Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 said " the path to cheerfulness is to sit cheerfully and to act and speak as if cheerfulness were already there. " I have this posted on a mirror and everyday my neice and I recite it first thing together. It has helped us with the bonding process and it is positive. I have been so busy with her, work and activities since becoming her guardian after my sister passed away. But I am still here and just want to say how much I appreciate this group. I especially appreciate all the research posted. I print off everything and give it to my doctor to read and to put in my file. It might not all pertain to how CMT affects me, but I believe educating myself, my doctor and his staff has been helpful for me especially. It has also given me a sense of power OVER CMT as well as hope that so much research is being done throughout the world that someone, some where will come up with new treatments for arrestment. Meanwhile, I continue to work and my employer has given me flex hours, as well as time to work from home, so I can pick my neice up from school and go with her to gymnastics and her ballet class. She has grown up so much and seems to have adapted well to our life together. Once a week we plan a 'special day' for us - maybe it is a trip to the zoo, or the museum to see dinosaurs...or maybe just something simple as going out for a fancy tea. Sudden parenthood has changed me totally, and for the better; I was so nervous about this to start. She is the greatest teacher about 'relationships' I think I will ever have. Emiley Quote Link to comment Share on other sites More sharing options...
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