Re: TSH back up to 6.18 again

[Guest guest]

Looking forward to seeing your blood results tracey. Can you let me have the name of rhe BTA endo. I think he sounds to be one that we are not sorry has retired. How could any endocrinologist discharge you with a TSH of 5.5????? I am very pleased to hear that your Ferritin level is rising at last, as once this gets back to where it should be, you are going to feel SO much better.

luv - Sheila

The possibly good news is that the endo has retired and will be replaced by an as yet unnamed new person. If the GP decides to re-refer me now my TSH is back over 5.5 again, I'm going to make damn sure that I improve my chances of getting proper treatment by researching the endo first. If I'm not convinced then I'll try to get referred to the NHS chap in Luton and Dunstable someone recommended to me.The really good news is my Ferritin levels have risen from 30 to 52 thanks to 2 and a half months worth of galfer liquid. I am SO glad I argued that I won the arguement to try a liquid iron formula. The endo had wanted me to have a duodenal biopsy as he wanted to find out why I wasn't absorbing iron. I've never ben able to absorb iron from pills but had had success with spatone, so I knew the problem wasn't my duodenum! I am so relieved that I have spared myself an unnecessary surgical procedure AND saved the NHS money probably!I'm possibly getting a full print-out of my blood tests tomorrow. There was something stamped on my records that the GP's permission was needed before they could be released to me. I think there was some abnormality which he may need to discuss with me :-{Tracey

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.9/1237 - Release Date: 22/01/2008 11:04

[Guest guest]

Hi Tracey

I'm sorry to hear that your tsh has risen and your endo has discharged

you and I hope you do get a further referral to a reputable endo.

Could I ask if you feel any better now that your ferritin has risen to

52 can you tell? I too have low ferritin of 15 for which I am taking

iron supplements and just wondered if I will feel better when my level

improves.

Take care

Love Lizzie

>

> I have been feeling pretty awful again since mid November and have

> piled on 1st 2 1b since the beginning of December with no dietary

> changes.

>

> I found out yesterday that my endocrinologist (member of the TBA) has

> discharged me as I am officially normal. I would point out that he'd

> discharged me a few months before my latest blood test but I hadn't

> realised at the time and was wondering why my follow-up appointment

> hadn't arrived. So looks like I'm back in the hands of my GP again.

>

> The possibly good news is that the endo has retired and will be

> replaced by an as yet unnamed new person. If the GP decides to re-

> refer me now my TSH is back over 5.5 again, I'm going to make damn

> sure that I improve my chances of getting proper treatment by

> researching the endo first. If I'm not convinced then I'll try to get

> referred to the NHS chap in Luton and Dunstable someone recommended to

> me.

>

> The really good news is my Ferritin levels have risen from 30 to 52

> thanks to 2 and a half months worth of galfer liquid. I am SO glad I

> argued that I won the arguement to try a liquid iron formula. The endo

> had wanted me to have a duodenal biopsy as he wanted to find out why I

> wasn't absorbing iron. I've never ben able to absorb iron from pills

> but had had success with spatone, so I knew the problem wasn't my

> duodenum!

>

> I am so relieved that I have spared myself an unnecessary surgical

> procedure AND saved the NHS money probably!

>

> I'm possibly getting a full print-out of my blood tests tomorrow.

> There was something stamped on my records that the GP's permission was

> needed before they could be released to me. I think there was some

> abnormality which he may need to discuss with me :-{

>

> Tracey

>

[Guest guest]

Hi Lizzie,

I would say that the noticable improvements have been in my hair and

nails. It had been dropping out in handfulls and it had been

distressing and embarrassing leaving hairs everywhere. Now the hair

stays on my head. Just before I started taking my supplements in

earnest, the hair was trying to regrow but dropping out on reaching

just 1 inch length. It was coarse brittle wiry hair, not at all like

my normal thick now-greying auburn bra-length slightly wavy hair.

My new hair growth is curly in patches, straight in others but it is

looking glossier and healthier for the 1st time in 10 years. This is

definitely not a placebo effect. Even my dyson is happier as the

brush bar is no longer jammed up with hair!

Strangely my leg and arm-pit hair has also changed. I am no longer

the gorilla-legged woman as the hair there is now growing much

slower, softer and lighter. I don't have to shave everyday now. My

moustache is less of a problem. Something hormonal is at work here

perhaps?

Also, my periods (I'm 44) have definitely changed and I'm losing

noticeably less blood each month.

I don't bruise so easily either.

My nails had stopped breaking shortly after the carbon monoxide

issue was addressed so I don't know how much the iron supplements

are responsible for my nails now being completely normal. They are

growing and are strong and not at all flaky.

My energy levels are still up and down. Some days I have such severe

brain fog to the extent I get the impression that I have teleported

around my house. I have no recollection of how I got there ;-). Some

days I can sustain demanding intellectual activities in contrast to

other days where a Janet and book would be about all I could

handle.

I still ache all over and get out of breath. I've had to limit my

cycling as I lack strength to pedal the distances I need to cover to

get about. Some days I am too tired to do much and feel ice cold

most of the time. All this I suspect is more to do with an

underlying thyroid problem than the iron. Hopefully there will be

some improvement when my ferritin levels reach their optimum.

At least now I think my ferritin levels are sufficiently high for me

to be allowed a trial of thyroxine. They were too low before.

In balance I would say that I am in much better condition thanks to

my ferritin levels increasing, but still have a good way to go

before I am out of the woods.

The trick is finding an iron supplement which is properly absorbed

by your body. I hope you do feel better as your levels rise.

Good luck,

Tracey

> Could I ask if you feel any better now that your ferritin has

risen to

> 52 can you tell? I too have low ferritin of 15 for which I am

taking

> iron supplements and just wondered if I will feel better when my

level

> improves.

[Guest guest]

Hi,

Straight hair going curly is a hypo symptom. Half mine is still

straight, but the back is finely waved like an afro perm. This has

maintained though I'm healthy now. The condition is thick and glossy.

Hi Lizzie,

I would say that the noticable improvements have been in my hair and

nails. It had been dropping out in handfulls and it had been

distressing and embarrassing leaving hairs everywhere. Now the hair

stays on my head. Just before I started taking my supplements in

earnest, the hair was trying to regrow but dropping out on reaching

just 1 inch length. It was coarse brittle wiry hair, not at all like

my normal thick now-greying auburn bra-length slightly wavy hair.

[Guest guest]

Hi Tracey,

Remember TSH is at it's highest first thing in the morning. So

best time to get tests done.......

With that TSh you should really get a diagnisis- postcode lotteryagain as

not all areas use the new level of 10.0, mine still uses 5.5 as tops.

Do keep a note your tests and make notes at any appt.

TSH back up to 6.18 again

The saga continues!

I'm possibly getting a full print-out of my blood tests tomorrow.

There was something stamped on my records that the GP's permission was

needed before they could be released to me. I think there was some

abnormality which he may need to discuss with me :-{

Tracey

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing medication.