Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 welcome just a quick note yes it can affect handwriting/erasing etc - good luck to you eileen Quoting jjherndon07 <jonherndon07@...>: > Hello, > It was great to find an OCD group. I'm the mother of > 5, and its my 10 yr. old DD that has OCD. I have some questions that > I would love to get your opinion on. > DD has been on 100mg Zoloft for 18months. It was made her > compulsion (mostly touching) manageable. She used to have to touch > thngs six times... that's her 'number'... now she is down to only > touching things once, with the front and back of her hand, kind of in > a sweeping motion. Most people don't even notice it. And now her > touching is more limited to when she sees someone else touching > things with the back of their hand. Before she felt compelled to > touch EVERYTHING, others touched... shopping was a nightmare. > Shopping still causes her anxiety but it's not too bad as long as we > keep the trip short and/or have a few quiet days at home afterward. > She doesn't Obsess. Her > anxiety has lessened but its still a big problem, making her feel > phy sick a couple of hours a day. Should we look into a new med or > dosage or leave good enough alone? > Do any of you deal with trichtillomania (hair pulling)? Hers > started in May. Her hair is noticably thin on top, and on her good > days she avg. 0 -10 hairs and bad days avg. 20-35. Her psy. > reccomends wearing a hat, which she does quite a bit, any other > thoughts? I know it may seem vain, but this Obsession bothers me the > most!! She is so beautiful, inside and out... I just hate to see her > hair thinning... it breaks my heart@@ > Some other school related problems she experiences is trouble with > handwriting and spelling. Does that seem like an OCD trait to you or > something else? I know she has mild dyslexia, but it has been slowly > disappearing this past year or so... her reading has greatly > improved. We homeschool so it is easy for me to keep up with her > gains and losses in this area. > If you need to know any specifics let me know and thanks in > advance for any info or comments you might have. > God Bless, > jjherndon > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Doesn't Inosital help with trichtillomania. Rose --------------------------------- All new - --------------------------------- Get a sneak peak at messages with a handy reading pane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 I don't about that but the inositol for that but that or omega or prayer is really making dd her happy self lately - still rituals but so happy to see her happy again!!!!!!! she noticed it too :-) eileen Quoting rose doyle <labattcave@...>: > Doesn't Inosital help with trichtillomania. > Rose > > > --------------------------------- > All new - > --------------------------------- > Get a sneak peak at messages with a handy reading pane. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 The graph paper idea sounds like a great thing to try with my daughter who has unreadable handwriting. I am emailing her teacher to see if anyone else has tried it and let her know that I plan to. We are currently working with a vision therapist to help keep words from jumping all over the page. Someone in a different group I'm in for my other daughter recommended this training. P. --------- Re: Some advice please! welcome just a quick note yes it can affect handwriting/erasing etc - good luck to you eileen Quoting jjherndon07 <jonherndon07@ <mailto:jonherndon07%40comcast.net> comcast.net>: > Hello, > It was great to find an OCD group. I'm the mother of > 5, and its my 10 yr. old DD that has OCD. I have some questions that > I would love to get your opinion on. > DD has been on 100mg Zoloft for 18months. It was made her > compulsion (mostly touching) manageable. She used to have to touch > thngs six times... that's her 'number'... now she is down to only > touching things once, with the front and back of her hand, kind of in > a sweeping motion. Most people don't even notice it. And now her > touching is more limited to when she sees someone else touching > things with the back of their hand. Before she felt compelled to > touch EVERYTHING, others touched... shopping was a nightmare. > Shopping still causes her anxiety but it's not too bad as long as we > keep the trip short and/or have a few quiet days at home afterward. > She doesn't Obsess. Her > anxiety has lessened but its still a big problem, making her feel > phy sick a couple of hours a day. Should we look into a new med or > dosage or leave good enough alone? > Do any of you deal with trichtillomania (hair pulling)? Hers > started in May. Her hair is noticably thin on top, and on her good > days she avg. 0 -10 hairs and bad days avg. 20-35. Her psy. > reccomends wearing a hat, which she does quite a bit, any other > thoughts? I know it may seem vain, but this Obsession bothers me the > most!! She is so beautiful, inside and out... I just hate to see her > hair thinning... it breaks my heart@@ > Some other school related problems she experiences is trouble with > handwriting and spelling. Does that seem like an OCD trait to you or > something else? I know she has mild dyslexia, but it has been slowly > disappearing this past year or so... her reading has greatly > improved. We homeschool so it is easy for me to keep up with her > gains and losses in this area. > If you need to know any specifics let me know and thanks in > advance for any info or comments you might have. > God Bless, > jjherndon > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 _____ From: [mailto: ] On Behalf Of mzdaisee@... Sent: Friday, November 10, 2006 12:00 AM Subject: Re: Some advice please! , Let me know what the teacher has to say about it, would you. My daughter's teacher does not have a good understanding of OCD, nor does she seem to care to learn. My husband and I are having a hard time communicating our daughter's needs. Hopefully the 504 plan were setting up for her, will help future teachers take her needs seriously. Have you had experience with a 504? (US) The graph paper idea sounds like a great thing to try with my daughter who has unreadable handwriting. I am emailing her teacher to see if anyone else has tried it and let her know that I plan to. We are currently working with a vision therapist to help keep words from jumping all over the page. Someone in a different group I'm in for my other daughter recommended this training. P. --------- Re: Some advice please! welcome just a quick note yes it can affect handwriting/erasing etc - good luck to you eileen Quoting jjherndon07 <jonherndon07@ <mailto:jonherndon07%40comcast.net> comcast.net>: > Hello, > It was great to find an OCD group. I'm the mother of > 5, and its my 10 yr. old DD that has OCD. I have some questions that > I would love to get your opinion on. > DD has been on 100mg Zoloft for 18months. It was made her > compulsion (mostly touching) manageable. She used to have to touch > thngs six times... that's her 'number'... now she is down to only > touching things once, with the front and back of her hand, kind of in > a sweeping motion. Most people don't even notice it. And now her > touching is more limited to when she sees someone else touching > things with the back of their hand. Before she felt compelled to > touch EVERYTHING, others touched... shopping was a nightmare. > Shopping still causes her anxiety but it's not too bad as long as we > keep the trip short and/or have a few quiet days at home afterward. > She doesn't Obsess. Her > anxiety has lessened but its still a big problem, making her feel > phy sick a couple of hours a day. Should we look into a new med or > dosage or leave good enough alone? > Do any of you deal with trichtillomania (hair pulling)? Hers > started in May. Her hair is noticably thin on top, and on her good > days she avg. 0 -10 hairs and bad days avg. 20-35. Her psy. > reccomends wearing a hat, which she does quite a bit, any other > thoughts? I know it may seem vain, but this Obsession bothers me the > most!! She is so beautiful, inside and out... I just hate to see her > hair thinning... it breaks my heart@@ > Some other school related problems she experiences is trouble with > handwriting and spelling. Does that seem like an OCD trait to you or > something else? I know she has mild dyslexia, but it has been slowly > disappearing this past year or so... her reading has greatly > improved. We homeschool so it is easy for me to keep up with her > gains and losses in this area. > If you need to know any specifics let me know and thanks in > advance for any info or comments you might have. > God Bless, > jjherndon > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 I would consider a child study team evaluation including occupational therapy eval, educational eval, and psychological. Psychological problems and learning disabilities can often occur together and make each condition worse. You will get a better handle on all of it if you address all of it. It's worth knowing. Best wishes, Bonnie > > Hello, > It was great to find an OCD group. I'm the mother of > 5, and its my 10 yr. old DD that has OCD. I have some questions that > I would love to get your opinion on. > DD has been on 100mg Zoloft for 18months. It was made her > compulsion (mostly touching) manageable. She used to have to touch > thngs six times... that's her 'number'... now she is down to only > touching things once, with the front and back of her hand, kind of in > a sweeping motion. Most people don't even notice it. And now her > touching is more limited to when she sees someone else touching > things with the back of their hand. Before she felt compelled to > touch EVERYTHING, others touched... shopping was a nightmare. > Shopping still causes her anxiety but it's not too bad as long as we > keep the trip short and/or have a few quiet days at home afterward. > She doesn't Obsess. Her > anxiety has lessened but its still a big problem, making her feel > phy sick a couple of hours a day. Should we look into a new med or > dosage or leave good enough alone? > Do any of you deal with trichtillomania (hair pulling)? Hers > started in May. Her hair is noticably thin on top, and on her good > days she avg. 0 -10 hairs and bad days avg. 20-35. Her psy. > reccomends wearing a hat, which she does quite a bit, any other > thoughts? I know it may seem vain, but this Obsession bothers me the > most!! She is so beautiful, inside and out... I just hate to see her > hair thinning... it breaks my heart@@ > Some other school related problems she experiences is trouble with > handwriting and spelling. Does that seem like an OCD trait to you or > something else? I know she has mild dyslexia, but it has been slowly > disappearing this past year or so... her reading has greatly > improved. We homeschool so it is easy for me to keep up with her > gains and losses in this area. > If you need to know any specifics let me know and thanks in > advance for any info or comments you might have. > God Bless, > jjherndon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 , I fought for 2 years to get Katelyn an IEP due to her ADHD related learning problems. It did not seem that a 504 would be adequate to meet her needs. Will let you know when I get a response from the teacher about the graph paper. Also, if we make progress working with the vision therapist. Most of Katelyn's teachers have been easy to work with as long as I let them know what she is working on, med changes, etc. We have a deal now where if we can't figure out some of her homework Katelyn marks it with a star and the teacher will give her extra help until she understands it. (Katelyn is in 5th grade). P. --------- Re: Some advice please! welcome just a quick note yes it can affect handwriting/erasing etc - good luck to you eileen Quoting jjherndon07 <jonherndon07@ <mailto:jonherndon07%40comcast.net> comcast.net>: > Hello, > It was great to find an OCD group. I'm the mother of > 5, and its my 10 yr. old DD that has OCD. I have some questions that > I would love to get your opinion on. > DD has been on 100mg Zoloft for 18months. It was made her > compulsion (mostly touching) manageable. She used to have to touch > thngs six times... that's her 'number'... now she is down to only > touching things once, with the front and back of her hand, kind of in > a sweeping motion. Most people don't even notice it. And now her > touching is more limited to when she sees someone else touching > things with the back of their hand. Before she felt compelled to > touch EVERYTHING, others touched... shopping was a nightmare. > Shopping still causes her anxiety but it's not too bad as long as we > keep the trip short and/or have a few quiet days at home afterward. > She doesn't Obsess. Her > anxiety has lessened but its still a big problem, making her feel > phy sick a couple of hours a day. Should we look into a new med or > dosage or leave good enough alone? > Do any of you deal with trichtillomania (hair pulling)? Hers > started in May. Her hair is noticably thin on top, and on her good > days she avg. 0 -10 hairs and bad days avg. 20-35. Her psy. > reccomends wearing a hat, which she does quite a bit, any other > thoughts? I know it may seem vain, but this Obsession bothers me the > most!! She is so beautiful, inside and out... I just hate to see her > hair thinning... it breaks my heart@@ > Some other school related problems she experiences is trouble with > handwriting and spelling. Does that seem like an OCD trait to you or > something else? I know she has mild dyslexia, but it has been slowly > disappearing this past year or so... her reading has greatly > improved. We homeschool so it is easy for me to keep up with her > gains and losses in this area. > If you need to know any specifics let me know and thanks in > advance for any info or comments you might have. > God Bless, > jjherndon > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2006 Report Share Posted November 10, 2006 , I fought for 2 years to get Katelyn an IEP due to her ADHD related learning problems. It did not seem that a 504 would be adequate to meet her needs. Will let you know when I get a response from the teacher about the graph paper. Also, if we make progress working with the vision therapist. Most of Katelyn's teachers have been easy to work with as long as I let them know what she is working on, med changes, etc. We have a deal now where if we can't figure out some of her homework Katelyn marks it with a star and the teacher will give her extra help until she understands it. (Katelyn is in 5th grade). P. --------- Re: Some advice please! welcome just a quick note yes it can affect handwriting/erasing etc - good luck to you eileen Quoting jjherndon07 <jonherndon07@ <mailto:jonherndon07%40comcast.net> comcast.net>: > Hello, > It was great to find an OCD group. I'm the mother of > 5, and its my 10 yr. old DD that has OCD. I have some questions that > I would love to get your opinion on. > DD has been on 100mg Zoloft for 18months. It was made her > compulsion (mostly touching) manageable. She used to have to touch > thngs six times... that's her 'number'... now she is down to only > touching things once, with the front and back of her hand, kind of in > a sweeping motion. Most people don't even notice it. And now her > touching is more limited to when she sees someone else touching > things with the back of their hand. Before she felt compelled to > touch EVERYTHING, others touched... shopping was a nightmare. > Shopping still causes her anxiety but it's not too bad as long as we > keep the trip short and/or have a few quiet days at home afterward. > She doesn't Obsess. Her > anxiety has lessened but its still a big problem, making her feel > phy sick a couple of hours a day. Should we look into a new med or > dosage or leave good enough alone? > Do any of you deal with trichtillomania (hair pulling)? Hers > started in May. Her hair is noticably thin on top, and on her good > days she avg. 0 -10 hairs and bad days avg. 20-35. Her psy. > reccomends wearing a hat, which she does quite a bit, any other > thoughts? I know it may seem vain, but this Obsession bothers me the > most!! She is so beautiful, inside and out... I just hate to see her > hair thinning... it breaks my heart@@ > Some other school related problems she experiences is trouble with > handwriting and spelling. Does that seem like an OCD trait to you or > something else? I know she has mild dyslexia, but it has been slowly > disappearing this past year or so... her reading has greatly > improved. We homeschool so it is easy for me to keep up with her > gains and losses in this area. > If you need to know any specifics let me know and thanks in > advance for any info or comments you might have. > God Bless, > jjherndon > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Hello people, Firstly just want to say I'm feeling lots brighter, thanks to all of your good selves. Have taken nae for approx 8 weeks now, and Armour for 3 weeks, just up to 1 grain taken two halves,am + pm. Sheila, I remember you saying to me 2-3 months back, 'don't worry we'll get you feeling better', and of course you were right! Shame about the Dr's along my journey though eh? None of them ever said that! Please can I ask yet another question of you knowledgeable folk? First thing in the morning I'm still feeling groggy, (hung over) despite the fact that I'm now sleeping well, don't consume any alchohol etc. Also, usually have the pressure headache. When I had my salivary profile done couple of months back, it was this time of day and midday that my cortisol was lowest and well out of range, so I'm wondering if this is more adrenal than thyroid, and if so, do you have any ideas at all? I've been taking 2 nae in the morning and one at lunch. I also am taking thyro complex 3 per day, crikes I should be rattling! Thanks so much, as always I look forward to reading your replies. Enjoy Thursday, Love, x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Hi Please can I ask yet another question of you knowledgeable folk? First thing in the morning I'm still feeling groggy, (hung over) despite the fact that I'm now sleeping well, don't consume any alchohol etc. You should be increasing your Armour every 3 to 4 weeks by half a grain. You may not be on enough yet, and the average is around 2 1/2 grains. I am taking 3 grains. Also, usually have the pressure headache. When I had my salivary profile done couple of months back, it was this time of day and midday that my cortisol was lowest and well out of range, so I'm wondering if this is more adrenal than thyroid, and if so, do you have any ideas at all? I've been taking 2 nae in the morning and one at lunch. I also am taking thyro complex 3 per day, crikes I should be rattling! It could be that the NAE is not strong enough, or that you need to increase this. You can go up to 6 tablets a day. If you are a patient of Dr peatfield's give him a ring and ask his recommendations. Not sure whether you need thyro complex now you are thyroid hormone replacement. Thanks so much, as always I look forward to reading your replies.Enjoy Thursday, At this stage of the game , it is mainly down to trial and error until you get there - there being the place where you find your optimal health once more. When did you last have a blood test - these could tell us something. Luv - SheilaLove,xNo virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.6/1624 - Release Date: 20/08/2008 19:11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 I wonder , if like me, NAE just wasnt/isnt enough and until this is sorted no thyroid replacement will work completley, I have only just found this out after 2 yrs on T4 as you know. By looking at my adrenal profile, my lowest output reading was 4pm and quite a lot of the time around this time of day I feel b****y awful, I can only come to the conclusion that is when I need the extra cortisone, first thing in the morning too I can feel shaky, wobbly and rough and that too was another low output result. I have started HC today, I think it will be what I need, I am hoping anyway. I dont feel any different after taking 2.5mg of cortisone so that tells me I must need more, but I am upping it slowly as advised and following the correct way of taking it. I didnt want to have to resort to this but I have had to and hopfully not for too long. I couldnt tollerate too much bovine products and stopped taking nutri thyroid not long after starting it and couldnt seem to tollerate too much NAE either, if you remember I had a few weeks of feeling really sick, thankfully that has gone. Sorry I couldnt help more but I hope you get on the right track soon and sometimes we think we are on the right track only to find we arent! From: sheilaturner <sheilaturner@...>Subject: Re: Some advice please!thyroid treatment Date: Thursday, 21 August, 2008, 4:10 PM Hi Please can I ask yet another question of you knowledgeable folk? First thing in the morning I'm still feeling groggy, (hung over) despite the fact that I'm now sleeping well, don't consume any alchohol etc. You should be increasing your Armour every 3 to 4 weeks by half a grain. You may not be on enough yet, and the average is around 2 1/2 grains. I am taking 3 grains. Luv - SheilaLove,xNo virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.6.6/1624 - Release Date: 20/08/2008 19:11 Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 hi mary; so glad your feeling better , isn't this an interesting journey we are all on ? regards janeSend instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Thanks Sheila, Absolutely, I may well not be on enough Armour as yet. I'm only up to one grain. Already though it's making a notable difference, so I'm very positive that I'll get there eventually. My guess is I may need two grains, based on a most simplistic equation, I'm feeling about half better on one! Ha! Hadn't appreciated I can go up to so many nae, they've made a difference so I will raise them and persevere. I'm not a patient of Dr P, (as yet) you may remember I saw an endo from your list in July, in London. He was fine, but won't think outside the reference ranges, so doesn't think treatment is necessary. Also short synacthen test was fine.(As you predicted) Other bloods he took mid July, (PRE-ARMOUR) were(Free T4 10.9 (9-26), tsh, 1.72 (0.3-4.2) and Free t3 3.8 (2.5-5.7)To be honest with you, after all the thyroid tests, scans biopsies etc ongoing since March I'm a bit doctored out. Especially, as none of it has made a blind bit of difference. The ONLY way I have improved my health through understanding what's happening to me is through tpa! So I'm self helping right now. But, if I do ever need to see another Dr, Dr P is first on my list. Thanks so much for your time, Love, x > > Hi > > > Please can I ask yet another question of you knowledgeable folk? > First thing in the morning I'm still feeling groggy, (hung over) > despite the fact that I'm now sleeping well, don't consume any > alchohol etc. > > You should be increasing your Armour every 3 to 4 weeks by half a grain. You may not be on enough yet, and the average is around 2 1/2 grains. I am taking 3 grains. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 You're so right there Jane, Interesting, and if it hadn't been for all you lovely folk on tpa, frightening! I feel my health was on a slippery decline, for at least a year, with no answer, despite my questions to the Drs. Reading on here how ill some poor folk have gotten before treatment, I feel very lucky! Take care, enjoy the weekend. M x > > hi mary; so glad your feeling better , isn't this an interesting journey we are all on ?  regards jane > > Send instant messages to your online friends http://uk.messenger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Hi , I was also one of your tpa gang of pals who gave a big sigh of relief when your hc turned up today! Lots of luck with it, after all that waiting, it must be what you need. My own health is slowly and steadily improving thanks, so I'll persevere for now with what I'm doing and up the nae just a wee bit. But, I'll get back to you with more questions if I decide to make the same change as you in the future. Watch this space! Take care and relax for the lovely long weekend. M x > I wonder , if like me, NAE just wasnt/isnt enough and until this is sorted no thyroid replacement will work completley, I have only just found this out after 2 yrs on T4 as you know. > > > > > > > > > > Send instant messages to your online friends http://uk.messenger. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Hi I think I got on everyones nerves going on about the HC so much!! I just wanted and needed to feel confident about what I am doing and if its the right thing, we all need reasurrance dont we? Me more than others I think, but I do feel as if I have been through a lot in the last 2 yrs, stress, anxiety, depression, worry, you name it, so no wonder my adrenals are poorly! I hope you continue to feel better everyday From: <marylinda@...>Subject: Re: Some advice please!thyroid treatment Date: Thursday, 21 August, 2008, 7:58 PM Hi ,I was also one of your tpa gang of pals who gave a big sigh of relief when your hc turned up today! Mx> I wonder , if like me, NAE just wasnt/isnt enough and until this is sorted no thyroid replacement will work completley, I have only just found this out after 2 yrs on T4 as you know.> > > > > > > > > > Send instant messages to your online friends http://uk.messenger .>Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 Not at all , We were all getting anxious too, clearly. Hopefully, this will be the day when things start to change for the better for you, keep smiling. M x > > > Hi > I think I got on everyones nerves going on about the HC so much!! I just wanted and needed to feel confident about what I am doing and if Quote Link to comment Share on other sites More sharing options...
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