Gall Bladder

[Guest guest]

Has anyone ever heard of or had gall bladder problems as a result of IV

therapy?

My daughter (age 21) is starting this week and our doc is concerned about this

due to her low weight (just under 100 lbs). Is there anything we can do to

support her system holistically during treatment?

Thanks,

Dona

[Guest guest]

Martha,

One of the things my doctor told me was that many have their gall bladder

removed unnecessarily. Once the IV is stopped the crystalization resolves.

My daughter's order is for 4 weeks of IV ceftin, that may be one of the

reasons. I've read that milk thistle, which is a liver detox, works well for

the gall bladder as well, I was wondering if anyone has had any other

experiences.

Dona

[Guest guest]

I also had gall bladder problems in my third or fouth week on rocephin and had

the ultrasound which showed lots of sludge, so had to quit. Then I too went

on claforan which gave me no problems at all. When the claforan treatment was

terminated, I asked for a repeat of the ultrasound and my doc said no need,

you will still have sludge. . . ..not true. . . ..all gone! In Tom Grier's

book, (Lyme, the Lemon of Diseases--actually, a old spiral bound booklet), he

talks about the ways to flush the gall bladder to remove the sludge and keep

it from building. As I recall, it seemed a bit agressive at the time for me

in my condition. I can look it up if interested.

[Guest guest]

Hi Dona,

Lots of people have lost their gall bladders when on IV Rocephin. It

supposedly causes sludging, (whatever that is?) My doc would only allow me

on Rocephin for 4 weeks for this reason, and I was on Claforan after that.

I am not aware of what can be done to avoid this problem, hope someone else

has an answer for you.

Marta

-

>From: GRUNBE@...

>

>Has anyone ever heard of or had gall bladder problems as a result of IV

>therapy?

>

>My daughter (age 21) is starting this week and our doc is concerned about

this

>due to her low weight (just under 100 lbs). Is there anything we can do to

>support her system holistically during treatment?

>

>Thanks,

>

>Dona

>

[Guest guest]

Hi, Sue

I haven't even started Rocephin yet, but it IS imminent, and I figure it

couldn't hurt if you could post this information, if it is readily available

to you, which I can then save just in case......

Just trying to be prepared for anything

In a message dated 11/3/98 9:05:55 PM Eastern Standard Time, Sue929@...

writes:

<< In Tom Grier's book, (Lyme, the Lemon of Diseases--actually, a old spiral

bound booklet), he talks about the ways to flush the gall bladder to remove

the sludge and keep it from building. As I recall, it seemed a bit agressive

at the time for me in my condition. I can look it up if interested. >>

[Guest guest]

Hi Donna --

If you are interested in holistic treatments, I just saw this on the

Lyme Disease Newsgroup sci.med.diseases.lyme:

The New England Journal of Homeopathy has published an entire issue on

Homeopathy and Lyme Disease (Vol 7, No 1). For information call

413-256-5949. The cost is $22.

I haven't tried homeopathy for Lyme yet but I've used it for years on

other things and have found it effective and safe, with no side effects.

Jean

[Guest guest]

In a message dated 11/4/98 10:15:18 AM CST, smott@... writes:

<< Dear Friends: Since I read the posts about gall bladder sludging, now

I'm having some minor discomfort over that region. Power of suggestion?

Or is it that I've just finished 2 weeks on Rocephin IV? >>

When I had my sludging, I had discomfort and shooting pains under the edge of

my right ribcage. I had a bloated feeling with lots of gas and it was tender

to the touch. No surprise, as when I went to the hospital the next day the

ultrasound showed huge pockets of gas around the gallbladder.

[Guest guest]

In a message dated 11/4/98 11:15:20 AM Eastern Standard Time, smott@...

writes:

>

This is taken from Tom Griers Soft Cover Book ('95) called " Lyme Disease

Surviror's Manual. " The Liver & Gallbladder Detox Diet - For 5 days, drink

32 ozs. a day of pure, all natural apple cider. Eat a diet of healthy foods

high in fiber, fruits, and vegetables. On the 5th day, completely empty the

bowel using a laxative and or an enema. After purging the bowel, drink 1/2

cup pure cold pressed unprocessed olive oil. This will cause the softened

stones to be expelled from the gallbladder when it reacts to the olive oil.

Repeat if necessary. Caution: the potential for biliary spasm exists.

I never tried this, but someone asked for this information on cleansing the

gallbladder. It does state that people from Lyme Support Groups have claimed

to have benefited from this without any ill effects.

[Guest guest]

Dear Friends: Since I read the posts about gall bladder sludging, now

I'm having some minor discomfort over that region. Power of suggestion?

Or is it that I've just finished 2 weeks on Rocephin IV?

Lovette

[Guest guest]

im going in for a infusion port tomorrow morning i just cant use picc lines lost

another one today. will let u know how i do tomorrow sue

FIG4159@... wrote:

> From: FIG4159@...

>

> Hi, Sue

> I haven't even started Rocephin yet, but it IS imminent, and I figure it

> couldn't hurt if you could post this information, if it is readily available

> to you, which I can then save just in case......

>

> Just trying to be prepared for anything

>

> In a message dated 11/3/98 9:05:55 PM Eastern Standard Time, Sue929@...

> writes:

>

> << In Tom Grier's book, (Lyme, the Lemon of Diseases--actually, a old spiral

> bound booklet), he talks about the ways to flush the gall bladder to remove

> the sludge and keep it from building. As I recall, it seemed a bit agressive

> at the time for me in my condition. I can look it up if interested. >>

>

> ------------------------------------------------------------------------

>

[Guest guest]

Whatever you do don't let them remove your gallbladder. After you stop the

Rocephan the gallstones will resolve.

Good luck.

Dona

[Guest guest]

Well, it's happened. My doctor thinks I have gallstones after just two

weeks of Rocephin IV. I'm going for an ultrasound and some bloodwork

tomorrow morning. What am I in for folks? What should I let them do or

don't do to me?

On the verge of cracking up...

Lovette

[Guest guest]

In a message dated 11/5/1998 12:09:50 PM Eastern Standard Time,

smott@... writes:

> Well, it's happened. My doctor thinks I have gallstones after just two

> weeks of Rocephin IV. I'm going for an ultrasound and some bloodwork

> tomorrow morning. What am I in for folks? What should I let them do or

> don't do to me?

>

> On the verge of cracking up...

> Lovette

>

>

Hello Lovette:

I think you should go for it and get that gallbladder out.!I had

problems with mine (before finding out I had lyme ) and I was

suffering for weeks....6 to be exact...unable to work too, the pain got to be

quite severe!!!!...even tho the very first Hida Scan I had

showed my gallbladder to be very sluggish. the doctor treating me at the time

miss read the report of the Scan test!!!!!...Finally I could stand

the pain no more and went to a surgeon who LISTENED to me

and operated immediately......three tiny (1 inch) incisions...no big

deal.......you can barely see the scars!! Having the surgery was

in and out.....lazer removal.....and I have been fine since....tho

not perfect....I still have problems with rare episodes of pain

in that region....(but it could be my liver or the remaining ducts) and

usually after Thanksgiving dinner when I pig out on the

stuffing and gravy!!!!!

I believe also that you probably already had those gallstones...two

weeks seems too much to short a time for forming stones.....and

instead using

the Rocephin caused a flare up......

I recommend surgery....but only if you have insurance to cover

it! (Get the lazer version) My mom has refused to have her gallbladder out

(afraid of the surgery!) and has

to suffer time to time and cannot enjoy eating what she loves.

I, on the other hand, can enjoy eating what I like and get all

the Rocephin IV's I need.....(I have had three sessions of

Rocephin IV and NO PROBLEMS WITH that region....or ducts..)

Good Luck whatever you decide!

Fransea

[Guest guest]

In a message dated 11/6/1998 11:50:30 AM Eastern Standard Time,

smott@... writes:

> WELL, I did the ultrasound today, and I don't have gallstones, but I'm

> very tender in the area. So, I'm doing another test this afternoon at

> 3:30 - they inject dye and squeeze it !! AHHH - I just don't know if I

> can do more pain!

>

> Lovette

>

>

Dear Lovette:

Just a followup....the Hida Scan of the gallbladder that I mentioned

previously involves

using dye....but they NEVER squeezed my gallbladder.....with it

so inflammed I might have smacked them if they tried!!!!!

By the time you read this it will be all over.....so I surely hope you

did well!!!! God Bless!!!!!

Fransea

NJ Seashore

[Guest guest]

SEAFRAN731@... wrote:

>

> From: SEAFRAN731@...

>

> In a message dated 11/5/1998 12:09:50 PM Eastern Standard Time,

> smott@... writes:

>

> > Well, it's happened. My doctor thinks I have gallstones after just two

> > weeks of Rocephin IV. I'm going for an ultrasound and some bloodwork

> > tomorrow morning. What am I in for folks? What should I let them do or

> > don't do to me?

> >

> > On the verge of cracking up...

> > Lovette

> >

> >

> Hello Lovette:

> I think you should go for it and get that gallbladder out.!

WELL, I did the ultrasound today, and I don't have gallstones, but I'm

very tender in the area. So, I'm doing another test this afternoon at

3:30 - they inject dye and squeeze it !! AHHH - I just don't know if I

can do more pain!

Lovette

[Guest guest]

SEAFRAN731@... wrote:

>

> From: SEAFRAN731@...

>

> I

> Dear Lovette:

> Just a followup....the Hida Scan of the gallbladder that I mentioned

> previously involves

> using dye....but they NEVER squeezed my gallbladder.....with it

> so inflammed I might have smacked them if they tried!!!!!

>

> By the time you read this it will be all over.....so I surely hope you

> did well!!!! God Bless!!!!!

> Fransea

> NJ Seashore

>

>

Dear Fransea: They did the hepta billiary?? test and I FLUNKED! My

gallbladder had absolutely nothing running through it and I have to talk

to a surgeon on Monday unless I feel worse over the weekend.

Question for the Board: How is this going to impact my Rocephin IV

treatment? I've had 2 weeks of a 6 week course and I have an

appointment at the end of next week with a LLMD [i hope!]. Should I

wait until after the apptment to get the surgery? Should I wait until 4

weeks from now when the IV is done? HELP!!!!!

Lovette

[Guest guest]

In a message dated 11/6/1998 6:10:01 PM Eastern Standard Time,

smott@... writes:

> They did the hepta billiary?? test and I FLUNKED! My

> gallbladder had absolutely nothing running through it and I have to talk

> to a surgeon on Monday unless I feel worse over the weekend.

>

> Question for the Board: How is this going to impact my Rocephin IV

> treatment? I've had 2 weeks of a 6 week course and I have an

> appointment at the end of next week with a LLMD [i hope!]. Should I

> wait until after the apptment to get the surgery? Should I wait until 4

> weeks from now when the IV is done? HELP!!!!!

>

> Lovette

>

>

Hello Lovette:

I am a proponet of having the gallbladder out....but that is a

decision made best between you and your doctor. Depends on

how much pain you are in....I remember when mine was not

functioning properly I was in severe pain...constant like a tooth

ache..but that was me. I have been very happy that I had mine

taken out...but I know there are others who would prefer to

keep their organs! I find that not having my gallbladder enables

me to continue to use Rocephin which I have had good results

with in helping my lyme symptoms. If you did have to have it

out, most likely you would have a short recovery period and then

could resume the IV meds....but I am not positive on that since

my gallbladder came out before I started IV meds....

I sure hope your appt next week is a good one.....discuss it with

him.....and hopefully if he is truly lyme literate...he will know

the best way to go about it....If the pain in the gallbladder

region worsens...then you might need immediate surgery...

Good Luck and God Bless!

Fransea

Living with Lyme is a Crime!@the NJ Seashore!!!!

[Guest guest]

In a message dated 11/13/98 3:43:45 PM Eastern Standard Time, smott@...

writes:

> I had my apptment with a LLMD today. He told me that my gall

> bladder won't get better once it's sludged by the Rocephin IV.

Hi Lovette,

I am not sure that the info that your doc gave you is completely correct. I

was on Rocephin ofr 9 months total. My first ultrasound, about 3 months into

tx, showed sludge in my gallbladder. The followup one was completely clear and

that after maybe a month, and I had continued on the Rocephin.

Marci

[Guest guest]

Hi Group: I had my apptment with a LLMD today. He told me that my gall

bladder won't get better once it's sludged by the Rocephin IV. Further,

since I had a hysterectomy before, I probably can't do laprascopic.

WHAT AM I IN FOR???

BTW, I send my thoughts and prayers out to Marta. I am so sorry she is

sick.

Lovette

[Guest guest]

Well friends, it finally happened - now that I'm on my second round of

IV antibiotics, it finally blew my gall bladder and I had emergency

surgery last week to remove it [luckily, they did it laproscopically].

The funniest part was in the ER when I explained to them, after my

demerol shot, that I was the only one who knew how to do my son's IV and

he needed to drip. After expressing disbelief, they finally allowed my

son into the ER, and he attached himself to my IV pole and started

dripping. Quite a sight!

Then, when I was wheeled up to my room, my son came right along with

me - a twofer! Unfortunately, Zithro makes him rather obnoxious and

started becoming upset that the nurse was interfering with the TV

watching, so I sent him home. He was still dripping, so he left, with

his IV high over his head, acting as his own IV pole - they must have

thought he was escaping!!

Lovette

[Guest guest]

Hi Lovette,

Sorry about the loss of your gall bladder, but it won't be bothering you

anymore which is good. It is terrific that they have improved the surgery

for this, years ago it was an awful painful procedure.

How old is your son, I was trying to get a visual picture of him walking

out of the hospital with his IV hanging up in the air.....not very good

security at that hospital....LOL....must have been a funny sight to see.

Hope you are feeling better.

Hugs,

Marta

>From: " F. Mott " <smott@...>

>

>Well friends, it finally happened - now that I'm on my second round of

>IV antibiotics, it finally blew my gall bladder and I had emergency

>surgery last week to remove it [luckily, they did it laproscopically].

>The funniest part was in the ER when I explained to them, after my

>demerol shot, that I was the only one who knew how to do my son's IV and

>he needed to drip. After expressing disbelief, they finally allowed my

>son into the ER, and he attached himself to my IV pole and started

>dripping. Quite a sight!

> Then, when I was wheeled up to my room, my son came right along with

>me - a twofer! Unfortunately, Zithro makes him rather obnoxious and

>started becoming upset that the nurse was interfering with the TV

>watching, so I sent him home. He was still dripping, so he left, with

>his IV high over his head, acting as his own IV pole - they must have

>thought he was escaping!!

>

>Lovette

>

>

[Guest guest]

J & M McCoy wrote:

>

> From: " J & M McCoy " <mlmccoy@...>

>

> Hi Lovette,

> Sorry about the loss of your gall bladder, but it won't be bothering you

> anymore which is good. It is terrific that they have improved the surgery

> for this, years ago it was an awful painful procedure.

> How old is your son, I was trying to get a visual picture of him walking

> out of the hospital with his IV hanging up in the air.....not very good

> security at that hospital....LOL....must have been a funny sight to see.

> Hope you are feeling better.

> Hugs,

> Marta

>

Dear Marta: He's 13 1/2 - and it was a very funny sight to see!

Lovette

[Guest guest]

Oh Lovette,

I am sorry about your gall bladder, but you gave me a good laugh with your

son.

Connie, MI

[Guest guest]

How are people doing with flagyl?

I have c-diff and have been on flagyl about a week. I do not

feel better.... I was hoping

for a cure .........

Looking forward to your replies....josh

[Guest guest]

I've been on Flagyl 500mg three times a day for about 6 weeks and I can't

tell any difference. I'm not even sure what change would be. I can't

walk very well and I cough all the time. I have Babesia and Lyme and a

positive Tuleremia and I don't really know which causes what or which

Flagyl works on. I have lots of other problems but those top the list.

On Wed, 12 May 1999 16:50:25 -0400 joebur <joebur@...> writes:

>From: joebur <joebur@...>

>

>

> How are people doing with flagyl?

>

> I have c-diff and have been on flagyl about a week. I do not

>feel better.... I was hoping

>for a cure .........

>

>

> Looking forward to your replies....josh

>

>

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