I found out I had hep c number 2

>with a viral load of 25 million. My liver functions were all normal and only

>by an insurance exame did I find out I had this thing. No fibrosis or

>cirrohsis. I can't spell by the way. Any how My dr. said that if I wanted

>to try some alternative stuff I had time he felt and basicly said when I got

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Hi Hugh

My name is Sablerae. I know I don't post much but I just had to let you know. I went on alternatives when my count was low and no fibrosis or scaring. I wish I would have started the medication. Two years and 30 lbs later. On the alternative meds you have to keep a veggie diet. My counts still went up and so did the damage to my liver. So if I had it to do all over again, I would start right away while you can save your liver the trouble of becoming damaged. Just my thoughts.

God Bless

Sablerae

-- (no subject)

hey gang.I posted here about seven months ago when I found out I had hep c number 2 with a viral load of 25 million. My liver functions were all normal and only by an insurance exame did I find out I had this thing. No fibrosis or cirrohsis. I can't spell by the way. Any how My dr. said that if I wanted to try some alternative stuff I had time he felt and basicly said when I got done trying the voodoo crap, come back and he would fix me right up. Well, I found a chinese Dr. would put me on thymic and some capsules that I have no ideal in the world what is in them. Long story short. I had another test at six months and the load is 7 million. I know thats still high. But its down 18 million in six months. The chinese dr said at the beginning to expect to be taking this stuff for at least a year, He thought it would drop by half in six months and the other half at the end of a yea! r. The costs are riduculously cheap about the cost of a one a day vitamin, Like I reallly care about that. I would like to get ya alls thoughts on this matter. I know most of you are not sold on this type of treatment and I am not sure myself. Its just that I had no systems and the counts were all good and the dr said I had time to experiment. My blood is still all the same and still no signs of problems. O.K. gang let me have your thoughts, PLEASE by the way, there are absolutely no side effects at all to the stuff I am doing now.

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Hi Hugh, great to hear about your alternative tx.

I am genotype 1a.stage 4 cirrohsis or advanced grade 3

I agree with Ladonna to certain degree,about doing what makes you feel well.And diet is a tremendous part of that. And for me about 3 litres of distilled water per day make a huge differrence.

As hard as it seems at times we need to be happy and try to find some balance.

However I personally have not seen anyone with good results from soley alternative tx in end stage cirrohsis nor with genotype 1A.

I encourages everyone to try what they need to for our peace of minds and for the good of beating back the dragon.My only concern is in doing so we do not take as serious of a look at conventional tx, thereby hurting ourselves.

Caring on with your successes God knows we all could use more of them.

as always you are all in my prayers daily

Gare

(no subject)

hey gang.I posted here about seven months ago when I found out I had hep c number 2 with a viral load of 25 million. My liver functions were all normal and only by an insurance exame did I find out I had this thing. No fibrosis or cirrohsis. I can't spell by the way. Any how My dr. said that if I wanted to try some alternative stuff I had time he felt and basicly said when I got done trying the voodoo crap, come back and he would fix me right up. Well, I found a chinese Dr. would put me on thymic and some capsules that I have no ideal in the world what is in them. Long story short. I had another test at six months and the load is 7 million. I know thats still high. But its down 18 million in six months. The chinese dr said at the beginning to expect to be taking this stuff for at least a year, He thought it would drop by half in six months and the other half at the end of a year. The costs are riduculously cheap about the cost of a one a day vitamin, Like I reallly care about that. I would like to get ya alls thoughts on this matter. I know most of you are not sold on this type of treatment and I am not sure myself. Its just that I had no systems and the counts were all good and the dr said I had time to experiment. My blood is still all the same and still no signs of problems. O.K. gang let me have your thoughts, PLEASE by the way, there are absolutely no side effects at all to the stuff I am doing now.

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  • 3 weeks later...

In a message dated 2/6/03 7:41:34 PM, Cjd1097@... writes:

<< Some time ago there was discussion about TENS units. Does anyone remember

where it was that one could be purchased for a very reasonable price? >>

,

My son's TENS unit came from a company called EMPI - it was prescribed by his

ortho surgeon after surgery when it became apparent, during physical therapy,

that it helped his shoulder pain - because it was prescribed by an MD, it was

covered by insurance otherwise it would have been quite expensive. It was

very helpful for him and he no longer needs to use it because it resolved the

pain.

Please feel free to email me for details if you would like more info.....

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I was at ebay.com today and typed in TENS. I was quite surprised to see how

many tens units were there (many had explanations and descriptions) along

with supplies. My mother has a TENS unit and it costs her a lot to get the

patches. I'm going to show the site to her.

Marcia in PA

Re: (no subject)

>

> In a message dated 2/6/03 7:41:34 PM, Cjd1097@... writes:

>

> << Some time ago there was discussion about TENS units. Does anyone

remember

> where it was that one could be purchased for a very reasonable price? >>

>

> ,

>

> My son's TENS unit came from a company called EMPI - it was prescribed by

his

> ortho surgeon after surgery when it became apparent, during physical

therapy,

> that it helped his shoulder pain - because it was prescribed by an MD, it

was

> covered by insurance otherwise it would have been quite expensive. It was

> very helpful for him and he no longer needs to use it because it resolved

the

> pain.

>

> Please feel free to email me for details if you would like more

info.....

>

>

>

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  • 2 weeks later...

TENS units can be rented or purchased at a local medical store.

--

Lana

**

****

********

---------------------------------

>RETURN MEMORIAL DAY TO MAY 30TH<

---------------------------------

********

****

**

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(no subject)

Don't these morons know that laughter stimulates the brain to produce certain chemicals that do indeed affect ones physical health? I wish you would not stop the jokes, but if you do, PLEASE start your group ( I do not know anything about this shit)_ but if its as easy as one person said, it sounds like something good to do. I want to be in a 100 way tie for the first to join your group. here is alittle poem I made up just for the ones that need it. Teri sends out a bunch of jokes just tryin to help us folks. If this repulses you Go get screwed.

---Outgoing mail is certified Virus Free.Checked by AVG anti-virus system (http://www.grisoft.com).Version: 6.0.455 / Virus Database: 255 - Release Date: 2/13/03

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well folks this is what this has come to... Enjoy and I am otta here

and as for you "mr good will happy man" anytime you would like to meet face to face anytime anywhere...... i would be happy to get into more details over my views on distentention when some people look for hope and happiness.......and sharing of real life and death issues some of us face..on this site and not what this has caused....

good luck to you all....

as always you will be in my prayers

gare

(no subject)

To all of those who did not like my letter to Teri. You will never live long enough or imagine how much I couldn't care less. You are the exact personality I intended to offend. I am so happy I am willing to give 47 percent off my professional services (offer expires as soon as I do) Hurry, Hurry, Hurry, write back with better adjectives than condesending. I am at least a filthy s o b, insensative jerk that ain't fit to be breathing gods good air. Come on folks, lets hear it for the idiot(thats me) thats tryihg to turn this site into a name calling, meaningless site where every post is negative and low life to the core. Compared to my stupidity and ignorance, Teri's jokes weren't so terrible after all, were they? Oh yea, I almost forgot GOOD BYEeee.

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  • 1 month later...
Guest guest

Hi Leah,

I'm in Baton Rouge and am seeing an Orthopaedic Surgeon in New

Orleans. This is all new to me and surgery is rather frightening.

My " S " is 45 top and 75 lower, and I have stenosis as well. Very

painful as well as uncomfortable. I'm 45, and this would be my first

ever surgery of any type. I go from never having anything wrong to

this! Everything scares me, from the surgery to lengthy recovery, to

living with rods, screws, hooks and no flexibility. I only hope this

proves to be beneficial and not something I wish I'd just left

alone. But, I certainly don't want to let this get to a point that

nothing can be done.

I've seen 6 specialists, but won't bore you with the details, unless

you want to know more.

What kind of pain are you in? I wish you the best!

> ,

> Thanks for responding. I too had my surgery in PA. At UPenn. I

will be

> seing a specialist in New Orleans because I now live in Ms. I know

my

> surgery helped me from having further progression with my curves in

the

> future, but now I am going to be staring at the floor when I walk

before I

> am 30. I'm 27 now. And I still have as much pain as I did before

the

> surgery. Sometimes I wonder if it was worth it. We seem to have

alot in

> common with our procedures and complicatons. How were you when you

had your

> surgery?What were your curves before surgery? Mine were about 40

something

> on the top and 60 something on the bottom. I look forward to

hearing from

> you again or anyone else with more input.

> Thanks,

>

Leah

>

>

>

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Guest guest

,

The only pain I have now is in the shoulder area near my fusoin sight. Over

a year ago (which was 2 yrs post op), it was so bad I had to have more PT.

At that time my rods weren't protruding as they are now and my posture wasn't

as bad. Before my surgery, my pain was in the rib hump area. Sometimes it's

like I gave one up for the other. But at least after the surgery I don't

have to worry as much about curve progression. Who is your specialist? Good

luck and many prayers.

Leah

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Guest guest

Hi Leah,

I'm sorry it took me so long to respond...I'm a 40 year old homeschool mom

with 3 kids and boy do we have a busy household! Yes, we do have a lot in

common! I was 35 when I had my surgery. My surgeon at Hershey was Dr.

Schwenkter. He has since retired, and Hershey Medical Center no

longer treats adult spinal patients. So my family doctor " maintains " my

situation... I don't have a specialist at all. My curves were 70 on top and

65 on the bottom, and I had the rotation thing happening and a rib hump.

My doctor used Isola instrumentation with pedicle screws etc...My pain level

was much worse in the first 3 years after the surgery than it is now. I do

have a rod pushing out at the T4 level and I do have a progressing curve

above the fusion. I take a 20mg. Bextra every morning, and at night I take

a 10mg Flexeril and 20mg of Nortryptiline. The last one is a very low dose

of an antidepressant that is suppose to help people with chronic pain. It

alters the way you perceive pain and is used in things like fibromyalgia

etc...I don't have depression or fibromyalgia but I must say that this

combination of medications has allowed me to stay virtually pain free for

the past year. Before the surgery I had awful pain in my shoulder

blades..so bad that I had to keep laying on my back throughout the day.

After the surgery I had a different sort of pain..just like you said...but I

kept trying different combos of exercise and meds until I found this current

regimen. (Two years after the surgery I got pregnant with my 3rd child..I

carried her just fine and had no delivery issues related the scoliosis or

the surgery..I really didn't even have much back pain during that time. I

did have two preschoolers who kept me very busy so maybe that helped) I also

walk 3 miles a day and keep my weight down. I'm 5'10 " now, but was 5'8 "

when I went into scoli surgery. I grew 2 inches in 5 hours!

Do you have a doctor who is monitoring the progression of the area above the

fusion? It would be helpful to see you fast that is actually happening.

I don't know how much exercise can slow that down, but I am always pulling

my shoulders back and making sure I am carrying myself as straight as

possible. I hate the idea of being a hunched over old lady!

S.

(no subject)

> ,

> Thanks for responding. I too had my surgery in PA. At UPenn. I will be

> seing a specialist in New Orleans because I now live in Ms. I know my

> surgery helped me from having further progression with my curves in the

> future, but now I am going to be staring at the floor when I walk before

I

> am 30. I'm 27 now. And I still have as much pain as I did before the

> surgery. Sometimes I wonder if it was worth it. We seem to have alot in

> common with our procedures and complicatons. How were you when you had

your

> surgery?What were your curves before surgery? Mine were about 40

something

> on the top and 60 something on the bottom. I look forward to hearing from

> you again or anyone else with more input.

> Thanks,

> Leah

>

>

>

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  • 2 months later...
Guest guest

Dear Liz,

You just did, but what is it?

Teri

(no subject)

Hi, I don't know if you post this kind of thing, but I'm giving it a shot. It seems familiar to me but the ol' brain fog seems to be rolling in. Love, Liz I got this from my sister.As mentioned last week, we will be making the professional strength version (as used in this study) available directly to you through my practice as a licensed healthcare provider. Look for a message from me giving you access to a private section of our website sometime next week.In the meantime, be well.Ralph NapolitanoFor Immediate ReleaseA Phase II Clinical Trial Underway to Study Japanese Botanical Product Sho-saiko-to (H09) for Patients with Chronic Hepatitis CTempe, Arizona April 20th 2003. A Japanese formulation made of seven Chinese herbs is under clinical investigation by Memorial Sloan-Kettering Cancer Center to determine its effect against hepatitis C. The testing herbal formulation, Sho-Saiko-to or H09 as the Japanese government registration number, is manufactured and supplied by Honso Pharmaceutical Co., Ltd. headquartered in Nagoya Japan and branched in Tempe, Arizona.Chronic hepatitis C affects nearly three million Americans. Of these, 15% will develop liver cirrhosis and approximately 5% will progress to hepatocellular carcinoma. Treatment for chronic hepatitis C is limited to interferon-based therapy. Many patients decline or cannot tolerate interferon because of its serious side effects. This study is entitled "Sho-Saiko-to for Patients with Chronic Hepatitis C Who Are Intolerant to Or Have Contraindication to Interferon-Based Therapy: A Phase II Study". Sho-saiko-to, a Japanese herbal medicine consisting of seven botanicals, has demonstrated anti-fibrotic effect by inhibition of lipid peroxidation in hepatocytes and stellate cells in an animal study. It has also been demonstrated to prevent progression of cirrhosis to hepatocellular carcinoma in human trials. This study is a single arm, single center trial of Sho-saiko-to in patients with chronic active hepatitis from hepatitis C infection who cannot tolerate or who have specific contraindications to interferon therapy. Thirty-one patients will receive 52 weeks therapy with Sho-saiko-to granule extract at 7.5 gram per day. Outcome will be assessed by comparing pre- and post-treatment liver biopsies. Patients will be said to respond if they have an improvement of two points or greater on a standard measure of liver histology. The Japanese herbal medicine that is known as Kampo is part of the East Asian Chinese medicine tradition. Kampo is fundamentally a clinical system based on the classical medical literature dating back to the Han Dynasty in ancient China. In Japan today, fully 75% of physicians use at least some of the traditional Kampo formulas, which are available in almost all pharmacies by prescription, or under the advice of specially trained pharmacists. Kampo research in Japan has always been more rigorous by western standards in the mold of conventional pharmaceutical research.For the official description of the trial from Memorial Sloan-Kettering Cancer Center, go to http://tinyurl.com/doki_______________________________________________________________________Powered by List BuilderTo unsubscribe follow the link:http://lb.later,Lizlater,Liz

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  • 1 month later...
Guest guest

I'll say a special prayer for Bev and her family. I'm a great believer in

prayer and have seen many things that I consider miracles happen as a result

of prayer.

Marie K.

At 04:18 PM 7/25/2003 -0700, you wrote:

><html><body>

>

>

><tt>

>I'll certainly be on it. & nbsp; you all know how I<BR>

>believe in prayer.<BR>

>--- lzwilkinson@... wrote:<BR>

> & gt; <BR>

> & gt; <BR>

> & gt; My daughter's best friend's Mom (Bev) was just<BR>

> & gt; given 3 to 6 months to live <BR>

> & gt; with newly diagnosed cancer. Please say a<BR>

> & gt; prayer for her and her family.

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  • 9 months later...
  • 8 months later...

How so did you fail ? when were you banded? what has been your trouble ?

(no subject)

Good Morning, I would like to talk w/ others that have failed with the

band.I still think its a great thing. I did reach out for help w/ one of

" our "

professionals, but she didnt seem to interested. I know people here on this

site

are doing a great job and want to " shoe " me to another site, i just cant

remember which one it was!! Thank you for any feedback. Tami

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