Feeling very low

[Guest guest]

Hi Rosie,

'Exhausting' is potentially mitochondrial in origin.

The mitochondria (millions/cell) in the cell act as the " power

station " for the entire metabolic system.

They produce the 'energetic' molecule ATP (adenosine triphosphate)

using the Krebs Cycle (otherwise known as the citric acid cycle).

Any failings in the Krebs Cycle and you start feeling exhausted.

My DW feels exhausted after visiting our daughter/g/children, and

needs a day to recover. It sounds like Sir Winston Churchill was also

suffering the same problem with his 'Black Dog', as he called it, and

working from the confines of his bed.

These days, he'd be taking CoQ10 at a level depending on his age and

the type of mitochondrial problem (thyroid disease is, essentially,

mitochondrial ) that he was suffering from.

That might be anything in the range 30-300mg per day.

At 35mg/day of cortisol that might be a tad too high, nearer to 20-

25mg/day is perhaps appropriate (weight dependent), but as you say,

do you need a 'stress dose'? My DW certainly uses stress dosing to

accomodate the ups and downs.

Do you also use a regular zinc supplement whilst using cortisol

(depletes zinc)? It should have a small amount of copper in it, if

you take large amounts or for a long time....the odd tablet once or

twice a week could be OK without the copper. You get some (Cu) from

copper pipes in domestic water plumbing and from food sources.

Liver, in particular, is good for iron, copper and zinc plus other

trace elements, and placental re-use by some mammals may be a means

to conserve trace elements ~ did you see the Hugh Fernley-

Wittingstall programme ? )

I hope that pulls some ideas together.

best wishes

Bob

>

> Last week I took the kids & my sister away for a bit of a holiday

at

> Center Parcs. It was utterly exhausting. I don't know if I would

> have gone had I realised just how much of an activity holiday it

> would be. All that walking, for instance, made my C-section scar

(s)

> ache so much.

>

> When I got back on Friday night I just about collapsed. I've been

> asleep most of the time since, and am still so exhausted I could

cry.

>

> The 5-yo is at school all day so is no problem, apart from the

strain

> of getting her there on time. The 2-yo goes to a childminder

Mondays

> & Tuesdays, ie today & yesterday, which gave me a couple more days

to

> recover. But tomorrow's Wednesday, I have her all day tomorrow and

> for the rest of the week, and I am absolutely dreading it. There's

> no strength left in me to look after her properly.

>

> Can anyone tell me what's going on, and help me understand it? Is

> this adrenal fatigue? Will stress dosing HC help (currently on

> 35mg/day)? Or is this common-or-garden insufficient thyroid and

> unlikely to shift until I get my thyroid meds right, somewhere in

the

> distant future?

>

> This is also why I haven't been posting - too miserable.

>

> Glad of any insight.

>

> Rosie

>

[Guest guest]

Hi Rosie, you poor thing. It's bad enough having this DD without having to cope with little ones when you are feeling so very low and so very tired. Have you actulaly tried stress dosing. Some people do need to do this, but somebody who knows more about HC can tlak to you about this.

Do you suffer with low ferritin? Do you suffer with Candida Albicans? Do you have low Vitamin B12? You need to find these out.

Can you get a neighbour to take the little one for a few hours todoay or tomorrow to give you a better chance to catch up with your tiredness?

Luv - Sheila

> Last week I took the kids & my sister away for a bit of a holiday at > Center Parcs. It was utterly exhausting. I don't know if I would > have gone had I realised just how much of an activity holiday it > would be. All that walking, for instance, made my C-section scar(s) > ache so much.> > When I got back on Friday night I just about collapsed. I've been > asleep most of the time since, and am still so exhausted I could cry.> > The 5-yo is at school all day so is no problem, apart from the strain > of getting her there on time. The 2-yo goes to a childminder Mondays > & Tuesdays, ie today & yesterday, which gave me a couple more days to > recover. But tomorrow's Wednesday, I have her all day tomorrow and > for the rest of the week, and I am absolutely dreading it. There's > no strength left in me to look after her properly.> > Can anyone tell me what's going on, and help me understand it? Is > this adrenal fatigue? Will stress dosing HC help (currently on > 35mg/day)? Or is this common-or-garden insufficient thyroid and > unlikely to shift until I get my thyroid meds right, somewhere in the > distant future?> > This is also why I haven't been posting - too miserable.> > Glad of any insight.> > Rosie>

[Guest guest]

Hi Rosie,

Doing too much can cause a reaction like you describe.

What meds are you on and what were last tests- or are you doing your own

thing?

Subject: Feeling very low

But tomorrow's Wednesday, I have her all day tomorrow and

for the rest of the week, and I am absolutely dreading it. There's

no strength left in me to look after her properly.

Can anyone tell me what's going on, and help me understand it? Is

this adrenal fatigue? Will stress dosing HC help (currently on

35mg/day)? Or is this common-or-garden insufficient thyroid and

unlikely to shift until I get my thyroid meds right, somewhere in the

distant future?

This is also why I haven't been posting - too miserable.

Glad of any insight.

Rosie

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing medication.

[Guest guest]

>

> Last week I took the kids & my sister away for a bit of a holiday at

Center Parcs. >

> When I got back on Friday night I just about collapsed. I've been

> asleep most of the time since, and am still so exhausted I could cry.

>

> Can anyone tell me what's going on, and help me understand it? Is

> this adrenal fatigue?

It does sound like adrenal fatigue Rosie. I've had times when I've

pushed myself too far, actually coped with the event but crashed with

exhaustion afterwards and like you just needed to sleep.

I've learnt to pace myself a bit more now and stop before it gets to

crisis point but with grown up kids I have the luxury to be able to do

that. I do feel for you having little ones when you feel so exausted.

Hope you feel better soon.

Love x

[Guest guest]

>

> Hi Rosie, you poor thing. It's bad enough having this DD without

> having to cope with little ones when you are feeling so very low

> and so very tired.

All sympathy gratefully received :-) DD - is that damn disease?

> Do you suffer with low ferritin? Do you suffer with Candida

> Albicans? Do you have low Vitamin B12?

Yes to all three. I have been supplementing iron recently but dunno

if I'm taking enough. Candida I've had all my life, pretty much, but

was astonished when I did the spit test a couple of weeks ago & it

didn't show up. The water didn't go cloudy or tendrilly - the spit

just sort of floated there for a while then vanished. Could have

knocked me down with a feather.

I was in GNC only yesterday, buying CoQ10; I looked for Vit B12 but

was struggling (they don't sell Solgar any more) and just got too

tired to make any decisions, so left without buying any. Not ideal,

huh?

> Can you get a neighbour to take the little one for a few hours

> todoay or tomorrow to give you a better chance to catch up with

> your tiredness?

How I wish. But I don't think so. My childminder is full & has no

flexibility to take the little one outside her scheduled days. My

other options are roughly zero, besides finding another childminder,

which I could do. The trouble there is - and I know this looks like

I'm making excuses, but it's a genuine concern - the little one is

quite unhappy at the moment. She's unhappy with me, but REALLY

unhappy if I'm not there. I don't feel I can do it to her, just dump

her on someone unknown. Even with my sister last week, she was NOT

HAPPY if I was out of view even for an instant. I think I'm just

going to have to suck it up and survive until she passes through this

phase and gets all independent again. She's usually a very jolly

little thing. It's bad enough handing her over to her regular

childminder, with whom she has a close relationship; I don't think

she's robust enough at the mo to hand her over to someone new.

<sigh> Parenthood would be so much easier if we didn't care so much,

eh?

Rosie

[Guest guest]

> Doing too much can cause a reaction like you describe.

> What meds are you on and what were last tests- or are you doing

> your own thing?

The bummer is that what I did was pathetically little - just way too

much for me. Can you believe that five years ago, pre-pregnancy, I

was down the gym pumping serious iron every day? And now I'm so weak

that I can't even sodding walk.

Anyway. I'm on 35mg/day HC, split 10/10/5/5/5 (I added another 5mg

dose @ 8pm because the 4pm dose wasn't seeing me through to bedtime).

Also 1 grain Armour split 1/2 first thing & 1/2 2pm-ish - have been

on 3/4 grain for several weeks; went up to 1 grain yesterday, on

advice from Dr P.

In the evening, well away from any thyroid meds, I take 120mg CoQ10,

some Vit C (2-3g), and some iron (ferrous fumarate 14mg & a double

dose of Floradix).

My last tests were in November, when I had been on 100ug thyroxine

for ages, but before I had started adrenal support or Armour, so I'm

not sure they're useful. I felt like cr*p then for sure LOL! In

case there's anything useful to be gleaned from them, here they are:

TSH <0.01 (ref 0.3-5.5)

fT4 17.09 (ref 8-22)

fT3 4.55 (ref 2.5-5.3)

9am Cortisol 197 (ref 220-770)

I'm not exactly doing my own thing - I'm doing my current thing under

Dr P's advice. STILL don't feel like I'm getting anywhere though.

I am most grateful for your reply & sympathy :-)

Rosie

[Guest guest]

Is

> > this adrenal fatigue?

>

> It does sound like adrenal fatigue Rosie.

This link has really helped me to start pacing myself Rosie. It's

called the Spoon Theory!! It has also helped me explain how I feel to

my friends and family too.

http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

Let me know what you think.

luv Keri

[Guest guest]

Hi Rosie,

Play the game of peek-a-boo, the baby has to learn that the mother

will come back into view again very quickly once she

has 'disappeared', this takes a while for the child's brain to adopt

the reality.

First they 'notice' that the mother has gone, then they think she

isn't coming back...so has to be re-aasured that mother is coming

back.... somewhere in the age range 1-2yrs, it's idiosyncratic for

each child.

best wishes

Bob

> >

> > Hi Rosie, you poor thing. It's bad enough having this DD without

> > having to cope with little ones when you are feeling so very low

> > and so very tired.

>

>

> All sympathy gratefully received :-) DD - is that damn disease?

>

>

> > Do you suffer with low ferritin? Do you suffer with Candida

> > Albicans? Do you have low Vitamin B12?

>

>

> Yes to all three. I have been supplementing iron recently but

dunno

> if I'm taking enough. Candida I've had all my life, pretty much,

but

> was astonished when I did the spit test a couple of weeks ago & it

> didn't show up. The water didn't go cloudy or tendrilly - the spit

> just sort of floated there for a while then vanished. Could have

> knocked me down with a feather.

>

> I was in GNC only yesterday, buying CoQ10; I looked for Vit B12 but

> was struggling (they don't sell Solgar any more) and just got too

> tired to make any decisions, so left without buying any. Not

ideal,

> huh?

>

>

> > Can you get a neighbour to take the little one for a few hours

> > todoay or tomorrow to give you a better chance to catch up with

> > your tiredness?

>

>

> How I wish. But I don't think so. My childminder is full & has no

> flexibility to take the little one outside her scheduled days. My

> other options are roughly zero, besides finding another

childminder,

> which I could do. The trouble there is - and I know this looks

like

> I'm making excuses, but it's a genuine concern - the little one is

> quite unhappy at the moment. She's unhappy with me, but REALLY

> unhappy if I'm not there. I don't feel I can do it to her, just

dump

> her on someone unknown. Even with my sister last week, she was NOT

> HAPPY if I was out of view even for an instant. I think I'm just

> going to have to suck it up and survive until she passes through

this

> phase and gets all independent again. She's usually a very jolly

> little thing. It's bad enough handing her over to her regular

> childminder, with whom she has a close relationship; I don't think

> she's robust enough at the mo to hand her over to someone new.

> <sigh> Parenthood would be so much easier if we didn't care so

much,

> eh?

>

> Rosie

>

[Guest guest]

I am up early as I am doing 2 more saliva tests for Dr P; candida

and progesterone/oestrogen balance.

I had such a wonderful weekend up in Yorkshire meeting Sheila and

, my consultation with Dr P, the TPA get together lunch at

Alfe's in Keighley, 'interesting' chats in Squirrel's lounge and

some sightseeing, including a service at Bolton Abbey.

Now I am exhausted and feel very cut off. I felt I belonged to the

human race up in Yorkshire.

This week I have to 'up the ante' (a Dr P expression) with the

adrenals, increasing my dynamite adrenal to 3 scoops a day, adding

CoQ10, increasing Vitamin C to 4 g a day and progesterone cream (on

order from the Channel Islands) prior to starting on 1/4 g of armour

next week.

Somehow I have lost the will again. Just needed to share this with

you.

I also know that I am anxious as I will be 50 on the 17th and have

organised a get together on the 19th but wonder if it will be all

too much - know I mustn't project and a lot can happen before

then ....

luv keri

[Guest guest]

Hi Keri

Just a quick email to say it was lovely to meet you last weekend and please be reassured that if you have Dr Peatfield, Shelia and Armour behind you, you cannot fail to improve health-wise.

As they say in the song, 'Things can only get Better', you just have to be patient about things, and let your new regime take it's course.

luv & best wishes

Marie & Geoff Holloway (The Devonians)

[Guest guest]

MAarie,

I just wanted to say how I am so sorry you are suffering and I

remember being a hypo single parent with hyperactive son, nightmare

for trying to keep on top of your health and wellbeing. I was younger

then and had not quite developed the full CFS. But I will be thinking

about you hoping you pick up really quickly. Children are wonderful

but take a great deal of your energy and I know you don't have a lot

in reserve. So sending hugs and hopefully somehow you will get some rest.

Keri, the spoon theory was excellent, thanks for pointing it out :)/

lotsa luv

Dawnx

[Guest guest]

Kay....you cannot get in sooner? Does your doc know how unwell you are? I would

certainly let them know....stay hydrated and praying you have the strength to

make it until June 28th.Maureen

From: Kay Davies <kayf.davies@...>

Subject: feeling very low

achalasia

Date: Wednesday, June 1, 2011, 9:54 AM

 

Hi there.

I don't post about myself often but am really struggling at the moment. The

upper end of my oesophagus is constricting to a point where I struggle to get

any food down. I have an appointment for a dilatation on June 28th to see if

this gives any respite. I am really struggling with overwhelming tiredness and

generally feeling very unwell due to lack of food and am at a point where my

ability to work is being severely compromised. I am self employed and have

worked hard to build up my business and it is soul destroying to be at a point

where I am too unwell to work. I have every hope that I will improve but in the

meantime knowing that the next few weeks will be very hard and my work will

suffer is tough.

thanks for listening. I take one day at a time and usually manage well with this

hateful condition. However it feels like it is getting the better of me at the

moment! Best wishes to everyone. Kay

[Guest guest]

I am so sorry you are having a rough time. My daughter went through about three

weeks of spasms and not being able to eat or drink. We went to acupuncture four

times during that period, also a massage and a chiropractic adjustment. I don't

know if the alternative aproaches helped or just distracted, but as my

grandmother always said, it couldn't hurt!

Sent from my iPhone