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My daughter had a complete personality change on Anafranil.It was very gradual

and I didn't realize what was causing this.She turned into someone no one wanted

to be around.Once she was taken off of the Anafranil,her whole disposition was

wonderful.She laughed,talked,went outside,participated in other activities.

Theresa

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  • 1 year later...
Guest guest

Thanks Tamika, I'm just a good ole southern gal :) But I am in North Carolina,

a bit further up but still in the heart of the South :)

H.

Kudzu Moon Soaps

http://kudzumoonsoaps.homestead.com

i checked out your site i really like it :) very informative and friendly

feeling. i hope buisness soars for you. from a now transformed southener .

being from the north i

stiil thought of the south fondly. my best friend is from north click(lol)

and as far as

south carolina i think it is a beautiful state.. i got married in beaumont,sc

well enough OT stuff happy soaping--tamika

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  • 4 weeks later...
Guest guest

Hi Chelle...

Thanks for the birthday wishes!

Yeah, it sure was scary. It still is kinda, 'cause

they still don't know where the bleeding came from. Oh

well, another mystery. Guess it comes with the

territory. Its funny, I woke up a little while ago,

and, well, I don't FEEL 50! (lol)

Anyway, besides being real tired, feeling a little

weak, I actually feel pretty good...pain isn't too

bad. I am determined to have a good day! Hope everyone

else does as well. Take care. SueH

--- michellefour4@... wrote:

> OMG , I am so sorry ,that must have been

> scary.

> Pleaseeeeeee keep us updated. How are you feeling

> now? I sure hope

> you have a Happy Birthday tomorrow.

>

> Love,

> Chelle

>

>

> > Hello! Ya know, these illness' are a never-ending

> > source of amazement for me. Except for some nasty

> > joint pain...I have been feeling pretty good

> lately.

> > Even my mental state has been good....no...great.

> I

> > should have known that it couldn't last too long.

> I

> > have got to stop kidding myself...as soon as I

> start

> > to think " maybe I can go back to work " something

> > happens to shoot me down. Guess I just wasn't

> meant to

> > work!!!(hahaha) So, there I was Tuesday, having

> the

> > house inspected for termites (some fun). The folks

> > were checking my house and my neighbors' (friend)

> so I

> > was outside for a couple of hours. I was feeling

> > pretty good...a bit tired...but not too bad.

> Finally

> > the people left, my friend and I talked a while

> and I

> > then went home. I suddenly felt like I was gonna

> have

> > an attack of the runs (yep. I do have IBs). Well,

> much

> > to my surprise...it wasn't what I thought...It was

> all

> > blood. There I was...feeling great...but

> hemmoraging!

> > (sp?) Spent the next day and a half in the

> hospital.

> > They aren't sure where the bleeding was coming

> > from...oh well....another mystery. Looking on the

> > bright side, they were very concerned that I would

> > need a transfusion, but I managed to avoid that.

> So

> > now, I'm just real tired.... I wonder what else

> this

> > body has in store for me... My birthday is

> > Saturday...I will be 50... At least least I won't

> (I

> > hope) be spending it in the hospital. I was

> supposed

> > to go to Florida on Friday for a week...but I

> think

> > I'll hang around home for a few extra days. The

> good

> > news is that at least I have been able to maintain

> a

> > sense of humor through this latest bout of " guess

> the

> > illness "

> > Hope you are all doing well. Take care. SueH

> >

> > __________________________________________________

> >

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  • 1 year later...
Guest guest

Shaye,

I'm sorry I haven't answered this before now. I've had my hands full

getting things done that I'd put off for too long. Once I got caught up I

found that almost all my soap was sweating from the high humidity we've had.

On top of that a couple of batches have developed DOS. I'm rotating batches

of soap in the oven to dry them out with the pilot light.

The NE gathering was lots of fun. Maybe Becky or Pat should post about

it because I missed all the demos (big surprise, huh? lol) but one. Becky,

thanks again for helping me get to RI!

WOW, Shaye! He really does decorate ritzy houses! That is quite

impressive! Thanks for showing me. :)

H.

----- Original Message -----

<< How was your NE gathering?>>

<< http://www.horneinternational.com/ This is him and his work.>>

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  • 3 months later...

Great work h!

Sometimes I think Bernie is stronger when he is asleep. He'll push his legs

with more force. Is that possible, I wonder?

Bettylou

> I just had to write and tell y'all what h did. Last night when she

went to sleep she was laying on her back, and when I went back in about an

hour later to put on her mask, she was laying on her left side. SHE ROLLED

OVER!!!!!!!!!! I'm not sure if it was just a fluke or what, but it's

definitely not something she's normally able to do on her own. Anyway, I

just wanted to share my excitement!

>

> Jeni

>

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Jordan was always a little stronger while he slept too. But I can't tell if

that's the case anymore because he's just so much weaker now than a that

time.

Re: h

Great work h!

Sometimes I think Bernie is stronger when he is asleep. He'll push his legs

with more force. Is that possible, I wonder?

Bettylou

> I just had to write and tell y'all what h did. Last night when she

went to sleep she was laying on her back, and when I went back in about an

hour later to put on her mask, she was laying on her left side. SHE ROLLED

OVER!!!!!!!!!! I'm not sure if it was just a fluke or what, but it's

definitely not something she's normally able to do on her own. Anyway, I

just wanted to share my excitement!

>

> Jeni

>

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  • 1 year later...
Guest guest

In a message dated 7/22/04 1:26:22 PM Eastern Daylight Time,

writes:

> BITE YOUR TONGUE!! I have a new house too! lol

>

hehehe.... You never know......LOL

:-)

Carol J

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  • 1 year later...

This is interesting because Adan was in a brace during this visit he took the brace off for about 30 min prior to the xrays then made the decision based on the shape and degrees of his back I think the fact that he was braced made the back have a better rvad and cobb although I did not understand that then......I decided to make sure another Dr ( Dr D'astou) had the same opinion....They did not so we went with Casting instead of waiting to hope the diagnosis from Dr sanders was correct....we casted because We said if it gets better in the cast then either way we only lost time and $ but if it gets worse we lost some serious time......we still lost time because ins ted of being in the cast in Sept like planned it did not happen until march due to colds and delays in the date so I lost about 6 months of the "prime growth" prior to 2 years old ....again I do not know it it would have made a difference

Remember your son is NOT braced and the RVAD is low that may be the answer...again the Shiriners doctors always gave me a low RVAD below 20 even 24 hrs out of brace and the Children's Boston gave me a RVAD 25to 30 so I am not sure who is correct all I know is he is in the best in case it does get worse...

Hope this helps and call me if I can help you in any way

Claflin <noellesmommy@...> wrote:

Hey, I just saw in Deshea's post that Dr. refused to cast Adan because his RVAD is less than 20 degrees. This seems to be Dr. Khoury's feeling with Ian as well. Can you tell me what made you decide to have him casted and do you think that if I insist that the Erie Shriner's will go ahead and cast Ian? What was Adan's Cobb angle.

We're just kind of stuck here in limbo with Ian and I am unsure what to do next if there is no improvement by October when we have another set of films taken.

Noelle (12-2-01)Ian (8-15-04)

Stay connected, organized, and protected. Take the tour

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  • 2 years later...

h,

Welcome to the group! That's so great to hear that you decided to

see one of the country's best surgeons because of this group! About

the 24 hr pH probe: my husband has had it done twice (once by a local

hospital and once at the Univ. of Michigan) and both times he removed

the tube himself. This was done after returning to the hospital where

they placed it. He was a little surprised at first, too, when they

asked him if he'd like to remove it. Maybe it's easier when you do it

yourself (like taking off a band-aid?). He said the tube comes out a

lot easier than it goes in :). Good luck!

in Michigan

>

>

>

> Hi All,

>

> I've read posts and have taken them to heart. If not for reading

> information posted here I probably would have had a myotomy done by a

> regional surgeon. Instead, I traveled to CC and Dr. Rice performed a

> HM with a Dor Wrap about a month ago. I am pleased with the outcome

> although I suffer from gas pains daily and take meds to help. Dr.

> Rice did tell me I would shouldn't have had the two Botox treatments

> but they bought me some time to decide what I wanted to deal with,

> dilations the rest of my life or a hopefully more permanent fix.

> Oddly enough the first Boxtox treatment lasted approximately a month

> and the second for five months which gave me plenty of time to deal

> with acceptance.

>

> I'm due back in a few weeks for a manometry and PH testing. I'm

> wondering just how this will help and will I receive testing

> results. This will be my second trip back since the myotomy and last

> until the yearly check-up. I think I dread the 24 ph testing more

> than I did the myotomy as I went through this in 1972 for just 12

> hours and didn't deal with it too well. I understand why there would

> be a need for PH testing but wonder why another manometry...it's my

> understanding this measures motility and after a myotomy, gravity does

> the work. I'm obviously confused about the manometry. I did have

> one when I was first diagnosed with classic acalasia and it wasn't

> painful. I had just woke up from anethesia after having an

> esophegeal examination though.

>

> we're booked a room for two nights, my first appointment is 9 AM and

> my husband doesn't care for driving at night. I am hoping this will

> be enough time for scheduled tests. I would appreciate someone that

> has went through these tests posting their experience and if the ph

> test was bearable. The letter containing information about PH

> testing is somewhat confusing to me as it mentions patient

> instructions for 24 PH monitor removal. Surely this doesn't mean the

> patients is responsible for removing the monitor. Hopefully matters

> have improved in the decades since I've had my first test.

>

> I've spent hours lurking and have learned so much, I wish you all the

> best and Isabella in case your reading this, my prayers are with you

> and all for many successful years of eating with enjoyment.

>

> Love

> h from PA.

>

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>

> Hi h,

I went for my follow up with Dr. Rice in June. Really not too bad. I

had a timed barium swallow also. I think they do another manometry

because it measures the pressure of the LES. The PH test was

inserted much the same as the manometry tube. The tube is taped to

your face and a monitor is strapped to your shoulder and they send

you off for 24 hours. The only problem I had was when I tried to

drink ice water, the tube hardens and tends to gag you. I went back

to the clinic and they removed the tubes. They did give me

instructions for removal. I think incase I had a problem during the

24 hours. The nurse at the clinic was very good at inserting the

tubes and the tests were not nearly as bad as the ones I've had at

home. Right after the ph tube was taken out I saw Dr. Rice and was

ready to leave for home. I think two days should do it. We flew so

we spent three days but we were ready to leave by about one pm on the

second day.

Hope this helps,

JoAnn

>

> Hi All,

>

> I've read posts and have taken them to heart. If not for reading

> information posted here I probably would have had a myotomy done by

a

> regional surgeon. Instead, I traveled to CC and Dr. Rice performed

a

> HM with a Dor Wrap about a month ago. I am pleased with the

outcome

> although I suffer from gas pains daily and take meds to help. Dr.

> Rice did tell me I would shouldn't have had the two Botox

treatments

> but they bought me some time to decide what I wanted to deal with,

> dilations the rest of my life or a hopefully more permanent fix.

> Oddly enough the first Boxtox treatment lasted approximately a

month

> and the second for five months which gave me plenty of time to deal

> with acceptance.

>

> I'm due back in a few weeks for a manometry and PH testing. I'm

> wondering just how this will help and will I receive testing

> results. This will be my second trip back since the myotomy and

last

> until the yearly check-up. I think I dread the 24 ph testing more

> than I did the myotomy as I went through this in 1972 for just 12

> hours and didn't deal with it too well. I understand why there

would

> be a need for PH testing but wonder why another manometry...it's my

> understanding this measures motility and after a myotomy, gravity

does

> the work. I'm obviously confused about the manometry. I did have

> one when I was first diagnosed with classic acalasia and it wasn't

> painful. I had just woke up from anethesia after having an

> esophegeal examination though.

>

> we're booked a room for two nights, my first appointment is 9 AM

and

> my husband doesn't care for driving at night. I am hoping this

will

> be enough time for scheduled tests. I would appreciate someone

that

> has went through these tests posting their experience and if the ph

> test was bearable. The letter containing information about PH

> testing is somewhat confusing to me as it mentions patient

> instructions for 24 PH monitor removal. Surely this doesn't mean

the

> patients is responsible for removing the monitor. Hopefully matters

> have improved in the decades since I've had my first test.

>

> I've spent hours lurking and have learned so much, I wish you all

the

> best and Isabella in case your reading this, my prayers are with

you

> and all for many successful years of eating with enjoyment.

>

> Love

> h from PA.

>

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h wrote:

> ...why another manometry...

Not all doctors require this, but I can see where it is a good idea. It

records the pressers at the LES. If you develop problems later they can

do a third manometry and compare to see if the LES pressures have

changes. That can give an indication of whether the myotomy is failing

or if the problems is something else.

notan

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>

>

>

> Hi All,

>

> I've read posts and have taken them to heart. If not for reading

> information posted here I probably would have had a myotomy done by a

> regional surgeon. Instead, I traveled to CC and Dr. Rice performed a

> HM with a Dor Wrap about a month ago. I am pleased with the outcome

> although I suffer from gas pains daily and take meds to help. Dr.

> Rice did tell me I would shouldn't have had the two Botox treatments

> but they bought me some time to decide what I wanted to deal with,

> dilations the rest of my life or a hopefully more permanent fix.

> Oddly enough the first Boxtox treatment lasted approximately a month

> and the second for five months which gave me plenty of time to deal

> with acceptance.

>

> I'm due back in a few weeks for a manometry and PH testing. I'm

> wondering just how this will help and will I receive testing

> results. This will be my second trip back since the myotomy and last

> until the yearly check-up. I think I dread the 24 ph testing more

> than I did the myotomy as I went through this in 1972 for just 12

> hours and didn't deal with it too well. I understand why there would

> be a need for PH testing but wonder why another manometry...it's my

> understanding this measures motility and after a myotomy, gravity does

> the work. I'm obviously confused about the manometry. I did have

> one when I was first diagnosed with classic acalasia and it wasn't

> painful. I had just woke up from anethesia after having an

> esophegeal examination though.

>

> we're booked a room for two nights, my first appointment is 9 AM and

> my husband doesn't care for driving at night. I am hoping this will

> be enough time for scheduled tests. I would appreciate someone that

> has went through these tests posting their experience and if the ph

> test was bearable. The letter containing information about PH

> testing is somewhat confusing to me as it mentions patient

> instructions for 24 PH monitor removal. Surely this doesn't mean the

> patients is responsible for removing the monitor. Hopefully matters

> have improved in the decades since I've had my first test.

>

> I've spent hours lurking and have learned so much, I wish you all the

> best and Isabella in case your reading this, my prayers are with you

> and all for many successful years of eating with enjoyment.

>

> Love

> h from PA.

>

Hi h,

I just had a second mamometry done today it was much better than the

first I believe that was due to a more experienced person doing it. I

was fortunate to have my ph study done hi-tech with a bravo capsule.

please read my post about going to Shands. Good Luck to you and you

will be in my prayers.

Blessed Be,

Janine

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h,

I had a myotomy done last June by Dr. Rice and the follow-up done last August.

I don't remember a follow-up manometry - just the pH test. I too dreaded it, but it really wasn't that bad - more an inconvenience than anything else. It is true that they place the tube just as they would during the manometry, but the tube itself is much smaller in diameter. Once the tube is placed, they tape it to the side of your face so that it doesn't move much, you put the monitor part around your neck - it hangs by your side - and you are on your way. I don't recall exactly now, but it seems to me you had to push a button to let the machine know that you were about to eat and/or had finished eating. I think you also pushed a button if you were going to lay down. Anyway, it was not difficult. The next morning, I went back in to have it removed - you certainly do not need to remove it yourself. They then print out results and you go to see Dr. Rice (or his assistant). I was told that very day what the results were - and, fortunately, I had no reflux episodes.

Try not to stress too much. It really wasn't bad - just an inconvenience. Try to keep yourself occupied to get your mind off it during those 24 hours. It will be over before you know it!

If you have any more questions, I'd be happy to answer them.

(in Ohio)

From: achalasia [mailto:achalasia ] On Behalf Of janinezoltanSent: Friday, September 07, 2007 1:39 AMachalasia Subject: Re: h

>> > > Hi All,> > I've read posts and have taken them to heart. If not for reading > information posted here I probably would have had a myotomy done by a > regional surgeon. Instead, I traveled to CC and Dr. Rice performed a > HM with a Dor Wrap about a month ago. I am pleased with the outcome > although I suffer from gas pains daily and take meds to help. Dr. > Rice did tell me I would shouldn't have had the two Botox treatments > but they bought me some time to decide what I wanted to deal with, > dilations the rest of my life or a hopefully more permanent fix. > Oddly enough the first Boxtox treatment lasted approximately a month > and the second for five months which gave me plenty of time to deal > with acceptance. > > I'm due back in a few weeks for a manometry and PH testing. I'm > wondering just how this will help and will I receive testing > results. This will be my second trip back since the myotomy and last > until the yearly check-up. I think I dread the 24 ph testing more > than I did the myotomy as I went through this in 1972 for just 12 > hours and didn't deal with it too well. I understand why there would > be a need for PH testing but wonder why another manometry...it's my > understanding this measures motility and after a myotomy, gravity does> the work. I'm obviously confused about the manometry. I did have > one when I was first diagnosed with classic acalasia and it wasn't > painful. I had just woke up from anethesia after having an > esophegeal examination though.> > we're booked a room for two nights, my first appointment is 9 AM and > my husband doesn't care for driving at night. I am hoping this will > be enough time for scheduled tests. I would appreciate someone that > has went through these tests posting their experience and if the ph > test was bearable. The letter containing information about PH > testing is somewhat confusing to me as it mentions patient > instructions for 24 PH monitor removal. Surely this doesn't mean the > patients is responsible for removing the monitor. Hopefully matters > have improved in the decades since I've had my first test.> > I've spent hours lurking and have learned so much, I wish you all the > best and Isabella in case your reading this, my prayers are with you > and all for many successful years of eating with enjoyment.> > Love > h from PA.>Hi h,I just had a second mamometry done today it was much better than thefirst I believe that was due to a more experienced person doing it. Iwas fortunate to have my ph study done hi-tech with a bravo capsule.please read my post about going to Shands. Good Luck to you and youwill be in my prayers.Blessed Be,Janine

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> >

> >

> >

> > Thanks for the welcome and information . It is reassuring

to realize I'm not the only one that was surprised to read patients

were given instructions to remove the PH probe. When one gives it

some thought it would be necessary since we will be alone during this

period.

I hope your husband is enjoying good health.

Love,

h

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> >

> > Hi h,

> I went for my follow up with Dr. Rice in June. Really not too bad.

I

> had a timed barium swallow also. I think they do another manometry

> because it measures the pressure of the LES. The PH test was

> inserted much the same as the manometry tube. The tube is taped to

> your face and a monitor is strapped to your shoulder and they send

> you off for 24 hours. The only problem I had was when I tried to

> drink ice water, the tube hardens and tends to gag you. I went back

> to the clinic and they removed the tubes. They did give me

> instructions for removal. I think incase I had a problem during the

> 24 hours. The nurse at the clinic was very good at inserting the

> tubes and the tests were not nearly as bad as the ones I've had at

> home. Right after the ph tube was taken out I saw Dr. Rice and was

> ready to leave for home. I think two days should do it. We flew so

> we spent three days but we were ready to leave by about one pm on

the

> second day.

> Hope this helps,

> JoAnn

> >

> >Thanks for the reassuring information JoAnn....I'm hoping the

nurse will be more experienced also. After three unsuccessful

attempts, I was asked to stand and raise my arms above my head. This

helped immediately and I was told to do this if I had problems

swallowing in the future.

Check out time is 12 noon so I think I ask my husband to take care of

this during my interview, I don't think I want to be charged for

another day.

I'm sure a barium swallow is scheduled, I've had so many of these I

don't give them a thought..;-).

Hope you are now eating whatever you please....I'll miss chocolate.

Love

h from PA

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>

> > ...why another manometry...

>

> Not all doctors require this, but I can see where it is a good

idea. It

> records the pressers at the LES. If you develop problems later they

can

> do a third manometry and compare to see if the LES pressures have

> changes. That can give an indication of whether the myotomy is

failing

> or if the problems is something else.

>

> notan

>

Thanks for the information Notan, it has helped to clear my

understanding. I also read the article you posted a link to and it

was helpful.

Love,

h from PA

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> >

> >

> >

> > > >

> Hi h,

> I just had a second mamometry done today it was much better than the

> first I believe that was due to a more experienced person doing it.

I

> was fortunate to have my ph study done hi-tech with a bravo capsule.

> please read my post about going to Shands. Good Luck to you and you

> will be in my prayers.

> Blessed Be,

> Janine

>

Janine,

Something tells me I won't be lucky enough to experience hi tech with

a bravo capsule. I'm glad you were able to go through this without

having to deal with the tube.

Thanks for your well wishes and prayers.

Love,

h from PA.

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Hi h, my name is and Dr Rice performed my Myotomy in July and I am doing great! I have to go back to Cleveland on September 19th. My 24 hour PH test will begin on the 20th. When is yours scheduled? I too am having the same anxious feelings regarding this tube being in me for 24 hours. So if your appointment is also on the 20th we should hang out! We could be the PH sisters!!! I am trying not to worry about it and am taking the attitude of just "get er done". Unlike you I do not have to have another manometry. I guess because it was done before surgery and I had one done locally in May. I wish none of us had to go through these test or this disease but I find so much comfort in everyone on this site the support here is indescribable. You and I will both be fine. in VA

Sick sense of humor? Visit TV's Comedy with an Edge to see what's on, when.

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>

> Hi h, my name is and Dr Rice performed my Myotomy in July

and I am doing great! I have to go back to Cleveland on September

19th. My 24 hour PH test will begin on the 20th. When is yours

scheduled? I too am having the same anxious feelings regarding this

tube being in me for 24 hours. So if your appointment is also on the

20th we should hang out! We could be the PH sisters!!!

> I am trying not to worry about it and am taking the attitude of

just " get er done " . Unlike you I do not have to have another

manometry. I guess because it was done before surgery and I had one

done locally in May. I wish none of us had to go through these test

or this disease but I find so much comfort in everyone on this site

the support here is indescribable.

> You and I will both be fine.

> in VA

>

>

> ---------------------------------

> Sick sense of humor? Visit TV's Comedy with an Edge to see

what's on, when.

>

Hi ,

I'm beginning to wonder why I need a myotomy now as you're the second

person to mention she wasn't required to have one post op. I didn't

have one before surgery and my first one was done in late January of

this year.

I'm glad to hear you are doing well, did you have trouble varying

your diet before the two month period was up or trouble with gas?

I will be in Cleveland for these tests on the 8th and 9th...hopefully

on my way home to Gettysburg by noon or so on the 9th. We are

arriving on the 7th late in the day as my first appointing is at 9AM

on the 8th. I'm probably much too old to be your PH sister, perhaps

a

PH Mom ;-).

Tomorrow I'm due for a cat scan as Dr. Stoller (very nice doctor) of

CC found a spot on

one of my lungs during pre-testing. He sent my local doctor

information and asked that I have a cat scan and also a pneunmonia

shot. He did say he thought it was only scar tissue. I cannot

imagine it being anything else or I wouldn't think they would allow

surgery. It seems one thinks a problem is taken care of and another

one pops up. Now to eat my breakfast of light yoguart.

Love,

from PA.

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  • 7 months later...
Guest guest

Hi all,Interesting article, not about thyroid but mentions it, it was the comment at the end which caught my attention:"I'm a 26 year old woman and I startednoticing diffuse hairloss when I was 19. It took 5 years ofconsultations with dermatologists and a lot of reading until I foundout myself that the cause may be an underactive thyroid. Last year Iinsisted on making TSH blood tests that proved that I have elevatedlevel (3.5 TSH) and I was diagnosed hypothyroid. I used to have a longthick hair so it took years before the hairloss became more obvious andnow I have to wash it every day so I can get out without panickingwhenever somebody looks at my hair. It deffinitely helped my selfesteem when I took the hard decision to cut it short because thishaircut gives it a little more volume. 6 months ago I started takingeuthyrox25 (T4 hormone therapy) and now the level of TSH decreased to2.3 which is about normal. The treatment of my hypothyroidism shouldeventually reverse the hair thinning but I have no signs of regrowthuntil now. I know I have to be patient but I'm getting more desperate.Help!Dani, Sofia, Bulgaria"http://www.timesonline.co.uk/tol/global/article3145240.ece Luv

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  • 7 months later...

Oh ok, that makes sense. I still need to get that book to. Do you know if I can get that book in any bookstore or does it have to be ordered online from a specific source? Good luck, Heidi with the eliminiation diet. I'll be curious how it works out. Can't you go and get tested for food allergies at an allergiests office and have the same outcome instead of possibly suffering from a food that you can't tolerate? Just wondering if there is a difference.

Take care of yourself. Hugs H

From: heidi <heidilhlokey@...>Subject: Hdominie Date: Saturday, December 13, 2008, 7:47 PM

The elimination diet is1. do away with certain foods you think that is causing you trouble for 2-3 weeks then reintroduce them and if you get a reaction like cramps or feeling icky the next day. You eliminate that food from your eating plan.I will do it with wheat, corn and some gluten products ,I also don't do well with oatmeal even steel cut oats I get gassy and bloated too. I am allergic to Pork so don't need that. Also don't eat much cheese either. so will write it all down and get my health in better shape I am taking supplements and the I 26 shake too that Domini sells it is good and I drink one for breakfast every other day. Love the strawberry flavor and it comes in chocolate and vanilla too for that inf. go towww.legacyforlife. comSo I will keep a diary and do that.It is given in more detail in Devin Starlyns book Fibromyalgia and Myofasical Pain

Syndrome.Hugs Heidi

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>

> From: heidi <heidilhlokey@...>

> Subject: H

> dominie

> Date: Saturday, December 13, 2008, 7:47 PM

>

>

>

>

>

>

> The elimination diet is

> 1. do away with certain foods you think that is causing you trouble

for

> 2-3 weeks then reintroduce them and if you get a reaction like

cramps

> or feeling icky the next day. You eliminate that food from your

eating

> plan.

> I will do it with wheat, corn and some gluten products ,

>

> I also don't do well with oatmeal even steel cut oats I get gassy

and

> bloated too.

>

> I am allergic to Pork so don't need that. Also don't eat much

cheese

> either. so will write it all down and get my health in better shape

I

> am taking supplements and the I 26 shake too that Domini sells it

is

> good and I drink one for breakfast every other day. Love the

strawberry

> flavor and it comes in chocolate and vanilla too for that inf. go to

> www.legacyforlife. com

>

> So I will keep a diary and do that.

> It is given in more detail in Devin Starlyns book Fibromyalgia and

> Myofasical Pain Syndrome.

>

> Hugs Heidi

>

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Thanks to those who responded about where to find the book. I don't go out shopping too much but I found it last night on Amazon and went ahead and ordered it. Yay, I need lots of advice from this book and everyone speaks so highly of it. Thanks again all of you. Hugs H

From: heidi <heidilhlokey>Subject: Hdominie@groups .comDate: Saturday, December 13, 2008, 7:47 PM

The elimination diet is1. do away with certain foods you think that is causing you trouble for 2-3 weeks then reintroduce them and if you get a reaction like cramps or feeling icky the next day. You eliminate that food from your eating plan.I will do it with wheat, corn and some gluten products ,I also don't do well with oatmeal even steel cut oats I get gassy and bloated too. I am allergic to Pork so don't need that. Also don't eat much cheese either. so will write it all down and get my health in better shape I am taking supplements and the I 26 shake too that Domini sells it is good and I drink one for breakfast every other day. Love the strawberry flavor and it comes in chocolate and vanilla too for that inf. go towww.legacyforlife. comSo I will keep a diary and do that.It is given in more detail in Devin Starlyns book Fibromyalgia and Myofasical Pain

Syndrome.Hugs Heidi

Tutoral

Dec 2008

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Thanks Heidi for the information, I went ahead and ordered it last night from Amazon. Also here is the information on the farms for the Jax area. Hope this helps you. The Palatka/Starke to far for you, but there is one in the Orange Park/Middleburg area and another in the Orange Park area. I can picture these areas in my mind and miss it so. I really wish I still lived there, but things happen for a reason. Hugs H

ville: Jax Fresh Foods Co-op, ville, Orange Park/Middleburg, Arlington and Mandarin , Contact: Valencia Tupper, (904)868-9786,

jaxfreshfoods@... , http://hometown.aol.com/jaxfreshfoods/myhomepage/business.html Offering members: Grass Fed Beef, Free Range Chicken, Free Range Eggs, Raw and Vat Pasteurized Milk and Dairy, Organic and Natural Dairy products as well as Fresh Organic Produce. ville/Orange Park area: Hearts Desire Farm offers fresh goats milk and eggs year round. They occasionally have pastured poultry and milk fed kids available. Their animals are fed naturally with no hormones. They also have reg nubian breeding and show stock available most of the year along with multi-purpose poultry. Email for more information

wilkienubians@... . ville/Palatka/Starke: Located in Bardin, Florida ; sie Farm, Inc is a dedicated natural goat farm and dairy. Relocated from the previous facilities in Bostwick. The new facilities provide large, roomy pastures under the shade of stately old live oak trees. Milking does are fed a natural grain mix, with free choice alfalfa/orchard grass hay transported from an organic farm in Indiana . Fresh and frozen raw milk is available from February to October; as per Florida State Law, raw milk is sold for pet consumption only. Milk is available in sterile gallon and half-gallon plastic jugs. The herd is TB/Bruc certified and accredited; 5th-year Voluntary Scrapies Eradication Program; on DHI-Milk Test (during milking season); and Vet inspected every 90 days. Two ADGA Registered show herds are maintained; Oberhasli and LaMancha. Kids and family milkers are occasionally available. Web-site: www.rachelsie.250x.com ; e-mail:

rachelsiefarm@... ; farm phone: (386) 329-4006. Contact Elise or .

From: heidi <heidilhlokey@...>Subject: Re: Hdominie Date: Sunday, December 14, 2008, 12:39 PM

> > From: heidi <heidilhlokey@ ...>> Subject: H> dominie@groups .com> Date: Saturday, December 13, 2008, 7:47 PM> > > > > > > The elimination diet is> 1. do away with certain foods you think that is causing you trouble for > 2-3 weeks then reintroduce them and if you get a reaction like cramps > or

feeling icky the next day. You eliminate that food from your eating > plan.> I will do it with wheat, corn and some gluten products ,> > I also don't do well with oatmeal even steel cut oats I get gassy and > bloated too. > > I am allergic to Pork so don't need that. Also don't eat much cheese > either. so will write it all down and get my health in better shape I > am taking supplements and the I 26 shake too that Domini sells it is > good and I drink one for breakfast every other day. Love the strawberry > flavor and it comes in chocolate and vanilla too for that inf. go to> www.legacyforlife. com> > So I will keep a diary and do that.> It is given in more detail in Devin Starlyns book Fibromyalgia and > Myofasical Pain Syndrome.> > Hugs

Heidi>

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  • 7 months later...

You are so right Mike -- I have tried to be patient - but when the

bashing and tiraids continue with what looks like no end in site I must

step in. Especially when I receive email from our long time members

saying they are leaving the site. This is NOT okay.

Lets play nice and support lots.

~guin

Hiranuma wrote:

Having a life threatening condition that requires the

implantation of a cardioverter defibrillator can be very stressful.

Some react to that stress through anger and lashing out at others. Some

react by turning a bad situation into a humorous one. Others simply

read the posts and identify with some of the issues being raised that

make them feel like they are not alone.

It is painful to read some of the posts and I have to remind myself

that this too will pass. We are not homogeneous except for needing an

ICD. Be patient. We are all simply trying to cope with our illness.

From: Guin Van Dyke <guinvandyke-ranch>

Subject: Re: Fw: Re: [ Direct Buy

Date: Sunday, August 9, 2009, 9:49 PM

We have people leaving this site because of this sort of

attitude.

Please STOP! This sort of tiraid is not okay here. We don't need this

sort of controversy and bashing.

~guin

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