Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hi. I am a new member. I have had Hashimoto's Disease for 15+ years. I also have an immuno-related kidney disease which has resulted in kidney failure. As my kidney function deteriorated, the synthetic thyroxine became ineffective although the blood levels are seriously distorted by the kidney failure and show " normal " levels of T4 and TSH without tertroxine. About 5 years ago after 3 years of suffering from unbearable fatigue, muscle and leg pain, severe shortness of breath, extreme weight gain while starving myself, loss of eyelashes, brain fog, etc. (and thinking I was surely dying) my nephrologist agreed to prescribe tertroxin 20mcg to me in addition to 150mcg of eltroxin. After only a few days of treatment, most of the symptoms began to disappear and my nephrologist agreed that it was a miracle drug. It also helped to stabilise a sharp deterioration in my kidney function which is now 24% and only losing about 1% function per year. Unfortunately, with the discontinuance of tertroxine by the manufacturer my GP has decided I should just stop taking T3. Now I face the battle of trying to find a good endocrinologist who is not terrified of the kidney failure and will prescribe me an alternative like armour. In the end, I have been taking tertroxine and eltroxine for 5-6 years so it should not make a difference to substitute something like Armour, but it still seems like an uphill battle with the medical system. I did see the list of " Doctors that will " but would appreciate any advice on which of the Doctors in London is most likely to be sympathetic and willing to deal with my situation. Quote Link to comment Share on other sites More sharing options...
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