Pregnancy

[Guest guest]

I'm such an idiot when it comes to internet usage - I can't look back through

my deleted or saved messages to find out who it was that is pregnant right

now.

So please write me again - I am now pregnant too and would like to see how

you are doing off all your meds etc.

Thanks

LaVina

[Guest guest]

LaVina, Jeri is the one who is also pregnant.

You aren't an idiot! If you ever delete what you needed or can't find it, go

to the link that appears at the bottom of every post:

From there you can get into our archives and search our past posts on

" pregnancy " or whatever you are looking for. It's not the best search tool

I've ever used, but it's sufficient. Let me know if you need any help.

Hope you and the new baby are feeing good!

----- Original Message -----

From: <Beveridge1406@...>

< >

Sent: Monday, March 05, 2001 1:57 PM

Subject: Re: [ ] Pregnancy

>

> I'm such an idiot when it comes to internet usage - I can't look back

through

> my deleted or saved messages to find out who it was that is pregnant right

> now.

>

> So please write me again - I am now pregnant too and would like to see how

> you are doing off all your meds etc.

>

> Thanks

> LaVina

[Guest guest]

Hi There,

I'm pregnant with my 5th baby (14+ weeks) and this is my third pregnancy

eating more nutirent dense foods (my first pregnancy (twins) was macrobiotic

with

limited animal foods .)

My top priorities as for pregnancy diet are getting enough greens (especially

wild greens)to eat ( I crave greens in large quantities during pregnancy) and

I also use Vitamineral green which is a powder based green drink.

I'm also careful to include top quality protein and fat (grass fed animals,

pastured eggs, x factor butter oil, raw butter, sheep dairy , raw olive oil,

and coconut oil)

I just recieved my first order of wild raw salmon eggs and have to say those

are excellent prenatal foods (one of the best)

Supplements I'm using aside from the Vitamineral Greens are Brewers yeast,

Krill oil and a small amount of cod liver oil.

I also have drunk red raspberry, nettle tea throughout all my pregnancies.

This time my tea mix also contains oatstraw and partridge berry.

A lot of these foods require very little time and preperation. You can spread

the salmon eggs on sourdough whole grain toast points, use coconut oil in

stir fries (with vegetables and grass fed meats)

Soaking just requires thought and then it's easy after you have that down.

It's the remembering part that gets me sometimes.

I wish you a joyous and happy pregnancy.

Elainie

[Guest guest]

I drank Claravale during my pregnancy although I can't remember how much. I

also occasionally ate raw eggs in smoothies and such. I didn't do a lot of

raw eating mostly because I was afraid of triggering a detox and I didn't

think that would be good for the baby. My pregnancy was also a surprise and

I didn't do any pre-pregnancy cleansing. Baby is now 14 months old, he has

been drinking raw milk since he was 3 onths old and he is just fine.

Irene

At 11:59 AM 7/5/03, you wrote:

>I got married in April and we planned to wait at least a year to get

>pregnant. Well, nature had its own ideas. I'm in my 3rd week.

>

>Now, I'll be the first to espouse the importance of diet, but there

>are limitations. One of them is time. Optimizing the diet takes

>time and there are other demands on my time, like getting my

>house ready and growing our business. The kid (and parents)

>need a good environment and financial stability as well as good

>food.

>

>That said, I am working on finding better food sources within

>driving distance. Meanwhile there's a fetus growing daily in me

>and I need to make some improvements asap.

>

>I especially want to hear from people who are or have been

>preganant on an NT diet. (BUT I'd love to hear from people who

>are not parents, too.)

>

>I have a zillion questions but for starters I want comments on:

>

>1. What are top priorities for a pregnancy diet for your 'average'

>person living in a city?

>

>2. Claravale milk. I have yet to locate a milk farm since, I can go

>to the store and buy Claravale. Did anyone here drink it in

>preganancy?

>

>3. To supplement or not. I have a visceral reaction against -- but

>that may be more philosophical than practical in this day and

>age.

>3a. I am eating salads or cooked greens, and some soaked

>whole grains (gluten-free), daily. Am I at risk of inadequte

>folate?

>3b. I took some chelated magnesium and had to lie down for the

>first time in this pregnancy. I am eating NT-soaked and dried

>pumpkin and sunflower seeds. Any other ideas for magnesium

>sources?

>

>Again, all comments appreciated. (But no finger wagging

>please. I got my first taste of that yesterday.)

>

>Daphne in San Francisco

>

>

>

>

>

>

[Guest guest]

> I got married in April and we planned to wait at least a year to get

> pregnant. Well, nature had its own ideas. I'm in my 3rd week.

First off, mazel tov! Babies bring their own luck, remember that, so

don't worry about the timing.

> 1. What are top priorities for a pregnancy diet for your 'average'

> person living in a city?

Keeping in mind that I Am Not a Doctor:

City or no, I recommend *at least* 100 grams of protein a day. Don't

limit your salt intake; salt to taste. That advice turned my

pre-eclampsia around, and I give it to every pregnant woman I know.

> 3. To supplement or not. I have a visceral reaction against -- but

> that may be more philosophical than practical in this day and

> age.

The supplement I took in pregnancy and while nursing was food-based.

The brand is Rainbow Light and I found them to be very good. (Full

disclosure: I sell RL vitamins, but only because I actually *use*

them--and I don't sell that many bottles, it's more a courtesy to my

customers to carry vitamins. I still take their iron-free Advanced

Nutritional System formula.)

> 3b. I took some chelated magnesium and had to lie down for the

> first time in this pregnancy. I am eating NT-soaked and dried

> pumpkin and sunflower seeds. Any other ideas for magnesium

> sources?

Magnesium lowers your blood pressure and right now you're already

lowering your blood pressure just by being in the early stages of

pregnancy. Your blood vessels and the baby's are growing exponentially

right now, and your blood volume will take a bit to catch up. By the

end of your pregnancy your blood volume will have *doubled*. Having to

lie down means you probably shouldn't be taking extra magnesium right

now unless prescribed.

Enjoy this time! It goes faster than you think. Except the last two

weeks.

Lynn S.

-----

Lynn Siprelle * Writer, Mother, Programmer, Fiber Artisan

The New Homemaker: http://www.newhomemaker.com/

Siprelle & Associates: http://www.siprelle.com/

[Guest guest]

On Sat, 5 Jul 2003 18:20:55 EDT

zumicat@... wrote:

> Hi There,

> I'm pregnant with my 5th baby (14+ weeks) and this is my third pregnancy

> eating more nutirent dense foods (my first pregnancy (twins) was macrobiotic

with

> limited animal foods .)

Congrats!!

>

> My top priorities as for pregnancy diet are getting enough greens (especially

> wild greens)to eat ( I crave greens in large quantities during pregnancy) and

> I also use Vitamineral green which is a powder based green drink.

When you say wild greens, what are you referring too? And is their a

website that hs your green powder listed?

>

> I'm also careful to include top quality protein and fat (grass fed animals,

> pastured eggs, x factor butter oil, raw butter, sheep dairy , raw olive oil,

> and coconut oil)

How do you know your olive oil and coconut oil is actually raw?

>

> I just recieved my first order of wild raw salmon eggs and have to say those

> are excellent prenatal foods (one of the best)

Now this is interesting/exciting! Where did you order them from? Are

they dried?

>

> Supplements I'm using aside from the Vitamineral Greens are Brewers yeast,

> Krill oil and a small amount of cod liver oil.

What is krill oil? And why the Brewer's yeast?

>

> I also have drunk red raspberry, nettle tea throughout all my pregnancies.

> This time my tea mix also contains oatstraw and partridge berry.

mmmm....if these are super high quality then they are great choices

>

> A lot of these foods require very little time and preperation. You can spread

> the salmon eggs on sourdough whole grain toast points, use coconut oil in

> stir fries (with vegetables and grass fed meats)

>

> Soaking just requires thought and then it's easy after you have that down.

> It's the remembering part that gets me sometimes.

>

> I wish you a joyous and happy pregnancy.

>

> Elainie

>

oops, am I addressing the right person, or someon one who is responding?

[Guest guest]

Ridertmc- Thank you so much for the info.! After visiting w/ the GYN last

Thurs. he suggested that we meet w/ a gene specialist (don't know who yet) at

's Hopkins. One of my concerns is that I lose my balance sometimes and I've

had some bad falls in the past. I'm just wondering if being pregnant will make

my balance worse. I'm glad to hear that your pregnancy went great and also happy

to hear that your child doesn't carry the CMT gene! Do you have any details on

the pre-implantation genetic diagnosis? I'm thinking this may be the same thing

my Dr. is sending me to Hopkins for.

[Guest guest]

:

The only problem I had with my last pregnancy was that my little guy " laid "

cross-wise like he was in a sling on my hip bones instead of up/down for the

majority of the last three months. The job I had at the time was with an

telephone company in their phone sales department where I sat for 8 hours

straight. My legs would go to sleep from it and I had a lot of discomfort

with my siatic nerve.

I had a lot of " false labor " the last 1 1/2 months too. But the day I

delivered him--he came very fast--less than 20 min. after getting to the

hospital he was delivered. My other three kids were not that quick--fairly

on labors with them. No problems relating from the CMT with delivery for

me.

[Guest guest]

,

Thank you so much for the post! I'm glad to hear that everything was good w/

your pregnancies/deliveries (well, except for that last 1of course - that didn't

sound like fun at all!). I'm in an Admin. position w/ 8 hrs. of sitting too.

My legs sometimes go to sleep now. =( I try to keep them elevated or stand

up/stretch in my cube as much as possible. I've been reading about the false

labor too. My friend is due in Sept. & she's been having those Braxton Hicks

kind. Wow, I hope my labor goes quick! 20 min. would be awesome! Did you have

any problems w/ balance during your pregnancies?

A.

[Guest guest]

:

Nothing more than the normal tripping, stubbing big toes and twisting

ankles. Balance problems for example: Can't stand in church with eyes

closed during prayer without leaning on something or during funeral cemetery

committal service with eyes closed without about falling over. Have learned

to just keep my eyes open for those types of situations.

[Guest guest]

:

Good to know! Sounds like the usual probs. that I have now. I completely

understand about closing your eyes & standing still. It's trickey. I agree,

eyes open works best. I'm coming to the conclusion that there are lots of women

who have successfully carried babies while having CMT. My great-grandmother had

4 & my grandmother 5; so I should be able to carry also. Especially considering

that I'm lucky to have many more resources, than what they had in the 1920s &

40s.....and more people to ask questions of - like all the great folks here! =)

Thank you again for the input! I appreciate it!

A.

[Guest guest]

,

I have had four beautiful babies and felt like dynamite during my

pregnancies. It was a magical time for me. Congratulations.

Lorna

[Guest guest]

Hi group-

My daughter is almost 30 and she has CMT like me and she is having her first

child 2 wks from tomorrow. My grandson will be a C-section delivery. Her Dr.

did research and spoke with a few neurologists and he decided this would be

best for her. I as a nervous wreck mom who had 2 natural deliveries agrees with

her doctor. It will save her strength tremendously not having too labor and

PUSH< PUSH PUSH!

She has had a wonderful pregnancy too. She's still working full time until

June 30th. Needless to say we are so hoping and praying her little guy will be

born CMT free. This was an unexpected pregnancy or else she would've had eggs

tested first. Still a major blessing for us all.

Good luck to all of you who are or are wanting to be pregnant.

Barb Fl.

[Guest guest]

I think I would rather use my energy then recover from a C section.OUCH!

I guess I was lucky to have 3 babies without one. Anesthetic makes me feel so

weak. Congratulations on your new baby. Please tell us when he/she arrives

[Guest guest]

Hi

Hi

I am quoting from this site:

http://www.geneclinics.org/servlet/access?db=geneclinics & site=gt & id=8888891 & key=yvyThuThGZXK5 & gry= & fcn=y & fw=suti & filename=/profiles/bpes/index.html

It think that the best thing you can do is to print the whole article, send it to your doctor, and ask them to explain it to you.

Some information that I can let you have, although I am not sure it is directly relevant to your question, is that BPES is quite rare, probably about 1 in 150,000 to 1 in 200,000 people have BPES. This is very approximate. I was able to calculate this based on the information supplied in the database, and other information that I have.

Take care

Shireen

Under Summary you will see:

BPES is inherited in an autosomal dominant manner. Some individuals diagnosed with BPES have an affected parent. A proband with BPES may have the disorder as the result of a de novo gene mutation. The proportion of cases caused by de novo mutations is estimated to be more than 50%. Each child of an individual with BPES has a 50% chance of inheriting the mutation. Prenatal testing is available; however, requests for prenatal testing for conditions such as BPES are not common.

Prevalence

The exact prevalence of BPES is unknown. No differences in prevalence based on sex, race, or ethnicity have been reported.

Mode of Inheritance

Blepharophimosis, ptosis, and epicanthus inversus syndrome is inherited in an autosomal dominant manner.

Risk to Family Members

Parents of a proband

Some individuals diagnosed with BPES have an affected parent. A proband with BPES may have the disorder as the result of a de novo gene mutation. The proportion of cases caused by de novo mutations is estimated at more than 50% [unpublished data]. Recommendations for the evaluation of parents of a proband with an apparent de novo mutation include molecular genetic testing of the FOXL2 gene if a mutation has been identified in the proband and clinical examination for subtle features of BPES.

Note: Variable expressivity of BPES features has only been reported in mosaic cases [unpublished data].

Sibs of a proband

The risk to the sibs of the proband depends upon the genetic status of the proband's parents.

If a parent of the proband is affected, the risk to the sibs is 50%.

When the parents are clinically unaffected and do not have a FOXL2 mutation, the risk to the sibs of a proband appears to be low.

If a disease-causing FOXL2 mutation cannot be detected in the DNA of either parent, two possible explanations are germline mosaicism in a parent or a de novo mutation in the proband. The risk to the sibs of the proband depends on the probability of germline mosaicism in a parent of the proband and the spontaneous mutation rate of FOXL2. Germline mosaicism has been observed in BPES and demonstrated at the molecular level [beysen et al 2005]; its incidence is unknown.

Offspring of a proband. Each child of an individual with BPES has a 50% chance of inheriting the mutation.

[end of quote]

From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of georgiegurl68Sent: 25 October 2006 00:04blepharophimosis Subject: blepharophimosis Pregnancy

Hello all, I am new here. I have a question that may have beentouched on before so, sorry if I am asking a repeat question. WhileI, myself don't have blepharophimosis, 2 of my 3 brothers, my halfsister on my dad's side, my dad, his brother, and their father all do.I guess my question is, Is it possible for me to pass this trait ontomy children, even though I don't have it myself? I have read thatblepharophimosis is an autosomal dominant genetic trait. I am justtrying to gather some more information about this, as I am pregnant,and due to have a son on Thanksgiving. This will be my second child,I have a 3 year old daughter who doesn't have this.

[Guest guest]

On Tue, 2006-10-24 at 23:04 +0000, georgiegurl68 wrote:

> Hello all, I am new here.

Hi Georgiegurl68,

> I have a question that may have been

> touched on before so, sorry if I am asking a repeat question. While

> I, myself don't have blepharophimosis, 2 of my 3 brothers, my half

> sister on my dad's side, my dad, his brother, and their father all do.

> I guess my question is, Is it possible for me to pass this trait onto

> my children, even though I don't have it myself?

The short answer is no. People can only pass BPES on (50% chance) if

they have it themselves. It can spontaneously occur where neither parent

has it, but that's quite rare (except on this forum, of course!). It's

also possible for people to have such a mild case of BPES that they

don't know they have it.

> I have read that

> blepharophimosis is an autosomal dominant genetic trait. I am just

> trying to gather some more information about this, as I am pregnant,

> and due to have a son on Thanksgiving. This will be my second child,

> I have a 3 year old daughter who doesn't have this.

If you're quite sure you don't have BPES yourself, and infertility

(which is very common in BPES-enhanced women) isn't a problem for you

(as it would appear ;-)), you probably have little to worry about. But,

as Shireen suggested in the other post, run it past your doctor to be

sure.

Rob W

Oz

[Guest guest]

Sorry for all the questions, but they want to do surgery next week and

I'm trying to gather as mich info as possible.

Has anyone done a flush, felt better and then gone on to get

pregnant? If so did the stones return, did the attacks get worse?

Any info would be great as I would like to get pregnant again within

the next 2yrs and I worry that if I do flush them out now, that they

may come back again and it may cause harm to myself or the baby.

Pregnancy is what brought on my stones to begin with. Thank you.

[Guest guest]

Hi ~

Yes - I have been pregnant on and off since my diagnosis of stones and am

still open to the possibility of another pregnancy. I do not live in pain. I

think there are triggers for the attacks - and I'm not always certain what

those are. I think I can live with stones, but I don't want to live without

my gallbladder. I can not deal with pain so I am making changes that will

hopefully decrease the stones and therefore decrease my chance of attacks.

Also if the attacks are not a direct result of the stones, but instead are

the result of the general ill health or poor condition of my gallbladder,

then just flushing stones out will not really help in the long run. Just as

removing the gallbladder will not help my general state of well being. If my

lifestyle has made it sick then there is a good chance there are other parts

of me suffering as well (liver, kidneys, etc). I am more careful with my

diet now, have added enzymes, etc. and try to exercise more, among other

things. Since I have made these changes (about 6 months ago) I have not had

any attacks at all.

I think that a gall bladder attack is a sounding alarm that things are not

well in the body - just as bad skin, bad teeth, headaches, other digestive

problems, frequent colds, whatever. Whether flushes are absolutely necessary

is debatable in my opinion. And unless there is a true emergency than

removal of the gallbladder is not called for either.

Regards,