Guest guest Posted January 23, 2008 Report Share Posted January 23, 2008 hi all - my name is mandy and I am 26 and married to gary (32) and we have 3 daughters, 4,2 and 8 weeks gary has been ill since april 2006 - started with an ear infection which he caught whikst working at a nursing home - developed into a chronic ear infection as after umpteen treatments it is still affecting him. he got gradually worse and he became exhausted collapsing at work and blacking out at home. december 2006 he passed out for a good 10 minutes whilst he fed our eldest 2. this prompted me to get him to doctors again where they thought he had epilepsy/brain tumours etc and told him he would have a 12 month wait to see any nuerologists. In the meantime he had lost 2 jobs because of this february 2007 we were fed up and couldn't wait that long to find out if it was a tumour so my parents paid for us to see a bupa nuerologist he checked him over (no proper tests) and diagnosed CFS/ME in april 2007 he was really ill and lost a total of 3 jobs due to passing out - we had no money coming in so he applied for over 70 jobs - no one wanted to hire him so we gave up and he applied for incapacity benefit in july 2007 he is constantly dizzy and exhausted and we dont have the lives we used to - he cant play with his daughters for 5 minutes without passing out he has now developed really bad headaches - ie yesterday he couldn't get out of bed - had sharp headache and bad dizziness - so bad he had to clutch his head. I have come into living room before to him lying on floor holding his head we are worried it might be something else but the doctors aren't interested. someone mentioned to me about hypotyroid? but how do we approach this with doctors who aren't bothered? to add to all this they have stopped his incapacity benefit cause he didn't score enough points on the medical - currently appealing his doctor also put him on anti depressents - no idea why cause he aint depressed. not sure if this is linked or not but since age of 2 gary's hands have shaked - it gets bad sometimes that he avoids certain tasks any help/advice greatly appreciated. thank you - Mandy xxx Quote Link to comment Share on other sites More sharing options...
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