more info

[Guest guest]

" THE NEW ARTHRITIS BREAKTHROUGH, " by Henry Scammell

rheumatic more info

Thanks again to everyone for all the help. Now,it sounds as if i oughta get

the arthritis book y'all are talking about. Is that available on the website or

should i just go to Amazon? I think the name was " the arthritis breakthrough " ?

who is the author?

Geoff, you're so right, i've spent a lot more time wasting my time. Its just

despair i suppose. I've had to do this so many times already, i'm just tired of

fighting.

Also, someone mentioned theres a list of willing drs.......where? i will check

web site again

I am in south central Ohio, logan county. The nearest metropolitan city would

be the capital, Columbus. About 60 mi south and east of me, i think. Is there

anyone in the group from Oh.?

Since the net came into being, the worlds gotten a lot smaller, happy to be

here, hopefully i can get to know y'all better.

thanx again, cherie

[Guest guest]

Dear Cherie: Here's a little more info: " Debb " is from Ohio. Her address is

debbullwinkle@.... She'll be lots of help to you. And there's another

person, " " whose address is muggypc@.... She also knows lots and lots

and I'm sure will know the name of a doctor.

Ellen McCool

rheumatic more info

Thanks again to everyone for all the help. Now,it sounds as if i oughta get

the arthritis book y'all are talking about. Is that available on the website or

should i just go to Amazon? I think the name was " the arthritis breakthrough " ?

who is the author?

Geoff, you're so right, i've spent a lot more time wasting my time. Its just

despair i suppose. I've had to do this so many times already, i'm just tired of

fighting.

Also, someone mentioned theres a list of willing drs.......where? i will

check web site again

I am in south central Ohio, logan county. The nearest metropolitan city

would be the capital, Columbus. About 60 mi south and east of me, i think. Is

there anyone in the group from Oh.?

Since the net came into being, the worlds gotten a lot smaller, happy to

be here, hopefully i can get to know y'all better.

thanx again, cherie

[Guest guest]

Hi Cherie! Geoff here.

You wrote:

" I've had to do this so many times already, i'm just tired of fighting. "

I understand that, I imagine every person on this list does. Sunday I sat

in a room with a bunch of white haired people. There was a young guy

standing in front of us. He ran down this list of people renowned for

persevering under the most horrendous of circumstances; the list was long

and none of these people, despite their perseverance, lived to see the

fulfillment of the promises that had been made to them and their heirs.

Then he posed a challenge to each of us: " Name the person you know who has

persevered the most and describe the circumstances of that perseverance. "

It was interesting not because of the acts, but because of the inspiration

each act gave.

There were many stories, I chose one about my father that our nation

honored. He was with the Marines in the Chosin Reservoir of Korea. General

MacArthur had forbidden winter gear to these men because he said they would

be home before Christmas. It was more than 50° F below zero. The Marines

were encircled when the Chinese came into the war and fought their way out

to an evacuation area some 300 KM away. Dad's company was the last one out.

All the other companies got rotated to different positions enroute, but not

Dad's. In this action, the last position was the most critical. Dad was

the second-to-last man out of Chosin. The last man out was a wounded

Marine. He was the last man out because my Dad carried him on his back.

He carried him 300 KM from the Chosin reservoir in -50° weather with his

feet literally frozen, to the evacuation point. Days and days of carrying

this wounded Marine on his back, feet frozen, enemy soldiers to shoot no

matter what direction they turned until they got to the hospital ship. But

safety was illusory, the Navy surgeons decided they would do a mass

amputation of the feet of every Marine -- every one. Chesty Puller

intervened and made the surgeons check each man for gangrene instead and

Dad's feet were saved, although they went from being " A " wide to " EEE " wide

and have been numb ever since. Our nation awarded him a Silver Star for

gallantry, later followed by two Presidential Unit Citations, again for

valor, for more actions later in the war. None of these were " given away "

in Korea anymore than they were in WWII, that didn't start until Viet Nam

had become a political albatross.

We all have our crosses, my Dad made this fellow Marine his cross to carry.

His story of perseverance is an inspiration to me. I never have, and

hopefully never will, experience that kind of overwhelming fatigue and those

hostile conditions, but Dad had help.

The will to survive and persevere under adversity need only one thing to

nurture them... hope. Hope reigns eternal as that which gives without end,

if not hope for yourself, hope for your family, hope for your loved ones,

your friends and your neighbors. We all get tired of fighting, but that can

be rectified with rest and recreation. You must recognize when hope wanes

and learn from where it originates and how it can be eternally with you no

matter how bad things are. If you begin to lose hope, you must act

immediately to renew it. Yes, fatigue is tough, but when people lose hope

they die.

There is life with arthritis, and after it, just like there is life after

the loss of a loved one, of a limb, or a breast. Hope looks beyond the here

and now to what lies ahead.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing damage; 100% volunteer staffed.

[Guest guest]

Geoff, that's an inspiring story for anyone, but especially for those who are

dealing with varying degrees of pain and illness. Thank you for putting it

together so well and for sharing it.

Ellen

rheumatic Re: more info

Hi Cherie! Geoff here.

You wrote:

" I've had to do this so many times already, i'm just tired of fighting. "

I understand that, I imagine every person on this list does. Sunday I sat

in a room with a bunch of white haired people. There was a young guy

standing in front of us. He ran down this list of people renowned for

persevering under the most horrendous of circumstances; the list was long

and none of these people, despite their perseverance, lived to see the

fulfillment of the promises that had been made to them and their heirs.

Then he posed a challenge to each of us: " Name the person you know who has

persevered the most and describe the circumstances of that perseverance. "

It was interesting not because of the acts, but because of the inspiration

each act gave.

There were many stories, I chose one about my father that our nation

honored. He was with the Marines in the Chosin Reservoir of Korea. General

MacArthur had forbidden winter gear to these men because he said they would

be home before Christmas. It was more than 50° F below zero. The Marines

were encircled when the Chinese came into the war and fought their way out

to an evacuation area some 300 KM away. Dad's company was the last one out.

All the other companies got rotated to different positions enroute, but not

Dad's. In this action, the last position was the most critical. Dad was

the second-to-last man out of Chosin. The last man out was a wounded

Marine. He was the last man out because my Dad carried him on his back.

He carried him 300 KM from the Chosin reservoir in -50° weather with his

feet literally frozen, to the evacuation point. Days and days of carrying

this wounded Marine on his back, feet frozen, enemy soldiers to shoot no

matter what direction they turned until they got to the hospital ship. But

safety was illusory, the Navy surgeons decided they would do a mass

amputation of the feet of every Marine -- every one. Chesty Puller

intervened and made the surgeons check each man for gangrene instead and

Dad's feet were saved, although they went from being " A " wide to " EEE " wide

and have been numb ever since. Our nation awarded him a Silver Star for

gallantry, later followed by two Presidential Unit Citations, again for

valor, for more actions later in the war. None of these were " given away "

in Korea anymore than they were in WWII, that didn't start until Viet Nam

had become a political albatross.

We all have our crosses, my Dad made this fellow Marine his cross to carry.

His story of perseverance is an inspiration to me. I never have, and

hopefully never will, experience that kind of overwhelming fatigue and those

hostile conditions, but Dad had help.

The will to survive and persevere under adversity need only one thing to

nurture them... hope. Hope reigns eternal as that which gives without end,

if not hope for yourself, hope for your family, hope for your loved ones,

your friends and your neighbors. We all get tired of fighting, but that can

be rectified with rest and recreation. You must recognize when hope wanes

and learn from where it originates and how it can be eternally with you no

matter how bad things are. If you begin to lose hope, you must act

immediately to renew it. Yes, fatigue is tough, but when people lose hope

they die.

There is life with arthritis, and after it, just like there is life after

the loss of a loved one, of a limb, or a breast. Hope looks beyond the here

and now to what lies ahead.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing damage; 100% volunteer staffed.

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Hi Geoff, Eloquently put. God Bless You and your family.

Carol/Piney

I understand that, I imagine every person on this list does. Sunday I sat

in a room with a bunch of white haired people. There was a young guy

standing in front of us. He ran down this list of people renowned for

persevering under the most horrendous of circumstances; the list was long

and none of these people, despite their perseverance, lived to see the

fulfillment of the promises that had been made to them and their heirs.

Then he posed a challenge to each of us: " Name the person you know who has

persevered the most and describe the circumstances of that perseverance. "

It was interesting not because of the acts, but because of the inspiration

each act gave.

There were many stories, I chose one about my father that our nation

honored. He was with the Marines in the Chosin Reservoir of Korea. General

MacArthur had forbidden winter gear to these men because he said they would

be home before Christmas. It was more than 50° F below zero. The Marines

were encircled when the Chinese came into the war and fought their way out

to an evacuation area some 300 KM away. Dad's company was the last one out.

All the other companies got rotated to different positions enroute, but not

Dad's. In this action, the last position was the most critical. Dad was

the second-to-last man out of Chosin. The last man out was a wounded

Marine. He was the last man out because my Dad carried him on his back.

He carried him 300 KM from the Chosin reservoir in -50° weather with his

feet literally frozen, to the evacuation point. Days and days of carrying

this wounded Marine on his back, feet frozen, enemy soldiers to shoot no

matter what direction they turned until they got to the hospital ship. But

safety was illusory, the Navy surgeons decided they would do a mass

amputation of the feet of every Marine -- every one. Chesty Puller

intervened and made the surgeons check each man for gangrene instead and

Dad's feet were saved, although they went from being " A " wide to " EEE " wide

and have been numb ever since. Our nation awarded him a Silver Star for

gallantry, later followed by two Presidential Unit Citations, again for

valor, for more actions later in the war. None of these were " given away "

in Korea anymore than they were in WWII, that didn't start until Viet Nam

had become a political albatross.

We all have our crosses, my Dad made this fellow Marine his cross to carry.

His story of perseverance is an inspiration to me. I never have, and

hopefully never will, experience that kind of overwhelming fatigue and those

hostile conditions, but Dad had help.

The will to survive and persevere under adversity need only one thing to

nurture them... hope. Hope reigns eternal as that which gives without end,

if not hope for yourself, hope for your family, hope for your loved ones,

your friends and your neighbors. We all get tired of fighting, but that can

be rectified with rest and recreation. You must recognize when hope wanes

and learn from where it originates and how it can be eternally with you no

matter how bad things are. If you begin to lose hope, you must act

immediately to renew it. Yes, fatigue is tough, but when people lose hope

they die.

There is life with arthritis, and after it, just like there is life after

the loss of a loved one, of a limb, or a breast. Hope looks beyond the here

and now to what lies ahead.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing damage; 100% volunteer staffed.

To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Hi Cherie,

> Now,it sounds as if i oughta get the arthritis book y'all are talking

> about. Is that available on the website or should i just go to Amazon?

> I think the name was " the arthritis breakthrough " ? who is the author?

" The New Arthritis Breakthrough " by Henry Scammell. We have a link on

rheumatic.org to buy it off the web and Amazon has it too. Also in most

bookshops from what I hear.

>

> Also, someone mentioned theres a list of willing drs.......where? i

> will check web site again

> I am in south central Ohio, logan county. The nearest metropolitan

> city would be the capital, Columbus. About 60 mi south and east of me,

> i think. Is there anyone in the group from Oh.?

Here is a list of the Ohio doctors we have listed.

Chris.

> L. Bowman, D.O. (GP – 1977)

> 227 E. Loudon

> Loudonville, Ohio 44842

> P: 419- 994-5581

>

> Dr. Castlebury (oral and IV)

> Castlebury Clinic

> 2132 West 25th St. No listing in AMA or phone directories

> Cleveland Ohio. Second office in Richmond Heights, OH

> P: 216-771-5855, 440-460-1880

>

> D. DeVillers, D.O.

> 299 Main St. West

> Ashville, OH 43103-1532

> P: 740-983-2594

>

> D. D.O. (IM – 1955) chelation – IV clindamycin

> 10401 Sawmill Rd. – suite 10

> Columbus, OH 43065

> P: 614-761-0555

>

> , M.D. –

> 19654 North Cross Trail or is it – 2026 Murray Hill Road

> Strongsville, OH 44136 Cleveland, OH

> Phone ????

>

> , M.D. (RHU)

> 3533 Southern Blvd. – Suite 3750

> Kettering, OH 45429

> P: 937-296-0015

>

> Dr. Marilyn Agee

> Family Physicians

> 5300 Harroun Rd. – Suite 201

> Sylvania, OH 43560

> P: 419-824-1100

>

> B. , M.D. (RHU?)

> Lakeland Medical Building – Suite 306

> 25701 Lakeland Blvd.

> Euclid, OH 44132

> P: 216-261-0113

>

> , DO – Recovered from RA after using AP on herself.

> 6688 Ridge Rd. – Suite 1405 prescribes oral, and arrange for

> IVs if pushed

> Parma, OH 44129

> P: 440-843-3694

>

> A. Scheidler, D.O.

> 11043 Main St.

> Sharonville, OH 45241 - suburb of Cincinnati

> P: 513-563-6222

[Guest guest]

Colleen,

Given all you've said thusfar, I can understand how it would be

difficult for your physicians to see a clearcut diagnosis.

I'm not suggesting that your current rheumatologist is off base by

trying to cure a possibly infectious cause of some of your problems,

but, again, if it is RA, I'm not sure I'd be comfortable recommending

only going with Levaquin.

What was your first rheumatologist's reasoning for not using a DMARD

because you had a positive ANA? That one has me wondering.

Did you see 's post and recommendation of her rheumatologist in

NW DC?

I realize that the idea of more time, money, and possible frustration is

not appealing, but running all this by an excellent rheumatologist might

be a good idea. I hope you are keeping copies of your medical record as

it grows.

Please let me know what's happening.

>

> 4/30 my RA was 16, normal was less than 14. 5/28 the factor was 28

> normal being less than 20 and in August it was 22 with the normal

> being less than 14. MRI's taken 6/10, Rt hand- prominent arthritis in

> the first carometacarpal which is manifested by narrowing of joint

> space, cortical bone erosions. Swelling periarticular soft tissue in

> the pip joints. Lt. hand Cortical bone erosion are noted in the

> trapezium and base of the first metacarpal bone. But x-rays taken

> 6/24 they saw " no erosion were identified,....suggestive of

> superimposed degenerative change, possible due to remote trauma in

> the past " (both hands??) Don't remember any. There " findings can be

> seen with primary osteoarthritis. " The swelling is definitely worse

> than when I had these tests done and the use of my fingers and my

> hands are more limited.

> The 1st Rheumy said because my anti-nuclear AB titer was positive,

> 1:320 normal less than 1:40 he would not use any DMARD's. This

> rheumy's practitioner told me the anti-nuclear titer was normal when

> they ran it, but she wouldn't address the " arthritis diagnosis " until

> we corrected any other problems she found with about $2000 worth of

> blood work.

> , I appreciate your concern and I think this is the info that you

> asked for. As I write these figures, I feel it doesn't reflect how

> bad I feel. Does anyone have a rheumtologist in the Northern VA area?

> I have read that some of you have gone through many doctors until you

> found the right one. I have had 4 children, gone through many

> illness's and diseases with the kids and myself and never found

> myself in a situation I feel I'm in now. It's hard to keep going to

> different doctors when I have spent,out of pocket, thousands of

> dollars this year over and above my insurance that I carry on my own.

> Well, another book, guess I am very frustrated! Thanks for listening.

> Colleen

[Guest guest]

http://autoimmune.pathology.jhmi.edu/diseases.cfm?

systemID=3 & DiseaseID=22

http://www.thyroidmanager.org/Chapter14/Ch-14-2.htm

this site has to do with pregnancy/iodine and thyroid

http://www.postgradmed.com/issues/2000/01_00/fatourechi.htm

[Guest guest]

Hi tina, thanks for those links. There was some interesting information there.

Here's one bit I thought was important. Autoimmune diseases as a group are very

much a HUGE problem for women as the following excerpt from the first link

reveals. Sheila

Autoimmune diseases are a major threat to the health of all Americans. At least

ten million Americans suffer from the more than eighty illnesses caused by

autoimmunity. They are a special threat to women; about 75% of the patients are

women. Autoimmune diseases are among the ten leading causes of death among women

in all age groups up to 65. The bar graph shows the prevalence of the top 10

autoimmune diseases in the United States in 1996 (from son DL et al. Clin

Immunol Immunopathol, 84: 223-243, 1997).

tina83862 <tina8386@...> wrote:

http://autoimmune.pathology.jhmi.edu/diseases.cfm?

systemID=3 & DiseaseID=22

http://www.thyroidmanager.org/Chapter14/Ch-14-2.htm

this site has to do with pregnancy/iodine and thyroid

http://www.postgradmed.com/issues/2000/01_00/fatourechi.htm

[Guest guest]

> Oh here's a thought though -- maybe you can get a dr to prescribe a

> calcium

> supplement?

For myself, I buy cal/mag at my local health food store for $2 a

bottle. If you look around, you can probably find something really

inexpensive.

> The laundry soap alternatives sound financially out of reach for us

> at this time.

I use Arm & Hammer FabriCare, which costs $10 for a huge box.

>>I would love to find out more

> about " probiotics and treatments for bacteria and yeast " as it sounds

> like this could be an issue for us.

My page

http://www.danasview.net/yeast.htm

> Gee, didn't know soy could do that. What else is out there?

Soy is chemically similar to casein.

> Pediasure ingredients:

Try sprinkling a bit of Peptizyde enzyme into this. It will handle

soy and casein and other things. If you contact HNI and explain your

financial situation, you will probably receive a free bottle. Just

sprinkle maybe 1/4 capsule, that should make the bottle last a long time.

http://www.houstonni.com/

>>But, in exchange for his

> limited diet, how else can I get nutrition in him? What would ya'll

> do in my shoes?

Try enzymes

> How do you find out what's in a med?

Ask a pharmacist to show you the literature.

> Remind me please, why do I not want him on the Miralax?

My page

http://www.danasview.net/miralax.htm

> Is it hard or expensive to implement? Any pointer would help. I also

> have to eliminate nuts and due to sensitivity issues, most moist,

> smooth, etc foods. We need crunchy and dry.

Here is my page of gfcf easy lunch/snack ideas. You can consider

items here

http://www.danasview.net/lunch.htm

Dana

[Guest guest]

I chelated my kids with ALA, which I bought as 200 mg capsules [i

chelated four kids, and divided the capsules] and a bottle of 60

capsules cost me about $12.

Dana

**

How do I find more info on ALA (I assume it's what's used to chelate)

and does it come in a form I can get into my son, since he doesn't

yet take pills unless they can be crushed and mixed in his drink.

Also, can this be found in a local store/health food store, or do I

have to order it. Depending on what else he may need to have in

addition, I'm sure I can find a way to get $12.00. How much did you

give them? Like 1/2 a capsule? Lee's 5yo and about 54 pounds.

**

For myself, I buy cal/mag at my local health food store for $2 a

bottle. If you look around, you can probably find something really

inexpensive.

**

I pretty much have the same questions for this as the ALA...what form

does it come in and dosage info. Also, for both of these things, does

it come in brands that are less expensive (a *generic* if you will)

and if so, are less expensive versions equally as effective?

**

I use Arm & Hammer FabriCare, which costs $10 for a huge box.

**

I've never used powder laundry soap. I remember when I was a child,

my daddy retired young due to a rare heart disease. We had financial

struggles for a long time, and I remember the subject coming up about

Mama not going to the cheaper powder then. I was told that they use

fillers in most powder detergents and alot of times it was peanut

shells. This caused Daddy to itch, and he couldn't tolerate it. So,

Mama always used liquid, and I have too as an adult, especially since

I've found out that Lee is allergic to peanuts/nuts. Does anyone know

anything about this?

**

>>I would love to find out more

> about " probiotics and treatments for bacteria and yeast " as it

sounds

> like this could be an issue for us.

My page

http://www.danasview.net/yeast.htm

**

From quickly glancing through this, it sounds like I do really need

to do my homework here. This definitely seems like something I need

to do, in addition to everything else. When Lee's megacolon would

flare up, he didn't just have diaper rashes from being soiled, he

would actually become red as a coke can with blister. Come to find

out, it was yeast. Guess this explains some things now. I'm sure I'll

have more questions later, since I'm confused already.

General question: Can I implement all of these things together after

doing my homework and figuring out what I need to do? Such as,

enzymes, probiotics, chelation, etc.? I've wasted so much of his life

already that I hate to do one thing at a time if I'm prepared to do

more. Then again, I may be misunderstanding things and these things

may actually overlap or be one and the same. I know I have a LOOONG

way to go before I actually understand this, but I'm ready to see

results, YESTERDAY!

**

> Gee, didn't know soy could do that. What else is out there?

Soy is chemically similar to casein.

> Pediasure ingredients:

Try sprinkling a bit of Peptizyde enzyme into this. It will handle

soy and casein and other things. If you contact HNI and explain your

financial situation, you will probably receive a free bottle. Just

sprinkle maybe 1/4 capsule, that should make the bottle last a long

time.

http://www.houstonni.com/

**

Is there anything else out there remotely affordable other than rice

milk and similar substitutes? Are you saying that Peptizyde

will " fix " his soy milk and Pediasure making them acceptable and

drinkable for him? I've taken a moment to glance at the site, and it

too is alot to figure out. Are you very familiar with the differences

yet? Can you suggest one that might be good, considering his

conditions?

***(No, everyone. I am not a bad mother to the point that I would

take someone's advice I've never met over the internet and " medicate "

or otherwise treat him. I do have alot of info coming my way very

fast, though, and it's alot to sort out. So, if this info could be

narrowed down so that I can research only a small portion, then it

wouldn't be so overwhelming. Yes, I WILL do my own reading and make

informed decisions, not just take someone's word for it. I've done

that long enough using medical doctors. Just thought I'd ease your

mind if you're wondering. I know by now my eyebrows would be raised

if I thought someone was taking a stranger's advice about treating

their child's health conditions.)***

**

> Is it hard or expensive to implement? Any pointer would help. I

also

> have to eliminate nuts and due to sensitivity issues, most moist,

> smooth, etc foods. We need crunchy and dry.

Here is my page of gfcf easy lunch/snack ideas. You can consider

items here

http://www.danasview.net/lunch.htm

Dana

**

Your webpage is choc-full of great ideas. My son actually eats a

couple of them, too. Most things on there he doesn't eat, or if he

does, it's not very often. Like apples and bananas, he may eat 1 each

a month. Pineapple is completely out as well as peanut butter,

marshmallows, bologna, vienna sausage, and more. My son's idea of a

taco is just the shell, so we don't have them since he can't have

corn. By the way, I thought stuff like bologna & vienna were full of

things not good for you. I also heard recently (and don't get me to

lying as to where, but I remember thinking it was a reliable source)

that apples and bananas have something about them that made them not

a good choice (and I don't remember if this was just for people on a

certain diet or what, I just remember thinking that per that info, he

shouldn't have them although I've not checked out the validity of it

yet since he doesn't really eat them much).

**

Thanks, Dana, for all your help and info. As I said, I'm sure I will

have more questions as I learn. I'm glad I found you and everyone

else on this site.

Sheila

[Guest guest]

> How do I find more info on ALA (I assume it's what's used to chelate)

I have some info here

http://www.danasview.net/chelate.htm

> and does it come in a form I can get into my son, since he doesn't

> yet take pills unless they can be crushed and mixed in his drink.

I buy mine as capsules, which I open and mix into peanut butter or

applesauce.

> Also, can this be found in a local store/health food store, or do I

> have to order it.

I buy mine at my local health food store.

Depending on what else he may need to have in

> addition, I'm sure I can find a way to get $12.00. How much did you

> give them? Like 1/2 a capsule? Lee's 5yo and about 54 pounds.

I started with 25 mg per dose, and slowly worked up to 100 mg per dose

over a period of about 2 years. When I started, my son was age 5 and

about 50 pounds.

> I pretty much have the same questions for this as the ALA...what form

> does it come in and dosage info. Also, for both of these things, does

> it come in brands that are less expensive (a *generic* if you will)

> and if so, are less expensive versions equally as effective?

I use Natural Factors ALA. I use Henry's brand cal/mag [which is a

store brand]. The cheap cal/mag is a caplet. The cal/mag I use for

my kids is also Henry's brand, but a capsule with fewer ingredients,

and slightly more money.

> Mama not going to the cheaper powder then. I was told that they use

> fillers in most powder detergents and alot of times it was peanut

> shells. This caused Daddy to itch, and he couldn't tolerate it. So,

> Mama always used liquid, and I have too as an adult, especially since

> I've found out that Lee is allergic to peanuts/nuts. Does anyone know

> anything about this?

You can contact different manufacturers and ask. I believe there are

fillers in powder OR liquid, altho they are probably different fillers.

I have never used liquid laundry detergent, because it always leaves

streaks on my clothes.

> From quickly glancing through this, it sounds like I do really need

> to do my homework here. This definitely seems like something I need

> to do, in addition to everything else. When Lee's megacolon would

> flare up, he didn't just have diaper rashes from being soiled, he

> would actually become red as a coke can with blister. Come to find

> out, it was yeast. Guess this explains some things now. I'm sure I'll

> have more questions later, since I'm confused already.

If he gets this rash on his bottom again, try putting Lotrimin cream

on it [the stuff for jock itch and vaginal yeast issues]. If it

works, then it was a yeast rash.

> General question: Can I implement all of these things together after

> doing my homework and figuring out what I need to do? Such as,

> enzymes, probiotics, chelation, etc.?

Start one thing at a time, so you know what works.

I've wasted so much of his life

> already that I hate to do one thing at a time if I'm prepared to do

> more.

You need to have a yeast protocol that you KNOW works, because

chelation will tend to aggravate yeast. I fought yeast until about

round 50.

> Is there anything else out there remotely affordable other than rice

> milk and similar substitutes?

Poly-vi-sol drops into whatever you give him to drink?

Are you saying that Peptizyde

> will " fix " his soy milk and Pediasure making them acceptable and

> drinkable for him?

Peptizyde will handle milk, soy, and wheat for *most* kids, altho not all.

I've taken a moment to glance at the site, and it

> too is alot to figure out. Are you very familiar with the differences

> yet? Can you suggest one that might be good, considering his

> conditions?

Peptizyde -- for milk, wheat/gluten, soy

AFP Peptizyde -- same as above, for kids who don't tolerate

papaya/pineapple

Zyme Prime -- for most foods, small amount of activity for milk,

wheat/gluten, soy, fruits

No-Fenol -- for fruits and other high phenol foods

> ***(No, everyone. I am not a bad mother to the point that I would

> take someone's advice I've never met over the internet and " medicate "

> or otherwise treat him.

My son is recovered because of information I learned from other

parents, mostly over the internet. Always do your own research and

make your own decisions, but don't discount any ideas you believe are

worth considering, just because you learned them on the internet.

>>By the way, I thought stuff like bologna & vienna were full of

> things not good for you.

You can purchase nitrate-free bologna.

> that apples and bananas have something about them that made them not

> a good choice (and I don't remember if this was just for people on a

> certain diet or what, I just remember thinking that per that info, he

> shouldn't have them although I've not checked out the validity of it

> yet since he doesn't really eat them much).

They are high phenol and feed yeast. So it depends if those are

issues for your child, and if he responds to No-Fenol enzyme.

Good luck.

Dana

[Guest guest]

http://easternhealingarts.com/Articles/ConquerChron.html