Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 When this happened to me at a time when my son was not able to communicate, I took him to the Doctor just to " rule out " him getting sick. So many times that was what the problem was. He had frequent ear infections. (Now that he is nutritionally supported I dont have that. His immune functioning is great). My suggestion is before all different theories make you crazy, rule out anything medical that may be going on. That is my experience..Joni >From: evelyn.mendez@... >Reply- > >Subject: [ ] Help!!! >Date: Fri, 24 Aug 2001 18:03:10 -0000 > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 Your question sounds familiar to me from another message board, but I don't know if you received mention of the fact that many children, especially those with high phenol issues, do not tolerate SNT. I would suggest you stop the SNT for 3-4 days and see if that would help your child. Here is more info on phenols. http://home.pacbell.net/cscomp/phenol.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 , I know we've communicated already about this on the autismdiet.com board and through e-mail, but I'll address it again here. I would stop the SNT just to be sure you're not having a reaction to that (although I would think you'd have seen a reaction before now). I don't think it's the Peptizyde, because any problem should have been evident in the first week, but you could stop it to be sure. It's possible the bread infraction is the problem. Although you probably got the Peptizyde in her in time, I wouldn't rule that out. It could take several days before she recovers from a gluten infraction. I think the advice on ruling out illness is excellent and if it were my child, I would call the doctor. Also, has she just started back to school? > Hello everyone!!! > > I desparately need help!!! I don't know what's going on with my twin > daughter na. She has been doing so good in the past two weeks > that even friends and relative notice the difference. > But the past 3 days now she has been crying!!!out of control!! And it > only happens at dinner time. During the day, she fine with the > babysitter. Today I called to find out if she was ok and I could hear > her laughing and playing with her sister. She happy when she see us > and give us a big hug. But comes dinner time she sits down happy to > eat her dinner take one spoonful and then starts crying hysterically. > Once we calm her down, about 1 1/2 hours she falls asleep. First time > it happen I thought it was because she was tired. Second time ok-- > tired. But today !! Something is not right. She usually doesn't take > naps but she never done this before even though she's tired. What's > happening to my little girl. I just sit down and cry!! I feel that > I'm a bad mother that can't help my daughter. Could anyone give me so > advice in what's going on? > > The only difference other than being gfcf is that she's taking SNT > less than 1/4 tsp and 1 peptizyde before each meal. 3 weeks now for > SNT and 2 weeks on peptizyde. I stop giving her the extra zinc at > night. Accidently she ate regular white sandwich bread follow by 1 > peptizyde. > > Please Help!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2005 Report Share Posted September 30, 2005 Faith, I am in a similar situation in California- Stachybotrys, Chaetomium, Aflatoxins, Satratoxins- destroyed my health and my life!! Call me at (661) 917-3831. Yanni Zack [] HELP!!! , I just got on this site and I need advice from someone........maybe you can help me? I just found out today that my family has been exposed to strachborys and several other toxic molds, asperg, pencilli, etc. and I am intotal despair as to the steps I need to start taking. I dont care about the house, as it is a rent hse....but, what about mine and my families health, my main concern , as my son and I are very ill, I assume, from the mold. I have too many symptoms to list here, but are all the ones i have researched on the internet . My concern today is the landlord is telling me to remove my belongings from the hse if i am leaving, i havent told him yet about the mold, as i am thinking i may need to talk to an attorney. Some say to have my furniture hepa cleaned?? others say trash it, and my clothes, dont know what to do???? My dr here says they will call the state dept of public health who can refer me to a dr????I just need major advice from anyone to tell me what procedures I need to begin with. where to go , who to contact, what to do...am going insane....can you help me??????thankyou, Faith erikmoldwarrior <erikmoldwarrior@...> wrote:ssr3351@a... wrote: Because when I was away from the school I was still sick until I started the CSM. > When I got back to " The World " from being stationed in Hitler's moldy headquarters in Germany, I was trying to figure out what the heck was wrong with me, but gradually started to improve over many months. Then the possessions I shipped home arrived. Knocked me right back down. I unpacked my stereo and passed out. Stayed sick all winter because I was sharing space with contaminated crap. Didn't know what it was then. Know it now! - FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Hi Faith, I am sure that others will be along to give their opinions to help you. You and your children need to get out of there as soon as possible!Forget about an attorney right now, as that will just slow you down. If you have the mold testing and you and your children are sick, that would be enough to warrant getting out of there. At least you are renting and are not facing some of the severe financial losses that some of us have. All wood furniture will have to be washed down. I would get rid of mattresses and upholestered furniture, rugs, etc. Clothes can be washed in hot water and borax with detergent. Be careful with tennis shoes, etc. It can be a nightmare, but you don't want to contaminate your next place. I may have some articles to explain this stuff in more detail. When you move out of there, you should notice a big improvement in your health and that of your children. You should notify the landlord and try to recoup some of your losses and moving expenses. Maybe an attorney could help with that, but it is not easy to find an attorney for mold cases. I had to spend 80,000 on gutting my place, and I am still waiting for trial or settlement almost 3 years later. It takes forever....and it is not easy. But, maybe they would give you a settlement. If it is an apartment complex, they may not admit the mold problem. Also, the health department in my state would not get involved, saying it wasn't their concern. Actually, I could find no local, state, or federal official that would take any action to help me. Good luck! Judi --- Faith <faitheliza44@...> wrote: > , I just got on this site and I need advice > from someone........maybe you can help me? I just > found out today that my family has been exposed to > strachborys and several other toxic molds, asperg, > pencilli, etc. and I am intotal despair as to the > steps I need to start taking. I dont care about the > house, as it is a rent hse....but, what about mine > and my families health, my main concern , as my son > and I are very ill, I assume, from the mold. I > have too many symptoms to list here, but are all the > ones i have researched on the internet . My concern > today is the landlord is telling me to remove my > belongings from the hse if i am leaving, i havent > told him yet about the mold, as i am thinking i may > need to talk to an attorney. Some say to have my > furniture hepa cleaned?? others say trash it, and my > clothes, dont know what to do???? My dr here says > they will call the state dept of public health who > can refer me to a dr????I just need major advice > from anyone to tell me > what procedures I need to begin with. where to go > , who to contact, what to do...am going > insane....can you help me??????thankyou, Faith > > erikmoldwarrior <erikmoldwarrior@...> > wrote:ssr3351@a... wrote: Because when I was away > from the school I was > still sick until I started the CSM. > > > > > When I got back to " The World " from being stationed > in Hitler's moldy > headquarters in Germany, I was trying to figure out > what the heck was > wrong with me, but gradually started to improve over > many months. > Then the possessions I shipped home arrived. > Knocked me right back down. > I unpacked my stereo and passed out. > Stayed sick all winter because I was sharing space > with contaminated > crap. > Didn't know what it was then. > Know it now! > - > > > > > > FAIR USE NOTICE: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Faith, Check your email you should have one from me, if not email. KC Because when I was away > > from the school I was > > still sick until I started the CSM. > > > > > > > > > When I got back to " The World " from being stationed > > in Hitler's moldy > > headquarters in Germany, I was trying to figure out > > what the heck was > > wrong with me, but gradually started to improve over > > many months. > > Then the possessions I shipped home arrived. > > Knocked me right back down. > > I unpacked my stereo and passed out. > > Stayed sick all winter because I was sharing space > > with contaminated > > crap. > > Didn't know what it was then. > > Know it now! > > - > > > > > > > > > > > > FAIR USE NOTICE: > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Hi Judy.... Got your email...Thanks for your concern and advice. I am on the verge of a nervous breakdown , I think....cant really remember???? I don't want to drive you crazy with questions , but if you have time i would greatly appreciate your help. How long were you(family?) exposed, and to what forms of the mold? Are you going to a Dr, if so, who and maybe you could give me some details on that part of it all.....Also, one thing I don't understand about all this CRAZY stuff is if you can cross-contaminate from clothes, etc...then what is to keep one from spreading the spores everywhere they go, grocery shopping, hospitals etc????My concern is that I have had to move in with my parents who are elderly and ill. Thanks, Faith dottykalm <dottykalm@...> wrote: Hi Faith, I am sure that others will be along to give their opinions to help you. You and your children need to get out of there as soon as possible!Forget about an attorney right now, as that will just slow you down. If you have the mold testing and you and your children are sick, that would be enough to warrant getting out of there. At least you are renting and are not facing some of the severe financial losses that some of us have. All wood furniture will have to be washed down. I would get rid of mattresses and upholestered furniture, rugs, etc. Clothes can be washed in hot water and borax with detergent. Be careful with tennis shoes, etc. It can be a nightmare, but you don't want to contaminate your next place. I may have some articles to explain this stuff in more detail. When you move out of there, you should notice a big improvement in your health and that of your children. You should notify the landlord and try to recoup some of your losses and moving expenses. Maybe an attorney could help with that, but it is not easy to find an attorney for mold cases. I had to spend 80,000 on gutting my place, and I am still waiting for trial or settlement almost 3 years later. It takes forever....and it is not easy. But, maybe they would give you a settlement. If it is an apartment complex, they may not admit the mold problem. Also, the health department in my state would not get involved, saying it wasn't their concern. Actually, I could find no local, state, or federal official that would take any action to help me. Good luck! Judi --- Faith <faitheliza44@...> wrote: > , I just got on this site and I need advice > from someone........maybe you can help me? I just > found out today that my family has been exposed to > strachborys and several other toxic molds, asperg, > pencilli, etc. and I am intotal despair as to the > steps I need to start taking. I dont care about the > house, as it is a rent hse....but, what about mine > and my families health, my main concern , as my son > and I are very ill, I assume, from the mold. I > have too many symptoms to list here, but are all the > ones i have researched on the internet . My concern > today is the landlord is telling me to remove my > belongings from the hse if i am leaving, i havent > told him yet about the mold, as i am thinking i may > need to talk to an attorney. Some say to have my > furniture hepa cleaned?? others say trash it, and my > clothes, dont know what to do???? My dr here says > they will call the state dept of public health who > can refer me to a dr????I just need major advice > from anyone to tell me > what procedures I need to begin with. where to go > , who to contact, what to do...am going > insane....can you help me??????thankyou, Faith > > erikmoldwarrior <erikmoldwarrior@...> > wrote:ssr3351@a... wrote: Because when I was away > from the school I was > still sick until I started the CSM. > > > > > When I got back to " The World " from being stationed > in Hitler's moldy > headquarters in Germany, I was trying to figure out > what the heck was > wrong with me, but gradually started to improve over > many months. > Then the possessions I shipped home arrived. > Knocked me right back down. > I unpacked my stereo and passed out. > Stayed sick all winter because I was sharing space > with contaminated > crap. > Didn't know what it was then. > Know it now! > - > > > > > > FAIR USE NOTICE: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 I agree that Shoemaker is the BEST! I really need to write a book about his incredible insights, willingness to learn from his patients, dedication to patients and courage in the face of a medical system in which MD stands for " Medical Denial " . Most of all, an attention to detail that is worthy of Osler. But if you can't see him, what to do? Here's what I did. I put everything in storage to deal with it later. I really thought that " later " was just going to be tossing everything but after five years, the toxicity had died down enough that I can have the use of my possessions again. I went to the desert to establish a " baseline " of " As good as it gets " . I was still having problems, but the difference in sleeping so much better in a pristine place gave me a sense of what I was aiming for. I found a place to sleep that was roughly comparable and allowed nothing into that area. If I felt that I had run into any spore plumes or contaminated buildings, I'd make sure that my clothing came nowhere near my sleeping area and I always shower and wash my hair VIGOROUSLY before sleep. Finding a place to sleep that was OK was fairly difficult and finding a shower that wasn't constructed with those damn " tiles glued to the wall " was critical. A fiberglass shower enclosure is a very good sign. All clothing must be washed in a laundromat that feels good and bagged in plastic to prevent cross contamination from the car. Finding a " good laundromat " is just like finding a good habitat, much more difficult than one might thinnk. If just moving to a good place to live was enough, EVERYBODY would have control of their illness. I had to find a good place to sleep, a good place to wash, and allow nothing that had been contaminated into my " safe zone " . Relying on testing for mold spores obviously wasn't going to do me much good. Since I could already sense mold, I decided to wrap up a contaminated object to take to to a pristine location and train myself to recognize the most subtle change that happened as I gradually increased proximity. One sign that people have asked me to comment on is 'capillary hypoperfusion'. When I am 'as good as it gets', I press my palms against the edge of a countertop and time how long before the skin rebounds. When I was at my worst, the dent would remain purple and stay dented. Normally skin reperfusion only takes a few seconds. I treat any extension of the time the dents last as an indicator of being in a less than perfect area. The longer, the worse the area. Naturally I'd like to be in a pristine location at all times, but of course, it just isn't possible. So the next best thing is to be constantly aware of the degree of impact that various locations exert and always make an effort to nudge toward the lesser of evils. It just takes practice to correlate signs of perfusion to long term outlook, but in my own case, an exposure which results in skin indentations which don't resolve within five minutes is definitely putting me " below the power curve of exposure " . Just practicing avoidance wasn't the instant cure that is consistent with the allergists concept of " avoid and the problem is gone " . It took me months of concerted " obsessive avoidance " before I was absolutely certain I was on the right track. This is not an easy illness. Crawling out was difficult. Many times I just lay down and tried to give up, but " sometimes the magic just doesn't work " . So I kept on going and it eventually paid off. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 Hi Faith, I read your message regarding your concern for your elderly parents, and the possibility of cross-contaminating their home, and could hear the fear in your message, as I was in the same place two years ago. I just wanted to pass on my story to maybe alleviate some of your distress, I know had bad it can get. I became sensitized at my place of work, and quit my job. Not everyone was getting sick in the building, but quite a few of us were. I subsequently began reacting in my house, and discovered the seller had covered up major water damage, and the house had very high levels of stachy, aspergillis, etc. Although my cousin who was staying with me wasn't reacting at all. I moved out of the house and went to stay with my mother, until I could figure out what to do. At some point I began reacting at my mother's and had to move out, it was so bad. I was terrified as she had a heart transplant 8 years ago, and is immunosuppressed. I was certain that, after being her primary caregiver through her many surgeries and subsequent return to health, that I had just done something that would surely be the end for her. She thought I was absolutely crazy, and I was sincerely panic- stricken. I couldn't convince her ,or my other family members, no matter how hard I tried. Two years later, I still won't go into her house because it cross- contaminates my clothing to the point that I begin to get sicker. BUT, she is doing just fine! Go figure. I believe I will someday be able to enter her house, as my sensitivity is decreasing just by practicing extreme avoidance. For now, we meet for dinner out at a restaurant, or at another family members house. Hope this helps. You have plenty to worry about, to be worrying about other people at the moment. Take care of yourself first, and do what you need to do. Which is what my family advised me. Jules Because when I was away > > from the school I was > > still sick until I started the CSM. > > > > > > > > > When I got back to " The World " from being stationed > > in Hitler's moldy > > headquarters in Germany, I was trying to figure out > > what the heck was > > wrong with me, but gradually started to improve over > > many months. > > Then the possessions I shipped home arrived. > > Knocked me right back down. > > I unpacked my stereo and passed out. > > Stayed sick all winter because I was sharing space > > with contaminated > > crap. > > Didn't know what it was then. > > Know it now! > > - > > > > > > > > > > > > FAIR USE NOTICE: > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Jen - I'm sorry - I know someone has explained this before but what is the nasal wiring? I have not heard of the doctors you mentioned. Sounds like a lot of the little ones on this list are having surgery in April! Hang in there! Hugs, April --- Scopp <minsco72@...> wrote: > Good morning. It's from Milford, CT - USA. > My 4yr old daughter, Jenna is scheduled to have > part 1 of a 2 procedure surgery on 4/25 at the > Children's Hospital in Boston by Dr. Dagi and > Dr. . > > The first surgery is the trans nasal wiring then a > month later she will have the first lift of the lids > done. > > I am nervous as I thought I have done ALL the > research I could until I spoke with someone > yesterday who has given me yet another referral to > Mass Eye & Ear. I just dont know what to do or > where to go at this point and we're under the gun as > I want this done before my little one goes to > kindergarten in Sept! > > HAS ANYONE GONE THROUGH CHILDRENS HOSPITAL OF > BOSTON WITH DR'S PETERSON AND DAGI?? > > IF SO, ANY FEEDBACK WOULD BE GREATLY APPRECIATED! > THANK YOU IN ADVANCE!!! > > ~nervous wreck jen! > > > > > L. Scopp > Independent Beauty Consultant > Kay, Inc. > Inspiring Beauty & Enriching Lives > 28 Gerard Street > Milford, CT 06460 > (203) 878-6099-home > (203) 556-2687-cell > Shop On line at my web site: > www.marykay.com/jscopp > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Hi Welcome to the group. At the bottom of this email you will see a copy of a recent post I made regarding transnasal wiring. I hope that you will find it useful. I think that the main questions you need to get answers for are: 1. Which of the procedures in the treatment plan are time-critical with respect to Jenna. In other words, thinking about Jenna's physical health alone, what things need to be done to her by a certain date? What are the ideal dates/ages? 2. Do Dr Dagi and Dr agree with the specialist at Mass Eye & Ear? 3. Then, once you have this information, think about the other issues, like do you think your little daughter Jenna will be confident enough in social surrounds to wait until the ideal date, rather than rushing a treatment plan because of fitting in with kindergarten. One thing to remember is that all of us are different. For some children early surgery is required because otherwise their vision will be impaired. For people who don't fall into this category, their is an optimum time too. Some children I met this last year are 6 and 9 years old. And they are due to have their first surgery in 2006. Both are confident and happy children. Please don't infer that I am suggesting that you should delay anything. My main comment is that you need to know all the reasons and dates for the procedures, and get a second opinion. Until you are happy that you have all the information, you won't be in the best place to make a decision. My own personal (and I emphasize "personal") opinion is that if you are committing for something to be done, possibly a little early, just so that Jenna completes her treatment plan before kindergarten, then I'd think about that again. Take care Shireen Mohandes London, England ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Hi I have tried to obtain some material that may be of use to you. I contacted a doctor who is running a research project on BPES at Moorfields Eye hospital in London. Here is the information he sent to me, please see below. It is good that we are able to ask fellow group members about information. The main thing to understand is that the only persons able to supply medical advice are, as Dr Hardy says, a doctor and an ocularplastic surgeon. When I write to the various specialists, I always tell them that our group tries to help obtain information about experiences, build friendships & provide support. And that the group, in general, does not seek medical advice from others members of the group about treatment options or endorsements. Our group is lucky enough to have a few doctors as members. In addition, some of our members are in the healthcare profession and are able to respond to questions concerning their area of expertise. Much of what we face is bewildering. Please keep the questions coming. The more information we can obtain and share, the better. Regards, Shireen Mohandes, London, England (I am 45 yrs old, and the only person in my family with BPES) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ From: Hardy, Sent: 12 March 2006 11:36 andy.bowles@... Subject: Re: a questions for you Dear Shireen, Thankyou for the email. I am back in Australia now, but still in touch with the project. The bloods are being analysed, and I hope we will have some results at some stage in the next month or so. It all takes a bit of time, as you can imagine, as it is not urgent research. Regarding trans-nasal wiring: This procedure is done when the space between the inner angles of the eyes (which is widened in BPES, and is called telecanthus) is too large to be corrected by operating on the soft tissues in this area alone, especially the tendon which connects the inner angles of the eyes to the bone on the side of the nose. The wire is passed through / around said tendons and then passed through the nasal cavity to the other side, where it is connected to the opposite tendon in a similar fashion. The wire is tightened and effectively brings the inner angles of the eye on each side closer together. The outcome can be a little unpredictable in some cases. Not that many people have had it done as it doesn't need to be done too often, as the distance between the inner angles of the eyes is usually not so great, but it certainly is done and has been done on BPES patients treated at Moorfields (and elsewhere, of course!). I'm afraid I can't easily find an image of the procedure to send you, mainly because of copyright rules, but you could find it in a text book of oculoplastic surgery if necessary. You are absolutely right not to try to give medical advice - it can be a complicated area, so others are best referred to their own doctor +/- an oculoplastic or plastic surgeon. Please feel free to keep in touch, especially to find out how the research is going. Kind regards, Hardy From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of ScoppSent: 23 March 2006 14:10blepharophimosis Subject: blepharophimosis HELP!!! Good morning. It's from Milford, CT - USA. My 4yr old daughter, Jenna is scheduled to have part 1 of a 2 procedure surgery on 4/25 at the Children's Hospital in Boston by Dr. Dagi and Dr. . The first surgery is the trans nasal wiring then a month later she will have the first lift of the lids done. I am nervous as I thought I have done ALL the research I could until I spoke with someone yesterday who has given me yet another referral to Mass Eye & Ear. I just dont know what to do or where to go at this point and we're under the gun as I want this done before my little one goes to kindergarten in Sept! HAS ANYONE GONE THROUGH CHILDRENS HOSPITAL OF BOSTON WITH DR'S PETERSON AND DAGI?? IF SO, ANY FEEDBACK WOULD BE GREATLY APPRECIATED! THANK YOU IN ADVANCE!!! ~nervous wreck jen! L. Scopp Independent Beauty Consultant Kay, Inc. Inspiring Beauty & Enriching Lives 28 Gerard Street Milford, CT 06460 (203) 878-6099-home (203) 556-2687-cell Shop On line at my web site: www.marykay.com/jscopp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2007 Report Share Posted March 10, 2007 I've been diagnosed w/ gallstones at 1.6 cm and met w/ my surgeon this week. I've been scheduled to have my gall bladder removed on the 20th of this month. I'm really reluctant about having any of my body parts removed permanently if not necessary. What can I do to: 1. Remove the gallstones now. 2. Prevent gallstones in the future? Thanks, Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2007 Report Share Posted March 10, 2007 Don't jump into surgery too fast. Study this situation and make a very informed decision because once it's gone, it's gone forever. Do one of the purges to flush your stones. Gallstones will form whether you have a gallbladder or not. However, with no GB, bile will continue to drip. I'll send you a private email in a minute with GB info and flush info. Amber bsomphan wrote: > I've been diagnosed w/ gallstones at 1.6 cm and met w/ my surgeon this > week. I've been scheduled to have my gall bladder removed on the 20th > of this month. > > I'm really reluctant about having any of my body parts removed > permanently if not necessary. What can I do to: > 1. Remove the gallstones now. > 2. Prevent gallstones in the future? > > Thanks, Sam > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2007 Report Share Posted March 10, 2007 Don't do it. If you can get rid of those stones and your gallbladder is NOT damaged, do not, i repeat do not let them remove that organ. bsomphan <bsomphan@...> wrote: I've been diagnosed w/ gallstones at 1.6 cm and met w/ my surgeon this week. I've been scheduled to have my gall bladder removed on the 20th of this month. I'm really reluctant about having any of my body parts removed permanently if not necessary. What can I do to: 1. Remove the gallstones now. 2. Prevent gallstones in the future? Thanks, Sam Learn more from our experience, over 7.000 liver flush stories: http://curezone.com/forums/fd50.asp?f=4 http://curezone.com/forums/fd50.asp?f=80 http://curezone.com/forums/fd50.asp?f=100 http://curezone.com/forums/fd50.asp?f=112 Liver Cleanse Recipe: http://CureZone.com/cleanse/liver/ Liver Flush FAQ: http://curezone.com/forums/f.asp?f=73 Images: http://CureZone.com/image_gallery/cleanse_flush/ http://CureZone.com/image_gallery/intrahepatic_stones/ To unsubscribe, send blank e-mail to: gallstones-unsubscribe and then reply to confirmation message! To Post message: gallstones Subscribe: gallstones-subscribe Web Sites for more information: http://CureZone.org http://www.liverdoctor.com/ http://www.sensiblehealth.com/ http://www.cyberpog.com/health/index.htm http://www.relfe.com/gall_stone_cleanse.html http://www.cleansingorsurgery.com/ Group page: gallstones To change your subscription to digest send blank e-mail to: gallstones-digest To change your subscription to NO-MAIL send blank e-mail to: gallstones-nomail To change your subscription to NORMAL send blank e-mail to: gallstones-normal You are receiving this email because you elected to subscribe to the Gallstones group on 's groups. By joining the list you agree to hold yourself FULLY responsible FOR yourself! Have a nice day ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 > > > I've been diagnosed w/ gallstones at 1.6 cm and met w/ my surgeon this > > week. I've been scheduled to have my gall bladder removed on the 20th > > of this month. > > > > I'm really reluctant about having any of my body parts removed > > permanently if not necessary. What can I do to: > > 1. Remove the gallstones now. > > 2. Prevent gallstones in the future? > > > > Thanks, Sam > > Hello~ > >I just had a thought about help from www.Needs.com referred to me by one of my doctors. They sell brands that are used by Naturpathic physicans so you can ask for them. Call or email-leave your problem for them to address by their Naturpathic staff-for your severe cases set a specific time to talk directly to them so communication is direct with the doctor. 1-800-295-6333 or www.needs.com. It is a start for someone who cannot afford up front fees, but if you are seriously ill-it still won't hurt to get as much info as possible if surgery is lurking in the background-surgeons don't tell you-you will have problems in digestion-so a good question to ask the medical community or the naturpathic physicans what will I need to replace my gallbadder function once it is gone-enzymes supplements like pepsin- there is more to the story that they don't tell you afterwards when it is too late. The liver needs help but what does the LIVER NEED??? Good Luck, Kindly, Sabina~ > >P.S. Questions they can help with is which product is best for like probiotics-keeping your digestive health with good bacteria called normal flora-learning how we digest food is very important-how long the food stays in your gut or how fast it moves through the system is not good either. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 > > I've been diagnosed w/ gallstones at 1.6 cm and met w/ my surgeon this > week. I've been scheduled to have my gall bladder removed on the 20th > of this month. > > I'm really reluctant about having any of my body parts removed > permanently if not necessary. What can I do to: > 1. Remove the gallstones now. > 2. Prevent gallstones in the future? > > Thanks, Sam > Hi Sam, I would read all I can pro and con for removal. See www.CureZone.com read about gallbladder flushes some people never have to do it again. Join the Health Group find gallbadder group and tell the moderator your concerns he will send you important information for you to evaluate. I say once it's gone you have another set of problems to have a better quality of life you thought was going to happen when you had the surgery in the first place ergo myself. So I just did a castor oil treatment over my liver applying it topically then a washcloth and plastic cover of some kind to not get it on my cloths you can do a hot water bottle placement too. Eat light no fats- it is a naturapathic remedy. I am trying to find out now that mind is gone how to replenish what my gallbadder did even though my liver now feels funny and the staples hurt. Anyway just educate yourself and find the best gallbadder flush out there. Good Luck! ~Sabina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 I just realized that this Monday will be the one year anniversary of my one and only GB attack. My Dr. wanted me to have surgery right away but I told him I wanted to do some research first. I did 3 purges, passed hundreds of stones in the beginning, and still pass some a few times a week. Since I learned that the GB is actually a very important organ and we increase our risk of cancer once it's removed, I'm very glad I didn't just blindly follow my Dr.s advice. There are no " do-overs " in regard to this. Once it's removed, there is no going back. Please hold off, do your own research and then make up your own mind what you want to do. If you just rush to surgery, you may live to regret it. Amber > > > bsomphan <bsomphan@... <mailto:bsomphan%40cox.net>> wrote: I've > been diagnosed w/ gallstones at 1.6 cm and met w/ my surgeon this > week. I've been scheduled to have my gall bladder removed on the 20th > of this month. > > I'm really reluctant about having any of my body parts removed > permanently if not necessary. What can I do to: > 1. Remove the gallstones now. > 2. Prevent gallstones in the future? > > Thanks, Sam > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 I've > > been diagnosed w/ gallstones at 1.6 cm and met w/ my surgeon this > > week. I've been scheduled to have my gall bladder removed on the 20th > > of this month. > > > > I'm really reluctant about having any of my body parts removed > > permanently if not necessary. What can I do to: > > 1. Remove the gallstones now. > > 2. Prevent gallstones in the future? > > > > Thanks, Sam > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2007 Report Share Posted March 11, 2007 GB stores bile secreted by the liver and then releases it into the intestine for digesting food.In the absence of a GB the bile directly drips on to the intestine,resulting in irritaion of its lining (diarrhoea) and may cause cancer (not my opinon but read on the net) in the long run. How does removing the GB effect the outcome for possibly getting cancer? It may represent many different levels in the gut-the fore, middle or hind gut and I do know that we have over 20 hormones in our gut anyway which play a part too. Just asking. Thanks, Sabina~ --------------------------------- Food fight? Enjoy some healthy debate in the Answers Food & Drink Q & A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2007 Report Share Posted March 12, 2007 --- In gallstones , Puneet kumar <kumarpuneet2004@...> wrote: > > GB stores bile secreted by the liver and then releases it into the intestine for digesting food.In the absence of a GB the bile directly drips on to the intestine,resulting in irritaion of its lining (diarrhoea) and may cause cancer (not my opinon but read on the net) in the long run. > >Hi Puneet, Thank you for your comment. Did you ever come across a remedy one can take to alleviate this problem when one looses their gallbladder? Is there anything one can do to lessen the irritation in the lining-like take an enzyme or antiacid to prevent cancer? I think the surgeons should tell tell his patients about this risk in addition to the surgical risks. Sabina~ > > > > How does removing the GB effect the outcome for possibly getting > cancer? It may represent many different levels in the gut-the fore, > middle or hind gut and I do know that we have over 20 hormones in our > gut anyway which play a part too. Just asking. Thanks, Sabina~ > > > > > > > > > > > --------------------------------- > Food fight? Enjoy some healthy debate > in the Answers Food & Drink Q & A. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 Ever tried chanca piedra. It's been recommended here and other places. -----Original Message----- From: nimana_sikh@... gallstones Sent: Mon, 12 Mar 2007 3:28 AM Subject: Re: help!!! start taking GallCleanse product right away. just go through their website and decide. they are so confident about their product that they promise money back. http://www.dissolveandflush.com/ god bless kishan singh delhi bsomphan <bsomphan@...> wrote: I've been diagnosed w/ gallstones at 1.6 cm and met w/ my surgeon this week. I've been scheduled to have my gall bladder removed on the 20th of this month. I'm really reluctant about having any of my body parts removed permanently if not necessary. What can I do to: 1. Remove the gallstones now. 2. Prevent gallstones in the future? Thanks, Sam --------------------------------- Finding fabulous fares is fun. Let FareChase search your favorite travel sites to find flight and hotel bargains. Quote Link to comment Share on other sites More sharing options...
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