Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 This is just typical of GP's, I am fed up of my doctor asking if I want to be referred to a rheumatologist, immunoligist and loads of other specialists!! I asked why she couldn't just treat me for my illness and she said that they have been instructed (by whom?) that GP's have to rule everything else out before they look at the thyroid problem!!! I said that this was a very expensive way of looking at things but rules is rules, she says!! Go and see the endo, whatever is in the referral letter the specialist will make their own decisions. Stick to your guns when you see the endo, explain your symptoms as clearly as possible, write them down before hand if you're memory is a problem, I did when I went to see the endo last week. > > She said she thinks it may be something else and wanted me to see > the rheumatologist, even after i told her that my mum has discovered > she has nodules on her thyroid. I asked if i could see the same endo > as her and she said she didn't think it was the correct referral. She > thinks i have Fybromyalgia but my pain is more of an ache (the sort > of aceh when you have flu) than a pain so to speak. I am confused now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 >> She said she thinks it may be something else and wanted me to see the rheumatologist, <<< Some rheumatics are autoimmune and if you have one autoimmune condition you could likely have another which is Hashimotos thyroiditis (I think). Have they done any thyroid antibody tests. That would show whether there is a thyroid autoimmune condition. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Tell us exactly what symptoms you are suffering (all of them) and telephone youor surgery to get your last thyroid function tests. I know you are upset right now, but it is important to get these test results. Don't forget to get the reference range for each test Ali. Doesn't your doctor realise that the majority of sufferers of fibromyalgia have a thyroid problem, and they use T3 to treat fibromyalgia. It could very well be that you are NOT converting the thyroxine into the essential T3 and this is why you are suffering with your pain. T3 has to get into every cell in your body to make it function. If your local laboratory has NOT tested your Free T3, you should get this tested through N PTech Services. I think for olne test it would cost you £14. Luv - Sheila Just got back from GP, Just as i expected. I am properly medicated and therefore do not need an increase or any other alteration to dosage. I told her i still had symptoms although they had cleared up initially.(I have given up listing my symptoms to her as she seems to have an answer for each of them)Last night i could barely sleep for choking and have had lumpy swallowing for nearly 2 weeks now. Does anyone have any remedies for this??.She said she thinks it may be something else and wanted me to see the rheumatologist, even after i told her that my mum has discovered she has nodules on her thyroid. I asked if i could see the same endo as her and she said she didn't think it was the correct referral. She thinks i have Fybromyalgia but my pain is more of an ache (the sort of aceh when you have flu) than a pain so to speak. I am confused now and don't know what to think. I managed to get the referral in the end but i wouldn't like to bet on getting the appointment after they see my GP's referral letter. I can't help feeling that i will end up having to be my own doc. I was so upset i didn't even get the test results! Will wait and see what they say at the thyroid clinic in feb. I just wanted to try a small increase in T4 to 175mcg from 150mcg. regardsAliX No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.7/1234 - Release Date: 20/01/2008 14:15 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Hey - you smack it to 'em Ali. Hooray for getting a diagnosis, this at least means that you will get all your prescriptions free of charge for everything for the rest of your life. Your TSH should NOT be "bang in the middle" - they should be at the bottom of the reference interval, so your GP needs to brush up on his studies. Had you been "slap in the middle" in Germany or the UK, it would have shown you to be hypothyroid. Doctors here do not know how to read the results, and if the lab wrote they were normal, he would just assume that meant you didn't have a thyroid problem. Wrong, Wrong! He is wrong when he says he cannot order the test. every UK doctor can order the test, it is up the local laboratory as to whether they decide to do this or not, which the majority will not do if they believe your TSH and FT4 are 'normal. He should have written a separate blood form just asking for Free T3 alone, instead of forcing you into getting this done privately and having to pay for it. When you go to get your blood drawn Alice - put this to him and ask him to give it a try. Keep up the good work, you are learning quickly ) Luv - Sheila * I asked for another sick note and he said what would you like me to put on it? I said "Well, you can put fatigue as that is what Dr G put on the last one."he said " I shall put that and hypothyroid." (this I was surprised at and another minor victory, he believes me! and is kind of admitting in a discreet way that the tests are wrong!!!)O and I am popping into the Surgery to see my paper notes tommorow! Forgot to ask about the electronic ones; but will check. He was curious as to why I wanted to see them as he seemed to think they would not tell me a great deal, I did not say a word in answer! Rant over, I could not wait to post this, sorry for the length!Ali No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.169 / Virus Database: 270.7.2/1690 - Release Date: 25/09/2008 07:05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2009 Report Share Posted January 12, 2009 Margaret Has anybody told you that taking your levothyroxine at night when you go to bed may give you a better night's sleep and make you feel better during the day - it will probably also stop your morning nausea. A small study was done to show this, and many of our members take their levothyroxine at night. Nearly everybody who is tested for low cortisol using the NHS test get their results back showing they don't have a problem. This is because when they first take your blood and then give you an injection of synacthen, they wait a while and then take your blood again, but the synacthen causes your adrenals to function much better and so the next blood draw shows your adrenal level is fine. Synacthen would make a dead donkey kick. What you need is the 24 hour salivary adrenal profile done which shows the level of your cortisol and DHEA at four specific times during the day. This is the only adrenal test you should have done - and low adrenal reserve is not even recognised within the NHS. The 24 hour adrenal profile test is quite expensive though, but it is worth every penny. I'm so sad to hear you feel your husband might be about to leave. This can only cause you more stress and I am sure he will find a completely different woman in you if you went onto medication to boost your adrenals. We usually recommend Nutri Adrenal Extra which you can buy from www.yournutritionshop.co.uk and these cost about £20 for a bottle of 90 tablets. It's is so terrible when the NHS leave us all suffering so much so that we have to buy our own medication to give us back normal health. Thank you so much for you reply. I will keep everything crossed and will also have a letter ready to be placed on my file if he refuses .I am feeling really bad today don't know if anyone sufferes from this awful nausea its like morning sickness.I upped my 125mcg Eltrozxzin to 137.5 about 40 days ago and really did feel better (Not good just better) as the nausea dissapeared.Its now back.I am in work and find it hard to cope as I want to strangle someone when the phone rings.I have just looked at your thing on adrenal fatique and can relate to a lot of it.I did explaine to endo about 4 months ago that I have suffered an extremely stresfull life due to my son being very ill etc etc.He said he had done tests for adrenal fatique and I did not have it as my Cortisol levels where ok as " I am not worthy " I had to accept that.I not vey well though gang.Think my hubby about to leave too and I dont blame him. I find whats awful is that we have to fight when we feel awful.I am an extremely strong outgoing women.I do not want to hurt anyone but just a little respect would be nice.Anyway thanks again for listening and if anyone has this nausea let me know please.I will see Dr " no fat women in the jungle " on friday and let you know. Margaret · __ Quote Link to comment Share on other sites More sharing options...
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