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Re: Sorry I havent been in touch - Still struggling

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Hi everyone,

Sorry I havent been in touch for a while but have I been struggling

as usual.

Just so you know where I'm out, please see the e-mail I recently sent

to Dr Peatfield:

Please could you help me?

I am a patient of Dr. Skinner since March '08 having been sick for 20

so years. Had partial thyroidecomy in 1983 left side. TSH have always

been in normal range. Have been untreated until are I saw Dr.

Skinner.

So you can image how awful it's been even tried to kill myself 6

times. Been put in a metal home too for severe depression. I could

tell you the whole story but I'm sure you've heard it all before & I

know your a busy man so wont bore you with it.

Dr. Skinner has be great but I am still unwell. I'm on 175mg

thryxoine & 1/2gram armour thyroid twice per day. I've had 2 adrenal

test in the past.

On 28/08/2006

7-00-8.00 2 depressed normal range 13-24

11.00-Noon 19 elevated normal range 5-10

04.00-05.00 1 depressed 3-8

11.00-midnight 18 elevated 1-4

Cortisol burden 40 normal range 23-42

On 07/03/2007 they were worse

7.00-8.00 9 depressed

11.00-noon 2 depressed

04.00-05.00 <1 depressed

11.00-midnight 1 normal

Cortisol burden 13

Dr. Skinner did not comment on these saliva tests when I show him

(last appointment 4 weeks ago). So I asked Sheila from the TPA.uk

website for advice. She sugested I contact you. Dr. Skinner does not

believe in treating the adrenal unless blood test serum coristol is

negative. They were obvious in normal range 332 normal range 180-620.

Blood test where done recently 29/5/08. I'm going to do another

adrenal saliva test over the weekend with NPtech labs.

I have been supporting my adrenal for 2 years now with various

supplements. But most recently been take NAE since March 08, 6 tabs

per day. Then because I was not getting results from that I been

taking Isocort 8 tabs per day for 6 weeks. Felt alittle better but

still stomach problems along with pain everywhere, dry mouth,

dizziness, palpitations, headaches, chronic wind, overwhelming

fatigue & various other symptoms. I scored 147 on the adrenal

questionnaire.

For the last 2 weeks I've been taking cortef. I followed you

guidelines by taking 2.5mg & increasing very slowly. But within days

my symptoms got worse with severe nausea & overwhelming digestive

problems. I've stopped 2 days ago but got so bad today that I had to

phone Dr. Skinner for advice. Unfortunately he could not help me.

I know I have an under active thyroid but I don't think my medication

can be effective until my adrenals are sorted out. Not sure why all

the things I have tried so far have not worked. So I hope you don't

mind I have come to you for help. Is that OK? Even if I have been a

patient of Dr. Skinner?

I would really really appreciate your help I just want so much to get

better. I've lost nearly all my life so far with being ill &

childless because of endometrosis & having to have a full

hysterectomy at the age of 30. I'm now age 47.

Anyway, I really look foward to hearing from you & hopefully meeting

with you very soon.

Hopefully I will get an appointment to see Dr Peatfield soon. I will

let you know how I get on.

Love

x

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Hi , just sending you a big hugs, sounds like you've been to hell

and back, bless you. Ruth x PS has just occured to me that Dr P's

sectratary Jo told me it'll take up to two weeks for him to check

through his e-mails so please don't be disappointed if you don't hear

from him for a little while! It's nothing personal :-)

>

> Hi everyone,

>

> Sorry I havent been in touch for a while but have I been struggling

> as usual.

>

> Just so you know where I'm out, please see the e-mail I recently

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Hi Ruth,

Thanks for your kind reply. I'll probably wont wait too long for Dr. P to reply. If he doesnt call me tomorrow, I will follow-up with a telephone call to him so I can try to see him asap. The way I'm feeling at the moment I need to see him pretty sharpish just in case I do anything stupid.

I'm just concerned he wont see me cos I'm Dr. S patient. But see what he says.

Thanks again.

x

Hi , just sending you a big hugs, sounds like you've been to hell and back, bless you. Ruth x PS has just occured to me that Dr P's sectratary Jo told me it'll take up to two weeks for him to check through his e-mails so please don't be disappointed if you don't hear from him for a little while! It's nothing personal :-)

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....Sorry I havent been in touch for a while but have I been struggling

as usual.

Hi

You've had a rotten time and I'm sure we're all thinking of you. It's

scandalous that we have all been left in this intolerable situation but

at least we've found the TPA.

God bless

Pen x

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Hi

I have just noticed that Dr Peatfield is away at his Morpeth/Birtley clinic for 10th, 11th, 12th and 13th July and will not be around until after that. Give me your telephone number urgently and I will call him later today and ask him to contact you .

Luv - Sheila

Hi Ruth,

Thanks for your kind reply. I'll probably wont wait too long for Dr. P to reply. If he doesnt call me tomorrow, I will follow-up with a telephone call to him so I can try to see him asap. The way I'm feeling at the moment I need to see him pretty sharpish just in case I do anything stupid.

I'm just concerned he wont see me cos I'm Dr. S patient. But see what he says.

Thanks again.

x

Hi , just sending you a big hugs, sounds like you've been to hell and back, bless you. Ruth x PS has just occured to me that Dr P's sectratary Jo told me it'll take up to two weeks for him to check through his e-mails so please don't be disappointed if you don't hear from him for a little while! It's nothing personal :-)

Recent Activity

19

New Members

3

New Photos

4

New FilesVisit Your Group

Meditation and

Lovingkindness

A Group

to share and learn.

Health

Achy Joint?

Common arthritis

myths debunked.

Find helpful tips

for Moderators

on the

Groups team blog.

..

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1544 - Release Date: 10/07/2008 07:37

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Hi , I don't think that you been a patient of Dr S will be a

problem at all! They're both professionals and will just want to get

you well at the end of the day. Whereabouts do you live? Have you

looked at the list on the TPA to see where you could get to see him?

Even if you can't get to see him for a while, I'm sure he'll give you

some advice in the meantime. Please get some emotional support if all

this is getting too much for you and if need be see your NHS GP and

ask for some kind of 'talking therapy'. I've been where you are and

it helped to have someone unconnected to me to talk to and also it

helps having someone that can see things from the 'outside'. One of

the big things for me that was causing emotional symptoms was low

blood sugar and is much better since I started the NAE. Are your

adrenals ok? I have found it absolutely necessary to eat regularly

and try to keep blood sugar constant else I'll be up and down all

day. On my worse days I'd be happy one minute and in floods of tears

the next. Unfortunately the NHS don't tend to think about physical

causes behind emotional problems and just hand out anti-d's like

they're sweets. There is a place for them but not the only answer I

think, sometimes they make things worse. Ruth x

>

> Hi Ruth,

> Thanks for your kind reply. I'll probably wont wait too long for

Dr. P to reply. If he doesnt call me tomorrow, I will follow-up with

a telephone call to him so I can try to see him asap. The way I'm

feeling at the moment I need to see him pretty sharpish just in case

I do anything stupid.

> I'm just concerned he wont see me cos I'm Dr. S patient. But see

what he says.

> Thanks again.

>

> x

>

> Hi , just sending you a big hugs, sounds like you've been to

hell

> and back, bless you. Ruth x PS has just occured to me that Dr P's

> sectratary Jo told me it'll take up to two weeks for him to check

> through his e-mails so please don't be disappointed if you don't

hear

> from him for a little while! It's nothing personal :-)

>

>

> Recent Activity

> *  19

> New Members

> *  3

> New Photos

> *  4

> New FilesVisit Your Group

> Meditation and

> Lovingkindness

> A Group

> to share and learn.

> Health

> Achy Joint?

> Common arthritis

> myths debunked.

> Find helpful tips

> for Moderators

> on the

> Groups team blog.

> .

>

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Guest guest

Hello

I am so sorry to hear that you have been suffering so much. Please keep on trying to contact Dr peatfield and please don't worry that he might not take you on because you have been a patient of another private doctor, he will see you, and that will make no difference. The NHS should not be leaving you to look after your own health, especially when it is obvious that you have such awful adrenal problems.

Please send me your telephone number and I will FAX Dr Peatfield today and ask him to contact you urgently. In fact, I will copy this message and FAX this through to him. Let us know how you get on and meanwhile - big (((HUGS)))

Luv - Sheila

I am a patient of Dr. Skinner since March '08 having been sick for 20 so years. Had partial thyroidecomy in 1983 left side. TSH have always been in normal range. Have been untreated until are I saw Dr. Skinner. So you can image how awful it's been even tried to kill myself 6 times. Been put in a metal home too for severe depression. I could tell you the whole story but I'm sure you've heard it all before & I know your a busy man so wont bore you with it.Dr. Skinner has be great but I am still unwell. I'm on 175mg thryxoine & 1/2gram armour thyroid twice per day. I've had 2 adrenal test in the past.On 28/08/20067-00-8.00 2 depressed normal range 13-2411.00-Noon 19 elevated normal range 5-1004.00-05.00 1 depressed 3-811.00-midnight 18 elevated 1-4Cortisol burden 40 normal range 23-42On 07/03/2007 they were worse 7.00-8.00 9 depressed11.00-noon 2 depressed04.00-05.00 <1 depressed11.00-midnight 1 normalCortisol burden 13Dr. Skinner did not comment on these saliva tests when I show him (last appointment 4 weeks ago). So I asked Sheila from the TPA.uk website for advice. She sugested I contact you. Dr. Skinner does not believe in treating the adrenal unless blood test serum coristol is negative. They were obvious in normal range 332 normal range 180-620. Blood test where done recently 29/5/08. I'm going to do another adrenal saliva test over the weekend with NPtech labs.I have been supporting my adrenal for 2 years now with various supplements. But most recently been take NAE since March 08, 6 tabs per day. Then because I was not getting results from that I been taking Isocort 8 tabs per day for 6 weeks. Felt alittle better but still stomach problems along with pain everywhere, dry mouth, dizziness, palpitations, headaches, chronic wind, overwhelming fatigue & various other symptoms. I scored 147 on the adrenal questionnaire. For the last 2 weeks I've been taking cortef. I followed you guidelines by taking 2.5mg & increasing very slowly. But within days my symptoms got worse with severe nausea & overwhelming digestive problems. I've stopped 2 days ago but got so bad today that I had to phone Dr. Skinner for advice. Unfortunately he could not help me.I know I have an under active thyroid but I don't think my medication can be effective until my adrenals are sorted out. Not sure why all the things I have tried so far have not worked. So I hope you don't mind I have come to you for help. Is that OK? Even if I have been a patient of Dr. Skinner?I would really really appreciate your help I just want so much to get better. I've lost nearly all my life so far with being ill & childless because of endometrosis & having to have a full hysterectomy at the age of 30. I'm now age 47.Anyway, I really look foward to hearing from you & hopefully meeting with you very soon.Hopefully I will get an appointment to see Dr Peatfield soon. I will let you know how I get on.Love x No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1544 - Release Date: 10/07/2008 07:37

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Hi ,

Have you seen my earlier message? Please Phone me 01449676261 and

I will pass on to Sheila who has virgin network problems.

Subject: Re: Sorry I havent been in touch - Still

struggling

>

> Hi Ruth,

> Thanks for your kind reply. I'll probably wont wait too long for

Dr. P to reply. If he doesnt call me tomorrow, I will follow-up with

a telephone call to him so I can try to see him asap. The way I'm

feeling at the moment I need to see him pretty sharpish just in case

I do anything stupid.

> I'm just concerned he wont see me cos I'm Dr. S patient. But see

what he says.

> Thanks again.

>

> x

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

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Guest guest

Thanks so much Sheila for your support. I'vee just given my telephone

number to to give to you.

I did try to Telephone Dr. P at the Warlingham clinic but in was just

engaged all day.

I'm back on Iscort at the moment cos Cortef was I think too strong.

Iscort is given me some pain relief but pain comes back after 2 hours &

since taking Cortef for 2 weeks only my body seem to shack more. But my

allergies aint as bad.

Hopefully I will get an appointment with Dr. P soon.

Thanks again.

x

Hi

>

> I have just noticed that Dr Peatfield is away at his Morpeth/Birtley

clinic for 10th, 11th, 12th and 13th July and will not be around until

after that. Give me your telephone number urgently and I will call him

later today and ask him to contact you .

>

> Luv - Sheila

>

>

>

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Guest guest

, I have just spoken with Dr Peatfield, he was having his dinner, but he has promised to get back to you. Not sure when this will be, but hopefully, later today.

Luv - Sheila

Re: Sorry I havent been in touch - Still struggling

Thanks so much Sheila for your support. I'vee just given my telephone number to to give to you.I did try to Telephone Dr. P at the Warlingham clinic but in was just engaged all day.I'm back on Iscort at the moment cos Cortef was I think too strong. Iscort is given me some pain relief but pain comes back after 2 hours & since taking Cortef for 2 weeks only my body seem to shack more. But my allergies aint as bad.Hopefully I will get an appointment with Dr. P soon.Thanks again.xHi > > I have just noticed that Dr Peatfield is away at his Morpeth/Birtley clinic for 10th, 11th, 12th and 13th July and will not be around until after that. Give me your telephone number urgently and I will call him later today and ask him to contact you .> > Luv - Sheila> > >No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1546 - Release Date: 11/07/2008 06:47

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Guest guest

Hi , glad to see you're feeling more hopeful, you'll get there in

the end, I'm sure. Hugs Ruth xxxxx

>

> Bless you Sheila . Dr. Peatfield just called me. He said that I

> have complete adrenal burden & must increase my isocort to 12 per

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Guest guest

You're very welcome . Stay with us and we will try to give you all the help and support we can. One of the worst aspects of this illness is not having anybody around who understands exactly what you are going through. Hope you can see Dr Peatfield soon, and yes, he is a very caring man.

Luv - Sheila

Bless you Sheila . Dr. Peatfield just called me. He said that I have complete adrenal burden & must increase my isocort to 12 per day straight away, I'm in danger of complete collapse otherwise. What a nice man he is. So so caring.He said he would telephone me again in a few days to see how I am & will then arrange an appointment to see him. I have to stay on all thyroid meds too.I think I may get there this time.Thanks for helping to save my life.Love youx> , I have just spoken with Dr Peatfield, he was having his dinner, but he has promised to get back to you. Not sure when this will be, but hopefully, later today. > > Luv - Sheila> > No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1546 - Release Date: 11/07/2008 06:47

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Thanks Ruth for your caring support. Yes feel more positive. It's just

like Sheila said, I just need to hold on in there & having TPA for

support I know for sure I will get better.

I thank my lucky stars that I have found this forum. I defo will not

try to struggle on my own in future.

Thank you.

x

> Hi , glad to see you're feeling more hopeful, you'll get there

in

> the end, I'm sure. Hugs Ruth xxxxx

>

>

>

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Thanks Penny. Speaking with Dr. P last night defo help me stay

positive. At least I know for sure now that my adrenals are the main

reason I'm not getting better. I'm sure once they are sorted out I will

be well again. Dr. P will get me there & thanks to this forum I found

him.

Take care.

x

> Hi

>

> You've had a rotten time and I'm sure we're all thinking of you.

It's

> scandalous that we have all been left in this intolerable situation

but

> at least we've found the TPA.

> God bless

> Pen x

>

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