Dale

[Guest guest]

Sassy, To respond to your comment about DENIAL. It is a great place I have

been there for seven years and just now have finally come to terms with my

daughters health and to a point I still don't want to face it. It is very hard

to watch your child go through something that you can't fix you can' help, you

cna't change anything and you can't do for them. Thank you Chrisitna hayworth

Mommy too Katelyn and Kelsey Hayworth (Twins with CVID)

SassyKay418@... wrote: Hi Dale,

I think sometimes denial is highly underrated. It can serve a useful

purpose--Katy will come to terms with things at her own pace. Apparently,

she prefers the gradual approach for now. It must be so hard to sit back and

do nothing!

Sandi, 's Mom

[Guest guest]

Dale, I was praying for Katy and it hit me that regarding her health, I

really don't think the problem is that she is in denial about being ill.

I think it is more a control issue. Sometimes with my fibromyalgia and

with dealing with Kody's stuff, I feel so frustrated because I can't

control my health or Kody's health. It is something that is not really

controllable. We like to think it is, because we do what we can to

control it. But really with the way PID's just are, they are prit near

impossible to control. Now in Katy's mind, you controlled it before,

and the doctors controlled it. She wants to control it herself. What she

hasn't realized is, that it simply can't be controlled. I have a very

dear sister of my heart that is what I call a control freak. She has to

be the one to drive, she has to be the one organizing things, she is

even a high school teacher which fits her to a tee, and she has to be

the one to make decisions. Now last year her Dad died of cancer. As hard

as that is for anyone to go through, Barb especially had a hard time.

She couldn't control it no matter how hard she tried. And it sounds to

me like Katy is a bit of a control freak too. I think that through trial

and error (I know it is the error you worry about!) she will finally

figure out that the only way to even begin to control her PID is to get

her behind to the doctor asap over things and do what they tell her to

do! Right now, her way of controlling it is to say " I'll go when I am

good and ready to go! " . Anyhow, I guess what I am trying to say at the

crack of dawn (I'm getting ready to go into work at McD) is that

approaching her like she is in denial might be the wrong approach....but

approaching her with ideas on how she can actively control it herself

might be alittle more receptive to her. Does that makes sense at all????

Diane, Mom to Kody

[Guest guest]

Good thoughts -- I know she's just so angry at being sick that she's paralyzed

to do what is necessary. If I really knew what was going on inside her head

-- I think I could figure out how to approach her -- but she's stonewalling

us. Today -- I'm content. She let me hug her once and that means that

everything in my world is okay! Crazy parenting, isn't it!!!

dale

Diane Schmidt wrote:

>

> Dale, I was praying for Katy and it hit me that regarding her health, I

> really don't think the problem is that she is in denial about being ill.

> I think it is more a control issue. Sometimes with my fibromyalgia and

> with dealing with Kody's stuff, I feel so frustrated because I can't

> control my health or Kody's health. It is something that is not really

> controllable. We like to think it is, because we do what we can to

> control it. But really with the way PID's just are, they are prit near

> impossible to control. Now in Katy's mind, you controlled it before,

> and the doctors controlled it. She wants to control it herself. What she

> hasn't realized is, that it simply can't be controlled. I have a very

> dear sister of my heart that is what I call a control freak. She has to

> be the one to drive, she has to be the one organizing things, she is

> even a high school teacher which fits her to a tee, and she has to be

> the one to make decisions. Now last year her Dad died of cancer. As hard

> as that is for anyone to go through, Barb especially had a hard time.

> She couldn't control it no matter how hard she tried. And it sounds to

> me like Katy is a bit of a control freak too. I think that through trial

> and error (I know it is the error you worry about!) she will finally

> figure out that the only way to even begin to control her PID is to get

> her behind to the doctor asap over things and do what they tell her to

> do! Right now, her way of controlling it is to say " I'll go when I am

> good and ready to go! " . Anyhow, I guess what I am trying to say at the

> crack of dawn (I'm getting ready to go into work at McD) is that

> approaching her like she is in denial might be the wrong approach....but

> approaching her with ideas on how she can actively control it herself

> might be alittle more receptive to her. Does that makes sense at all????

> Diane, Mom to Kody

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

>

>

[Guest guest]

Good thoughts -- I know she's just so angry at being sick that she's paralyzed

to do what is necessary. If I really knew what was going on inside her head

-- I think I could figure out how to approach her -- but she's stonewalling

us. Today -- I'm content. She let me hug her once and that means that

everything in my world is okay! Crazy parenting, isn't it!!!

dale

Diane Schmidt wrote:

>

> Dale, I was praying for Katy and it hit me that regarding her health, I

> really don't think the problem is that she is in denial about being ill.

> I think it is more a control issue. Sometimes with my fibromyalgia and

> with dealing with Kody's stuff, I feel so frustrated because I can't

> control my health or Kody's health. It is something that is not really

> controllable. We like to think it is, because we do what we can to

> control it. But really with the way PID's just are, they are prit near

> impossible to control. Now in Katy's mind, you controlled it before,

> and the doctors controlled it. She wants to control it herself. What she

> hasn't realized is, that it simply can't be controlled. I have a very

> dear sister of my heart that is what I call a control freak. She has to

> be the one to drive, she has to be the one organizing things, she is

> even a high school teacher which fits her to a tee, and she has to be

> the one to make decisions. Now last year her Dad died of cancer. As hard

> as that is for anyone to go through, Barb especially had a hard time.

> She couldn't control it no matter how hard she tried. And it sounds to

> me like Katy is a bit of a control freak too. I think that through trial

> and error (I know it is the error you worry about!) she will finally

> figure out that the only way to even begin to control her PID is to get

> her behind to the doctor asap over things and do what they tell her to

> do! Right now, her way of controlling it is to say " I'll go when I am

> good and ready to go! " . Anyhow, I guess what I am trying to say at the

> crack of dawn (I'm getting ready to go into work at McD) is that

> approaching her like she is in denial might be the wrong approach....but

> approaching her with ideas on how she can actively control it herself

> might be alittle more receptive to her. Does that makes sense at all????

> Diane, Mom to Kody

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

>

>

[Guest guest]

from Dale, Mom to Katy

Maurita, You are amazing! I appreciate your help, but I could never ask the

Mother of 5 kids to take care of my one! I'm going to take her back tomorrow

and she's planning on talking to the disabilities counselor on Monday about

dropping some classes this semester and what can be done about missing for

doctor's appointments, etc. Her doctor still hasn't called back regarding the

sinus scan, so hopefully, he'll call on Monday. We'll decide then how

urgently she needs to be seen by an immunologist -- hopefully, they will agree

to see her. She's already had a work-up at UCLA pediatric immunology

department, so I'm hoping that will be her ticket in. But our insurance will

not pay for that doctor and Katy wasn't willing to work with him since he

treated her like a pediatric patient and demanded to see her mommy!

Anyway, I'm packing to leave. I'm going to pack your phone number this time,

I may get some free time to visit.

Thanks for the offer -- it's so great to have friends that I can call on if

there ever is that emergency call in the middle of the night!

In His service,

Dale

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to: /messages

>

>

[Guest guest]

from Dale, Mom to Katy

Maurita, You are amazing! I appreciate your help, but I could never ask the

Mother of 5 kids to take care of my one! I'm going to take her back tomorrow

and she's planning on talking to the disabilities counselor on Monday about

dropping some classes this semester and what can be done about missing for

doctor's appointments, etc. Her doctor still hasn't called back regarding the

sinus scan, so hopefully, he'll call on Monday. We'll decide then how

urgently she needs to be seen by an immunologist -- hopefully, they will agree

to see her. She's already had a work-up at UCLA pediatric immunology

department, so I'm hoping that will be her ticket in. But our insurance will

not pay for that doctor and Katy wasn't willing to work with him since he

treated her like a pediatric patient and demanded to see her mommy!

Anyway, I'm packing to leave. I'm going to pack your phone number this time,

I may get some free time to visit.

Thanks for the offer -- it's so great to have friends that I can call on if

there ever is that emergency call in the middle of the night!

In His service,

Dale

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to: /messages

>

>

[Guest guest]

, the free T4 was at 0.56 in February with normal being between 0.7 to

1.9. And her TSH was 2.01. Whereas back in April of 2000 her freeT4 was 1.0

and her TSH was only 0.63. That to me is a significant change! But.....

He indicated that she has a lot of anti-thyroid antibodies so he suspects

autoimmune attack, but the immunologist has already told her that that could

not be proven since she gets IVIG which could contain anti-thyroid antibodies

from donors. That's another thing that made her doubt his ability to treat

her -- since he didn't realize that could be coming from IVIG.

I wasn't there and she wasn't talking much except to say that he didn't feel

she needed intervention -- she had to get worse before he would treat.

Hopefully, she'll call the immunologist back and start fighting that way

because the immunologist wouldn't up her IVIG dosage either even though it is

low (for her) also.

I think the major trouble is that Katy minimizes all of her complaints -- as a

typical chronically ill person does. She won't complain and then she gets

totally frustrated because these doctors don't read between the lines. She

refuses to complain and always " looks " super good. Her pediatrician learned

to listen carefully and multiply any complaint by 10! These new doctors have

no idea who they are dealing with!

It will take time, but she's still fighting, so there's hope. Hopefully,

we'll find a primary care doctor who will take her seriously.

Thanks so much for your help. This is a whole new field for me. Do you know

WHY there would be any problem with giving thyroid too early? I mean, my

research has shown that some doctors treat in the low normal range just to

improve quality of life. So what's the problem here?

Katy reacts so strongly because 5 years ago after 2 years of being practically

bed-fast the doctors at UCSF told her she would have to get worse before she

qualified for IVIG. So, having to drop out of her college choir and drop

classes down to 12 hours and miss out on most of the parties and fun and then

being told she has to get sicker before they'll treat was a major blow! This

has really put a damper on her freshman experience. But..... God has a plan

and I know she'll get help eventually. It's so hard when my hands are tied,

but the process of her taking charge of her medical care is good. Now she can

see what a hassle it is and she's a little more appreciative.

Gotta get to bed. Praying for your two little ones. I'm praying that the new

GI lets you know something on Monday. Hang in there.

In His service,

Dale

>

> What exactly was 0.6? Was that the T3 or T4 or?

>

> Did the endocrinologist explain to Katy what his reason behind waiting was?

And have they looked for auto immune reasons behind the low levels? (ie auto

antibodies).

> You must be soooooooo frustrated! Katy too. And understandably!

>

> Hey, but CONGRATULATIONS on the news of your sons' engagement. How cool you

were able to play a part in it!

>

>

>

>

[Guest guest]

Dale, You might want ot spend a little time looking at Hashimotos Syndrome

which is the Autoimmune aspects of hypothyroid. ( mine is not related, my

hypothyroid currently appears to be pituitary) One of the concerns is immune

dysfunction and depression etc. If you believe Katy is depressed you may

need to help her by intervening in a concrete discussion about what she needs

to do. I had an experience about 2 years ago with a friend who was severely

hypothyroid who became very ill with fluid effusions in the gut and in the

lungs and kept getting infections because she was hypothyroid. She was also

very depressed. I finally intervened because no one was getting it. I

encouraged her to go to a Natropath so that she could get some screening and

she came back with Hashimotos syndrome. The issue is Katy may be too sick to

know what to do. She may balk but once she starts feeling better she will

thank you. My .02 cents. BARBIE

[Guest guest]

Hi Dale~~

I think I'm with Barbie. Being one with Hashimoto's myself, I know the HUGE

difference in the way I feel now as compared to the way I felt before

medication. Two things came to mind when I read your letter. One was the fact

that SO many doctors treat solely on the tsh results, (I was surprised they

even checked her T4)! If the number isn't out of range, a lot of doctors

won't bother to treat, though most people who have Hashimoto's find they feel

their best when their tsh is between 1and 2. The other thing I wondered is if

Katy is the type who minimizes her symptoms, and then you wrote and said she

is. If she went in there and down-played everything, and then had a doctor

who was mainly looking at her tsh, that may be why he decided to " wait " . I

know you're trying to give Katy respect and independence in her health care

issues, but if there's any way to get things moving along, I sure would. My

main symptoms before treatment were extreme fatigue, and horrible brain fog.

I couldn't seem to ever even finish a sentence. I also had bad heartburn, and

would burp up food I'd eaten hours before, (I found that was because when you

have hypothyroid, everything slows down, including stomach-emptying times).

Then of course there were the awful moods, and crying, but I think you get

the picture. I hope you can help Katy get treated sooner than later since it

takes a few months to really get regulated once you start on meds. Good

luck!!

Belinda

Lacey's mom, (15, CdLS, IgG deficiency)

Pittsburg, CA

<A HREF= " http://www.cdls-support.org/family/aug2001/index.html " >CdLS OSG:

Featured Family of August 2001</A>

[Guest guest]

Hi Dale,

I hope you don't mind me jumping in here. I have had hypo

thyroid for years and so has my dad. May I suggest an an

Endocrinologist(if that is not who she saw). It can be an awful

thing living with it if it is not controlled. I have a HUGE problem

with my hair thinning in the front, even though my thyroid is

regulated. Katy does not want to be having that problem at her

age!!! The exhaustion and weight ptroblems are tough enough!!!My dad

was using Kelp and it sraightened his out. I have not gotten around

to checking it out myself. If no dr.s will treat her it may be an

option to look into but would strongly suggest doing your homework

on it first and maybe talk to a knowledgeable natural food person

first. there may be some info on it as to whether or not it is safe

for use where there may be a possible autoimmune problem.I would at

least try it in small doses to at least give her some relief. It is

a problem to just regulate it and it will at times go up and down on

its own, mine does all the time. L-Tyrosine (amino acid) also helps

with thyroid function, I take that all the time, it is a natural

relaxant too!!! Just my humble opinion for what it's worth!!

I will keep Katy in my prayers!!

[Guest guest]

,

Well I was sorry to hear about that horrible mix up. But, is still

in our prayers. Let us know the knew date.

Belinda Rose,

Mom to Allyssa and Cassie (8), igg immunodeficient, asthma, sinusitis, IVIG

for 6 years, heart condition

[Guest guest]

" the knew date. "

,

I meant let us know the New date...not knew.

(lack of sleep) : )

Belinda

[Guest guest]

Hi,

Just a quick question: when IgA Deficiency is combined with an IgG subclass

deficiency is this considered CVID or does overall IgG have to be low?

Anne R.

[Guest guest]

from Dale, Mom to Katy, CVID, age 19

Anne, I think that's a debatable question that some doctors go one way

and other doctors go another. I've heard it called IgG subclass

deficiency and CVID. But, it's not really " just " subclass deficiency,

because you've got the IgA problem to go with it.

But, regardless of what you call it, getting the subclass numbers gives

you a better picture of what the dangerous areas are for treatment.

Now the 4 subclasses all overlap but are basically specific to

particular kinds of germs. I can't remember which is which and which

ones they consider a " must " for IVIG -- but some cover parasites and

fungus, while others protect against the bacterias, while another is

more targeted to virus -- but they all somewhat overlap and there's

certain ones that if that's the only low number you have -- they just

ignore it. But, then there's others that if that one is low, they

generally treat with IVIG because it's going to lead to trouble. Now,

a lot of doctors just want to look at total number of IgG. But the

problem with that is that when one subclass is missing, the other

subclasses try to increase and cover that deficiency -- so the total

number of IgG can look good -- even when there's a hole in the protection.

Also an interesting note -- when you get your subclasses checked -- they

won't add up to the total IgG count -- because there's more subclasses

out there that have not been identified! So, don't worry if it doesn't

add up to the total.

Hope that helps.

> a quick question: when IgA Deficiency is combined with an IgG subclass

>deficiency is this considered CVID or does overall IgG have to be low?

>

>

>

[Guest guest]

Thanks, Dale!

Anne R.

[Guest guest]

What is the difference between Hypogam and CVID? Because somethings I read

says there is no difference, some says there is? Any idea?

Dayna

[Guest guest]

That's fine -- but recognize that I am not a doctor -- just a Mom with a

medical background trying to figure things out!

In His service,

dale

NSUrunningmom@... wrote:

>Thanks for the ifo...would you mind if I pass this explanation along?

>

>pattie

>

>

>

[Guest guest]

That's fine -- but recognize that I am not a doctor -- just a Mom with a

medical background trying to figure things out!

In His service,

dale

NSUrunningmom@... wrote:

>Thanks for the ifo...would you mind if I pass this explanation along?

>

>pattie

>

>

>

[Guest guest]

In a message dated 2/28/2004 3:30:01 AM Pacific Standard Time,

writes:

It was an exciting conference. It opened my eyes to many of the

problems that you guys have discussed in trying to secure disability,

but it also gave me a good feeling to know that we were heard. Whether

there are substantial results -- that remains to be seen. We'll have to

wait and see. But, we were heard!

Hope that helps to encourage someone today,

In His service,

Dale

Dale,

Thanks for the update!! I wondered how it went! I talked to Vogel

from IDF who I believe was going to that conference. She wanted to use Kody's

SSI story in her presentation, LOL, I even sent her pictures to use! I didn't

realize you were going too. I think that this will be awesome for PID patients

adult and children alike. Wish it wouldn't take so long to implement, but at

least change is happening.

Diane, mom to Takoda, A.K.A. Kody, age 8, Di Syndrome,

Hypogammaglobulinemia, Seizure Disorder, Asthma, GERD, Chronic Encopresis,

cognitive

regression, CAPD, and all around really great kid! Also mom to Arika age 16,

Kaila age

12 (asthma), and Sami age 10 (dyslexic). Check out my website at:

www.geocities.com/schmidtzoo/SNAK

[Guest guest]

from Dale, Mom to Katy, CVID, age 19

Diane thank you, thank you, thank you -- I was going to say that -- and

I forgot. I did not mean to lessen Kody's contribution!!!! ,

the speaker from the national office of IDF gave an overview of immune

deficiencies and the problems we were having getting disability

coverage. She showed Kody's picture and told his story!!!! So, yes,

Kody did his part, too. It was very evident that there's " problems "

when they heard his story!!!! Sorry, I left that out. And the picture

was adorable! She also used the story of a young man transitioning

from 18 to 24 years of age and the problems he was having - but I didn't

catch his name.

In His service,

Dale

SNAKpackmomma@... wrote:

>Dale,

>Thanks for the update!! I wondered how it went! I talked to Vogel

>from IDF who I believe was going to that conference. She wanted to use Kody's

>SSI story in her presentation, LOL, I even sent her pictures to use! I didn't

>

>

[Guest guest]

from Dale, Mom to Katy, CVID, age 19

Dawn, the way I heard it is that some people do get approved -- but it's

a royal fight to do so until these new changes go into affect. However,

they claim that something like 170, 000 people with Immune Deficiency

related diseases are on disability. It's much harder to get a child on.

BUT.... the place to start is with a patient advocacy group.

I was very impressed with a gentleman I men from A.C.C.E.S.S.

" Advocating for Chronic Conditions, Entitlements and Social Services. "

He really knew the laws and what applied where. The web site I have

for them is: www.gentiva.com/access/ and the telephone number I have

is 888-700-7010. IF that is not their current number -- please e-mail

me and I WILL locate a current number for you. I am getting this out of

a 3 year-old book and I hope it's still current.

There are families on this site that have experience, so if you feel

your child would qualify -- it never hurts to start the paperwork

rolling. It's very muddy water right now as to who qualifies and who

doesn't -- so, all you can do is try.

Hope that helps.

In His service,

Dale

Dawn Souza wrote:

>HELLO, MY NAME IS DAWN SOUZA AND I HAVE A 2 YEAR OLD BOY (MITCHELL) WITH

>HYPOGAMMAGLOBULINEMIA AND HAS NOT RECEIVED IVIG YET BUT ARE WELL ON OUR

>WAY BY NEXT MONTH. HOW DO I KNOW IF HE CAN GET SS I DIDN'T EVEN KNOW WE

>COULD APPLY?? THANKS TO DALE WHO WENT TO THE MEETING BECAUSE I REALLY

>DON'T KNOW WHAT'S OUT THERE. HOW DO I E-MAIL? DIRECTLY OR THROUGH THE

>GROUP WEB SITE? DAWN SOUZA AND CONFUSED

>

>

[Guest guest]

from Dale, Mom to Katy, CVID, age 19

Jan, I'm sorry I've taken so long to respond. Katy's home for Spring

break and I'm having a blast with her. I had never considered

disability from Social Security, but apparently that's the route that is

recommended. This is our plan for right now. Katy is covered on

's insurance until she turns 23 as long as she takes a full load of

classwork at college. So.... if she ever gets sick and has to drop out,

we'll switch to Cobra which will cover approximately 3 years -- and she

will begin the paperwork for disability immediately - because it

sometimes takes 2 or 3 years to get it. (Hopefully, that will be changing)

But, if she can make it through graduation, then we'll use Cobra to see

if she can get a decent job that covers her insurance. Because a lot of

beginning jobs don't cover well or don't start coverage until 6 months

or a year later. There's also the BIG problem of pre-existing

conditions that some insurances won't cover.

Cobra is a national plan that guarantees that your child can continue

with his complete coverage of insurance when he no longer qualifies on

his parents. BUT YOU HAVE TO PAY BIG BUCKS FOR IT!!!!!!!!! It comes

totally out of your pocket. But, it does guarantee that the insurance

is available to him. (COBRA is also available to people who lose their

jobs - it's a transitional insurance that covers a few months - but you

have to pay for it yourself.)

Social Securities position is that all of our kids should file just

before they turn 18 so that IF they need it, they will already be in the

system. I don't know about that -- and Katy has chosen not to --

primarily because she's too busy to fool with it.

One of the people that has been most helpful to us in trying to set up a

plan was: Bill (sorry I can't remember his last name) at A.C.C.E.S.S.

telephone 888-700-7010. (Advocating for Chronic Conditions,

Entitlements and Social Services) Assists families with social and

economic problems that can develop when treating a chronic medical

condition, such as PID.

I met him at the Social Security meeting that I attended for IDF and he

was able to quickly outline a plan that looked good for us. And I felt

he was incredibly knowledgeable about how to make it all work!

I recommend that you call A.C.C.E.S.S. right now and just discuss your

concerns. They are non-profit, so there's no fee. They can tell you

whether there's something you can do right now, or whether you need to

make a " plan " for what you will do when. There's no way that and

I could help Katy more than a few months if she's off insurance. It

would wipe us out. So, it's good to know that disability is a

possibility if she becomes ill and can't work or go to school.

Hope that helps. Let me know if you have further questions. I'll try

to help.

In His service,

Dale

Jan wrote:

>I have an issue that I think about a lot and wanted to ask you about. I worry

about my son being able to afford the IVIG as a young adult. We have excellent

insurance coverage for him through his father's job and we are so thankful for

it. Do you know if the young people are finding jobs with insurance that will

cover the IVIG? My son has taken

>IVIG for almost 14 years and is in high school. We live in Texas.

>

>

> Jan

>

>

>

[Guest guest]

Dale,

Thank you so much for all the info and your plans with . IVIG is

so expensive

and he takes other medication daily so he really will need insurance

coverage.

I try not to worry, but I know that this is an important issue and I

can't help being

concerned. We are blessed with good insurance coverage for him through

his dad's

job. I will keep your message and call the man you mentioned probably

this summer

and go from there. I 'm really concerned about him being able to get a

job that will

cover him with insurance that will pay for the IVIG. We could never pay

for the IVIG

monthly ourselves. Right now we are working with the insurance to be

able to go

to a different location (the 7 hour drive to the Immuno.) and a

different med (the new

Gamunex by Bayer; he has taken Gamimune N by Bayer for almost 14

years). It looks

like the latest plan is to try to find Gamimune N again for April and

hope to have

the insurance ready for the new Gamunex by the May infusion. It is all

so complicated.

Is transitioning to Gamunex? Did you have trouble (insurance wise)

getting her

IVIG set up for the dorm? Sorry for all the questions. I don't know

anyone else with

an older child taking IVIG and you are more knowledgeable because of

your volunteer

work. I'm so glad that you and are having fun. Thanks again for

all you do.

Jan

[Guest guest]

from Dale, Mom to Katy, CVID, age 20

Thanks Becky, She's at that age. She hasn't had x-rays in 2 years --

so that could be it. Oh, but I don't want to think about surgery this

summer!!!!! But, if it has to be done -- better to get it over with

before an abscess.

How's Maddie?

In His service,

Dale

Becky McClure wrote:

>Welcome back!

>

>Just a thought about Katy's ear ache....when I was about that age, I too had an

earache that would not go away-no infection, went to the doc many times-they

finally figured out it was my wisdom teeth coming in and putting pressure on my

ears! Got them taken out and wow-no more earache!

>

>

>

[Guest guest]

Dale:

When I had my wisdom teeth out, I was having problems with blood sugar

crashes and didn't want to get knocked out and get glucose. So they removed the

teeth without putting me out. It wasn't fun (the pressure was so intense that I

really thought my cheek bone was going to cave in, but it didn't hurt) but it

was quick and no anesthesia! When I saw all the people in the " recovery " room,

all groggy, I knew I made the right decision! I was about 21? Maybe 22?

Hope that helps --

(mom to Kate, born 9/19/02, dairy intolerant; and , age 5, GERD,

dairy intolerant -- currently has polysaccharide antibody def, previously had

transient IgG, IgA, t-cell & other defs)