I'm sorry

[Guest guest]

I agree, don't let Dawn put you down!

Everybody deals with this in a different way and everybody should have the

right to ask and express any questions. This is why it is called a support

group.

Godd luck to you!

Michou

[Guest guest]

Ken, yes, I'm starting to realize that I'm going to need to personalize this

" diet " a little. We are all different and we need to remember that. Thanks for

being supportive.

--------------------------------------------------------------

, Don't take what's being said personal. We all have our opinions and

different experiences and as such we can take them or leave them. I have done

enough research on my condition to know what is right for me. You need to do the

same for yourself. My only concern for all subscribers is that they do the same

and not jump at every thing that is posted. Like colonics, which can be very

dangerous. This should only be done under the most sterile conditions. Many

practitioners do not practice this way. You must be very careful of these

alternative procedures. Remember they are in it for the money and as such not

always with your best interests in mind. I had colonics for about 6 weeks and

when I told my doctor he sat me down and told me some story's that scared the

hell out me. I just wish to tell all subscribers to be very careful about what

they try.

Ken

[Guest guest]

Ditto!!!!!!

Afterall we've all subscribed to this because we need help and to learn

from others or at least , I have.

Diane

[Guest guest]

But Ken that brings up the big battle between traditional medicine and

alternative medicine. There are good ones and bad ones on both ends

however most traditional guys will tell negative horror stories no

matter how much these procedures are helping SOME people. They are

completely close minded to everything alternative.

[Guest guest]

Hi ,

I am sorry you were treated so bad. I don't share that persons sentiment. I

think you should post here anytime you want and ask as many questions as you

want. that is what this list is about.

The only stupid question is the question not asked.

Hang in there!

Best Wishes,

Ruby

[Guest guest]

Don't apologize, I for one get more from a longer post, I like hearing

the details. I don't know how you took having a doctor yell at you but I

must say, I would never put up with such a thing. Your dr Goldberg

sounds abit egotistical and I think YOU know what's right for your kid.

I mean, what's this guy seen him, 4 or 5 five times? I'd tell him, well,

you probably don't want to hear what I'd tell him but good luck to you

and I look forward to more of your updates.

Rhonda

Olivia's mom

[Guest guest]

I'd tell him, well,

> you probably don't want to hear what I'd tell him

Ron,

LOL - excellent! I second that.

So, why does anyone go to see this guy?

Jaci

[Guest guest]

For us, he functioned as a needed intermediary for labs that I wanted done, but

couldn't convince anyone else to run. Great Plains Labs. and others are great,

but I knew nothing about viruses, and there were several I suspected my son had.

We eliminated a lot of worry from the test results, which was good, and the

first two visits were fairly benign. He seemed on board with what we had done so

far, and was agreeing with me there was a yeast/fungal/bacterial, potentially

viral component to ph's illness. When he promised me a " cure " in four to six

months, well, you know that Jerry McGuire movie, " you had me at Hello " , yeah,

well, that was me. Once I discovered it was a herpes virus, well that redirected

the focus of my research, and that is when I realized the virus lodged because

ph's immune system was " already " out of whack. There are several " live "

viruses that have " accidentally " found themselves in the vaccines out there, due

to how they culture these things, and I thought that it was one of these viruses

that was the culprit. Hence, eliminating it, would begin the healing. However,

it was not one of these 3 viruses. Anyway, he served a purpose, and I didn't

allow him to " hurt " ph the way those UCLA doctors " hurt " ph. I do wish

I'd flown out to Dr. Megson first though. Her viral and vaccine knowledge could

have eliminated the same fears for me.

Re: I'm Sorry

I'd tell him, well,

> you probably don't want to hear what I'd tell him

Ron,

LOL - excellent! I second that.

So, why does anyone go to see this guy?

Jaci

[Guest guest]

Hi I understood completely what you meant in your previous e-

mail. I didn't think it was insulting.

Plagio in our kids bothers some parents more than others. In fact,

it was surprising to read that it was your doctor who expressed

concern and you weren't as worried - usually it's the other way

around, i.e. the peds don't seem bothered about it and they give

parents the impression that they are over-reacting.

Most of us don't want our kids to get teased in any way so yes, we

want them to 'fit in' appearance wise so I understand them using the

term " looking normal " . Also, crookedness can cause other issues

like the teeth/jaw to be missaligned as well as possible other

serious things like developmental delays. These things are all

still under investigation so to speak due to the number of plagio

cases which has become more common these last few years. I'm sure

you have received lots of information in more detail from other

members here. Good luck, Janice.

--- In Plagiocephaly , " dgcsmom " <lcjohnson@f...>

wrote:

> I sent an e-mail earlier today asking for information and

> recommendations about whether to put my newly adopted twin girls

> into helmets. It was brought to my attention that something I said

> in my post was offensive and insulting. I truly apologize--when I

> made the comment about my girls not looking like " monsters, " I

> certainly wasn't trying to imply that other kids with

plagiocephaly

> do look like monsters. In fact, I meant quite the opposite--I was

> rather offended at the doctor when they kept telling me that we

> needed to make our girls look more " normal. " To me, they look

> completely normal, whether or not their heads are perfectly round

or

> not. And the same holds true with all your beautiful children--

just

> because their heads aren't round doesn't mean they are

unattractive

> in any way. I felt like the doctors were indirectly telling me my

> girls (and, by extension, all children with plagiocephaly) were

> unattractive, and it got my hackles up. That's why I made the

> comment about my girls not looking like " monsters. " I truly didn't

> mean to imply anything else, and I'm sorry if my words offended

> anyone.

>

> Thanks to those who took the time to reply to my inquiry. This is

a

> very difficult decision for me, and I really appreciate getting

> other people's opinions and hearing about your experiences.

>

>

> lcjohnson@f...

[Guest guest]

Hi Chris…I

read your post and wanted to let you know that I didn’t find it offensive

or insulting at all. I completely got the gist that you were, in fact,

the one offended by the doctor trying to push the idea of them looking “normal”

as if they don’t already. I thought that your post was very clear

and I just wanted to let you know that. Good luck with your decision and

let us know what you decide to do.

Becky (’s

Mom) repo’ing in Pgh, PA

From: twolittleteeth

[mailto:twolittleteeth@...]

Sent: Thursday, May 13, 2004 10:51

AM

Plagiocephaly

Subject: Re: I'm sorry

Hi I understood completely what you meant in your previous e-

mail. I didn't think it was insulting.

Plagio in our kids bothers some parents more than

others. In fact,

it was surprising to read that it was your doctor

who expressed

concern and you weren't as worried - usually it's

the other way

around, i.e. the peds don't seem bothered about it

and they give

parents the impression that they are

over-reacting.

Most of us don't want our kids to get teased in

any way so yes, we

want them to 'fit in' appearance wise so I

understand them using the

term " looking normal " . Also,

crookedness can cause other issues

like the teeth/jaw to be missaligned as well as

possible other

serious things like developmental delays.

These things are all

still under investigation so to speak due to the

number of plagio

cases which has become more common these last few

years. I'm sure

you have received lots of information in more

detail from other

members here. Good luck, Janice.

--- In Plagiocephaly ,

" dgcsmom " <lcjohnson@f...>

wrote:

> I sent an e-mail earlier today asking for

information and

> recommendations about whether to put my newly

adopted twin girls

> into helmets. It was brought to my attention

that something I said

> in my post was offensive and insulting. I

truly apologize--when I

> made the comment about my girls not looking

like " monsters, " I

> certainly wasn't trying to imply that other

kids with

plagiocephaly

> do look like monsters. In fact, I meant quite

the opposite--I was

> rather offended at the doctor when they kept

telling me that we

> needed to make our girls look more

" normal. " To me, they look

> completely normal, whether or not their heads

are perfectly round

or

> not. And the same holds true with all your

beautiful children--

just

> because their heads aren't round doesn't mean

they are

unattractive

> in any way. I felt like the doctors were

indirectly telling me my

> girls (and, by extension, all children with

plagiocephaly) were

> unattractive, and it got my hackles up.

That's why I made the

> comment about my girls not looking like

" monsters. " I truly didn't

> mean to imply anything else, and I'm sorry if

my words offended

> anyone.

>

> Thanks to those who took the time to reply to

my inquiry. This is

a

> very difficult decision for me, and I really

appreciate getting

> other people's opinions and hearing about

your experiences.

>

>

> lcjohnson@f...

For more

plagio info

[Guest guest]

>

> Dear & members of BPES group,

> I am a human being that is very passionate about issues that

concern myself, my daughter and others. By writing that BPES is a

gift, I did not mean it as something that everyone should want to

have. It has not been fun for my daughter or myself. I guess what I

wrote could be considered " not politically correct " . Bad choice of

words? I try to lighten my own circumstance with positive words

because if I didn't I personally would get ground up and spit out.

If I offended anyone on this site, I truly apologize. I respect all

views and all people. I will be careful if I choose to write again.

Most Sincerely,Terry

>

>

> ---------------------------------

> for Good - Make a difference this year.

>

Hi Terry,

No offense taken at all.

Smile, a

[Guest guest]

Hi Terry

I have been catching up on all the messages and would just like to

say that I didn't find your message in any way offensive. We all

have our own way of dealing with the issues in our lives and I for

one am interested to your share your views.

I truly hope that you aren't put off from writing to the group again.

Very Best Wishes

Donna Vann

> >

> > Dear & members of BPES group,

> > I am a human being that is very passionate about issues

that

> concern myself, my daughter and others. By writing that BPES is a

> gift, I did not mean it as something that everyone should want to

> have. It has not been fun for my daughter or myself. I guess

what I

> wrote could be considered " not politically correct " . Bad choice

of

> words? I try to lighten my own circumstance with positive words

> because if I didn't I personally would get ground up and spit

out.

> If I offended anyone on this site, I truly apologize. I respect

all

> views and all people. I will be careful if I choose to write

again.

> Most Sincerely,Terry

> >

> >

> > ---------------------------------

> > for Good - Make a difference this year.

> >

> Hi Terry,

>

> No offense taken at all.

> Smile, a

>

[Guest guest]

I agree, Terry, I wasn't offended at all. I hope

you'll stay with us.

April

--- vann_donna <vann_donna@...> wrote:

> Hi Terry

>

> I have been catching up on all the messages and

> would just like to

> say that I didn't find your message in any way

> offensive. We all

> have our own way of dealing with the issues in our

> lives and I for

> one am interested to your share your views.

>

> I truly hope that you aren't put off from writing to

> the group again.

>

> Very Best Wishes

> Donna Vann

>

>

>

> > >

> > > Dear & members of BPES group,

> > > I am a human being that is very

> passionate about issues

> that

> > concern myself, my daughter and others. By

> writing that BPES is a

> > gift, I did not mean it as something that everyone

> should want to

> > have. It has not been fun for my daughter or

> myself. I guess

> what I

> > wrote could be considered " not politically

> correct " . Bad choice

> of

> > words? I try to lighten my own circumstance with

> positive words

> > because if I didn't I personally would get ground

> up and spit

> out.

> > If I offended anyone on this site, I truly

> apologize. I respect

> all

> > views and all people. I will be careful if I

> choose to write

> again.

> > Most Sincerely,Terry

> > >

> > >

> > > ---------------------------------

> > > for Good - Make a difference this year.

> > >

> > Hi Terry,

> >

> > No offense taken at all.

> > Smile, a

> >

>

>

>

>

>

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

[Guest guest]

I wasn't offended that you look at it as a gift, I hope you didn't

think I was. I think we all look at it differently because we are

different, is basically what I was trying to say. I also think, it's

different your daughter is a grown woman whom you are so proud of,

of course everything about her is a gift, versus when the babies are

newborns and so much is uncertain(it's scary). See it's all a point

of view, circumstances etc.,

Some people might call it, " a silver lining in a cloud " or all the

books people have written about an illness or obstacle that ended up

being a " gift " of one sort or another.

Don't worry!

> > > >

> > > > Dear & members of BPES group,

> > > > I am a human being that is very

> > passionate about issues

> > that

> > > concern myself, my daughter and others. By

> > writing that BPES is a

> > > gift, I did not mean it as something that everyone

> > should want to

> > > have. It has not been fun for my daughter or

> > myself. I guess

> > what I

> > > wrote could be considered " not politically

> > correct " . Bad choice

> > of

> > > words? I try to lighten my own circumstance with

> > positive words

> > > because if I didn't I personally would get ground

> > up and spit

> > out.

> > > If I offended anyone on this site, I truly

> > apologize. I respect

> > all

> > > views and all people. I will be careful if I

> > choose to write

> > again.

> > > Most Sincerely,Terry

> > > >

> > > >

> > > > ---------------------------------

> > > > for Good - Make a difference this year.

> > > >

> > > Hi Terry,

> > >

> > > No offense taken at all.

> > > Smile, a

> > >

> >

> >

> >

> >

> >

>

>

>

>

> __________________________________________

> DSL – Something to write home about.

> Just $16.99/mo. or less.

> dsl.

>

[Guest guest]

Dear Terry,

Thank you for your response to my posting. I didn't find what you

said about BPES being a gift offensive. Actually I thought what you

wrote was poetically written. We all have gifts. Gifts from our

parents who brought us into this world. Gifts from God for making

us different in the ways we look, sound, and feel. And be thankful

that we only have BPES instead of some life threatening disorder.

So that fact alone, BPES is indeed a poetic gift.

No parent wishes problems onto their child. All parents want to

have a " perfect, normal " child. But like beauty, those things are

in the eye of the beholder.

So yes, having BPES is a gift, a poetic one. It's a gift from our

parents. God's gift for making us more unique and more beautiful.

And with it, it carves a pathway that is unique and individualized

for us small eyed folks where no big eyed folks could ever

experience.

>

> Dear & members of BPES group,

> I am a human being that is very passionate about issues

that concern myself, my daughter and others. By writing that BPES

is a gift, I did not mean it as something that everyone should want

to have. It has not been fun for my daughter or myself. I guess

what I wrote could be considered " not politically correct " . Bad

choice of words? I try to lighten my own circumstance with positive

words because if I didn't I personally would get ground up and spit

out. If I offended anyone on this site, I truly apologize. I

respect all views and all people. I will be careful if I choose to

write again. Most Sincerely,Terry

>

>

> ---------------------------------

> for Good - Make a difference this year.

>

[Guest guest]

I was not offended Terry. Please continue to write to the group. Allow me to say from what i am hearing these children handle their disabilites and othes better than most. april Eisele <aprileisele@...> wrote: I agree, Terry, I wasn't offended at all. I hopeyou'll stay with us. April--- vann_donna <vann_donna@...> wrote:> Hi Terry > > I have been catching up on all the messages and> would just like to > say that I didn't find your message in any way> offensive. We all > have our own way of dealing with the issues in our> lives and I for > one am interested to your share your views.> > I truly hope that you aren't put off from writing to> the group again.> > Very Best

Wishes > Donna Vann> > > > > >> > > Dear & members of BPES group,> > > I am a human being that is very> passionate about issues > that > > concern myself, my daughter and others. By> writing that BPES is a > > gift, I did not mean it as something that everyone> should want to > > have. It has not been fun for my daughter or> myself. I guess > what I > > wrote could be considered "not politically> correct". Bad choice > of > > words? I try to lighten my own circumstance with> positive words >

> because if I didn't I personally would get ground> up and spit > out. > > If I offended anyone on this site, I truly> apologize. I respect > all > > views and all people. I will be careful if I> choose to write > again. > > Most Sincerely,Terry> > > > > > > > > ---------------------------------> > > for Good - Make a difference this year.> > >> > Hi Terry,> > > > No offense taken at all.> > Smile, a> >> > > > > __________________________________________ DSL – Something to write home about. Just $16.99/mo. or less. dsl.

[Guest guest]

Hi, Amber:

Not a problem! You can't force people not to have surgery. When I went to

the hospital with pancreatitis before I had my surgery, I had two small

gallstones stuck in my bile duct. One was causing the backup of bile into my

pancreas. I had tried to cleanse those suckers out two times, and both times

they wouldn't come out. They were my last two stones too. I did manage to

save

my GB from 2000 to 2003.

Anyway, I had passed one in the hospital, apparently. Didn't even know it,

but the other one moved away from my pancreas, so my jaundice went away. Then

they did an ERCP and a doctor (he was a jerk too) went sweeping for it.

Finally found that little sucker. Anyway, my GB was clean, no stones. That

doctor accused me of being into witchcraft because of the cleanses. Imagine

that! He was a idiot.

BUT here was the problem. For some reason my GB was extended. Even the

doctor didn't know why. I didn't either. The main reason that I decided on

removal was this, the GB walls had thickened. That can mean one of two things:

either pre-cancer condition; or two, just terribly irritated. Either way I

had no way of knowing. Then I thought about my poor husband. He was a mental

wreck thinking that I was going to die right then. I knew this was wearing

on him terribly, so I decided to go ahead and get it done, removed. He stayed

with me throughout my hospital stay. He even went to Wal-Mart and bought a

little blowup bed.

Well, my surgeon happened to be a very decent man and a very good surgeon.

He told me the day before the surgery that he wouldn't know whether he could

do the easier surgery or not until he looked around in there because I had

been so ill from the infection that he may have to do the major surgery. When

he looked around, it wasn't as bad as he had thought. I thank Yahweh's

guiding hand on that. I didn't have any problems at all with the surgery, and I

have known a person who had severe problems before who spent a month in ICU

because when a surgeon did her surgery, he nicked a bile duct, just a tiny

place, and it caused severe leakage of bile all throughout her body. She was a

young gal, had kids. It took a while before they could figure it all out to

fix her.

So basically that's what happened. For anyone I would say try to save your

GB. I didn't cleanse for a year because I started taking Beta-TCP when I

ate and it stopped my digestion problems. Had I gone ahead and cleansed, then

my problems may not have happened. I was eating healthy, just didn't

cleanse. But it was those last two little stones that messed me up.

Otherwise, my

GB was finally clear from cleansing. Now I can't enjoy food like I used to.

I can't eat much at one time, so I eat little amounts throughout the day,

which is probably healthier. At first I couldn't digest my salads. I guess it

was the lettuce. And I love salads! Now I can eat them. I take digestive

enzymes. I think that bile always dripping fills you up faster. You get

really hungry, then can't hardly eat. That's what one of my cousins told me.

His wife doesn't have a GB either.

Susie

************************************** See what's free at http://www.aol.com.

[Guest guest]

I'm sorry if my previous response came through as harsh. I just have learned

how important an organ the GB is and that people need to do what they can to

save it, if possible. I know there are situations where that simply is not

possible. I got frustrated because she was just determined to have the surgery

and didn't appear to take to heart any advice that so many people offered. I am

extremely involved in helping people to live a healthier life without drugs,

surgery, etc. So I simply gave up and said go ahead, you'll be sorry later.

I've known a few people personally who had the surgery and they do regret it.

And there's no do-overs, no going back. So I felt that anyone so bent on

surgery really should be seeking information from a group of people who have

gone through it, not a group of people doing all in our power to avoid surgery.

As I said, I have not looked for such a group, but surely there must be one.

But I do apologize for losing my cool. I'm not normally like that.

Amber

I had a hard time finding gallbladders groups when I looked BUT I do like

the way you worded this. Not that I'm the editor here or anything. It

was much nicer though.

.

[Guest guest]

I can only imagine that progressing to a jaundiced condition was very

frightening. Witchcraft! Holy cow. I hope you have found another doctor by now.

Yes, eating small amounts but frequently is probably better for people. I know

it helped me lose 55 pounds

Hi, Amber:

Yeah, I know, witchcraft because of how we mix our recipe, the olive oil,

grapefruit juice to drink to do the cleanse. Little did that idiot know that

this has been around for many, many years. Not necessarily with the

grapefruit juice, but basically, I mean. People have been doing this for a

long time.

I didn't pick this doctor, though. He was just there. We have no

insurance, so I had to take what I got. The only decent people there were the

nurses

and the surgeon who did my surgery. And I didn't say anything to him

because (a) I was in horrible pain at the time; ( I was thankfully on pain

meds;

© it was just too stupid for me to bring myself down to his fossilized,

pea-sized brain level and offer a response to him.

Many of these guys can't think for themselves. They have this little line

drawn for them to stay in when they go to medical school, and the AMA pushes

it. If you think outside the box, then you're a heretic, a quack. However,

there are decent doctors out there and there will be more on the way because

many are starting to realize the error of the ways they've been taught and the

fact that all those overpriced things they call medicine are killing people

and don't really offer any help to anyone if they don't kill you first.

Susie

************************************** See what's free at http://www.aol.com.

[Guest guest]

I can only imagine that progressing to a jaundiced condition was very

frightening. Witchcraft! Holy cow. I hope you have found another doctor by

now. Yes, eating small amounts but frequently is probably better for people. I

know it helped me lose 55 pounds.

Amber

so my jaundice went away. ... That

doctor accused me of being into witchcraft because of the cleanses.

Now I can't enjoy food like I used to.

I can't eat much at one time, so I eat little amounts throughout the day,

which is probably healthier.

Susie

.