Re: Been to the doctor today

[Guest guest]

Hi ,

I was in a similar position. I had a really good few weeks were i

felt " normal " again. Then the symptoms started to come back. The doc

has increased my dose of thyroxine and will see what happens next.

But i think i am one of those people who does not convert to T3 very

well. Maybe the case with you too?

regards

Alison

>

> Now?I am confused. After a couple of months on Levothroxine and

feeling really well, I mean new woman well I went back as my arms

were twinging. In that period of feeling really well I was able to

reduce my insulin, my blood sugars were great and I was awake and the

brain working great. I went back about 3 weeks ago as the pains

seemed worse in my arms.He did loads of blood tests including

ferritin, B12, T4, TSH and blood pressure, and cholestoral.

Everything was fine apart from the cholestoral which was 5.5. In fact

the HB1C for the blood sugar was the best it's been for about 5

years, only half a point above normal! So if everything is normal why

are my arms really hurting and why am i suddently really tired

again?? My gp is wondering if it's the diabetes but it was

brilliantly controlled when I felt well and now I don't it's shot

back up again. I'm so confused. He's playing around with one of my

meds but thinks it's unlikely to be that. I'm wondering if it might

be fybromialgia, I hope not!

>

>

>

>

>

______________________________________________________________________

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[Guest guest]

Hi

Did you get the results of your thyroid function tests. Even though all your other tests are fine, it could very well be that you are either (and this is very likely) not on enough levothyroxine to get rid of all your symptoms or you are not converting the inactive T4 into the actiive T3. If you are not getting enough T3 into all your cells, you can get some quite severe pains in your muscles and joints in almost any part of your body. In my own case, it was in my lower back, just shifted a little over to one side, my shoulder and under both my heels. Once I started taking Armour, all the pains went. If your local laboratory refuses to test your Free T3, you should get this done through NPTech Services.

However, having said this, the majority of people taking levothyroxione have to wait several months for the thyroxine to get working properly and you are still very early into treatment. What dose are you taking now.

luv - Sheila

Now I am confused. After a couple of months on Levothroxine and feeling really well, I mean new woman well I went back as my arms were twinging. In that period of feeling really well I was able to reduce my insulin, my blood sugars were great and I was awake and the brain working great. I went back about 3 weeks ago as the pains seemed worse in my arms.He did loads of blood tests including ferritin, B12, T4, TSH and blood pressure, and cholestoral. Everything was fine apart from the cholestoral which was 5.5. In fact the HB1C for the blood sugar was the best it's been for about 5 years, only half a point above normal! So if everything is normal why are my arms really hurting and why am i suddently really tired again?? My gp is wondering if it's the diabetes but it was brilliantly controlled when I felt well and now I don't it's shot back up again. I'm so confused. He's playing around with one of my meds but thinks it's unlikely to be that. I'm wondering if it migh t be fybromialgia, I hope not!

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[Guest guest]

Everything was fine apart from the cholestoral which was 5.5. In fact

the HB1C for the blood sugar was the best it's been for about 5 years,

only half a point above normal! So if everything is normal why are my

arms really hurting and why am i suddently really tired again?? My gp

is wondering if it's the diabetes but it was brilliantly controlled

when I felt well and now I don't it's shot back up again. I'm so

confused. He's playing around with one of my meds but thinks it's

unlikely to be that. I'm wondering if it might be fybromialgia, I hope

not!

>

-------------------------------------------------------

Hi ,

I had a similar problem with my arms, where in my case it turned out

to be vitamin B12 deficiency. Therefore, it might be an idea to ask

your GP to check your blood for intrinsic factor antibody levels. This

test is used to identify whether you have pernicious anaemia, as most

people who lack intrinsic factor have these antibodies in their blood.

This is a separate individual test:

http://www.nhsdirect.nhs.uk/articles/article.aspx?articleId=42 & sectionId=7

The immune system normally makes antibodies to attack bacteria and

viruses. Pernicious anaemia is caused by an autoimmune disease, which

causes the immune system to make antibodies against other parts of

your body. In pernicious anaemia, antibodies are formed that attack

the stomach lining and damage the cells that produce intrinsic factor.

This stops intrinsic factor from attaching to B12, and so the vitamin

cannot be absorbed into your body.

http://www.cks.library.nhs.uk/patient_information_leaflet/b12_deficiency

My vitamin B12 tests kept coming back normal until I was tested for

the above lack of the intrinsic factor, where that test came back

positive, so I now have vitamin B12 injections once every 12 weeks.

Warm Wishes

Marie

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[Guest guest]

Hi Sheila

He said the TSH was I think 0.24? and the T4 23, does that sound ok? He didn't test for T3 and said something like it's only important if there was toxic something or other. I started the treatment on 13th but I can't understand why I felt really well and now don't. I did mention Armour as the pharmacist at the practice mentioned that one of the other doctors had written a letter asking them to get some for a patient. My doctor said he wouldn't want to try that but have been happy to consider adding some T3 but that as I am 'complicated patient' ie diabetic with high blood pressure too he wouldn't want to play around.

Re: Been to the doctor today

Hi

Did you get the results of your thyroid function tests. Even though all your other tests are fine, it could very well be that you are either (and this is very likely) not on enough levothyroxine to get rid of all your symptoms or you are not converting the inactive T4 into the actiive T3. If you are not getting enough T3 into all your cells, you can get some quite severe pains in your muscles and joints in almost any part of your body. In my own case, it was in my lower back, just shifted a little over to one side, my shoulder and under both my heels. Once I started taking Armour, all the pains went. If your local laboratory refuses to test your Free T3, you should get this done through NPTech Services.

However, having said this, the majority of people taking levothyroxione have to wait several months for the thyroxine to get working properly and you are still very early into treatment. What dose are you taking now.

luv - Sheila

Now I am confused. After a couple of months on Levothroxine and feeling really well, I mean new woman well I went back as my arms were twinging. In that period of feeling really well I was able to reduce my insulin, my blood sugars were great and I was awake and the brain working great. I went back about 3 weeks ago as the pains seemed worse in my arms.He did loads of blood tests including ferritin, B12, T4, TSH and blood pressure, and cholestoral. Everything was fine apart from the cholestoral which was 5.5. In fact the HB1C for the blood sugar was the best it's been for about 5 years, only half a point above normal! So if everything is normal why are my arms really hurting and why am i suddently really tired again?? My gp is wondering if it's the diabetes but it was brilliantly controlled when I felt well and now I don't it's shot back up again. I'm so confused. He's playing around with one of my meds but thinks it's unlikely to be that. I'm wondering if it migh t be fybromialgia, I hope not!

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[Guest guest]

Hi Alison

Has s/he tested you agiain or just relying on your symptoms? I went up to 125mcgs and he thinks that is the correct dose. I was wondering about T3 I think I might ask for a referral to an endo on the list here.

Re: Been to the doctor today

Hi ,

I was in a similar position. I had a really good few weeks were i

felt "normal" again. Then the symptoms started to come back. The doc

has increased my dose of thyroxine and will see what happens next.

But i think i am one of those people who does not convert to T3 very

well. Maybe the case with you too?

regards

Alison

>

> Now?I am confused. After a couple of months on Levothroxine and

feeling really well, I mean new woman well I went back as my arms

were twinging. In that period of feeling really well I was able to

reduce my insulin, my blood sugars were great and I was awake and the

brain working great. I went back about 3 weeks ago as the pains

seemed worse in my arms.He did loads of blood tests including

ferritin, B12, T4, TSH and blood pressure, and cholestoral.

Everything was fine apart from the cholestoral which was 5.5. In fact

the HB1C for the blood sugar was the best it's been for about 5

years, only half a point above normal! So if everything is normal why

are my arms really hurting and why am i suddently really tired

again?? My gp is wondering if it's the diabetes but it was

brilliantly controlled when I felt well and now I don't it's shot

back up again. I'm so confused. He's playing around with one of my

meds but thinks it's unlikely to be that. I'm wondering if it might

be fybromialgia, I hope not!

>

>

>

>

>

__________________________________________________________

__

> AOL's new homepage has launched. Take a tour at

http://info.aol.co.uk/homepage/ now.

>

AOL's new homepage has launched. Take a tour now.

[Guest guest]

Your doctor sounds as if he doesn't want to do anything, probably because he doesn't know sufficient about 'anything' Would it be possible to see the other doctor in the practice who does appear to know a little more - and he prescribes Armour?

Luv - Sheila

Hi Sheila

He said the TSH was I think 0.24? and the T4 23, does that sound ok? He didn't test for T3 and said something like it's only important if there was toxic something or other. I started the treatment on 13th but I can't understand why I felt really well and now don't. I did mention Armour as the pharmacist at the practice mentioned that one of the other doctors had written a letter asking them to get some for a patient. My doctor said he wouldn't want to try that but have been happy to consider adding some T3 but that as I am 'complicated patient' ie diabetic with high blood pressure too he wouldn't want to play around. Re: Been to the doctor today

Hi

Did you get the results of your thyroid function tests. Even though all your other tests are fine, it could very well be that you are either (and this is very likely) not on enough levothyroxine to get rid of all your symptoms or you are not converting the inactive T4 into the actiive T3. If you are not getting enough T3 into all your cells, you can get some quite severe pains in your muscles and joints in almost any part of your body. In my own case, it was in my lower back, just shifted a little over to one side, my shoulder and under both my heels. Once I started taking Armour, all the pains went. If your local laboratory refuses to test your Free T3, you should get this done through NPTech Services.

However, having said this, the majority of people taking levothyroxione have to wait several months for the thyroxine to get working properly and you are still very early into treatment. What dose are you taking now.

luv - Sheila

Now I am confused. After a couple of months on Levothroxine and feeling really well, I mean new woman well I went back as my arms were twinging. In that period of feeling really well I was able to reduce my insulin, my blood sugars were great and I was awake and the brain working great. I went back about 3 weeks ago as the pains seemed worse in my arms.He did loads of blood tests including ferritin, B12, T4, TSH and blood pressure, and cholestoral. Everything was fine apart from the cholestoral which was 5.5. In fact the HB1C for the blood sugar was the best it's been for about 5 years, only half a point above normal! So if everything is normal why are my arms really hurting and why am i suddently really tired again?? My gp is wondering if it's the diabetes but it was brilliantly controlled when I felt well and now I don't it's shot back up again. I'm so confused. He's playing around with one of my meds but thinks it's unlikely to be that. I'm wondering if it migh t be fybr omialgia, I hope not!

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[Guest guest]

Hi

I was tested again. And she said that it was " normal " but let me try

an increase anyway. I don't think it will work and am on the verge of

trying Armour. I have started increasing in weight again and things

are getting worse. I havn't got time to waste trying another 25mcgs

for 2 months!.

Ali

X

> >

> > Now?I am confused. After a couple of months on Levothroxine and

> feeling really well, I mean new woman well I went back as my arms

> were twinging. In that period of feeling really well I was able to

> reduce my insulin, my blood sugars were great and I was awake and

the

> brain working great. I went back about 3 weeks ago as the pains

> seemed worse in my arms.He did loads of blood tests including

> ferritin, B12, T4, TSH and blood pressure, and cholestoral.

> Everything was fine apart from the cholestoral which was 5.5. In

fact

> the HB1C for the blood sugar was the best it's been for about 5

> years, only half a point above normal! So if everything is normal

why

> are my arms really hurting and why am i suddently really tired

> again?? My gp is wondering if it's the diabetes but it was

> brilliantly controlled when I felt well and now I don't it's shot

> back up again. I'm so confused. He's playing around with one of my

> meds but thinks it's unlikely to be that. I'm wondering if it might

> be fybromialgia, I hope not!

> >

> >

> >

> >

> >

> __________________________________________________________

> __

> > AOL's new homepage has launched. Take a tour at

> http://info.aol.co.uk/homepage/ now.

> >

>

>

>

>

>

>

______________________________________________________________________

__

> AOL's new homepage has launched. Take a tour at

http://info.aol.co.uk/homepage/ now.

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