RE: WHAT DOES THIS MEAN????

[Guest guest]

In a message dated 10/20/01 5:04:52 PM Pacific Daylight Time,

duffey48@... writes:

<< Hi guys,

Remember I told you Maddie has been lining things up like crazy?!?!?

Couldn't find my slippers last weekend, and there they were, in her line

up!!!! actually saw her lining stuff up (I'm waiting to catch her

in

the act..I lOVE being a fly on the wall) and said...MOM, IT'S SO SO CUTE to

see!!! So anyway, tonight I come upon her just finishing her line up.

About 12 stuffed animals, all lined up on the floor. But they were all

face

down!!!! I mean..MAN, that's so methodical!!!! AND smart if you ask

me---I wish I could teach THIS kind of organization to n, who BTW, did

NOT finish his room....this sound familiar to anybody????

Donna >>

ROTFLOL! So cute! LOL Yeah, not cleaning ANYTHING sounds familiar to me

Donna. LOL

Gail :-)

[Guest guest]

OH YEAH!!!!!!!!!!

what does THIS mean????

Hi guys,

Remember I told you Maddie has been lining things up like crazy?!?!?

Couldn't find my slippers last weekend, and there they were, in her line

up!!!! actually saw her lining stuff up (I'm waiting to catch her in

the act..I lOVE being a fly on the wall) and said...MOM, IT'S SO SO CUTE to

see!!! So anyway, tonight I come upon her just finishing her line up.

About 12 stuffed animals, all lined up on the floor. But they were all face

down!!!! I mean..MAN, that's so methodical!!!! AND smart if you ask

me---I wish I could teach THIS kind of organization to n, who BTW, did

NOT finish his room....this sound familiar to anybody????

Donna

[Guest guest]

I can relate Donna ,

Its cute how they're imagination works . Whenever I saw how creative

could be, this is what made me realize he could do things, but

it was just figuring out , how ? Yep ! With the siblings & hubby . So

Maddie was finally caught , how funny .

Irma, 13,DS/ASD

> Hi guys,

> Remember I told you Maddie has been lining things up like

crazy?!?!?

> Couldn't find my slippers last weekend, and there they were, in her

line

> up!!!! actually saw her lining stuff up (I'm waiting to

catch her in

> the act..I lOVE being a fly on the wall) and said...MOM, IT'S SO SO

CUTE to

> see!!! So anyway, tonight I come upon her just finishing her line

up.

> About 12 stuffed animals, all lined up on the floor. But they

were all face

> down!!!! I mean..MAN, that's so methodical!!!! AND smart if

you ask

> me---I wish I could teach THIS kind of organization to n, who

BTW, did

> NOT finish his room....this sound familiar to anybody????

> Donna

>

>

>

[Guest guest]

I'm absolutely no expert in this - new to forum myself, but wanted to

give you some sort of answer. It looks to me like he wants to test

to see if your pituitary is functioning correctly.

Normally when your cortisol levels get low the pituitary would

produce ACTH to stimulate the adrenals to produce more (a bit like

TSH is produced to get thyroid to produce T4).

So I assume if you have low levels of ACTH as well as low cortisol

this could mean the pituitary is not doing it's job quite as it

should.

Have they booked you in for an appointment or do you have to wait?

Leah x

>

>

> Hello everyone,

>

> I have just received a letter from my consultant.

> The end bit says:

>

> " you do have a relatively loe basal cortisol of 127nmol/L and an

> unrecordable serum ACTH. In view of the latter findings I think it

> important that we should informally exclude pituitary deficiency

and

> I have organised pituitary function testing " .

>

> I have just had my insulin test (stress test) and will have the

> result in a few days.

>

> The blood test from last week:

>

> Cortisol 127nmol/L 08:00hr - 09:00hr -> 185 - 624 nmol/L

> 23:00hr - 24:00hr -> <100 nmol/L

>

> ACTH <1.1 ng/L (0 - 50)

>

>

> What " could " this mean????

>

[Guest guest]

>

> I'm absolutely no expert in this - new to forum myself, but wanted

to

> give you some sort of answer. It looks to me like he wants to test

> to see if your pituitary is functioning correctly.

>

> Normally when your cortisol levels get low the pituitary would

> produce ACTH to stimulate the adrenals to produce more (a bit like

> TSH is produced to get thyroid to produce T4).

>

> So I assume if you have low levels of ACTH as well as low cortisol

> this could mean the pituitary is not doing it's job quite as it

> should.

>

> Have they booked you in for an appointment or do you have to wait?

>

> Leah x

>

Hi Leah,

Yes, I had my appointment yesterday.

They did an " insulin tolerated test " also known as a " stress test " .

I knew my cortisol was low but I thought my ACTH was fine, and this

is why when I got back home after the test and read the letter I was

a bit shocked to read that my serum ACTH was " unrecordable " . To me it

means that it is so low they could hardly find any ACTH in the blood.

It has to be bad, no?

Tia x

[Guest guest]

Hi Tia

I'm not sure what it can mean, I know there is a pituitary patient

group alled PITPAT. Maybe it might be worth vsiting their site to find

out a bit more. I'm sorry I can't be more help for you... It's very

frightening when you don't understand what is happening with your

health.

Alternatively if you are really worried, why not phone the secretary

for your doctor and explain how shocked you were to recieve this letter

and could she arrange to speak to someone who can explain what it may

mean? Even if your doc is busy, they may be able to put you in contact

with a specialist nurse, who are often better at the explaining side of

things!

Whatever you decide to do, try not to worry too much, and let us know

what happens.

Leah x

> Hi Leah,

>

> Yes, I had my appointment yesterday.

> They did an " insulin tolerated test " also known as a " stress test " .

> I knew my cortisol was low but I thought my ACTH was fine, and this

> is why when I got back home after the test and read the letter I was

> a bit shocked to read that my serum ACTH was " unrecordable " . To me it

> means that it is so low they could hardly find any ACTH in the blood.

> It has to be bad, no?

>

> Tia x

>

[Guest guest]

Hi,

Look up adrenal insufficiency, if you are hypo then the adrenals get

stressed too, and need supplementation.

Subject: WHAT DOES THIS MEAN????

Hello everyone,

I have just received a letter from my consultant.

The end bit says:

" you do have a relatively loe basal cortisol of 127nmol/L and an

unrecordable serum ACTH. In view of the latter findings I think it

important that we should informally exclude pituitary deficiency and

I have organised pituitary function testing " .

I have just had my insulin test (stress test) and will have the

result in a few days.

The blood test from last week:

Cortisol 127nmol/L 08:00hr - 09:00hr -> 185 - 624 nmol/L

23:00hr - 24:00hr -> <100 nmol/L

ACTH <1.1 ng/L (0 - 50)

What " could " this mean????

------------------------------------

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