Re: Re: Anyone have any experience of Congenital Hypothyriodism?

[Guest guest]

Hi EmmaI am sure someone who knows will answer your questions. Hope you find the information you need and some new friends as well. I am a hypo patient and I know only to well the cold hands and feet and constipation amongst many other symptoms. I am sure you will learn loads on here and help you son. Carol X Re: Anyone have any experience of Congenital Hypothyriodism?

Thanx for the welcome, my name is Emma, should have thought to

introduce myself properly, lol

Thankyou so much for the links, there is alot of info there, and they

have answered some of the queries i had,

My son is on 50mcg thyroxine daily and has to have blood tests every 3

months, they also take all his measurements (height,weight, head

circumference) and they assess his development, so far he has done fine

with all of those things, altho he does suffer constipation when he is

due for a dose increase, and has problems regulating his body temp, his

hands and feet are always cold.

the silly questions i have relate to his later life, things such as it

effecting his choice of career, travel (does he/we have to delare the

medication)

also altho i have been told that it was just 'one of those things' i

also wondered if it may have been something to do with a test i had

whilst pregnant, i was admitted to hospital with breathing difficulties

when i was 29weeks and whilst being tested i was given a radio active

substance (in a low dose) during a chest xray, I have since read that

certain radiation can destroy the thyroid gland in an unborn child,

sorry for the essay, i seem to have rambled a bit, anyway thanks in

advance

Emma

Never miss a thing. Make your homepage.

[Guest guest]

You do have to declare this for travel insurance and probably for all insurance purposes where they ask for health declarations. You are not penalised but everything health wise must be declared, otherwise if you need to claim about anything which may be completely irrelevant to a thyroid condition but have not declared it, then they will find that as an excuse not to pay out.

Lilian

neither should it affect travel. The person I know flies on a regular basis to America. As far as I am aware, anybody using thyroxine does not have to declare this.

[Guest guest]

Hi Lilian/ Sheila,

I agree. I have

declared it to my insurers. After all what if I lose my meds on holiday?

-----

You do have to declare this for travel insurance and probably for

all insurance purposes where they ask for health declarations. You

are not penalised but everything health wise must be declared, otherwise if you

need to claim about anything which may be completely irrelevant to a thyroid

condition but have not declared it, then they will find that as an excuse not

to pay out.

Lilian

neither should it affect travel. The person I

know flies on a regular basis to America. As far as I am aware, anybody

using thyroxine does not have to declare this.

[Guest guest]

That would be the least of your problems. What if, for example, you caught a stomach bug and had to be hospitalised, or tripped and broke something.

I would say that of all things it would be the least likely to be discovered but is it worth taking the risk of not disclosing it, especially as the insurance company would not penalise you in any way when you do.

Lilian

I agree. I have declared it to my insurers. After all what if I lose my meds on holiday?