Re: salivary test

[Guest guest]

are you refrerring to the adrenal salivary test?

salivary test

How do you do it????

Maarit....

[Guest guest]

Thanks for this Val - then, for the sake of responses from this forum, I think we should agree that anybody taking Nutri Adrenal Extra, if they are wanting a 24 hour salivary adrenal profile test, they should stop them for 1 week prior to taking the test, and for anybody on Cortef, this should be stopped for 6 weeks prior to the adrenal function test - the latter, especially, being agreed by the patients doctor.

Luv - Sheila

I asked specifically about stopping NAE - the response:

Dear ,Any adrenal glandular supplementation should be stopped for atleast 1 week before doing the test to gauge the bodies natural response to stress. However the stopping of any supplements should be discussed with your practitioner if you are working with one.Kind regards J Lindow, RAW Dip, mBANTPractitioner SupportGenova Diagnostics EuropeInnovative Testing for Optimal HealthParkgate House356 West LaneNew Malden Surrey KT3 6NB+44(0)20 8336 7750+44(0)20 8336 7753 (Support)NLindowGDX (DOT) netwww.GDX.net

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[Guest guest]

Hi Sheila,

I wish that I felt that I could trust doctors to know the risks from just stopping cortef without winding down. I feel that I am on my own taking it with no doctor's support, and since my GP was not instrumental in my starting it (I was seeing a private doctor at the time) and does not understand the need for it, he could just tell me that I do not need it etc or perhaps I being too cynical.

Val

Thanks for this Val - then, for the sake of responses from this forum, I think we should agree that anybody taking Nutri Adrenal Extra, if they are wanting a 24 hour salivary adrenal profile test, they should stop them for 1 week prior to taking the test, and for anybody on Cortef, this should be stopped for 6 weeks prior to the adrenal function test - the latter, especially, being agreed by the patients doctor.Luv - Sheila

[Guest guest]

This is WHY we need forums such as this one Val and try to get the FACTS to help members get the correct information they need. It is an absolute scandal that the NHS are leaving us to do this on our own.

Luv - Sheila

Hi Sheila,

I wish that I felt that I could trust doctors to know the risks from just stopping cortef without winding down. I feel that I am on my own taking it with no doctor's support, and since my GP was not instrumental in my starting it (I was seeing a private doctor at the time) and does not understand the need for it, he could just tell me that I do not need it etc or perhaps I being too cynical.

Val

..

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[Guest guest]

Hi Val

If you take any supplementary cortisol, the more you use, the more

likely that you will need to reduce it slowly. It depends, somewhat, on

how much your own adrenals are putting out and whether they are mildly

or severely stressed.

If you know you have sufficient vitamin C, vit B5 and zinc/magnesium in

your diet/regime, then your adrenals should be able to mount a response

to a lowering of the supplemented cortisol.

How well that happens will be indicated by your response.

If you begin to feel particularly nervous, sick or have diarrhoea, then

make sure you keep your electrolytes topped up; potassium and magnesium

(as well as the more obvious sodium/chloride) may need to be watched if

you loose a lot of fluid.

If you wake up feeling 'more sick' than usual, that may indicate not

enough overnight build-up of cortisol...how fast you can 'get going' in

the mornings is also an indication that cortisol may be a bit on the

low side.

It takes time, practice and patience to sort out what is wrong and the

things needed to be done, to resolve those problems.

Some people have been able to improve matters by taking some/all of

their thyroid meds at night (but it seems that you need to get the

basic 'system' restored to near euthyroid before being able to manage

that switch to night time dosing).

The advice given to take 'Thyroid' tablets in the morning may be an

acceptable general rule....but there is no clear reason to change from

that strategy unless you can prove to yourself ( under self-

management ) that it is both feasible and desirable to do so.

If you can establish a mutually respecting relationship with your GP

(ask about that?), then you can reasonably expect that your doc will

concur with your tried and tested personal experiences; you know better

than the doc what your body does on a day-to-day basis.

It may take between three and six months (or longer) to find the range

over which you can 'tweak' your meds. I'm sure your doc would be happy

to let you 'run' your basic meds if s/he is aware that you are taking a

serious interest and you are, in fact, learning the 'ropes'.

The average doc may have about twenty (+/- est 1-2%) patients with

thyroid problems, depending on the age distribution of their practice.

Perhaps, less than half will be competent or interested enough to want

to 'manage' their own meds.

The doc has a dilemma in knowing which ones can and which ones can't be

expected to 'manage' on their own meds.

They also have to distinguish between those with mental ill-health and

those with thyroid problems, and some of them with both.

My guess is, that they tend to categorise the average patient as having

a mental ill-health problem before they think of thyroid malfunction....

and, as we saw last week, you might be classified as a 'goitre girl'

(Dan the doc) if it shows up obviously when you walk into the surgery.

If like me, you only discover very late on that your fundamental

problem has been low folate, nothing will fix it until you get the

folate sorted out. Last week, for instance, I discovered that the

reason they don't like giving out folates is of the erroneous belief

(in anti-folate therapy); it assumed that too much folate was likely to

cause cancer ~ wrong.

Lab tests (folate or thyroid) that say you're 'in range' may just prove

that the range is wrong through inclusion of too many sick people.

best wishes

Bob

>

> Hi Sheila,

>

> I wish that I felt that I could trust doctors to know the risks

[Guest guest]

Hi Val,

I agree as I’m just in the final stages of stopping pred. The usual method of ramping down over 3 months just was not slow enough and left me back where I started when I stopped. This time I have left it 6 months between dose reductions which seems to be going well.

Subject: Re: salivary test

Hi Sheila,

I wish that I felt that I could trust doctors to know the risks from just stopping cortef without winding down. I feel that I am on my own taking it with no doctor's support, and since my GP was not instrumental in my starting it (I was seeing a private doctor at the time) and does not understand the need for it, he could just tell me that I do not need it etc or perhaps I being too cynical.

Val