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Plese, please, keep me informed of what you find out. i amso worried

about getting this drug again. i jave a six months supply from dr. scott.

please send me any list of docs. i live in mich. Detrouit subutb.. macom

county. edie1015@.... maybe it woulfd br god to not put this

info for everyone to see. o trust our regulsar posterdm but who do we know

is really takingf it all in????? Take care. EdieP.S. I am too old for this

##$#$ lololol

[low dose naltrexone] Thank you all!

>

>

> Special thanks to Marcie, , Larry, Joyce, Rainey and Maureen

> for your advice and alternative med links. I'll be browsing through

> them today, looking for a doc in our area to prescribe. I

> have " hatched " a couple of " back up " plans just in case, and they are

> quite devious, but as most of us can attest to, we do what we have to

> do.

>

> When we found out Colby had to have his gallbladder removed, we

> didn't find out from our regular PCP. He was on vacation, so we had

> to see his partner. I've worked with this doctor in the past, and

> I'm thinking he might be a bit more " flexible " as far as LDN goes, so

> we will approach him first. (I think I will send my 25 year old

> daughter in for this one - he seems quite taken with her...) Our

> regular PCP is a wonderful man, but a bit skittish regarding LDN when

> we approached him initially. He insisted that we consult with his

> neuro buddy, who was totally against it, of course, so I'm pretty

> much ruling him out all the way around.

>

> Another thought I'm entertaining is even more deceptive! If I have to

> agree to start Copaxone to get the LDN, I will. That doesn't mean we

> have to use it.

>

> I'm not this kind of person, but if I become desperate enough to get

> it, I will do what I have to. This has made too huge of a change in

> my son's life, and I will not give it up. Thank goodness we have a

> couple of months worth of the 3 mg and another couple of months worth

> of the 4.5. At least I have a little " room for error " .

>

> Maureen, thank you so much for sending me the info that you sent me.

> I had already printed it the first time I ever saw it posted, and

> thought it was very well done. It's in my LDN ammunition stack,

> ready to go! I should have done as Larry said and been better

> prepared for this. I think once he started on the LDN, I got a bit

> lazy. For the first time in over 3 years, we were able to relax and

> breath a sigh of relief with this disease. I think I got too

> comfortable.

>

> My advice to everyone who is using a phone consultation with any doc

> to obtain LDN at this point would be to make other arrangements as

> quickly as possible. I agree totally with in that this will

> soon be a fond memory, and none of the doctors will be doing it.

> Ironically, we haven't had much need for doctors of any kind for my

> son since starting LDN, so proving how much it has helped him

> shouldn't be too difficult. On the other hand, we didn't see the PCP

> much and his idiot neuro that I fired took care of the majority of

> his problems prior to LDN, so there is not really alot of

> documentation as to how poorly he was doing on the interferons

> outside the neuros records, and they are pretty vague as far as our

> complaints went.

>

> I will keep you posted, and I plan to call Dr. 's office first

> thing Monday in an effort to find out more about what has happened

> here. Take care, and happy new year!

>

> Kim

>

>

>

>

>

>

>

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> Plese, please, keep me informed of what you find out. i amso worried

> about getting this drug again. i jave a six months supply from dr.

scott.

> please send me any list of docs.

I don't know how it works in the US but from my experience here in

Canada Once I had a perscription from a doctor here in my province, I

had no problem getting a new perscription from a new doctor.

It's easier to get a perscription from a doctor if you already have

one from another doctor.

So try again to get a perscription from a doctor in your area.

Johanne F

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  • 2 years later...

Thank you all for giving me such valuable information about my

situation (crowns causing gallbaldder removal, etc.)

Here are some things I know. The canine cupids (two upper teeth that

are third from the center -sometimes they are pointy) are the ones

that are on the gallbladder meridian and those are two of the seven

crowns that were put in. SO, I almost certain that is what caused my

gallbladder problems.

I have found a dentist 2 hours away who in a naturopath/wholistic dr

Jack wong in Amarillo TX. I found him off the mercury free dentist

list that was posted--thank you!! The first available appt. he had

was feb. 13th--I assume this will be a consultation only. He will

also be removing all mercury in my mouth (I think a total of 11

fillings--so, 7 crowns and 11 mercury amalgams--does anyone know how

long this process will take?--months or years?).

I had the procedure scheduled with just a regualur dentist here to

have them all done in one day and immediately have new ones put on

(no temps.) From what you have told me that would not be wise. I

think I need someone to reiterate that to me. I feel in such a rush

to get them done b/c I want this bad memory erased. Plus it is my

front upper teeth (such a bad situation b/c I did NOT get them put on

for cosmetic reasons, but b/c my teeth were damaged from an

antibitoic I took when I was younger and my teeth were chipping away)-

-but it has turned into a cosmetic issue b/c I do not want to wear

temps for 6 weeks (which is what Dr. wong does to help your body

heal) ....please tell me that my longterm health is more important!

Also, is feb. or march too long to wait? I would guess having them

safely removed is as important as having them removed in the first

place.

So, my liver is being very taxed right now--no gallbladder, tons of

metal in my mouth. I have read Dr. Cabot's book 'the liver cleansing

diet'--any other ideas?? other pracitcal things I can do. I have been

doing the warm water and lemon juice....anything else

As for my 'phantom' gallbladder pain, I went to my MD and he said it

was likely scar tissue...which fits. I also seem to have a problem

with forming too much scar tissue after surgies--I wonder if there is

any connection with the liver/galbladder/teeth and scar tissue..?

Anyway, again, I VERY VERY much appreciate everyones feedback,

suggestions, support, etc. I think you have helped me to NOT make

another hasty bad decision....

-jonna

> >

> > Jonna,

> >

> > Please research your mercury removal carefully before you have

it

> done. You may need to supplement your body carefully (and with

> specific products) for a few weeks before the removal. Then there

is

> a very specialized process at the dentist, involving IV vitamin C

and

> other important things, to make sure your body can handle the

removal.

> >

> > Cutler is one of the experts on mercury that you should

> research. You can google him and find out a lot. He's also

written a

> book on the topic of mercury amalgams. I believe there's also a

> group on this topic.

> >

> > I wish you luck. My husband and I both have Lyme and he has no

> amalgam fillings but has mercury toxicity. He's getting ready for

> chelation but needs to detox first and it's a long process. I have

> two amalgam fillings and two crowns, so eventually I'm going to

have

> to deal with this also.

> >

> > Since your body is in a weakened state right now, please go

slowly

> as you proceed through your healing.

> >

> > All the best,

> >

> > Margherita

> >

> > ----- Original Message -----

> > From: lillycherokee

> > gallstones

> > Sent: Saturday, November 03, 2007 10:53 AM

> > Subject: new here-need help

> >

> >

> > Hi.

> > I am a 34 year old female and have been lurking in this group

for a

> > about 6 weeks.

> > Here is the story as condensed as I can make it:

> > 10 weeks ago I had seven dental crowns put in. Three days later

I had

> > intense pain in my gallbladder. (To my knowledge, I had never

> > experienced any problems with my gallbladder). I went to MD,

had an

> > ultrasound--they said it was full of sludge, very inflamed

walls, and

> > blocked--and it needed to come out NOW. SO, it was removed the

next

> > day. (of course, I now wish I would have looked into the

situation

> > more). After the removal, I started having lung problems,

developed

> > pleurisy, severe fatigue, severe sinus problems (among other

things).

> > Went to an ND. He said it was caused by my crowns. Went back to

> > dentist and found out my crowns have all kinds of metal in them

> > (including mercury and nikel) BTW, nikel I am allergic to nikel

> > according to allergy tests conducted when I was 8. I did not

know the

> > crowns had metal--much less nikel. I thought they were all

porcelin.

> > NOW, in the past week I have developed a very severe pain where

my

> > gallbladder was. The pain is not affected by what I eat, but

hurts

> > mostly when I lean forward. It is getting worse by the day.

(another

> > note--I have a high pain threshold) Does anyone know what this

could

> > be liver? pancreas? intestine?

> > I am going to have my crowns removed, but am having a hard time

> > getting into a dentist that uses naturopathic treatments. I do

not

> > want to make ANOTHER bad decision. The dentist who installed

them

> said

> > he would remove them, bu he does not have the equipment (not to

> > mention the knowledge) to make sure I do not inhale the smoke

from

> the

> > metal.

> > I have been back to the ND and my entire system is messed up.

He has

> > given me some all natural medicine to 'buy me some time' as he

says.

> > SO, my questions are: what do you think is the current pain is

from?

> > Do you indeed think all of this is from the crowns? Any

> recomendations

> > for a dentist in Texas (preferably in the northern area)? any

> > suggestion for the removal? anything I can take to help the

situation?

> >

> > A few other tidbits about me--before all this happened i

considered

> > myself quite healty. I have run marathons and currently run

about 40

> > miles per week, in addition to eating lots of fruits and

veggies (but

> > I am human and do sometimes eat the less healthy things). I do

have a

> > history of an eating disorder but maintain a normal weight now.

I

> have

> > two children 1 and 4 and had very healthy, uneventful

pregnancies. I

> > cannot bear the thought of having comprimised health for the

rest of

> > my life, but from what I have read I am likely to have liver

trouble

> > for the rest of my life. I am quite embarrased to even post

this. I

> > consider myself an educated person (I have a PhD in psychology)

> and am

> > so MAD at myself for not researching both the dental work and

> > gallbladder removal before I had the procedures done.

> >

> > Any suggestions, support, insight is very appreciated!!

> > -jonna

> >

> >

> >

> >

> >

> >

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Hi, check out www.dr-schulze.com especially the liver cleanse this may

help you. As far as your phantom liver pain it may not be phantom.

Usually if someone has gall stones they usually have liver stones.

(medical doctors never tell anyone this, many times because they don't

know.) In fact most gallstones form in the liver and then fall into

the gallbladder where they are discovered. You may also want to check

out drnatura.com if you haven't already, their colonix and toxin out

programs are excellent I have tried them and I love them. Hope this

helps and that everything works out for you.

Regina

-- In gallstones , " lillycherokee " <Jonna.Byars@...> wrote:

>

> Thank you all for giving me such valuable information about my

> situation (crowns causing gallbaldder removal, etc.)

> Here are some things I know. The canine cupids (two upper teeth that

> are third from the center -sometimes they are pointy) are the ones

> that are on the gallbladder meridian and those are two of the seven

> crowns that were put in. SO, I almost certain that is what caused my

> gallbladder problems.

> I have found a dentist 2 hours away who in a naturopath/wholistic dr

> Jack wong in Amarillo TX. I found him off the mercury free dentist

> list that was posted--thank you!! The first available appt. he had

> was feb. 13th--I assume this will be a consultation only. He will

> also be removing all mercury in my mouth (I think a total of 11

> fillings--so, 7 crowns and 11 mercury amalgams--does anyone know how

> long this process will take?--months or years?).

> I had the procedure scheduled with just a regualur dentist here to

> have them all done in one day and immediately have new ones put on

> (no temps.) From what you have told me that would not be wise. I

> think I need someone to reiterate that to me. I feel in such a rush

> to get them done b/c I want this bad memory erased. Plus it is my

> front upper teeth (such a bad situation b/c I did NOT get them put on

> for cosmetic reasons, but b/c my teeth were damaged from an

> antibitoic I took when I was younger and my teeth were chipping away)-

> -but it has turned into a cosmetic issue b/c I do not want to wear

> temps for 6 weeks (which is what Dr. wong does to help your body

> heal) ....please tell me that my longterm health is more important!

> Also, is feb. or march too long to wait? I would guess having them

> safely removed is as important as having them removed in the first

> place.

> So, my liver is being very taxed right now--no gallbladder, tons of

> metal in my mouth. I have read Dr. Cabot's book 'the liver cleansing

> diet'--any other ideas?? other pracitcal things I can do. I have been

> doing the warm water and lemon juice....anything else

> As for my 'phantom' gallbladder pain, I went to my MD and he said it

> was likely scar tissue...which fits. I also seem to have a problem

> with forming too much scar tissue after surgies--I wonder if there is

> any connection with the liver/galbladder/teeth and scar tissue..?

> Anyway, again, I VERY VERY much appreciate everyones feedback,

> suggestions, support, etc. I think you have helped me to NOT make

> another hasty bad decision....

> -jonna

>

>

> > >

> > > Jonna,

> > >

> > > Please research your mercury removal carefully before you have

> it

> > done. You may need to supplement your body carefully (and with

> > specific products) for a few weeks before the removal. Then there

> is

> > a very specialized process at the dentist, involving IV vitamin C

> and

> > other important things, to make sure your body can handle the

> removal.

> > >

> > > Cutler is one of the experts on mercury that you should

> > research. You can google him and find out a lot. He's also

> written a

> > book on the topic of mercury amalgams. I believe there's also a

>

> > group on this topic.

> > >

> > > I wish you luck. My husband and I both have Lyme and he has no

> > amalgam fillings but has mercury toxicity. He's getting ready for

> > chelation but needs to detox first and it's a long process. I have

> > two amalgam fillings and two crowns, so eventually I'm going to

> have

> > to deal with this also.

> > >

> > > Since your body is in a weakened state right now, please go

> slowly

> > as you proceed through your healing.

> > >

> > > All the best,

> > >

> > > Margherita

> > >

> > > ----- Original Message -----

> > > From: lillycherokee

> > > gallstones

> > > Sent: Saturday, November 03, 2007 10:53 AM

> > > Subject: new here-need help

> > >

> > >

> > > Hi.

> > > I am a 34 year old female and have been lurking in this group

> for a

> > > about 6 weeks.

> > > Here is the story as condensed as I can make it:

> > > 10 weeks ago I had seven dental crowns put in. Three days later

> I had

> > > intense pain in my gallbladder. (To my knowledge, I had never

> > > experienced any problems with my gallbladder). I went to MD,

> had an

> > > ultrasound--they said it was full of sludge, very inflamed

> walls, and

> > > blocked--and it needed to come out NOW. SO, it was removed the

> next

> > > day. (of course, I now wish I would have looked into the

> situation

> > > more). After the removal, I started having lung problems,

> developed

> > > pleurisy, severe fatigue, severe sinus problems (among other

> things).

> > > Went to an ND. He said it was caused by my crowns. Went back to

> > > dentist and found out my crowns have all kinds of metal in them

> > > (including mercury and nikel) BTW, nikel I am allergic to nikel

> > > according to allergy tests conducted when I was 8. I did not

> know the

> > > crowns had metal--much less nikel. I thought they were all

> porcelin.

> > > NOW, in the past week I have developed a very severe pain where

> my

> > > gallbladder was. The pain is not affected by what I eat, but

> hurts

> > > mostly when I lean forward. It is getting worse by the day.

> (another

> > > note--I have a high pain threshold) Does anyone know what this

> could

> > > be liver? pancreas? intestine?

> > > I am going to have my crowns removed, but am having a hard time

> > > getting into a dentist that uses naturopathic treatments. I do

> not

> > > want to make ANOTHER bad decision. The dentist who installed

> them

> > said

> > > he would remove them, bu he does not have the equipment (not to

> > > mention the knowledge) to make sure I do not inhale the smoke

> from

> > the

> > > metal.

> > > I have been back to the ND and my entire system is messed up.

> He has

> > > given me some all natural medicine to 'buy me some time' as he

> says.

> > > SO, my questions are: what do you think is the current pain is

> from?

> > > Do you indeed think all of this is from the crowns? Any

> > recomendations

> > > for a dentist in Texas (preferably in the northern area)? any

> > > suggestion for the removal? anything I can take to help the

> situation?

> > >

> > > A few other tidbits about me--before all this happened i

> considered

> > > myself quite healty. I have run marathons and currently run

> about 40

> > > miles per week, in addition to eating lots of fruits and

> veggies (but

> > > I am human and do sometimes eat the less healthy things). I do

> have a

> > > history of an eating disorder but maintain a normal weight now.

> I

> > have

> > > two children 1 and 4 and had very healthy, uneventful

> pregnancies. I

> > > cannot bear the thought of having comprimised health for the

> rest of

> > > my life, but from what I have read I am likely to have liver

> trouble

> > > for the rest of my life. I am quite embarrased to even post

> this. I

> > > consider myself an educated person (I have a PhD in psychology)

> > and am

> > > so MAD at myself for not researching both the dental work and

> > > gallbladder removal before I had the procedures done.

> > >

> > > Any suggestions, support, insight is very appreciated!!

> > > -jonna

> > >

> > >

> > >

> > >

> > >

> > >

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