Re: Boundaries between NHS and private treatment

[Guest guest]



PS to last messages. Forgot about ISP problems. It seems I have yet another one, so not sure when you will receive the previous message and this one

It infuriates me as it was only a couple of weeks ago that I was without the computer for a whole week end.

Lilian

[Guest guest]

This is awful, if I was on armour and felt so good and fully recovered there is NO way I would let any GP put me back on thyroxine, why did you let them do this to you lillian?

I would use my last penny if it meant I kept my health, have you been back and told the doc that you are not doing so well as you were on Armour? How can they do this and get away with it?

HI Lilian - is the fact that your doctor has stopped your Armour and put you back onto levothyroxine only been the cause of you not being able to keep up with the messages - do you no longer have the energy to do this? I HATE these doctors who simply refuse to look at the science, when it is out that and has been for over 40 years, and because of that, they are continuing to make their patients ill, whether they like it or not. Please go back to Armour and come back to us.

Luv - Sheila



Jane, you must be getting a bit paranoic, thinking we are all giving you the cold shoulder. I am 7,547 messages behind and have been reading current ones, and gradually reading the older ones, and I have just come across the one you wrote to me in June.

[Guest guest]

Hi Lilian, I don't know if artificial combo will have a significant affect on TSH than Armour- depends on the effect of the other minor thyroid hormones such as T2 etc- I recall someone ( ? Bob?) stating the effect of the various fractions on TSH fairly recently- maybe a search for the message would find it? thyroid treatment From: lilian15@...Date: Mon, 17 Nov 2008 11:24:18 +0000Subject: Re: Re: Boundaries between NHS and private treatment I think it possibly accounts for a lot, because I am less able to concentrate on longer messages, also it makes my eyes ache more, and the need to close them and go to sleep. And it does go back to June/July when the Armour was stopped. Having recently got the (new) endo to prescribe T3, albeit in a microscopic dose, I am hoping at my next visit, in about 6 weeks, that he will raise it. When it is raised to a dose equal to a grain of Armour I will switch to Armour. I am hoping that the equivalent in Armour will not change my blood test results significantly from T3/T4 combination as it would from just T4. Would anyone know if that is the case or not? Also, if he can see the T3 has made an improvement, I might even be able to persuade him that Armour would be even better for me. However, on 5mcg T3 a day plus 125 mcg Thyroxine, it barely makes a difference. I have not yet seen my GP since the endo prescribed the T3 so am not sure what his reaction is. The endo prescribed enough T3 (at that dose) to last until I see him again. Lilian HI Lilian - is the fact that your doctor has stopped your Armour and put you back onto levothyroxine only been the cause of you not being able to keep up with the messages - do you no longer have the energy to do this? Click here for FREE customisable desktop wallpapers. Get them Now!

[Guest guest]

Hi Lilian

If you go the the Armour thyroid website they now have a calculator

that automatically converts equivalent doses.

1 grain = 100mcg thyroxine

Chris

> Having recently got the (new) endo to prescribe T3, albeit in a

microscopic dose, I am hoping at my next visit, in about 6 weeks,

that he will raise it. When it is raised to a dose equal to a

grain of Armour I will switch to Armour. I am hoping that the

equivalent in Armour will not change my blood test results

significantly from T3/T4 combination as it would from just T4.

Would anyone know if that is the case or not?

>

> Lilian

>

[Guest guest]

Thanks I will check. What I am really after is the equivalent in the T3 because that is the one which makes the TSH very low.

Lilian

[Guest guest]

Hi Lilian- thats there too.

2.5 T3 = 1 grain

Go to Armour thyroid web site, click on " for professionals " say yes to

being a US physician. At the top you will see treatments, click on

that then go to dosing, you will find the calculator here for all

types of thyroid meds. From the drop down list just click which one,

state your dose and see the equivalent in grains underneath.

Chris

>

> Thanks I will check. What I am really after is the

equivalent in the T3 because that is the one which makes the TSH very

low.

> Lilian

>

[Guest guest]

Thanks - I will do that right now.

Lilian

[Guest guest]

hi lillian; to be honest my brain was so foggy last summer that i

don't remember writing it !!, take care, jane

>

> Jane, you must be getting a bit paranoic, thinking we are all

giving you the cold shoulder. I am 7,547 messages behind and

have been reading current ones, and gradually reading the older ones,

and I have just come across the one you wrote to me in June.

>

> So sorry I hadn't replied (and to anyone else who has written

subsequently - I will get to you eventually I am sure).

>

> Of course, your question to me has all changed now, since I have

been having the problems with my GP. When I was taking Armour, and

being extremely well on it, I found that I did not need any extra

thyroxine or T3, but I know someone who cannot afford to buy the

amount of Armour she needs, so she buys half the Armour and

supplements with T3 and thyroxine.

>

> I think a lot depends on each person. Some need extra T3, some

need extra T4. I was on 5 grains Armour and it was perfect for

me. I think it is Sheila who tops up with thyroxine.

>

> Lilian

>

> hi lillian; do i understand you right in that you take both armour

and thyroxine ? if so what sort of strength are you using ? regards

jane

>

[Guest guest]

Is that 25 mcgs? Mo

>

> 2.5 T3 = 1 grain

>

> Go to Armour thyroid web site, click on " for professionals " say yes

to

> being a US physician. At the top you will see treatments, click on

> that then go to dosing, you will find the calculator here for all

> types of thyroid meds. From the drop down list just click which

one,

> state your dose and see the equivalent in grains underneath.

>

> Chris

>

>

> >

> > Thanks I will check. What I am really after is the

> equivalent in the T3 because that is the one which makes the TSH

very

> low.

> > Lilian

> >

>

[Guest guest]

Sorry Mo I'm not familiar with it - yes it is.

Chris

> Is that 25 mcgs? Mo

[Edit Abbrev Mod]

[Guest guest]



, I have told the doctor, he has seen for himself, but as Sheila says, he has his career to think about.

I did it because he threatened not to be my doctor and I do need a doctor because being diabetic I need regular prescriptions of insulin, also need B12 injections regularly, as well as other medical conditions.

I did speak to PALs but they were not very helpful. So I thought I would comply (for a while) until I investigated all avenues. One being to see an NHS endo on Sheila's list in the hopes I can persuade him to prescribe T3 (initially) and therefore try and influence my GP to carry on prescribing it, or to keep prescribing it himself.

The problem is that this endo has not taken into consideration that I have been on Armour/T3 at a highish dose for the last five years, and is starting from the beginning - at 5mcg a day Hopefully when I see him again in January I can persuade him to raise it a bit more. The difficulty of course is to try and persuade them that with T3 the TSH is supressed.

Nobody seems to be able to produce a study or research that says when taking T3 the TSH WILL be very supressed even though the patient is not hyper and the T4 and T3 are in range.

Lilian