I have a question

[Guest guest]

Suzi,

The doctor says that the water itself is fine but the longer she

sucks on a bottle the worse her teeth will be. She uses orthodontic nipples so

that is supposed to help. I have tried letting her cry for 3 straight days. She

would cry until she passed out from being so tired. Then she would sleep for an

hour or 2 and then start up again. I finally gave up after 3 days because I

couldn't keep my eyes open anymore. She has gone to sleep a few times without it

but would wake up crying for it. Hopefully she'll give it up soon.

Thanks mom to Blanton 9.3(ADHD,TS,OCD)Kesley 2.10(Apraxia,VUR...repaired)

>

> From: " luckygmstwife <suzi_knowles@...> " <suzi_knowles@...>

> Date: 2003/02/24 Mon PM 09:23:18 EST

>

> Subject: [ ] Re: I have a question

>

> If it's just water it's probably not goint to hurt her. I'd talk to

> the doctor, dentist, and ST to see if it is doing her any harm.

>

> If they say it is doing harm, then I might try letting her cry it

> out for a few nights. Pick nights where she is really tired.

>

> My girls had blankets that they sucked on at night. They slept with

> those until they were 5. They still sometimes want them.

>

> You've won most of the battle if she can drink out of a cup.

>

[Guest guest]

My little one also faught on giving up the bottle. We tried a couple of things.

Water it down. Slowly but surely it ended up being mostly water - which wasn't

interesting. Also, the slp do NOT recommend a sippy cup. But it can help

transition.

My older son quit the bottle at 2 on the day. who doesn't have oral

apraxia but has verbal quit at 3.3.

Good luck,

Lori

[Guest guest]

,

I still allow my son (23mos) to take a sippy cup of water to bed with him.

It took him a couple of weeks before he realized that the bottle wasn't

coming back. Good luck

[Guest guest]

I did not know that about the sippy cups. I know my kids used them

a long time, but it is too late now. Oh well.

I'll let some of my friends with babies and toddlers know about this.

Suzi

--- In , " kiddietalk

<

[Guest guest]

I agree w/Suzi if it's just water I wouldn't worry unless it's

causing a problem with her teeth or speech. If you try crying it out

again & your husband is off on the weekends I would start it on a

friday night. At least that way you'll have two nights where he can

help you & maybe you won't be so sleep deprived in the process. Good

luck to you.

Wendie

> > Suzi,

> > Thanks for replying. She only gets water in her bottle.

At

> first she could not drink out of any kind of cup....sippy or

> anyother. Now she can drink out of anything. But she still will not

> go to sleep without the bottle.

> >

> >

> > >

[Guest guest]

Wendie,

My husband is taking a vacation the first week in April....so we have

decided that we are taking it away then. Someone(sorry I can't remember the

name) suggested reducing the amount of water over a period of time and not

giving refills. Just tell her that is all she gets. We are going to start doing

that now so maybe by April it won't be so hard to take it away. Thanks for all

the help on this.

>

> From: " wendie <hwendie@...> " <hwendie@...>

> Date: 2003/02/25 Tue PM 07:24:54 EST

>

> Subject: [ ] Re: I have a question

>

> I agree w/Suzi if it's just water I wouldn't worry unless it's

> causing a problem with her teeth or speech. If you try crying it out

> again & your husband is off on the weekends I would start it on a

> friday night. At least that way you'll have two nights where he can

> help you & maybe you won't be so sleep deprived in the process. Good

> luck to you.

> Wendie

[Guest guest]

, I hope it works out for you, I know it's going to be hard. I

didn't have a problem w/taking the bottle way from my girls. The

girls only got their bottles when it was time to eat & we didn't do

bedtime bottles so it made the transition a bit easier. It was

harder to get Sky to learn to drink from a straw & give up her sippy

cup than taking away the bottle. lol Now our big battle is the

pacifiers! They just turned 2 in Jan. & I just can't seem to make

them go without. Our S.T. doesn't like the fact that Sky still has

her pacifier, but Sky has sensory issues w/her mouth so she's advised

us to hold off on taking the pacifier away right now. We are trying

to cut down on how often she gets it during the day, but it's been

difficult. Anyway good luck on the bottle & as you can tell there

are plenty of us out here that understand.

Wendie

> Wendie,

> My husband is taking a vacation the first week in

April....so we have decided that we are taking it away then. Someone

(sorry I can't remember the name) suggested reducing the amount of

water over a period of time and not giving refills. Just tell her

that is all she gets. We are going to start doing that now so maybe

by April it won't be so hard to take it away. Thanks for all the help

on this.

>

>

[Guest guest]

Hi I live in Wisconsin also and we have a wonderful birth to 3 program here.

Maybe you should come here and work? My daugther has severe apraxia and is

now six but at age 2 she went to the birth to 3 program they weren't quite

sure that she had apraxia but she had speech class 2 times a week and after

I had my son they even came to my house for the theapy. My private speech

therapist is real big in the birth to 3 program if you want I can ask her

some questions that you have and maybe she can help also. You may email me

privately at hergs@...

Lynn

[ ] I have a question

> I am a lurker to this group and this is the first time I have a question

to

> ask. I am an SLP in Wisconsin providing services for the 0-3 program. I

am

> wondering how many therapy sessions a month your children received or are

> receiving. I am a contract employee to this program. The program

director

> is insisting that the premise for 0-3 is " family centered " not " therapy

> centered " in her eyes meaning we are only there to consult usually one

time

> a month. My job has been put on the line from MY boss. If I can't

provide

> treatment the way the director wants, then he will find a therapist who

can.

> I am in the full belief that parents have a huge amount of stuff to go

> through without having to be totally responsible for their child's speech

> language program especially those little ones with verbal apraxia. I am

> only allowed now to see those children two times a month. Oh wow big

help.

> And of course am seeing no progress. Kids don't even want to work with me

> much as they don't know me. Sorry if I sound so negative, but given the

> situation currently happening I am extremely frustrated and need some

> feedback from parents in other locations. I know parents have huge rights

> to get therapy for their children, but what about therapists who want to

> fight the budget issue which ultimately this is. I didn't have this

problem

> until a year ago, and now it is getting even worse. I have been a 0-3

> therapist for 10 years and HAD people returning to our area to see me as I

> provided adequate treatment for their children. Now I don't. Any ideas?

> TIA

>

> Lonna

[Guest guest]

Oh wow onlyonce a month. My child has went one a week for 30 minutes and he

is now going twice a week for 45 minutes. My best friends little girl also

goes once a week for 30 minutes. Hope this helps!

Hugs,

Cherilyn

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[Guest guest]

I am a parent and not an authority, but I am getting speech for my daughter

(13 years with severe verbal apraxia) 3X 30min individual from a

speech therapist. She is in a public school setting, but we have placed her

in a separate classroom with children that have language, speech issues

among other issues.

Joyce.

[ ] I have a question

> I am a lurker to this group and this is the first time I have a question

to

> ask. I am an SLP in Wisconsin providing services for the 0-3 program. I

am

> wondering how many therapy sessions a month your children received or are

> receiving. I am a contract employee to this program. The program

director

> is insisting that the premise for 0-3 is " family centered " not " therapy

> centered " in her eyes meaning we are only there to consult usually one

time

> a month. My job has been put on the line from MY boss. If I can't

provide

> treatment the way the director wants, then he will find a therapist who

can.

> I am in the full belief that parents have a huge amount of stuff to go

> through without having to be totally responsible for their child's speech

> language program especially those little ones with verbal apraxia. I am

> only allowed now to see those children two times a month. Oh wow big

help.

> And of course am seeing no progress. Kids don't even want to work with me

> much as they don't know me. Sorry if I sound so negative, but given the

> situation currently happening I am extremely frustrated and need some

> feedback from parents in other locations. I know parents have huge rights

> to get therapy for their children, but what about therapists who want to

> fight the budget issue which ultimately this is. I didn't have this

problem

> until a year ago, and now it is getting even worse. I have been a 0-3

> therapist for 10 years and HAD people returning to our area to see me as I

> provided adequate treatment for their children. Now I don't. Any ideas?

> TIA

>

> Lonna

>

[Guest guest]

Lorna, that was 3X a week, not month

Joyce

> I am a parent and not an authority, but I am getting speech for my daughter

> (13 years with severe verbal apraxia) 3X 30min individual from a

> speech therapist. She is in a public school setting, but we have placed her

> in a separate classroom with children that have language, speech issues

> among other issues.

> Joyce.

> [ ] I have a question

>

>

> > I am a lurker to this group and this is the first time I have a question

> to

> > ask. I am an SLP in Wisconsin providing services for the 0-3 program. I

> am

> > wondering how many therapy sessions a month your children received or are

> > receiving. I am a contract employee to this program. The program

> director

> > is insisting that the premise for 0-3 is " family centered " not " therapy

> > centered " in her eyes meaning we are only there to consult usually one

> time

> > a month. My job has been put on the line from MY boss. If I can't

> provide

> > treatment the way the director wants, then he will find a therapist who

> can.

> > I am in the full belief that parents have a huge amount of stuff to go

> > through without having to be totally responsible for their child's speech

> > language program especially those little ones with verbal apraxia. I am

> > only allowed now to see those children two times a month. Oh wow big

> help.

> > And of course am seeing no progress. Kids don't even want to work with me

> > much as they don't know me. Sorry if I sound so negative, but given the

> > situation currently happening I am extremely frustrated and need some

> > feedback from parents in other locations. I know parents have huge rights

> > to get therapy for their children, but what about therapists who want to

> > fight the budget issue which ultimately this is. I didn't have this

> problem

> > until a year ago, and now it is getting even worse. I have been a 0-3

> > therapist for 10 years and HAD people returning to our area to see me as I

> > provided adequate treatment for their children. Now I don't. Any ideas?

> > TIA

> >

> > Lonna

> >

[Guest guest]

Hello Lonna

I would give your boss a copy of the Late Talker by

[Guest guest]

Hi Lonna

Good to see someone on the inside rattling the cage bars too. Thank God you

care.

I'll give you an international take on this as I've never seen anything

similar referred to it stateside but is food for thought none-the-less.

My Primary Care Trust ( in the UK - critically overburdened & severely

underfunded ) offered 1 x 30mins per week for 6 weeks followed by 3 month

'consolidation period' ( that's nothing except a bit of homework to you &

I - or our version of 'family-centred' I suspect ! ) then back on for 6

weeks 1 x 30mins.

The 30 mins pretty much consisted of 10 min play & 20 min work -

appropriate I guess since the children are so young & verbal/oral dyspraxia

comes with other 'concentration' issues/distractions. The 6 week course

was/is never enough but did allow the therapist to establish a relationship.

The 3 month break ensures that other families get seen - generally we all

get seen in cyclical rotation. Prem kids get into this system pretty

quickly but some of my friends with full term kids have waited eternities to

get this service. So definately not a perfect system by any means.

My girl is now into her 2nd yr at school & of course her set up has changed

accordingly.

Our National Health Service has some critical paediatric underfunding issues

( as since none of our kids are going to die with this) & although it

spreads the Speech & Language Dept. pretty thin - the service, I thought,

was as good as any I'd read about elsewhere. Key to any of this was a top

SLP - never enough of those! Other Primary Care Trusts in the UK may/will

not follow this set up just as you have State- to- State differences also.

Anyways - an international view on the problem.

Love all

Gin & 5.8 (verb & oral Dysprax + motor + residual dsi)

Barnet, UK

[ ] I have a question

> I am a lurker to this group and this is the first time I have a question

to

> ask. I am an SLP in Wisconsin providing services for the 0-3 program. I

am

> wondering how many therapy sessions a month your children received or are

> receiving. I am a contract employee to this program. The program

director

> is insisting that the premise for 0-3 is " family centered " not " therapy

> centered " in her eyes meaning we are only there to consult usually one

time

> a month. My job has been put on the line from MY boss. If I can't

provide

> treatment the way the director wants, then he will find a therapist who

can.

> I am in the full belief that parents have a huge amount of stuff to go

> through without having to be totally responsible for their child's speech

> language program especially those little ones with verbal apraxia. I am

> only allowed now to see those children two times a month. Oh wow big

help.

> And of course am seeing no progress. Kids don't even want to work with me

> much as they don't know me. Sorry if I sound so negative, but given the

> situation currently happening I am extremely frustrated and need some

> feedback from parents in other locations. I know parents have huge rights

> to get therapy for their children, but what about therapists who want to

> fight the budget issue which ultimately this is. I didn't have this

problem

> until a year ago, and now it is getting even worse. I have been a 0-3

> therapist for 10 years and HAD people returning to our area to see me as I

> provided adequate treatment for their children. Now I don't. Any ideas?

> TIA

>

> Lonna

>

>

>

>

>

>

[Guest guest]

4x a week for 45min till Dec and then he is out of early intervention

Judy

Lonna Schmidt <rleskow@...> wrote:

I am a lurker to this group and this is the first time I have a question to

ask. I am an SLP in Wisconsin providing services for the 0-3 program. I am

wondering how many therapy sessions a month your children received or are

receiving.

[Guest guest]

Lonna,

We live in Florida. My son was evaluated by Early Intervention when he was

27 months old and began receiving speech (twice per week for 30 minutes per

session), occupational (twice per week for 30 minutes per session) and

special instruction therapy (twice per week for one hour per session) at

that time. Our private insurance was billed first, but once it was

exhausted, early intervention paid, plus early intervention paid anything

insurance didn't cover (co-pays, deductibles, etc...). After a few

sessions, our son's SLP put in a request to increase his S.T. which was

granted. He then began receiving S.T. twice per week for one hour per

session. Eventually that was changed to three times per week for 30 minutes

per session b/c that was easier on my son. I think any child with a speech

delay, whether due to apraxia or something yet to be determined, needs S.T.

more than once or twice per month. What is the point in calling it " Early

Intervention " if no intervention is taking place? Good luck. I admire you

for trying to make a difference. KIM

[ ] I have a question

> I am a lurker to this group and this is the first time I have a question

to

> ask. I am an SLP in Wisconsin providing services for the 0-3 program. I

am

> wondering how many therapy sessions a month your children received or are

> receiving. I am a contract employee to this program. The program

director

> is insisting that the premise for 0-3 is " family centered " not " therapy

> centered " in her eyes meaning we are only there to consult usually one

time

> a month. My job has been put on the line from MY boss. If I can't

provide

> treatment the way the director wants, then he will find a therapist who

can.

> I am in the full belief that parents have a huge amount of stuff to go

> through without having to be totally responsible for their child's speech

> language program especially those little ones with verbal apraxia. I am

> only allowed now to see those children two times a month. Oh wow big

help.

> And of course am seeing no progress. Kids don't even want to work with me

> much as they don't know me. Sorry if I sound so negative, but given the

> situation currently happening I am extremely frustrated and need some

> feedback from parents in other locations. I know parents have huge rights

> to get therapy for their children, but what about therapists who want to

> fight the budget issue which ultimately this is. I didn't have this

problem

> until a year ago, and now it is getting even worse. I have been a 0-3

> therapist for 10 years and HAD people returning to our area to see me as I

> provided adequate treatment for their children. Now I don't. Any ideas?

> TIA

>

> Lonna

[Guest guest]

My son was in EI from age nine months until age three in Massachusetts. They

have a law there that all insurances MUST pay for EI and so even though we were

billed it was a mistake and they did pay the EI. At age two my son got one hour

of indiv. OT/week and about four hours of ot/speech in a small class of

six/eight two year olds every week. I can't remember if he got one or two hours

a week of speech....but the excellent therapist came to the house and he loved

it. this schedule ran right through the year and did not go on the school

schedule.

hope this helps. I do not believe you are asking for too much when you tell the

boss that the children need way more than what they are providing. EI is family

oriented and should be....most parents want to do what the therapists ask and

try to do that....but zero to three is the fastest rate of growth that us human

beings have....and a therapist should be there at LEAST every week to make sure

that the challenges/exercises/activities are appropriate and on target for that

child. Maybe your boss is thinking about those rare instances when the parent

doesn't follow through and incorporate the activities into daily life and

expects the therapist to " cure " the child without doing their part. What

changed in the last ten years of you working there? did the person in charge

change? Carol

[Guest guest]

That type of therapy is not appropriate for children with apraxia. In EI my

daughter started out with 3X a week one on one speech and after 6 months we

argued for an increase to 5X given the severity of her apraxia and got it.

It will probably take having parents of children to fight the

appropriateness of the therapy - clearly a couple times a week is not and

there is a lot of documentation on it.

These kids need frequent one-on-one therapy by a good therapist. Thanks for

being such a wonderful SLP and being concerned about our kids. You may have

to try to help behind the lines so to speak by educating parents on hwat

they should fight for and keeping your name out of it to keep your job.

[Guest guest]

Hi Lonna and welcome!

First I just want to say -you are the type of therapist we LOVE!!

I know that EI does vary through the state guidelines. In NY for

example a child can receive ABA therapy 40 hours a week, or as much

as they require, where in NJ children with the same needs have

parents who have to refinance their houses to pay for therapy since

they receive no where as much therapy through the state 0-3 program.

For 0-3 Early Intervention in NJ Tanner received only one hour a week of

speech from Zimet CCC SLP (who is now an EI therapist in

Georgia) because:

A. I didn't know he needed OT

B. I didn't know he was entitled to more than an hour a week of ST!

In addition he only had the 0-3 EI for about 6 weeks (6 hours) because nobody

told us that Tanner was entitled to it. Most (including the pediatrician at

that time) said he was " just " a late talker and give him time.

We had Tanner in private therapy too at that point.

I'm copying on this email -she's a member of this group but

like most may not get to read every post. I also did the same for

my co author of The Late Talker Marilyn Agin MD since she is NYC's

Medical Director for EI.

I can give you some suggestions as a parent that may help.

Parents can help you to advocate -they can't fire us even if they

wish they could. All the information I've posted for others about

laws protecting the children's rights, reading The Late Talker book

they can know about.

You can give suggestions too. I've had now two teachers say to

me " Please don't tell them I'm telling you this or I can get into a

lot of trouble " and they have told me what to say -and how, when.

You are not the first SLP to complain about this -and this is

something that the media would be interested in. In NYC there was

one TV news director who wanted this SLP from NJ EI to come forward

to talk about a similar problem on the news. Like you -he knew

however that his job would be at stake.

With groups like this together we can help you to help our

children. Once a month! -They'd be better off buying them all a copy

of The Late Talker! (but then they'd know they would have a real

problem on their hands -educated parents who know how to advocate!)

http://www.speech-express.com/late.talker.html

We'd love to hear more from you!

=====

[Guest guest]

Lonna~

Keep pushing for more visits!! We live in Wisconsin and our son is

now receiving 1 speech hv a week for an hour and 2 OT home visits a

week, each for an hour also (all through our 0-3 program). Our

program's perception must be different from yours as our son does not

have any 'general' visits from a special ed teacher or the 0-3

program, just the 3 tx visits a week which are contracted out through

a different organization.

Best of luck to you! Your heart is in the right place; keep

advocating for those kiddos!

~Tracey

> I am a lurker to this group and this is the first time I have a

question to

> ask. I am an SLP in Wisconsin providing services for the 0-3

program. I am

> wondering how many therapy sessions a month your children received

or are

> receiving. I am a contract employee to this program. The program

director

> is insisting that the premise for 0-3 is " family centered "

not " therapy

> centered " in her eyes meaning we are only there to consult usually

one time

> a month. My job has been put on the line from MY boss. If I can't

provide

> treatment the way the director wants, then he will find a therapist

who can.

> I am in the full belief that parents have a huge amount of stuff to

go

> through without having to be totally responsible for their child's

speech

> language program especially those little ones with verbal apraxia.

I am

> only allowed now to see those children two times a month. Oh wow

big help.

> And of course am seeing no progress. Kids don't even want to work

with me

> much as they don't know me. Sorry if I sound so negative, but

given the

> situation currently happening I am extremely frustrated and need

some

> feedback from parents in other locations. I know parents have huge

rights

> to get therapy for their children, but what about therapists who

want to

> fight the budget issue which ultimately this is. I didn't have

this problem

> until a year ago, and now it is getting even worse. I have been a

0-3

> therapist for 10 years and HAD people returning to our area to see

me as I

> provided adequate treatment for their children. Now I don't. Any

ideas?

> TIA

>

> Lonna

[Guest guest]

Hi Lonna,

Unfortunately, individual states have the ability to interpret IDEA

and federal EI regulations. That is why there is variability in

services across the country. I understand your frustration with the

cut in services. There have been budget cuts in municipalities

across the states that have affected EI services tremendously. What

I would advise the families you serve is to go to mediation and if

necessary an impartial hearing to fight for more services if their

young children have complex developmental disabilities.

Best,

Marilyn Agin, MD

Neurodevelopmental Pediatrician

Medical Director

New York City Early Intervention

> I am a lurker to this group and this is the first time I have a

question to

> ask. I am an SLP in Wisconsin providing services for the 0-3

program. I am

> wondering how many therapy sessions a month your children received

or are

> receiving. I am a contract employee to this program. The program

director

> is insisting that the premise for 0-3 is " family centered "

not " therapy

> centered " in her eyes meaning we are only there to consult

usually one time

> a month. My job has been put on the line from MY boss. If I

can't provide

> treatment the way the director wants, then he will find a

therapist who can.

> I am in the full belief that parents have a huge amount of stuff

to go

> through without having to be totally responsible for their child's

speech

> language program especially those little ones with verbal

apraxia. I am

> only allowed now to see those children two times a month. Oh wow

big help.

> And of course am seeing no progress. Kids don't even want to work

with me

> much as they don't know me. Sorry if I sound so negative, but

given the

> situation currently happening I am extremely frustrated and need

some

> feedback from parents in other locations. I know parents have

huge rights

> to get therapy for their children, but what about therapists who

want to

> fight the budget issue which ultimately this is. I didn't have

this problem

> until a year ago, and now it is getting even worse. I have been a

0-3

> therapist for 10 years and HAD people returning to our area to see

me as I

> provided adequate treatment for their children. Now I don't. Any

ideas?

> TIA

>

> Lonna

[Guest guest]

i do remember seeing a post that was doubtful of the nids protocol and there

was discussion about it. someone answered and said that dr g isnt the " only

gig in town " .

i personally dont have a problem if someone doesnt agree with dr g. as a

parent you have to do your own research, etc. and then, based on your child's

particular needs/situation, make a determination as to what course of action

next to take (medically speaking).

we have been on the protocol for a year and a half with slow improvements. i

am ALWAYS looking/listening to what ever else is out there. for instance, i

am seriously considering the tomatis method with my son. i asked dr g and our

pvt speech pathologist who both shruged (sp?) and didnt think it would be

worthwile. however, from all that i have read, and inspite of the comments i

recd, i am leaning more to trying it. i even have an eval scheduled already.

so, in closing, it doesnt bother me if someone doesnt agree with dr g.

bottom line: we all want what's best for our children who are afflicted.

vicki in los angeles

[Guest guest]

Would these be the messages, appearing on the list on 11/07, to which

you refer?

Archive Listing:

19449 Re: some clarification from those further down the path

Hancock hancockslancaster Fri 11/7/2003

19448 Re: Some Clarifications from those further down the path

adhancock hancockslancaster Fri 11/7/2003

19447 Re: Some Clarifications from those further down the path

adhancock hancockslancaster Fri 11/7/2003

[Guest guest]

I agree with this philosophy...We should not censure anyone on this site

unless they are using foul language or being directly rude or insensitive to

another parent. We should hear about the good, bad and ugly with respect to Dr.

G.---because although he has worked miracles he is not GOD...he is a wonderful

MD who is fighting the battle of his life for our kids. Some get better---some

do not. We can learn from the successes and the " failures " and then make

intelligent decisions for ourselves and our children. Freedom of speech should

always be supported---unless it is intentionally hurtful. Yet, to question is

to seek the ultimate truth for oneself. Questioning has helped shape our

country, our culture and our lives. Had someone not questioned the " status quo "

we would still have women with no right to vote and slavery and child labor.

Thank God for those who use a critical mind and a soft heart...

That's my peace..

[Guest guest]

Would these be the messages, appearing on the list on 11/07, to which

you refer?

Archive Listing:

19449 Re: some clarification from those further down the path

Hancock hancockslancaster Fri 11/7/2003

19448 Re: Some Clarifications from those further down the path

adhancock hancockslancaster Fri 11/7/2003

19447 Re: Some Clarifications from those further down the path

adhancock hancockslancaster Fri 11/7/2003

[Guest guest]

To A Hancock and NIDs List,

I do remember reading the message you posted below. Due to being overwhelmed at

the time and computer problems I did not get a chance to respond. I would like

to happily report my younger son is completely indistinguishable now due to Dr G

and a terrific ABA therapist we hired. My son was perfectly fine until about 23

months of age. My older son was diagnosed autistic at age 4 so I was watching my

younger son like a hawk. He was pointing and asking " What's this " at 18 months.

I took a deep sigh, He's going to be fine I thought. My older son never did

these things. At 23/24 months he started regressing, he was using echolalia,

stopped pointing and asking, losing words and banging his head on the floor. I

must say this was the lowest point in my life. I really thought I couldn't go

on. After awhile of utter despair. I realized I already know what to do. I got

on Dr G's waiting list and had our therapist start in. This was last December.

We saw Dr G last February. My younger son is now talking a blue streak, using

his own language, not hyper, sleeps well, is independent, and very happy. He is

now 3 1/2 and just about fine. My older son is more of a challenge. There are

times he is absolutely fine and then there are times we have some major

regression. I know now these times are when his immune system is overloaded. The

last flu bug episode we went through

my son seemed to be handling it pretty well (he used to get major sick) but on

the fifth day of being sick almost all his autistic symptoms returned. We are

getting him back to where he was but it has taken several weeks. I am so

thankful for Dr. G. I get more convinced everyday he has this disorder figured

out. I think anything anyone can do to lighten the load on their children's

immune system will help them. Also to A. Hancock, there are many on this list

who are not patients of Dr G's and some of their regressions should not be

blamed on him. I was always encouraged by the emails from Marcia Hinds and Pat

Koulton. I had saved many of their emails but they are on the old computer and I

don't know how to access them. Their sons are recovered and they are off living

normal lives now I guess because they do not post anymore. I'm sure there are

many others. None of us can know which of our children are going to recover. I

have heard of very severe children recovering and high functioning children not

recovering. Every child is so different and their circumstances are so

different. All I know is that the progress can be minuscule at times but to me

the alternative is far worse. I know this disorder is regressive and to let my

children lose ground permanently is the worst case scenario for me. I think my

younger sons success has been from catching it early. Less damage was done. My

older son went several years before we knew and could finally accept it and find

help (he is 7 now and we started with Dr G at age 5) but I know whatever

improvement he attains will be worth every penny. No matter what age, I think it

is worth it. I do feel Dr G's protocol is a stop gap measure as he has told us,

he is stopping further damage. He is desperately trying to get the research

through that will give him better meds to heal the immune system. Well, I guess

I am writing a book here. I hope this helps, Jerri Gann P.S. I recently went

through our home videos and my older son started exhibiting autistic symptoms at

23/24 months too. I wonder what kind of correlation could be made here. I was

trying to trace anything to vaccinations (my older son was in a research program

and received five-in-one's and was given the MMR twice, I thought for sure this

was the cause) I did not vaccinate my younger son and my older sons symptoms did

not correspond with his shots. So I too believe now like Dr G this is not caused

by vaccinations but they can trigger it. Anyway off I go again.

Message: 16

Date: Tue, 3 Feb 2004 18:24:35 -0800

From: " Hancock " <adhancock@...>

Subject: Re: Re: I have a question

Would these be the messages, appearing on the list on 11/07, to which

you refer?

Archive Listing:

19449 Re: some clarification from those further down the path

Hancock hancockslancaster Fri 11/7/2003

19448 Re: Some Clarifications from those further down the path

adhancock hancockslancaster Fri 11/7/2003

19447 Re: Some Clarifications from those further down the path

adhancock hancockslancaster Fri 11/7/2003