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Re: support group W PA

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Hi All,

I've been away from the list all summer, but have been

keeping up " hit and miss " all along. Aug 30th JD and

Gretchen commented on support groups in the western PA

area. I, too, JD, was working with Krista Hall and

Pat Dreibelbus of CMTA concerning a support group

around the Erie, PA area. I'm not sure how far of a

drive it would be to stown from Erie. I'm

thinking we could help each other out, as we do need

support in this area. If not combining the 2 groups,

we could help each other with ideas. I haven't done

much with my ideas this summer, but I do think it's

time to get back into motion. My next step was to

find a meeting place and make flyers to send out,

which I hope to do this week. Please feel free to

contact me individually via email. And to anyone who

is interested in a group for the Cleveland, Erie,

Buffalo area also feel free to contact me via

email--having actual interested people will motivate

me, and we can all benefit from each others' support

sooner!

Have a good week everyone...

Joyce

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Joyce,

This is the invite flyer for CMTA meeting. I would love to work with

you. Your attendance and any help would be greatly appreciated.

Please contact me.

JD

Western Pennsylvania

CHARCOT-MARIE-TOOTH

SUPPORT GROUP

Crichton Rehabilitation Center

109 Sunray Drive

stown, PA 15905

Saturday, September 21, 2002

1:00 PM

A support group is forming in the stown area to provide

information about CMT disorders, to offer an opportunity for patients

and families to share concerns and advice about living with CMT, and

to feature medical professionals who can answer questions about the

nature of the disorder.

For this first meeting, Ann Lee Beyer, Chairman and President of the

Charcot-Marie-Tooth Association will be the featured speaker. If you

can attend, please contact the organizer, J. D. Griffith. If you

cannot attend this meeting, but would like to be informed of future

meetings, please call, J. D. Griffith. He can be reached at 814-539-

2341 or at 814-288-1954 or by email at JDGriffith@...

Directions to the center from various routes are provided on the back

of this announcement. The center is handicapped accessible.

Refreshments will be served.

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