Where do I go from here?

[Guest guest]

Sorry about this long rant but I needed to let off steam to some

understanding people. Just come back from a totally useless visit to

NHS consultant for which I have waited more than 6 months!! Went in

prepared this time with all my symptoms written down. Told him I've

considered giving up work as I can no longer function and am becoming

a danger to myself and others on the roads due to poor concentration,

memory loss etc.(Keep well clear of a green Peugeot 307cc if you drive

around Essex!!) Have been on Levothyroxine alt days 75/100mcg for more

than 14 months. Initially I lost around a stone in weight and felt bit

better physically and mentally. Of late I have gone downhill mentally

to the point where I am making loads of stupid mistakes at work and

nearly hit another car on the way home yesterday. My hair has fallen

out to the point where I don't have enough left for my lovely

hairdresser to 'be creative to hide the bald bits' with. She confirmed

this week it is NOT growing back!!I am now the heaviest I have ever

been except when pregnant with my daughter nearly 20 years ago!!My BMI

says I'm obese yet my calorie intake is iro 1000 per day. I exercise

about 30 mins a day. My diet is very healthy and mainly salads, fruit,

lean meat, fish, veg (no potatoes or bread). Any dairy is low fat.

Rarely have eggs or cheese. Cannot see how I can cut any more calories

as I feel light headed as it is.

Feet are swollen to the point that only an old worn out pair of shoes

fit, hands feel swollen and tight.Skin dry rough and itchy, voice is

hoarse and constantly clearing my throat.I could go on but most of you

know all the other signs.

Consultant wouldnt tell me my blood test results, backtracked on

things hes said earlier. Claims I'm actually having more thyroxine

than my blood tests indicate I should have but wouldn't give me the

results and only referred to TSH levels in vague fashion. Wont give

any more thyroxine despite last time saying bloods indicated I could

have 100mcg per day. Now saying they only gave me thyroxine because of

the antibodies and that the thyroid was damaged but the thyroxine

stops this from getting any worse and I was only borderline

hypothyroid. Well if this is borderline I'd hate to be really badly

hypo!! Well I'm rambling in true fashion (sure you're all familiar ya

de ya). Suggested I was depressed. I countered with - does that

account for my hair falling out or my feet swelling up then? He didn't

have an answer for that!! Tried to suggest menopause at this point

which I countered with - been there done that - sailed through it!!I

said I don't think I am depressed as I have no reason to be. I'm

sleeping well, I'm in a happy marriage, my job is only stressful

because I feel so inadequate in it at the moment. Packed me off for

another lot of blood tests which the kindly phlebotomist says are for

hormones etc. She was really sympathetic as has all the signs &

symptoms of hypo but blood tests such she cant get ANY treatment!!

Also got brain scan - my parting shot was 'hope they manage to find

one as personally I think its on the way out!!'