Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Hi Group, a here. I am back. I just wanted to share with you the news that we went forward and obtained new Graphite AFOs for . She and I traveled to San Diego in March and she was fitted and then we returned 3 weeks later to obtain the AFOs. Marmaduke and through Dynamic Bracing made them for her. What a incredible difference they have made for her. She is able to balance, stand with feet together without toppling over, walks with shoulders back, head up and can walk quite fast. Her latest discovery is that she can bend over from the waist and pick things up off the floor without toppling over. I would be happy to answer any questions anyone might have about these. My email address is mikerobertac@.... If I sound familar, it is because I left the group awhile back after dealing with my mothers' terminal illness. The doctors also felt she might have Distal SMA. However, her diagnosis is still a little vague and CMT is certainly still in the realm of possibilities. I cannot impress enough upon the group, what a difference these braces have made in her life, in just the short time she has been wearing them. It is like received a huge shot of self confidence and at age 15(closing in on 16), that is much needed. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Wow a. That is wonderful news, and what an uplifting thing for a teen!!! Congratulations to both of you, and to the people who made it possible. Kat Seattle USA http://www.icewindow.com Quote Link to comment Share on other sites More sharing options...
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