Hi All - Sheila

[Guest guest]

Where was the FT3 test and where was the test to see if you have antibodies to your thyroid. In America, you would have received a diagnosis. ~To be honest, I don't think much Simone, if he left it like that, I am shocked. People can be hypothyroid with a normal TSH if FT4 and FT3 are both within the range, but how can he tell that you do not have hypothyroidism. Did he give you a thorough clinical examination or ask about your medical history. Did he look at your 'signs' - did he test your reflexes , especially your Achilles tendon to see if there was a slow return?

Chlorella is an excellent natural supplement for anybody to take and it may help you, but unfortunately, if you have low thyroid hormones, there is only going to be either synthetic or natural thyroid hormones that will give you back your health. Did Dr L suggest you come back at a later date or to have another blood test done in the future?

Other supplements that would boost your thyroid are Nutri Thyroid or Nutri Thyroid Complex, but before you started on these, you should boost your adrenals because the majority of untreated hypothyroid sufferers have low adrenal reserve.

I am sorry to consultation was so disappointing.

Luv - Sheila

Hi All - Sheila

Here are the results that Dr L had a look attsh 3.27 range 0.27 - 4.20FT4 16.9 range 12.0-22.0He says they are fine..very confused..what do you think Sheila..I have started taking Chlorella...what do you think of this product?Thanks,Simone

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.5/1399 - Release Date: 26/04/2008 14:17

[Guest guest]

>

> >

> Sheila,

>

>

> I'm actually very upset, as i thought finally i would have someone

give me trial on thyroxine....it did do my antibodies test and i will

get this result next week....he says if the antibodies are high then i

could be underactive and i hope he will treat me then...i can only pray

that they are high..but if they are not, i am still left in the same

predicament that i have been in the last 5 years.

He did suggest that my overactive thyroid in 2003 gave me a shock and

maybe i am not letting go of the experience and this is stressing me

out...i asked him if he thought i had a goiter..he said on the contrary

he thought i had a long elegant neck...agh and of course i am thin..but

i have just spoken to someone from thyroid uk who says many women call

her who are slim and have hypo symptoms..i understand that my case is

not typical as i went overactive and then underactive with carbimazole

inin amonth and supposedly my system aligned itself naturally without

meds, i always thought this was my saving grace but in effect it has

been more like a struggle.

i really do want a trial on thyroxine just to see if i feel better..if

i do manage to get a trial...can i still take the chlorella and should

i take it apart from thyroxine as it contains iron.

>

> ----------------------------------------------------------------------

--------

>

>

> No virus found in this incoming message.

> Checked by AVG.

> Version: 7.5.524 / Virus Database: 269.23.5/1399 - Release Date:

26/04/2008 14:17

>

[Guest guest]

>

> I spoke to a woman from thyroid uk and she says 80% of people do ok

of thyroxine but 20% do not have to go on armour.

so she suggested i go on the thyroxine first and see if i can tolerate

she said i should know with 5 months and if it is not for me i should

change to armour?..does this sound about right...

And going back to Dr L is it possible as he suggests that i have

psychologocially not let go of my 2003 thyroid experience and this is

what is causing me my symptoms...i know if i felt healthy i would not

be perpetuating anything...

Luv,

Simone

[Guest guest]

Hi Simone, take one step at a time and see how things go after you get the results back to see whether your antibodies are high. You could boost your thyroid with Nutri Thyroid and your adrenals with Nutri Adrenal Extra as I mentioned previously, but if you do =get thyroxine, take your Chlorrela about 3 to 4 hours away from oyour thyroxine.

luv - Sheila

>> > > Sheila,> > > I'm actually very upset, as i thought finally i would have someone give me trial on thyroxine....it did do my antibodies test and i will get this result next week....he says if the antibodies are high then i could be underactive and i hope he will treat me then...i can only pray that they are high..but if they are not, i am still left in the same predicament that i have been in the last 5 years.He did suggest that my overactive thyroid in 2003 gave me a shock and maybe i am not letting go of the experience and this is stressing me out...i asked him if he thought i had a goiter..he said on the contrary he thought i had a long elegant neck...agh and of course i am thin..but i have just spoken to someone from thyroid uk who says many women call her who are slim and have hypo symptoms..i understand that my case is not typical as i went overactive and then underactive with carbimazole inin amonth and supposedly my system aligned itself naturally without meds, i always thought this was my saving grace but in effect it has been more like a struggle.i really do want a trial on thyroxine just to see if i feel better..if i do manage to get a trial...can i still take the chlorella and should i take it apart from thyroxine as it contains iron.> > ------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG. > Version: 7.5.524 / Virus Database: 269.23.5/1399 - Release Date: 26/04/2008 14:17>

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.5/1399 - Release Date: 26/04/2008 14:17

[Guest guest]

I get so angry when I hear it said that 80% of people do OK on Thyroxine. How does anyone KNOW 80% do OK. How many of these 80% do not have access to the Internet or thyroid support groups and who, every time they go to their doctors, their doctor gives them a blood test, tells them they are normal and the poor patient BELIEVES their doctor and that they ARE normal, when they can be suffering many symptoms and think this is the way they have to live for the rest of their lives. Thyroxine is an inactive hormone - it does absolutely NOTHING but convert to the active hormone T3 in the liver. It is the T3 that makes the body function and makes hypothyroid patients well. Some doctors refuse to have T4 in their offices - Like Dr Lowe. and he ONLY uses T3 or natural thyroid extract (Armour Thyroid) because Armour includes ALL the thyroid hormones your body needs. He believes it is the biggest scourge on mankind that was ever invented.

You HAVE to start on synthetic L-thyroxine if you are getting it within the NHS and if it works for you and you do not have a conversion problem, then that is brilliant, and yes, it could well happen, but be prepared to be left with some symptoms, or you may not be able to convert.

Intelligent doctors, who know how the thyroid functions and about the problems with L-thyroxine, will, if their patients don't get well on T4 only, start them on Liothyronine (T3) only and for many, this works. For others, then they do have to resort to Armour, but unless the NHS doctor is willing to prescribe Armour, it would be cheaper for you to try the T3 only route which can be prescribed within the NHS and is licensed.

Luv - Sheila

>> I spoke to a woman from thyroid uk and she says 80% of people do ok of thyroxine but 20% do not have to go on armour.so she suggested i go on the thyroxine first and see if i can tolerate she said i should know with 5 months and if it is not for me i should change to armour?..does this sound about right...And going back to Dr L is it possible as he suggests that i have psychologocially not let go of my 2003 thyroid experience and this is what is causing me my symptoms...i know if i felt healthy i would not be perpetuating anything...Luv,Simone

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.5/1399 - Release Date: 26/04/2008 14:17

[Guest guest]

> >

> > >

> > Sheila,

>

> >

> >

> > I'm actually very upset, as i thought finally i would have

someone

> give me trial on thyroxine....it did do my antibodies test and i

will

> get this result next week....he says if the antibodies are high

then i

> could be underactive and i hope he will treat me then...i can

only pray

> that they are high..but if they are not, i am still left in the

same

> predicament that i have been in the last 5 years.

> He did suggest that my overactive thyroid in 2003 gave me a shock

and

> maybe i am not letting go of the experience and this is stressing

me

> out...i asked him if he thought i had a goiter..he said on the

contrary

> he thought i had a long elegant neck...agh and of course i am

thin..but

> i have just spoken to someone from thyroid uk who says many women

call

> her who are slim and have hypo symptoms..i understand that my

case is

> not typical as i went overactive and then underactive with

carbimazole

> inin amonth and supposedly my system aligned itself naturally

without

> meds, i always thought this was my saving grace but in effect it

has

> been more like a struggle.

> i really do want a trial on thyroxine just to see if i feel

better..if

> i do manage to get a trial...can i still take the chlorella and

should

> i take it apart from thyroxine as it contains iron.

>

> >

> > ----------------------------------------------------------

> --------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG.

> > Version: 7.5.524 / Virus Database: 269.23.5/1399 - Release

Date:

> 26/04/2008 14:17

> >

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG.

> Version: 7.5.524 / Virus Database: 269.23.5/1399 - Release Date:

26/04/2008 14:17

>

[Guest guest]

HI Simone

You should not use Nutri Thyroid until you have boosted your adrenals with Nutri Adrenal Extra. You take NAE for a couple of weeks, and then start the Nutri Thyroid supplements. You do not take these for life, you stop them when you start on thyroid hormone supplements.

Luv -Sheila

> >> > > > > Sheila,> > > > > > > I'm actually very upset, as i thought finally i would have someone > give me trial on thyroxine....it did do my antibodies test and i will > get this result next week....he says if the antibodies are high then i > could be underactive and i hope he will treat me then...i can only pray > that they are high..but if they are not, i am still left in the same > predicament that i have been in the last 5 years.> He did suggest that my overactive thyroid in 2003 gave me a shock and > maybe i am not letting go of the experience and this is stressing me > out...i asked him if he thought i had a goiter..he said on the contrary > he thought i had a long elegant neck...agh and of course i am thin..but > i have just spoken to someone from thyroid uk who says many women call > her who are slim and have hypo symptoms..i understand that my case is > not typical as i went overactive and then underactive with carbimazole > inin amonth and supposedly my system aligned itself naturally without > meds, i always thought this was my saving grace but in effect it has > been more like a struggle.> i really do want a trial on thyroxine just to see if i feel better..if > i do manage to get a trial...can i still take the chlorella and should > i take it apart from thyroxine as it contains iron.> > > > > ----------------------------------------------------------> --------> > > > > > No virus found in this incoming message.> > Checked by AVG. > > Version: 7.5.524 / Virus Database: 269.23.5/1399 - Release Date: > 26/04/2008 14:17> >> > > > > > > --------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG. > Version: 7.5.524 / Virus Database: 269.23.5/1399 - Release Date: 26/04/2008 14:17>

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[Guest guest]

>

> Thanks Sheila

Luv,

Simone

[Guest guest]

Hi Simone,

Sorry to but in here, but I have some experience of this & it certainly does not suit me - makes me feel rough. I think it is a sulphur product (may be wrong here, but something like this) & as such is not suitable for many/most with mercury problems. You need advice on the frequent-dose-chelation group (or the mercury person Sheila advises who has Andy Cutlers stuff on her site anyway & this is a Cutler method group I am suggesting). You may not have mercury problems / amalgam fillings & so this product may be ok for you. My husband is taking it at the moment & it is ok for him, but you should also be knowledgeable about the problems with it.

Val

He says they are fine..very confused..what do you think Sheila..I have started taking Chlorella...what do you think of this product?Thanks,Simone

[Guest guest]

Hi Val and Simone,

That is really interesting. I'm not 100% certain, but I think my

doctor mentioned that he used chlorella when?/just after? he had his

amalgams removed. I think it made him sick when he tried it again a

while after the amalgams were removed. So different horses for

courses? (or whatever that saying is - I always get sayings wrong!)

P

>

> Hi Simone,

>

> Sorry to but in here, but I have some experience of this & it

certainly does not suit me - makes me feel rough. I think it is a

sulphur product (may be wrong here, but something like this) & as

such is not suitable for many/most with mercury problems.

> Val

>

>

> He says they are fine..very confused..what do you think Sheila..

> I have started taking Chlorella...what do you think of this

product?

>

> Thanks,

>

> Simone

>

[Guest guest]

she sees that the test came back as positive

> for antibodies...so i guess my symptoms have not been in my head...

Hi Simone, what helped me was getting the test results in writing

which I found very easy to do by contacting the office at the surgery

and they printed them out and left them at reception. Then I was able

to post on the site and get real feedback. I have high antibodies -

over 1000 but my TSH/T4 so called normal.

luv Keri

[Guest guest]

>

> Hi Sheila,

The antibodies tests came from Dr L office, he is away on holiday at

the moment but his nurse said when he gets back he'll write me a letter

of what needs to be done. He did say when i saw him that if i had

antibodies he would treat me, so heres hoping..if he does not treat me,

i will go the the dr in brighton who treats symptomatically.

At the moment am taking NAE, Iron, omega 3, Vitamin C, selenium to

prepare myself for the start of the thryoxine is there anything else i

should be taking.

Many thanks,

Luv,

Simone

[Guest guest]

>

> Hi Keri,

Thanks for that..the nurse gave me the results over the phone

yesterday.....the ref range is 0 - 9 and i am out of the range at 34.

She said it means autoimmune disease but also said it's not that

high,,, however that means nothing to me as i still have autoimmune and

am still symptomatic so therefore need treatment.

My Ft4 is also in normal range...anyone hopefully i get the trial of

thyroxine soon.

Luv,

Simone

[Guest guest]

Isn't it ridiculous but I am going to say - I'm chuffed you have antibodies. As you say, the doctors can see that it is now NOT in your head. Go to our website www.tpa-uk.org.uk and click on Hypothyroidism, and then click on Nutrition/Supplements. Keep us informed regarding the letter from Dr L

Luv - Sheila

-

>> Hi Sheila,The antibodies tests came from Dr L office, he is away on holiday at the moment but his nurse said when he gets back he'll write me a letter of what needs to be done. He did say when i saw him that if i had antibodies he would treat me, so heres hoping..if he does not treat me, i will go the the dr in brighton who treats symptomatically.At the moment am taking NAE, Iron, omega 3, Vitamin C, selenium to prepare myself for the start of the thryoxine is there anything else i should be taking.Many thanks,Luv,Simone

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.6/1403 - Release Date: 29/04/2008 07:26

[Guest guest]

> >

> > Hi Sheila,

>

> The antibodies tests came from Dr L office, he is away on holiday

at

> the moment but his nurse said when he gets back he'll write me a

letter

> of what needs to be done. He did say when i saw him that if i had

> antibodies he would treat me, so heres hoping..if he does not

treat me,

> i will go the the dr in brighton who treats symptomatically.

> At the moment am taking NAE, Iron, omega 3, Vitamin C, selenium

to

> prepare myself for the start of the thryoxine is there anything

else i

> should be taking.

>

> Many thanks,

>

> Luv,

>

> Simone

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG.

> Version: 7.5.524 / Virus Database: 269.23.6/1403 - Release Date:

29/04/2008 07:26

>

[Guest guest]

Hi Simone

It is difficult to know how long a person will be on thyroxine before they regain their normal health. Some people do extremely well on T4 only and this is because they have no problems in cnverting it to the active hormone T3. Let's hope you are one such person. Others appear to do well on T4 only for several months, even years, and then, for some reason, the benefits disappear and they need the addition of synthetic t3 or need to go onto Armour Thyroid. This again, is a waiting game to see how you respond.

Luv - Sheila

>> > Hey Sheila..i am sooooo chuffed i have antibodies...i know my nature and half of that nature had disappeared over the last 5 years...in hindsight when they offered me the throxine in 2003 i should have taken it and not let my body 'align' itself as all the doctors have subsequently said..but hey this has been my journey and journeys always come with lessons and blessings ...i now just hope that i get on well with thyroxine, if i don't i am not going to wait years until i make the switch to armour...i how do you think it will take for me to know if thyroxine is the meds for me or not?Luv,Simone> > >

..

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[Guest guest]

Probably you got this feeling because your body suddenly recognising it is getting something it hasn't had for a long time. This is the active hormones T3, T2 and probably T1 also, plus calcitonin. You must give your body time to get used to these lovely new goodies. Keep on, you will soon get over this 'druggy' feeling Simone. It happens to a few of us.

Luv - Sheila

I wondered if you ever heard of this....i tried a quarter grain a few days ago for two days and it kind of made me feel drugged..what's that aobut..bizzairely when i tried armour a few years ago for a week, did not feel drugged at all, felt great..Hope you had a great holiday..:)Luv,Simone

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[Guest guest]

This may be coincidental Simone, but keep an eye on this. When you start taking Armour, because of the T3, this usually makes you pee more and helps any constipation you may have had previously.

Luv - Sheila

Sheila..thanks for the comments regarding the drugged feeling, the other thing i forgot to mention was that i noticed a bit of swelling, interms of my ring felt tighter and ankles seemed slightly thicker..is this normal and to be expected and does it disappear afterwards?Thanks,Luv,Simone

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.23.16/1430 - Release Date: 13/05/2008 07:31

[Guest guest]

Hi Simone - it sounds as if you could be allergic to one of the ingredients in Nutria adrenal. There are other supplements you can use for your adrenal insufficiency

a) hydrocortisone (or prednisolone) - synthetic cortisone

Fludrocortisone - synthetic mineralocorticoid

c) DHEA or 7-keto DHEA - adrogenic hormone

d) Natural glandular concentrate - bovine with all the hormones and enzymes

e) Nutritional supplements - vitamin and mineral cofactors (Vitamin C (1000 to 3000 mgs daily. Liquorice/Ginseng tincture (10 to 20 drops in water, twice daily). Cp-Enzyme Q10 (30 to 5o mgs twice daily) - and Pantothenic acid - vitamin B5 (15 to 20 mgs daily.

In general, none of these should ever be a problem. Sometimes the high dose of vitamin C (Dr Peatfields often suggests up to 4000 mgs) may cause looseness of the bowel or indigestion. The dose then has to be reduced accordingly, or a buffered vitamin C used to help prevent these. The liquorice/ginseng tincture rarely causes problems, since it is given as drops in water; Coenzyme Q10 seems to have no untoward effects in anyone, and you can take it in much highest doses if you have a raised cholesterol.

Luv - Sheila

Hi All - Sheila

Unfortunately i had to come off the armour as was get headaches and feeling really foggy on it. Phoned Dr P and he said to come off it as it was making me toxic, as my adrenals were not ready for it.He suggested i go on Nutri Adrenal, i have tried nutri Adrenal extra before and could not tolerate. So have tried Nutri adrenal and again can't tolerate it, within half and hour of taking it i feel really cold, my lips go purple and my usual afternoon temperature of 36.8 drops to 36.3.I do well on the siberian ginseng..so was thinking of replacing the nutri adrenal with the siberian ginseng.. but will this be enough to address my adrenals...or should i consider hydrocortisone..i received the saliva adrenal index test today, so will do that and see what the results are. Do i have to stop taking all adrenal supplements i.e siberian ginseng and vitamin c a few days before doing the test.Many thanks,Simone x

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.6/1480 - Release Date: 03/06/2008 07:00

[Guest guest]

>

> / Virus Database: 269.24.6/1480 - Release Date: 03/06/2008 07:00

>

Thanks Sheila,

Am very tempted to try DHEA i ordered this from the international

pharmacy, but have been to apprehensive of taking it.

Has anyone on here used DHEA?

Simone x

[Guest guest]

I have been taking 5mg dhea daily for years.

Val

Am very tempted to try DHEA i ordered this from the international pharmacy, but have been to apprehensive of taking it.Has anyone on here used DHEA?Simone

[Guest guest]

Hi Simone,

I tested low for DHEA on the spit test along with low cortisol.

Since then I have been able to reduce and am now almost off the cortisol.

When I tried to reduce cortisol last time without DHEA it didn't work- I got

all the old symptoms back- so it does seem to produce a cushion for the

adrenals.

>

Thanks Sheila,

Am very tempted to try DHEA i ordered this from the international

pharmacy, but have been to apprehensive of taking it.

Has anyone on here used DHEA?

Simone x

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

[Guest guest]

Hi Simone

It is always best to start any form of adrenal supplementation before

you start taking Armour for a while so that your adrenals can get the

boost they need in order to be able to cope with the Armour Thyroid.

Once your adrenals start to get happyagain, your body will be able to

absorb the Armour so much better. You then take it alongside your

Armour.

Luv - Sheila

>

> I wondered if you take cortef do you take it alongside the armour..or

> do you take it for a short bit on it's own before you start the

armour.

>

>

> Thanks,

>

> Simone x

>

[Guest guest]

Your cortisol should be at its highest in the morning to help you get through the day, but it is below range, your next two samples are below the range and your last sample at night shows your cortisol to be above the range, when it should be at its lowest so that you can sleep. You definitely need to treat your adrenals with some form of adrenal supplement. Are you a patient of Dr Peatfield's. If so, let him know these results asap. If not, are you under any other doctor who knows about the thyroid/adrenal connection. If neither, then you will have to bite the bullet and try to boost them yourself.

You can start by purchasing Nutri Adrenal Extra yourself from www.yournutritionshop.co.uk . You start by taking one tablet with breakfast for a couple of days and then adding another one with your lunch. never take them after 1.00p.m. because the small amount of adrenalin might keep you awake. You can increase by another tablet with your breakfast around 2 weeks and if you still feel the need to boost further, you can add yet another tablet daily. On particularly stressful days, either emotionally or physically, you can add another tablet. Some people take up to 6 tablets daily, but you will probably find you will be OK around 3 to 4.

I would always recommending starting on the adrenal supplements first to see if they work, and if they don't then you might consider Isocort (stronger than NAE but not as strong as Cortef) and if that doesn't work, then you might need to consider hydrocortisone. However, it is best to get the backing of a doctor if you need to go down this route.

Luv - Sheila

>> Got back my result from ASI today:> > sample 1: Morning - range 12 -22 11.5 L> sample 2: range 5.0 -9.0 4.2 L> sample 3: range 3.0 - 7.0 3.1> sample 4 prior sleep range 1.0 -3.0 5.6 H> > DHEA normal> > do these results suggest i should go on hydrocortisone?> > be grateful for any suggestions..> > Simone x>

[Guest guest]

>

>

> Thanks Sheila for all the information.

I have been on herbal supplements for adrenals and it has not

worked...have got cortef but if isocort is not as strong, i think i

might want to try that first before i continue with cortef.

Do you know where in the UK i can buy Isocort?

Many thanks,

Simone x