Introduction

[Guest guest]

Hello to All,

I am a new member here. Although not new to CMT by a longshot. I was

diagnosed when I was 8 years old, so CMT and I have become well

acquainted. I recently had my 50th birthday and have been reflecting on what

fear and worry I lived with in my younger days due to doctors 'predictions' on

the course of my CMT. (life in a wheelchair, etc)

None of those 'predictions' have come true for me at all. I am very active and

always have been - I've been swimming for years for both exercise and CMT;I

have a career in publishing; a terrific family; etc. I do not know what 'type'

of CMT I have and it has not been an issue with me. Neither child (I have 2)

has CMT. (They are in college now and doing very well).

I joined this group because it sounded so positive. I am also interested in

forthcoming research on CMT.

For fun, I am learning to play the saxophone in a jazz band; I also do some

volunteer work at the Red Cross.

My main CMT 'problems' are my feet - I've had two surgeries a long time ago,

they went well, and I do not need AFOs, but, I get incredible burning and hot

feet, even in winter. My feet have always done this and I use ice packs on them

in the evenings and also change shoes 2 or 3 times a day.

Thank you for letting me join your group!

Ann