Guest guest Posted October 20, 2003 Report Share Posted October 20, 2003 are you refrerring to the adrenal salivary test? salivary test How do you do it???? Maarit.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 Thanks for this Val - then, for the sake of responses from this forum, I think we should agree that anybody taking Nutri Adrenal Extra, if they are wanting a 24 hour salivary adrenal profile test, they should stop them for 1 week prior to taking the test, and for anybody on Cortef, this should be stopped for 6 weeks prior to the adrenal function test - the latter, especially, being agreed by the patients doctor. Luv - Sheila I asked specifically about stopping NAE - the response: Dear ,Any adrenal glandular supplementation should be stopped for atleast 1 week before doing the test to gauge the bodies natural response to stress. However the stopping of any supplements should be discussed with your practitioner if you are working with one.Kind regards J Lindow, RAW Dip, mBANTPractitioner SupportGenova Diagnostics EuropeInnovative Testing for Optimal HealthParkgate House356 West LaneNew Malden Surrey KT3 6NB+44(0)20 8336 7750+44(0)20 8336 7753 (Support)NLindowGDX (DOT) netwww.GDX.net No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.4/1474 - Release Date: 30/05/2008 07:44 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 Hi Sheila, I wish that I felt that I could trust doctors to know the risks from just stopping cortef without winding down. I feel that I am on my own taking it with no doctor's support, and since my GP was not instrumental in my starting it (I was seeing a private doctor at the time) and does not understand the need for it, he could just tell me that I do not need it etc or perhaps I being too cynical. Val Thanks for this Val - then, for the sake of responses from this forum, I think we should agree that anybody taking Nutri Adrenal Extra, if they are wanting a 24 hour salivary adrenal profile test, they should stop them for 1 week prior to taking the test, and for anybody on Cortef, this should be stopped for 6 weeks prior to the adrenal function test - the latter, especially, being agreed by the patients doctor.Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 This is WHY we need forums such as this one Val and try to get the FACTS to help members get the correct information they need. It is an absolute scandal that the NHS are leaving us to do this on our own. Luv - Sheila Hi Sheila, I wish that I felt that I could trust doctors to know the risks from just stopping cortef without winding down. I feel that I am on my own taking it with no doctor's support, and since my GP was not instrumental in my starting it (I was seeing a private doctor at the time) and does not understand the need for it, he could just tell me that I do not need it etc or perhaps I being too cynical. Val .. No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.4/1475 - Release Date: 30/05/2008 14:53 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 Hi Val If you take any supplementary cortisol, the more you use, the more likely that you will need to reduce it slowly. It depends, somewhat, on how much your own adrenals are putting out and whether they are mildly or severely stressed. If you know you have sufficient vitamin C, vit B5 and zinc/magnesium in your diet/regime, then your adrenals should be able to mount a response to a lowering of the supplemented cortisol. How well that happens will be indicated by your response. If you begin to feel particularly nervous, sick or have diarrhoea, then make sure you keep your electrolytes topped up; potassium and magnesium (as well as the more obvious sodium/chloride) may need to be watched if you loose a lot of fluid. If you wake up feeling 'more sick' than usual, that may indicate not enough overnight build-up of cortisol...how fast you can 'get going' in the mornings is also an indication that cortisol may be a bit on the low side. It takes time, practice and patience to sort out what is wrong and the things needed to be done, to resolve those problems. Some people have been able to improve matters by taking some/all of their thyroid meds at night (but it seems that you need to get the basic 'system' restored to near euthyroid before being able to manage that switch to night time dosing). The advice given to take 'Thyroid' tablets in the morning may be an acceptable general rule....but there is no clear reason to change from that strategy unless you can prove to yourself ( under self- management ) that it is both feasible and desirable to do so. If you can establish a mutually respecting relationship with your GP (ask about that?), then you can reasonably expect that your doc will concur with your tried and tested personal experiences; you know better than the doc what your body does on a day-to-day basis. It may take between three and six months (or longer) to find the range over which you can 'tweak' your meds. I'm sure your doc would be happy to let you 'run' your basic meds if s/he is aware that you are taking a serious interest and you are, in fact, learning the 'ropes'. The average doc may have about twenty (+/- est 1-2%) patients with thyroid problems, depending on the age distribution of their practice. Perhaps, less than half will be competent or interested enough to want to 'manage' their own meds. The doc has a dilemma in knowing which ones can and which ones can't be expected to 'manage' on their own meds. They also have to distinguish between those with mental ill-health and those with thyroid problems, and some of them with both. My guess is, that they tend to categorise the average patient as having a mental ill-health problem before they think of thyroid malfunction.... and, as we saw last week, you might be classified as a 'goitre girl' (Dan the doc) if it shows up obviously when you walk into the surgery. If like me, you only discover very late on that your fundamental problem has been low folate, nothing will fix it until you get the folate sorted out. Last week, for instance, I discovered that the reason they don't like giving out folates is of the erroneous belief (in anti-folate therapy); it assumed that too much folate was likely to cause cancer ~ wrong. Lab tests (folate or thyroid) that say you're 'in range' may just prove that the range is wrong through inclusion of too many sick people. best wishes Bob > > Hi Sheila, > > I wish that I felt that I could trust doctors to know the risks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Hi Val, I agree as I’m just in the final stages of stopping pred. The usual method of ramping down over 3 months just was not slow enough and left me back where I started when I stopped. This time I have left it 6 months between dose reductions which seems to be going well. Subject: Re: salivary test Hi Sheila, I wish that I felt that I could trust doctors to know the risks from just stopping cortef without winding down. I feel that I am on my own taking it with no doctor's support, and since my GP was not instrumental in my starting it (I was seeing a private doctor at the time) and does not understand the need for it, he could just tell me that I do not need it etc or perhaps I being too cynical. Val Quote Link to comment Share on other sites More sharing options...
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