Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hi Everyone I wonder if anyone else has experienced my symptoms on increasing T4. Just to refresh I am on T4 100mcg and T3 20mcg. It is now 4 weeks since Dr B increased my T4 from 75mcg going on the following blood results - T4 7.3 T3 4.7 TSH 0.1. My continual symptom has been thigh cramps and knee joint stiffness. Before my last dose increase they came and went but weren't there every day. Since my last dose increase they seem to be almost constant, the thigh pains are awful and really getting me down. I can't forget about being hypo because I have a constant reminder. I don't know what to do now. I don't know if they are there because I still am not on the correct dose, or if it because my body dosen't like the T4 or if it is because I need more T3. I have sent an email asking Dr B's secretary about my next appointment and whether I can have a dose increase or an earlier appointment because it isn't until July 2 weeks before I am going on a family holiday to France. I so wanted to be feeling better by then. Any words of encouragement would be gladly received. Thanks love Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Lizzie, Sorry to hear that you aren't feeling great. Magnesium supplements usually work really well for cramps. They also work really well to stop those funny twitches in your eye (not sure if you get them or not). Not sure what to do about the knee joint stiffness. I use a supplement called 'PicMins' by Thorne, but you will need to check with your doc whether it is suitable for you. I had really sore wrists, elbows, hip, knees and ankles. I felt very bad. The pain almost disappeared after using this supplement. I get the occasional twinge, but it is A LOT better than it used to be. You might want to ask your doc whether it is suitable for you. My sister (who has the same condition as me) used it and didn't need to take painkillers. Here is a link to the product. You need to scroll down and click on 'pic-mins' to view the 'ingredients'. The company is based in the US. http://www.thorne.com/product_data_sheets_PDFs.wss P > My continual symptom has been thigh cramps and knee joint stiffness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hi Lizzie You could have a conversion block and need T3 only, or, alternatively, you could be a candidate for Armour Thyroid, which has the active hormones T3, T2, T1 and also calcitonin. I had severe cramps in my lower back and under both heels and shoulder when I was on T4 only and then on synthetic T4/T3 combination. They didn't go until I started on Armour Thyroid. I would telephone Dr B's secretary on Tuesday and not wait any longer. You cannot be expected to remain in such pain until your next appointment, and I am sure Dr B would be concerned if he knew about this. Let us know how you get on and I will keep everything crossed for you. You could come straight out and ask if you could have a trial of Armour thyroid to tide you over your holiday and that way, you could see whether this was the treatment that your body needs. Luv - Sheila Hi EveryoneI wonder if anyone else has experienced my symptoms on increasing T4.Just to refresh I am on T4 100mcg and T3 20mcg. It is now 4 weekssince Dr B increased my T4 from 75mcg going on the following bloodresults - T4 7.3 T3 4.7 TSH 0.1.My continual symptom has been thigh cramps and knee joint stiffness.Before my last dose increase they came and went but weren't thereevery day. Since my last dose increase they seem to be almostconstant, the thigh pains are awful and really getting me down. Ican't forget about being hypo because I have a constant reminder. Idon't know what to do now. I don't know if they are there because Istill am not on the correct dose, or if it because my body dosen'tlike the T4 or if it is because I need more T3. I have sent an emailasking Dr B's secretary about my next appointment and whether I canhave a dose increase or an earlier appointment because it isn't untilJuly 2 weeks before I am going on a family holiday to France. I sowanted to be feeling better by then. Any words of encouragement would be gladly received.Thanks love Lizzie No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.1/1464 - Release Date: 24/05/2008 08:56 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hi P Thanks for your reply, I do take magnesium citrate 150mg per day and also nutri-adrenal extra which also contains magnesium but I have just taken an extra magnesium tab and will see if it helps. I think my joint stiffness is a symptom of hypo and I am hoping this will settle down soon but thanks for the info about pic-mins I will look into them. Love Lizzie > > Sorry to hear that you aren't feeling great. > > Magnesium supplements usually work really well for cramps. They > also work really well to stop those funny twitches in your eye (not > sure if you get them or not). > > Not sure what to do about the knee joint stiffness. I use a > supplement called 'PicMins' by Thorne, but you will need to check > with your doc whether it is suitable for you. I had really sore > wrists, elbows, hip, knees and ankles. I felt very bad. The pain > almost disappeared after using this supplement. I get the occasional > twinge, but it is A LOT better than it used to be. You might want > to ask your doc whether it is suitable for you. My sister (who has > the same condition as me) used it and didn't need to take > painkillers. > > Here is a link to the product. You need to scroll down and click > on 'pic-mins' to view the 'ingredients'. The company is based in > the US. > http://www.thorne.com/product_data_sheets_PDFs.wss > > P > > > > > > My continual symptom has been thigh cramps and knee joint > stiffness. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hi sheila Thanks for that I will try and pluck up the courage to contact Dr B although I know he thinks that the thigh cramps have nothing to do with the T4 as I queried it with him when he suggested increasing my dose, he said that it was not documented to be a side effect or somehting similar. LOve Lizzie >> Hi Lizzie > > You could have a conversion block and need T3 only, or, alternatively, you could be a candidate for Armour Thyroid, which has the active hormones T3, T2, T1 and also calcitonin. I had severe cramps in my lower back and under both heels and shoulder when I was on T4 only and then on synthetic T4/T3 combination. They didn't go until I started on Armour Thyroid. I would telephone Dr B's secretary on Tuesday and not wait any longer. You cannot be expected to remain in such pain until your next appointment, and I am sure Dr B would be concerned if he knew about this. > > Let us know how you get on and I will keep everything crossed for you. You could come straight out and ask if you could have a trial of Armour thyroid to tide you over your holiday and that way, you could see whether this was the treatment that your body needs. > > Luv - Sheila > > > > Hi Everyone > > I wonder if anyone else has experienced my symptoms on increasing T4. > Just to refresh I am on T4 100mcg and T3 20mcg. It is now 4 weeks > since Dr B increased my T4 from 75mcg going on the following blood > results - T4 7.3 T3 4.7 TSH 0.1. > > My continual symptom has been thigh cramps and knee joint stiffness. > Before my last dose increase they came and went but weren't there > every day. Since my last dose increase they seem to be almost > constant, the thigh pains are awful and really getting me down. I > can't forget about being hypo because I have a constant reminder. I > don't know what to do now. I don't know if they are there because I > still am not on the correct dose, or if it because my body dosen't > like the T4 or if it is because I need more T3. I have sent an email > asking Dr B's secretary about my next appointment and whether I can > have a dose increase or an earlier appointment because it isn't until > July 2 weeks before I am going on a family holiday to France. I so > wanted to be feeling better by then. > > Any words of encouragement would be gladly received. > > Thanks love Lizzie > > > > > > > ------------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG. > Version: 7.5.524 / Virus Database: 269.24.1/1464 - Release Date: 24/05/2008 08:56 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 yes I have had years of those symptoms, also get terrible cramping in back of my ribcage and find the very bare minimum of magnesium needed is 200mg per day, I need my selenium too to help with conversion. I find the more T3 the less backache and muscle cramps as long as the magnesium and vitamins are available for use. My swollen knees and the pains therein aren't as bad either, however this has taken 43 days on armour. Hope you feel better soon luv Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 OO forgot to mention Buy yourself some Gray Sea Salt from the heath food stores, commonly known as Celtic Sea Salt, it contains every mineral you will ever need and get a grinder and use this in place of table salt, it tastes so much more wonderful and is not bleached and nasty with fillers and rubbish you find in the table salts and even the 'sea salt' in the supermarket which has been tampered with. Sometimes this helps with cramps. Lotsa luv Dawn > > Hi Everyone > > I wonder if anyone else has experienced my symptoms on increasing T4. > Just to refresh I am on T4 100mcg and T3 20mcg. It is now 4 weeks > since Dr B increased my T4 from 75mcg going on the following blood > results - T4 7.3 T3 4.7 TSH 0.1. > > My continual symptom has been thigh cramps and knee joint stiffness. > Before my last dose increase they came and went but weren't there > every day. Since my last dose increase they seem to be almost > constant, the thigh pains are awful and really getting me down. I > can't forget about being hypo because I have a constant reminder. I > don't know what to do now. I don't know if they are there because I > still am not on the correct dose, or if it because my body dosen't > like the T4 or if it is because I need more T3. I have sent an email > asking Dr B's secretary about my next appointment and whether I can > have a dose increase or an earlier appointment because it isn't until > July 2 weeks before I am going on a family holiday to France. I so > wanted to be feeling better by then. > > Any words of encouragement would be gladly received. > > Thanks love Lizzie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Thanks Dawn It's good advice I will give it a go. Good luck with the Armour Love Lizzie > Buy yourself some Gray Sea Salt from the heath food stores, commonly > known as Celtic Sea Salt, it contains every mineral you will ever need > and get a grinder and use this in place of table salt, it tastes so > much more wonderful and is not bleached and nasty with fillers and > rubbish you find in the table salts and even the 'sea salt' in the > supermarket which has been tampered with. > Sometimes this helps with cramps. > > Lotsa luv > Dawn > > > > > > Hi Everyone > > > > I wonder if anyone else has experienced my symptoms on increasing T4. > > Just to refresh I am on T4 100mcg and T3 20mcg. It is now 4 weeks > > since Dr B increased my T4 from 75mcg going on the following blood > > results - T4 7.3 T3 4.7 TSH 0.1. > > > > My continual symptom has been thigh cramps and knee joint stiffness. > > Before my last dose increase they came and went but weren't there > > every day. Since my last dose increase they seem to be almost > > constant, the thigh pains are awful and really getting me down. I > > can't forget about being hypo because I have a constant reminder. I > > don't know what to do now. I don't know if they are there because I > > still am not on the correct dose, or if it because my body dosen't > > like the T4 or if it is because I need more T3. I have sent an email > > asking Dr B's secretary about my next appointment and whether I can > > have a dose increase or an earlier appointment because it isn't until > > July 2 weeks before I am going on a family holiday to France. I so > > wanted to be feeling better by then. > > > > Any words of encouragement would be gladly received. > > > > Thanks love Lizzie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hi there Lizzie, the stiff joints could be rheumatoid arthritis this can creep up on you with out you being aware. and is one of the things that can go with hypothyroidism, so you should mentionthis to your doctor . he should be testing for rheumatoid factor or ANA antibodies.hope this helps -- angel. Sent from . A Smarter Email. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Thanks Angel I have been tested for rheumaoid arthritis but this came back negative, one of the antibody tests came back with a weak positive but I was told that this is quite common and not really anything to worry about. Love Lizzie > Hi there Lizzie, the stiff joints could be rheumatoid arthritis & nbsp; this can creep up on you with out you being aware. and is one of the things that can go with hypothyroidism, so you should mention > this to your doctor . he should be testing for rheumatoid factor or ANA antibodies. > hope this helps -- angel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Hi Lizzie, The joint stiffness was a symptom of hypo for me too. I used to walk with a pronounced limp and most of my joints were sore. It hurt most of the time. The pic-mins worked well to almost get rid of the joint stiffness and associated pain, but it is best to check with your doc first to make sure it is a product that is suitable for you to use. I hope the extra Mg tab helped. I use between 500 - 1000mg of chelated Mg p/day (500mg equiv to elemental Mg 100mg) when I have that funny 'twitch' in my eye that I mentioned in my last message. It disappears after I use Mg. Again, please check with your doc. P I do take magnesium citrate 150mg per day and also nutri-adrenal extra which also contains magnesium but I have just taken an extra magnesium tab and will see if it helps. I think my joint stiffness is a symptom of hypo and I am hoping this will settle down soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 If you don't want to talk to him Lizzie, then you can write to him and put down how you feel. Let him know you would appreciate an early response because you cannot continue to suffer the pains you are experiencing. luv - Sheila Hi sheilaThanks for that I will try and pluck up the courage to contact Dr Balthough I know he thinks that the thigh cramps have nothing to dowith the T4 as I queried it with him when he suggested increasing mydose, he said that it was not documented to be a side effect orsomehting similar.LOve Lizzie>> Hi Lizzie> > You could have a conversion block and need T3 only, or,alternatively, you could be a candidate for Armour Thyroid, which hasthe active hormones T3, T2, T1 and also calcitonin. I had severecramps in my lower back and under both heels and shoulder when I wason T4 only and then on synthetic T4/T3 combination. They didn't gountil I started on Armour Thyroid. I would telephone Dr B's secretaryon Tuesday and not wait any longer. You cannot be expected to remainin such pain until your next appointment, and I am sure Dr B would beconcerned if he knew about this.> > Let us know how you get on and I will keep everything crossed foryou. You could come straight out and ask if you could have a trial ofArmour thyroid to tide you over your holiday and that way, you couldsee whether this was the treatment that your body needs.> > Luv - Sheila> > > > Hi Everyone> > I wonder if anyone else has experienced my symptoms on increasing T4.> Just to refresh I am on T4 100mcg and T3 20mcg. It is now 4 weeks> since Dr B increased my T4 from 75mcg going on the following blood> results - T4 7.3 T3 4.7 TSH 0.1.> > My continual symptom has been thigh cramps and knee joint stiffness.> Before my last dose increase they came and went but weren't there> every day. Since my last dose increase they seem to be almost> constant, the thigh pains are awful and really getting me down. I> can't forget about being hypo because I have a constant reminder. I> don't know what to do now. I don't know if they are there because I> still am not on the correct dose, or if it because my body dosen't> like the T4 or if it is because I need more T3. I have sent an email> asking Dr B's secretary about my next appointment and whether I can> have a dose increase or an earlier appointment because it isn't until> July 2 weeks before I am going on a family holiday to France. I so> wanted to be feeling better by then. > > Any words of encouragement would be gladly received.> > Thanks love Lizzie> > > > > > >----------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG. > Version: 7.5.524 / Virus Database: 269.24.1/1464 - Release Date:24/05/2008 08:56> No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.1/1464 - Release Date: 24/05/2008 08:56 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008  Rehenatoid arthritis is another autoimmune disease. have you been checked Lizzie to see whether you have antibodies to your thyroid. If so, this could account for your stiffness and aches. luv - Sheila Hi there Lizzie, the stiff joints could be rheumatoid arthritis this can creep up on you with out you being aware. and is one of the things that can go with hypothyroidism, so you should mentionthis to your doctor . he should be testing for rheumatoid factor or ANA antibodies.hope this helps -- angel. Sent from . A Smarter Email. No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.1/1464 - Release Date: 24/05/2008 08:56 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2008 Report Share Posted May 26, 2008 Hi Lizzie, I would suggest a RT3 & free T3 blood test, as a possibility would be that your body is not reacting well to the extra T4 suggesting a RT3 problem, which could make you feel more hypo after the increase than before. If the above is negative then hc may get rid of your pains. I used to have a job walking around the golf course & carried a "pain-gone" everywhere - literally I had about 5 of them in bags, car & golfbag, I was afraid to go anywhere without them, but now I use them about once every few months. Val > I wonder if anyone else has experienced my symptoms on increasing T4.> Just to refresh I am on T4 100mcg and T3 20mcg. It is now 4 weeks> since Dr B increased my T4 from 75mcg going on the following blood> results - T4 7.3 T3 4.7 TSH 0.1.> > My continual symptom has been thigh cramps and knee joint stiffness.> Before my last dose increase they came and went but weren't there> every day. Since my last dose increase they seem to be almost> constant, the thigh pains are awful and really getting me down. I> can't forget about being hypo because I have a constant reminder. I> don't know what to do now. I don't know if they are there because I> still am not on the correct dose, or if it because my body dosen't> like the T4 or if it is because I need more T3. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Hi Sheila and everyone I have today received a letter from Dr B following the email I sent to his secretary. As a reminder I have been on T4 100mcg for 5 weeks now increased from 75mcg and continue on T3 20mcg. My main and continuiung problem is thigh cramps and knee pains. Anyway he has said that following my recent history with palpitations to continue on the same dose of T3 but that I can increase my T4 to 125mcg and then he will see me in July and reassess then. I am quite pleased with this outcome as my T4 before the last increase to 100mcg was only 7.3 my T3 was 4.7 but if my T4 was so low I suppose it dosent leave very much to convert to T3 does it. I would welcome your thoughts as to whether you think this course of action may work. fingers crossed. Love Lizzie > I wonder if anyone else has experienced my symptoms on increasing T4. > Just to refresh I am on T4 100mcg and T3 20mcg. It is now 4 weeks > since Dr B increased my T4 from 75mcg going on the following blood > results - T4 7.3 T3 4.7 TSH 0.1. > > My continual symptom has been thigh cramps and knee joint stiffness. > Before my last dose increase they came and went but weren't there > every day. Since my last dose increase they seem to be almost > constant, the thigh pains are awful and really getting me down. I > can't forget about being hypo because I have a constant reminder. I > don't know what to do now. I don't know if they are there because I > still am not on the correct dose, or if it because my body dosen't > like the T4 or if it is because I need more T3. I have sent an email > asking Dr B's secretary about my next appointment and whether I can > have a dose increase or an earlier appointment because it isn't until > July 2 weeks before I am going on a family holiday to France. I so > wanted to be feeling better by then. > > Any words of encouragement would be gladly received. > > Thanks love Lizzie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2008 Report Share Posted June 4, 2008 Hi Sheila Yes I take 2000mg vit C daily, magnesium 300mg and a multi with 200mg selenium and 10mg zinc plus lots of other things too, also NAE I was down to 3 but have taken an extra one today to help with tonights dose increase of T4. Love Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2008 Report Share Posted June 7, 2008 Hi Lizzie, Looks promising! Subject: Re: Thigh cramps Hi Everyone My weight had been gradually increasing and then plateaued. However I feel that now there is a definite trend towards a weight loss, 5 weeks since T4 increase and I have consistently lost weight in the last 2 to 3 weeks amounting to about 3 pounds altogether, this is without doing anything different regarding exercise or diet. Love Lizzie ------------------------------------ Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.