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http://www.dailymail.co.uk/pages/live/articles/health/healthmain.html?in_article_id=506717 & in_page_id=1774 Carol X Re:

Anyone have any experience of Congenital Hypothyriodism?

HI Juicy - glad you have found us and I hope you get all the help and support you can from TPA-UK. I hope also, that we can answer as many of your questions as possible.

I have heard of one other person being born with no thyroid gland - and it is amazing how well these people can be, though they do need thyroid hormone replacement for the rest of their lives. Does your son have any particular problems and how often does your GP test his thyroid function with blood tests.

Luv - Sheila

my son was born with no thyroid gland at all and was put on levothyroxine at 10 days old, since then (he is now 1yr)i have struggled to find any real support and info other than the standard list of symptoms and possible outcomes,which in themselves do little to ease a parents mind. i have lots of silly seeming questions that i just cant find an answer for, even from his doctors, any help would be greatly appreciated,

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