Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 What you do have to remember Lizzie is that with not taking any thyroid medication for 3 days before your blood test, your FT4 will also be lower than it would had you taken your medication. I wish you could go on Armour. I am certain that the synthetic T4/T3 combination therapy does not always work for everybody, and there is something missing, such as T2/T1 and, of course, calcitonin - which would be great for your bones. There is evidence to suggest that such products are superior to combined T4/T3 preparations.Shames and Shames report a patient who was treated unsuccessfully with a combination of T4/T3 who experienced a dramatic improvement when switched to Armour. When synthetic T4 and T3 first became available, Arem reports the considerable difficulties he experienced when switching patients from thyroid extracts to the new synthetic preparations. According to Arem "The new treatment was seldom successful" Arem continues "Once switched from these natural T4/T3 tablets, patients complained of sluggishness, decreased memoryo, impaired concentration, and a host of symptoms of ill-being. This was in spite of having reached normal blood levels of thyroid hormone and TSH - ask Dr B (give him a call) and see if he will swap you over to Armour. Tell him you are especially interested because of the pain in your knees and the natural calcitonin that is in Armour. Luv - Sheila > > I saw Dr B this morning and would welcome your thoughts on my results.> this is after 36 hours without meds.> > T4 11.4 range 8 -21.> > T3 6.2 top of range 6> > TSH 0.04> > This is after 3 months T3 20mcg and 3 weeks after a dose increase of> T4 from 100 to 125, had previously been on 100 mcg for 5 weeks and> prior to that 75 mcg.> > My symptoms still remaining are leg cramps and joint stiffness mainly> in my knees.> > Dr B has left me on the same dose as he didnt think I would be too> happy to reduce, I had been hoping for an increase but can see that it> would push me way over with the T3. Because my T3 is so high does it> matter that my T4 is mid range. I know that I will not yet be feeling> the full benefits of my last T4 increase as it is now only 4 weeks> since. I am just hoping and praying that these leg cramps of the last> disappear when this increase kicks in.> > I would really welcome your thoughts. I go back to see him in October> when he will reassess things.> > By the way my Ferritin is now 67 and have got another 3 months supply> of ferrous sulphate from GP although Dr B said I didnt need it.> > Love Lizzie> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 hi Sheila Thanks for your reply but I think I need to give this last dose increase a chance and see if it works. If I dont feel any better in October I will ask Dr B if I can try Armour. I am a little concerned about my T3 result of 6.2 especially as I hadnt taken meds, makes me wonder what on earth it would have been had I taken them. Do you think it is too high? Love Lizzie > What you do have to remember Lizzie is that with not taking any thyroid > medication for 3 days before your blood test, your FT4 will also be > lower than it would had you taken your medication. I wish you could go > on Armour. I am certain that the synthetic T4/T3 combination therapy > does not always work for everybody, and there is something missing, such > as T2/T1 and, of course, calcitonin - which would be great for your > bones. > > ask Dr B (give him a call) and see if he will swap you over to Armour. > Tell him you are especially interested because of the pain in your knees > and the natural calcitonin that is in Armour. > > > > T4 11.4 range 8 -21. > > > > T3 6.2 top of range 6 > > > > TSH 0.04 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 Hi Lizzie, are you stopping the ferrous sulphate completely? I'd have thought that taking one a day as a maintenance dose would be a good idea to stop ferritin falling again? Or at least taking some form of iron to make sure it doesn't slide back down. Ruth X > > By the way my Ferritin is now 67 and have got another 3 months supply > of ferrous sulphate from GP although Dr B said I didnt need it. > > Love Lizzie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 Hi Ruth I think I am going to take the next 3 months supply and then see where it has reached. If it is in the high 80's I will probably just take it in a multi but may ask Gp for regular blood test to check that it isnt plummeting. Love Lizzie > Hi Lizzie, are you stopping the ferrous sulphate completely? I'd have > thought that taking one a day as a maintenance dose would be a good > idea to stop ferritin falling again? Or at least taking some form of > iron to make sure it doesn't slide back down. Ruth X > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2012 Report Share Posted March 13, 2012 Easha, You should be worried...... the doctor and endo seem to be fixated on you being hyper despite the fact that your test results show you as ok....... If you take carbimazole and you don't need to, you will feel very hypo...... it can take a very long time to get your health back... (if ever) these are the results you posted earlier: > Serum free triidothyroine 5.7 pmol/l Range 3.1-6.8 > Serum free t4 15.7 range 12.0-22.0 > Tsh 0.060 range 0.27 - 4.2 Do you have any symptoms of hyperthyroidism? Are you losing weight, or:Palpitations • Heat intolerance • Nervousness • Insomnia • Breathlessness • Increased bowel movements • Light or absent menstrual periods • Fatigue • Weakness • Sleeping difficulty • Itching - overall • Heartbeat sensations • Diarrhoea How many symptoms of hyper do you have? What was the problem which originally sent you to the doctor? x > > > Hi she said that because of my tsh results and symptons she would start me on carbimazole 30mg daily for 4 weeks and then reducing to 20mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2012 Report Share Posted March 14, 2012 Hi me again To just chime in with , I don’t understand why you have been prescribed CBZ if your FTs are normal? TSH suppression is NOT a reliable indicator in hyperthyroidism because of the antibody connection – this isn’t a controversial statement, but a medical FACT. In your shoes I would be seeking an urgent second opinion. My second endo (it’s been a long road) had me on CBZ for two years, and I was very, very unwell indeed and he had misdiagnosed me, there was no reason for me to be on it at all as I had extremely serious Hashitoxicosis and my condition couldn’t be controlled with drugs. I strongly advise you post on the NGDF forum (there is a condition called subclinical hyperthyroidism where the T3 and T4 are normal and the TSH suppressed, but from memory I think the protocol is to watch and wait, not prescribe) and to get very clear before you take CBZ. It could be that you have Hashimotos disease where you go hyper sometimes and then swing back, which might explain why they’ve caught you on a day when your bloods are ‘normal’ – but the only way to know for sure is to check your antibodies. I hear you when you say you liked your doctor, but taking what you have said at face value re tests and what you have been told, I suggest you get a second opinion before taking it. You are NOT hyper on the results here, so why do you need a medication for HYPERthyroidism???? That said I’m not a doctor – but CBZ is a serious, serious drug, you need to be absolutely sure you need it before you take it. Please ask the guys at NGDF, they are brill at all things related to hyper. Best wishes these are the results you posted earlier: > Serum free triidothyroine 5.7 pmol/l Range 3.1-6.8 > Serum free t4 15.7 range 12.0-22.0 > Tsh 0.060 range 0.27 - 4.2 I am using the Free version of SPAMfighter.SPAMfighter has removed 7126 of my spam emails to date.Do you have a slow PC? Try free scan! Quote Link to comment Share on other sites More sharing options...
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